Re: Prayers, good thoughts, etc.

[Guest guest]

Terry

You're in my prayers.

--- mosaicgirl1 mosaicgirl1@...> wrote:

> Dear All,

>

> I am in need of your prayers, good thoughts,

> whatever you can send my

> way. My primary care doctor sent me to s

> Hopkins but does not want

> to follow the recommendations at this point; he is

> being conservative.

> Instead of the lung biopsy, I have to wait three

> months and have

> another chest CT but in the meantime things are

> getting worse. I am

> not being treated, instead I am taking antibiotic

> therapy in the event

> maybe I had undiagnosed Lymes or something along

> that line. My face

> has been drooping and painful all week and my left

> leg is killing me

> and getting weaker. I won't go into all of it but

> those are the two

> worst. Now I am getting one of the horrible

> headaches most of us get.

> I don't know what I would do without the opportunity

> to vent this

> stuff. I am at the end of my rope!!!!!! Don't

> worry, I find someone

> little string to hold on to but if I scream

> something like that out

> loud it scares the dogs. I don't want to do that

> cause they will lay

> in bed all day with me if I need 'em. Well, thanks

> for your patience

> and your ability to listen (read). Thanks for

> everything.

>

> Terri

>

>

>

>

grannylunatic@...

grannylunaticd@...

__________________________________

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[Guest guest]

Rose, Once again thanks for the laugh. It always comes at a time that I really need it. As for dancing naked in front of the dogs, they would probably be the ones screaming. As far as the cranial nerve problems, they all started with the shingles. My eye has never been involved as far as the Bell's is concerned but I do have trigeminal neuralgia and two more cranial nerves involved (don't remember which). s Hopkins feels that I have probably had an abherant regeneration on that side but I feel that all of my problems started when I got sick with shingles. The infectious disease doctor told me that you don't get shingles if you are healthy. Oh well. As far as the PCP, I am going to go by the store and get a cartridge for my printer so that I can download some of the items and take them to him. He really is a good person, but does not think that I can have such a rare disease. He doesn't have to live in my body so when I see him Monday I am going to raise Holy Hades. As far as a neurologist, I also see him Monday. He has not seen me since I went to JH so we have yet to discuss the issue. I would not have the biopsy until my husband came back from Italy anyway, but I am going to insist that the Neuro and PCP get on the phone and get on the ball. I just am not going to stand for this crap anymore. Last night I just had soooooo much pain in my left leg that I was at my wits end.I have so many drug allergies that all I can take is Darvocet and Ativan right now. Most of the drugs like Neurontin, Topamax, etc. make me sick to my stomach.....it really stinks. I even tried some of the drugs for fatigue and I was allergic to the modafinil (provigil) and amantadine gave me insomnia. Yoohoo.I will let you know how my tirade goes on Monday and thanks for always being there to listen. I appreciate your input and everyone else's so very, very much. You keep me laughing and sane.Take care and if I can ever help you let me know.Terri

[Guest guest]

Rose, Once again thanks for the laugh. It always comes at a time that I really need it. As for dancing naked in front of the dogs, they would probably be the ones screaming. As far as the cranial nerve problems, they all started with the shingles. My eye has never been involved as far as the Bell's is concerned but I do have trigeminal neuralgia and two more cranial nerves involved (don't remember which). s Hopkins feels that I have probably had an abherant regeneration on that side but I feel that all of my problems started when I got sick with shingles. The infectious disease doctor told me that you don't get shingles if you are healthy. Oh well. As far as the PCP, I am going to go by the store and get a cartridge for my printer so that I can download some of the items and take them to him. He really is a good person, but does not think that I can have such a rare disease. He doesn't have to live in my body so when I see him Monday I am going to raise Holy Hades. As far as a neurologist, I also see him Monday. He has not seen me since I went to JH so we have yet to discuss the issue. I would not have the biopsy until my husband came back from Italy anyway, but I am going to insist that the Neuro and PCP get on the phone and get on the ball. I just am not going to stand for this crap anymore. Last night I just had soooooo much pain in my left leg that I was at my wits end.I have so many drug allergies that all I can take is Darvocet and Ativan right now. Most of the drugs like Neurontin, Topamax, etc. make me sick to my stomach.....it really stinks. I even tried some of the drugs for fatigue and I was allergic to the modafinil (provigil) and amantadine gave me insomnia. Yoohoo.I will let you know how my tirade goes on Monday and thanks for always being there to listen. I appreciate your input and everyone else's so very, very much. You keep me laughing and sane.Take care and if I can ever help you let me know.Terri

[Guest guest]

Rose, Once again thanks for the laugh. It always comes at a time that I really need it. As for dancing naked in front of the dogs, they would probably be the ones screaming. As far as the cranial nerve problems, they all started with the shingles. My eye has never been involved as far as the Bell's is concerned but I do have trigeminal neuralgia and two more cranial nerves involved (don't remember which). s Hopkins feels that I have probably had an abherant regeneration on that side but I feel that all of my problems started when I got sick with shingles. The infectious disease doctor told me that you don't get shingles if you are healthy. Oh well. As far as the PCP, I am going to go by the store and get a cartridge for my printer so that I can download some of the items and take them to him. He really is a good person, but does not think that I can have such a rare disease. He doesn't have to live in my body so when I see him Monday I am going to raise Holy Hades. As far as a neurologist, I also see him Monday. He has not seen me since I went to JH so we have yet to discuss the issue. I would not have the biopsy until my husband came back from Italy anyway, but I am going to insist that the Neuro and PCP get on the phone and get on the ball. I just am not going to stand for this crap anymore. Last night I just had soooooo much pain in my left leg that I was at my wits end.I have so many drug allergies that all I can take is Darvocet and Ativan right now. Most of the drugs like Neurontin, Topamax, etc. make me sick to my stomach.....it really stinks. I even tried some of the drugs for fatigue and I was allergic to the modafinil (provigil) and amantadine gave me insomnia. Yoohoo.I will let you know how my tirade goes on Monday and thanks for always being there to listen. I appreciate your input and everyone else's so very, very much. You keep me laughing and sane.Take care and if I can ever help you let me know.Terri

[Guest guest]

Rose, I think you will find that I (per my family) find the best in everyone and concentrate on that. It is either my best trait or my worst. Who knows? I spoke with my husband last night and I am going to give both of my doctors the what for on Monday and tell them to get on the ball. Told my husband about your reply bout dancing naked in front of the dogs; bad idea. The poor man has been gone almost three months - uh oh!Talk to you later.Terri

[Guest guest]

Rose, I think you will find that I (per my family) find the best in everyone and concentrate on that. It is either my best trait or my worst. Who knows? I spoke with my husband last night and I am going to give both of my doctors the what for on Monday and tell them to get on the ball. Told my husband about your reply bout dancing naked in front of the dogs; bad idea. The poor man has been gone almost three months - uh oh!Talk to you later.Terri

[Guest guest]

Rose, I think you will find that I (per my family) find the best in everyone and concentrate on that. It is either my best trait or my worst. Who knows? I spoke with my husband last night and I am going to give both of my doctors the what for on Monday and tell them to get on the ball. Told my husband about your reply bout dancing naked in front of the dogs; bad idea. The poor man has been gone almost three months - uh oh!Talk to you later.Terri

[Guest guest]

Ooops, sorry! Try another stressbuster!

Ramblin' Rose

Moderator

Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Re: Prayers, good thoughts, etc.Date: Sat, 12 Nov 2005 14:43:36 -0000

Rose, I think you will find that I (per my family) find the best in everyone and concentrate on that. It is either my best trait or my worst. Who knows? I spoke with my husband last night and I am going to give both of my doctors the what for on Monday and tell them to get on the ball. Told my husband about your reply bout dancing naked in front of the dogs; bad idea. The poor man has been gone almost three months - uh oh!

Talk to you later.

Terri ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

[Guest guest]

I will just not tell him about it if I do it. That way, what he doesn't know won't hurt! Hee, Hee.Terri