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Hello!

Our 22 month old son had surgery on Friday at the hands of Dr. Herzenberg.

Bottom line- we found out that is missing his deep pereonal nerve. Never

developed. The muscles around it are dead- b/c there is no nerve to keep them

alive. They think this is the cause of his clubfoot as well. From what I have

heard this is very very rare. Possible..but rare. We need to meet with a

neurosurgeon who specializes in nerve damage. I thought it was a long shot- but

can anyone help me? I am looking for a good doc- but who? His legs are also

growing at two different rates- the foot, the calf and the leg length are

different from his good foot. I am feeling so overwhelmed.

On another note- we stayed at the Hackerman-Patz house in Baltimore. It just

opened 3 weeks ago. I have all the info on it and will fill you guys in. It is

a great place for people to stay who travel to see Dr. Herzenberg.

Thanks!

Nolfo

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