Guest guest Posted January 13, 2006 Report Share Posted January 13, 2006 , I know you have gotten some wonderful responses, and what you have written doesn't totally sound like what we went through. But our journey was soooooo long and so difficult, and I had wished for an answer for so long, I just thought I might share this. I have two daughters that where born profoundly hearing impaired. They are about sixteen months apart, and as different as night and day. The oldest, is now 13. was ( and is sometimes still ) the most complicated child I have ever meet. She was diagnosed at about 8 month, and aided appropriately at about 11 months. We began our journey with AV as soon as she was aided. The word stubborn, and went hand and hand from those very early years. She would work well with me at home, but sitting with the AV therapist not one single noise. I got a part time job and thought exposure to other kids would help, so off to day care she went for a year and a half. Not one single word, squeak or squawk was udered during that whole year and a half. When I picked her she would tell me about her day, and she didn't seem unhappy to be there. Then began school...again all day nothing, except at recess with her friends. If she was asked a question she would sometimes whisper very quietly, but it was slow, and selective to whom she would do that. I felt crazy, and I am sure more than one person thought I was, as we shared often how well she was doing language wise at home...but she showed no proof. Once we had scheduled her to have an IQ test. I requested it be someone with AV knowledge, and so they had to bring someone in. We invited him to come to our home on Sunday for dinner, the day before he was to go to school and test her. In our home in saw a comfortable child, who interacted with her family and peers, and was doing well. The following day she meet him and school and getting anything was like pulling teeth. He came back with the answer I had prayed for...for years. " Selective, or elective mutism " I jumped on line and read everything I could, and there was my child. After being told for so many year that she was just stubborn, or trying to control everyone etc, I was so thankful to find a tangible reason. is very very smart, and slowly what we learned was that she didn't want to stand out, or be different, or not be right. To this day unless she is sure her answer is right she still will answer in nothing more than a mumble, but some social behavioral therapy, and other ways to help build her self esteem have helped greatly. Again, I know your situation doesn't sound exactly like this...but after struggling to find an answer for so long, I just wanted to share the information. Ci 8/99 Holly Ci 12/99 anyone's child very quiet/shy at preschool? any suggestions? My son Sam is 4.5 years old, and in an integrated special needs preschool. Sam has a profound loss in one ear, and a mild-severe sloping loss in the other. His better ear is aided. Sam's teachers and speech therapist are great, and he sees a TOD once per week as well as taking AVT at the Unversity of Akron with Dr. Wray, Carol Flexer (she's retiring) and their students. I think he's doing very well, though his articulation is still quite poor. He can isolate and make an /f/, /th/, /s/ and /sh/ sound, but doesn't really use them in his conversational speech. He has to stop, think about it, and then very akwardly attaches those sounds to words. For example, if he wants a snack, he'll say, " I want a nack pea " If you ask him to repeat with the /s/ and /l/ sound, he'll say, " I want a ssssss-nack puh-leee-ssssss " The most difficult thing right now is that Sam is oh-so-quiet in preschool. Does anyone else experience this with their deaf/hoh child? In free play time, he chats up a storm with his friends and is often the leader of the pack. But in circle time, when it is his turn to be in the spotlight and answer a question, he freezes. He'll answer, but generally only when prompted, very quietly and in 1-2 word phrases. It's driving us all crazy because this child can do SO much (he's identifying all his letters and knows the sounds they make!). In a relaxed, unstructured environment, he's a mini-Jim Carrey (okay, don't know if that's bad or good ;-). Sam has always been shy and quiet in loud or intimidating settings - in his element, he warms up in no time. I'm not sure if we are looking at a temperment issue, a hearing issue or an anxiety issue or something else. He has said that it scares and worries him to talk loud at school. I really don't know what to make of that. Thanks for any insight! Mom to Gabe, age 7, and Sam, 4 (HOH) All messages posted to this list are private and confidential. Each post is the intellectual property of the author and therefore subject to copyright restrictions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2006 Report Share Posted January 13, 2006 , I couldn't agree more with what has written. It's so easy to think that everything they do is somehow related to their hearing loss, but that isn't always the case. I know that several parents here have share the stories of their shy kids. Your son sounds so much like my niece. She's doesn't have a hearing loss, but is " painfully shy " in front of people that she doesn't know. Small groups of her peers are fine. At home she is never quiet. But while at my sister's wedding shower whenever she was asked a questions she would just look at her mom. Thankfully she was sitting next to her cousin who never stops talking (my daughter with the hearing loss) and she would answer for her. Debbie, mom to , 6, moderate SNHL and , 3, hearing I have 4 children, 3 in high school and one older. One is HOH. It seems like you and all of your son's teachers are doing everything right, but maybe there is no issue and he just doesn't want to speak in groups yet. What I mean is, our HOH kids are kids first. They're shy, noisy, active, passive, and every combination. When your son is comfortable, he'll talk. Maybe he needs time to find this part of himself. At 4 i/2, he has time. Some men see things as they are and ask why. Others dream things that never were and ask why not. G.B Shaw --------------------------------- Yahoo! Photos Ring in the New Year with Photo Calendars. Add photos, events, holidays, whatever. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2006 Report Share Posted January 13, 2006 , I couldn't agree more with what has written. It's so easy to think that everything they do is somehow related to their hearing loss, but that isn't always the case. I know that several parents here have share the stories of their shy kids. Your son sounds so much like my niece. She's doesn't have a hearing loss, but is " painfully shy " in front of people that she doesn't know. Small groups of her peers are fine. At home she is never quiet. But while at my sister's wedding shower whenever she was asked a questions she would just look at her mom. Thankfully she was sitting next to her cousin who never stops talking (my daughter with the hearing loss) and she would answer for her. Debbie, mom to , 6, moderate SNHL and , 3, hearing I have 4 children, 3 in high school and one older. One is HOH. It seems like you and all of your son's teachers are doing everything right, but maybe there is no issue and he just doesn't want to speak in groups yet. What I mean is, our HOH kids are kids first. They're shy, noisy, active, passive, and every combination. When your son is comfortable, he'll talk. Maybe he needs time to find this part of himself. At 4 i/2, he has time. Some men see things as they are and ask why. Others dream things that never were and ask why not. G.B Shaw --------------------------------- Yahoo! Photos Ring in the New Year with Photo Calendars. Add photos, events, holidays, whatever. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2006 Report Share Posted January 14, 2006 I agree with what says here too - it's so interesting having two boys with hearing loss and how different the two of them are! Tom's very outgoing - he was in the school play last night! - Sam I think would rather have his fingernails removed first! So much is who we are as people. Someone I think said that our kids are kids first - so true. Barbara Deb DiAnni wrote: > , > I couldn't agree more with what has written. It's so easy to think that everything they do is somehow related to their hearing loss, but that isn't always the case. I know that several parents here have share the stories of their shy kids. > Your son sounds so much like my niece. She's doesn't have a hearing loss, but is " painfully shy " in front of people that she doesn't know. Small groups of her peers are fine. At home she is never quiet. But while at my sister's wedding shower whenever she was asked a questions she would just look at her mom. Thankfully she was sitting next to her cousin who never stops talking (my daughter with the hearing loss) and she would answer for her. > > Debbie, mom to , 6, moderate SNHL and , 3, hearing > > > > > >I have 4 children, 3 in high school and one older. One is HOH. It seems like you and all of your son's teachers are doing everything right, but maybe there is no issue and he just doesn't want to speak in groups yet. What I mean is, our HOH kids are kids first. They're shy, noisy, active, passive, and every combination. When your son is comfortable, he'll talk. Maybe he needs time to find this part of himself. At 4 i/2, he has time. > > > > > > > >Some men see things as they are and ask why. Others dream things that never were and ask why not. G.B Shaw > > > > > > > >--------------------------------- >Yahoo! Photos > Ring in the New Year with Photo Calendars. Add photos, events, holidays, whatever. > > Quote Link to comment Share on other sites More sharing options...
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