Re: Gluten Free, Casein Free

May 15, 2006

I'm having somewhat the same problem. Can't figure whether it's casein or not and can't find any web sites that confront casein, except the ones for autism. I've been gluten free for 5 years and was doing well until recently. Now I'm losing weight again and have the same intolerance symptoms. This is an entirely gluten free house so I don't think it's contamination. But I do, once in a while, have a small dish of ice cream and had sour cream and chives on a baked potato yesterday and the problem is back. Wish I could, also, find a web site to explain about casein sensitivity. Shirley in San DiegoDaranick wrote: Long story short, I was diagnosed with celiac at the start of March. I had tested with Enterolab also, and at that time it was determined that I had a problem with

casein too. Now, I ignored the casein situation to deal with the celiac problem (my bad). Now I must remove casein too, I am still having lingering issues that I cannot ignore. Just a few questions for you smarties out there......is casein something that might be tolerated in the future, once I am more healed? Or is that just lactose? I cannot remember from previous posts. Also I have been searching for info/support for the gfcf lifestyle on the web - all I come up with is autism sites, mostly for parents of autistic children. I just want some adult support/suggestions for adults (me). Can anyone point me in a direction? Any other helpful hints or tips for a person who is kicking and screaming while she removes the casein? You all have been so helpful to me in the past. Thanks for all the support.Dara in Massachusetts.

May 15, 2006

I'm having somewhat the same problem. Can't figure whether it's casein or not and can't find any web sites that confront casein, except the ones for autism. I've been gluten free for 5 years and was doing well until recently. Now I'm losing weight again and have the same intolerance symptoms. This is an entirely gluten free house so I don't think it's contamination. But I do, once in a while, have a small dish of ice cream and had sour cream and chives on a baked potato yesterday and the problem is back. Wish I could, also, find a web site to explain about casein sensitivity. Shirley in San DiegoDaranick wrote: Long story short, I was diagnosed with celiac at the start of March. I had tested with Enterolab also, and at that time it was determined that I had a problem with

casein too. Now, I ignored the casein situation to deal with the celiac problem (my bad). Now I must remove casein too, I am still having lingering issues that I cannot ignore. Just a few questions for you smarties out there......is casein something that might be tolerated in the future, once I am more healed? Or is that just lactose? I cannot remember from previous posts. Also I have been searching for info/support for the gfcf lifestyle on the web - all I come up with is autism sites, mostly for parents of autistic children. I just want some adult support/suggestions for adults (me). Can anyone point me in a direction? Any other helpful hints or tips for a person who is kicking and screaming while she removes the casein? You all have been so helpful to me in the past. Thanks for all the support.Dara in Massachusetts.

May 15, 2006

I'm having somewhat the same problem. Can't figure whether it's casein or not and can't find any web sites that confront casein, except the ones for autism. I've been gluten free for 5 years and was doing well until recently. Now I'm losing weight again and have the same intolerance symptoms. This is an entirely gluten free house so I don't think it's contamination. But I do, once in a while, have a small dish of ice cream and had sour cream and chives on a baked potato yesterday and the problem is back. Wish I could, also, find a web site to explain about casein sensitivity. Shirley in San DiegoDaranick wrote: Long story short, I was diagnosed with celiac at the start of March. I had tested with Enterolab also, and at that time it was determined that I had a problem with

casein too. Now, I ignored the casein situation to deal with the celiac problem (my bad). Now I must remove casein too, I am still having lingering issues that I cannot ignore. Just a few questions for you smarties out there......is casein something that might be tolerated in the future, once I am more healed? Or is that just lactose? I cannot remember from previous posts. Also I have been searching for info/support for the gfcf lifestyle on the web - all I come up with is autism sites, mostly for parents of autistic children. I just want some adult support/suggestions for adults (me). Can anyone point me in a direction? Any other helpful hints or tips for a person who is kicking and screaming while she removes the casein? You all have been so helpful to me in the past. Thanks for all the support.Dara in Massachusetts.

May 15, 2006

I resisted excluding the dairy also. Sigh.

You might be able to reintroduce it in the future, but it seems to be one of

the more persistent intolerances. Give yourself a good long time without it.

I agree that it’s hard to find gfcf

resources online outside of the autism community. I like Carol Fenster’s “Cooking

Free” cookbook and I also like the magazine “Living Without”.

I like almond milk better than soy or rice for substituting, although I like

the Silk creamer for coffee (which I’ve also just given up).

For me, it’s better to just avoid

anything that “should” be dairy. I’m not trying to find a

non-dairy ice cream right now. Or palatable cheese. I’m trying to spoil

myself with the fresh stuff coming into season instead: we’re having lots

of blueberries and strawberries, for instance. And smoothies. (my son just had

one with strawberry/raspberry juice, frozen raspberries, chocolate chips and protein

powder—to die for)

My doctor wants me to start a cleansing

diet anyway, which is exclusively fruits, veggies and meat—no grains at

all nor dairy, sugar, caffeine, alcohol. That should fix me but good!

Good luck.

Laurie

lbilyeu@...

From:

SillyYaks [mailto:SillyYaks ] On Behalf Of Daranick

Sent: Monday, May 15, 2006 9:05 AM

To: SillyYaks

Subject: Gluten Free,

Casein Free

Long story short, I was diagnosed with celiac at the start of March. I

had tested with Enterolab also, and at that time it was determined

that I had a problem with casein too. Now, I ignored the casein

situation to deal with the celiac problem (my bad). Now I must remove

casein too, I am still having lingering issues that I cannot ignore.

Just a few questions for you smarties out there......is casein

something that might be tolerated in the future, once I am more

healed? Or is that just lactose? I cannot remember from previous

posts. Also I have been searching for info/support for the gfcf

lifestyle on the web - all I come up with is autism sites, mostly for

parents of autistic children. I just want some adult

support/suggestions for adults (me). Can anyone point me in a

direction? Any other helpful hints or tips for a person who is kicking

and screaming while she removes the casein?

You all have been so helpful to me in the past. Thanks for all the

support.

Dara in Massachusetts.

May 15, 2006

one site:

http://www.glutenfreeforum.com/index.php?

act=Search & CODE=simpleresults & sid=08089d8f78766af850d05d76f8d2326e & hi

ghlite=casein

You can do a google search and use parameters like this:

casein gluten -autism -autistic IBS

When you put a - in front of a word it excludes sites that have it.

As far as kicking and screaming - I would come up with some

alternatives that are yummy. Full fat coconut milk is yummy in

baking and in coffee. If you are allergic to casein you can make

ghee by clarifying butter - this removes the casein - and the butter

is different tasting but still good on vegetables. Cheese is the

kicker, of course. There aren't very good alternatives, at least in

my opinion.

Also I have been searching for info/support for the gfcf

> lifestyle on the web - all I come up with is autism sites, mostly

for

> parents of autistic children. I just want some adult

> support/suggestions for adults (me). Can anyone point me in a

> direction? Any other helpful hints or tips for a person who is

kicking

> and screaming while she removes the casein?

May 15, 2006

:

Thanks for the great tips to search with, didn't know about the " - "

before the words. If I find another good site I will post it.

Can you give me the " how to " on ghee? Sounds intriguing, and the

thought of not having to remove butter entirely is heartening.

thanks for your help

Dara

> Also I have been searching for info/support for the gfcf

> > lifestyle on the web - all I come up with is autism sites,

mostly

> for

> > parents of autistic children. I just want some adult

> > support/suggestions for adults (me). Can anyone point me in a

> > direction? Any other helpful hints or tips for a person who is

> kicking

> > and screaming while she removes the casein?

>

May 15, 2006

Just a quick note: if you are REALLY sensitive to casein don't use ghee.

My son has reacted to ghee before, I "personally" don't believe that one can get ALL the milk protein ( casein) out, so ... if you are VERY sensitive, I would not recommend it.

I have called Purity Farm's and even they can't guarantee 100% casein free.

Just my 2 cents,

Marisol.

----- Original Message -----

From: LJL

If you are allergic to casein you can make ghee by clarifying butter - this removes the casein - and the butter is different tasting but still good on vegetables.

May 15, 2006

http://www.food-india.com/ingredients/i001_i025/i007.htm

>

> :

> Thanks for the great tips to search with, didn't know about the " - "

> before the words. If I find another good site I will post it.

>

> Can you give me the " how to " on ghee? Sounds intriguing, and the

> thought of not having to remove butter entirely is heartening.

>

> thanks for your help

> Dara

May 15, 2006

Butter by the way is already low in casein.

> > Also I have been searching for info/support for the gfcf

> > > lifestyle on the web - all I come up with is autism sites,

> mostly

> > for

> > > parents of autistic children. I just want some adult

> > > support/suggestions for adults (me). Can anyone point me in a

> > > direction? Any other helpful hints or tips for a person who is

> > kicking

> > > and screaming while she removes the casein?

> >

>

May 15, 2006

Dara,I also was GF before I went CF as well. For about 8 months or so. My symptoms to thedairy were arthritis, constipation and generalinflammation (similar to my gluten symptoms).And I'm feeling you on only being able to findautism info! I was also tested by enterolab. I don't thinkeverything enterolab does make the firm come offas a conventional reputable institution, butI can tell from the way I feel that my resultswere correct. I also did a complete elimination diet and was able to tell quiteeasily from that.I emailed Dr. Fine of enterolab about whethercasein intolerance is permanent and he said yes.So I've resolved not to eat it. (But firstI had some vanilla icecream for the first time,mostly because I never gave myself a propergoodbye to gluten).Here is what I wish I knew off the bat aboutbeing CF:- Lactose free is not CF and in fact MANY

lactosefree products contain casein.- This soy ice cream is so good my gluten anddairy eating bf endorses ithttp://www.turtlemountain.com/products/purely_decadent.html- I really like Whole Soy & Co yogurt and yogurt smoothies- Haven't found "cheese" worth eating and becareful - many are only lactose free- I miss cheese sometimes, but feeling betteris SO worth it, and I am very sensitiveto the slightest contamination.Warmly,Ciara

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May 18, 2006

I had temporary problem with casein for about a year or year and a

half: whenever I had any, I would lose my voice and I even got

pneumonia once, although it's possible that was coincidence. After a

year or two, I went back to yogurt and was fine. I was lactose

intolerant before and after celiac, and that didn't change either way.

I keep kosher, so taking dairy out of diet was pretty easy since

that's already a pre-defined category in my diet, so I can't help you

with that other than refer you to cookbooks or foods which are made to

be kosher since any meat or pareve (pareve means neither dairy nor

meat) dishes will not contain dairy. From my non-dairy days, though,

I still have a very strong taste for Soy Delight ice cream and many

sorbets: I sometimes prefer them to dairy ice cream b/c of the

lighter flavor. I got an ice cream maker recently and I have a strong

hankering to make soy milk ice cream.

Janet

> Long story short, I was diagnosed with celiac at the start of March. I

> had tested with Enterolab also, and at that time it was determined

> that I had a problem with casein too. Now, I ignored the casein

> situation to deal with the celiac problem (my bad). Now I must remove

> casein too, I am still having lingering issues that I cannot ignore.

>

> Just a few questions for you smarties out there......is casein

> something that might be tolerated in the future, once I am more

> healed? Or is that just lactose? I cannot remember from previous

> posts. Also I have been searching for info/support for the gfcf

> lifestyle on the web - all I come up with is autism sites, mostly for

> parents of autistic children. I just want some adult

> support/suggestions for adults (me). Can anyone point me in a

> direction? Any other helpful hints or tips for a person who is kicking

> and screaming while she removes the casein?

>

> You all have been so helpful to me in the past. Thanks for all the

> support.

> Dara in Massachusetts.

>

May 18, 2006