Re: need advice for treatment

[Guest guest]

Sorry I can't be of much help but from reading the boards it sounds

like most doctors put the child back in cast if they need time for

blisters ect to heal. If you are worried maybe you could request

this. I am unfamiliar with the French method except to know it is

some kind of stretching. Hope others have more help for you.

Tori 1/30/04 bilateral atypical cf

12/7/04 no cf

[Guest guest]

,

Can I ask who your dr. is? I do not personally have experience with

the bad bad blister situation, but I know others have and I believe

some of the children were recasted while the blister healed. I am

sure they will reply. Also, the bar should be the width of Gabe's

shoulders. Is it maybe too small? I am keeping an eye out for

someone who is being treated by our dr. in Atlanta as well, so wanted

to check with you.

Louisa and Zoe 2-22-04

Rt Uni CF

> My son Gabe was born o 12/28/03 with left clubfoot with moderate

severity.

> We started the serial casting and manipulation at 8 days old with

our Dr who

> is trained in the Ponsetti Method. We had our heel cord tenotomy

in the the

> middle of April. Three weeks ago we got our first Denis Browne bar

and

> shoes. My son absolutely hated this. A week later we found out

that the

> shoes fit poorly and I ended up going to another orthototist to get

fitted.

> He ended with up a shoe 3 x smaller on his left foot!

unfortunately he was

> even more miserable with his new brace. He fought it constantly

and he

> developed a blister on his left heel despite the extra padding. I

was

> instructed by the dr to leave brace off for a week and perform the

french

> method in the meantime. We went back to the dr this week and his

heel still

> hasn't healed so he said to continue the french method for two more

weeks so

> the the heel can heal properly (it had developed an ulcerated area

on it. I

> have been constantly bending and stretching his foot and it

actually is more

> limber than ever, but I am so nervous about him not being in his

brace for

> so long. I know the heel has to heal or it could get worse. I

have talked

> frequently to the orthototist and he is getting a narrow heel shoe

for when

> Gabe can start wearing his brace again. I fear regression in his

foot. Has

> anyone else had this much trouble?

>

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[Guest guest]

Wow! your story sounds so much like ours. My daughter was born on 3/9/04

with a LCF. She had 7 casts and then went to the DBB. The first shoes were

awful and too small. The width of the bar was too short and she was miserable.

She developed a blister by the 3rd day. She was then put in a healing cast

for one week until the new shoes and bar could get here. Well, that was 2 weeks

ago and the sore is back...maybe it never completely healed. We went to the

doctor today, I thought she needed a healing cast. The doctor said that she

did not need a cast because her foot was so corrected. He taught us stretching

exercises and said to do them 10 times/hr while we were awake and to put her

brace back on when the sore healed. I questioned him about the need for a

healing cast but he insisted that it was not necessary this time. I don't know

if your situation is the same, but I am guessing that your doctor felt that

your baby's foot is holding correction well enough and is loose enough that it

will be okay to use the French method until the sore has healed.

Freeman

Kaitlin Freeman 3/9/04 LCF