weight differences

January 25, 2003

Hi everyone!

went back to the clinic for his first check-ups since he's been

home. One week today, and counting! His cardio gave him a clean bill of

health, and we met his new endo, a Dr , for the first time. She says that

his growth velocity is good, but she was using ped care clinic weights to

determine this.

Here's my concern. At the clinic, B weighed 5.04kg or 11# 1oz. None of the

Drs, at the Clinic, were willing to give B his first Synergis vaccine, so we

stopped at his peds office, on the way home. Because the vaccine dosage is

determined by weight, his ped. re-weighed him on her scale. (This is the scale

that we have been using for " official " weigh-ins.) There, he only weighed

4.606kg, or 10# 2oz. There is always a difference between scales, but an entire

pound? His med dosages are being determined by his weight, as is his growth

velocity, and this makes a big difference!

The 10# 2oz weight actually makes more sense to me. For 5 weeks, had

been on and off his feeds, but never at his usual rate, always lower, and

usually by at least half rate. Part of that time he was only getting D10 IV

support, other times he was only getting TPN and lipids. I couldn't understand

how he would gain a pound under these circumstances. Would you inform the Drs,

at the Clinic, about the differences in the weights?

Another concern. This ped endo is willing to give GH a try, even at 13

months of age, but she is only going to do a trial run of 6-8 months. If she

doesn't see significant results, she is going to stop the GH. She says that the

research she has read, indicates that GH IS NOT really useful for RSS kids

because they are usually not GHD. With all of his problems, would be

considered a good candidate for GH at this point? Is he too young? Would the

results be better IF we wait? These are all questions that have popped into my

head after the visit, of course! LOL

Any suggestions or info would be greatly appreciated at this point! Thanks

to all!

Pat (g-ma to B, RSS, 13 months, 10# 2oz, 63cm or 24.75 " )

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