Guest guest Posted April 9, 2004 Report Share Posted April 9, 2004 Hi - If his foot has already regressed to the point he is walking on the outside of his foot then you won't be able to put him back in the DBB. He needs to be recasted before he can go back into the DBB to be successful. What part of Texas are you in??? Hopefully, someone can reccomend a Ponesti certified doctor closer to you than going all the way to Iowa since you can't make it that far at this time. > >Reply-To: nosurgery4clubfoot >To: nosurgery4clubfoot >Subject: I need advice!!! >Date: Wed, 7 Apr 2004 21:01:44 -0700 (PDT) > >Hello, > >My son Jayden is a little over 2 years old and has been treated by Dr. >Ponseti. I believe I was there when 's family was there I was staying >in the RMH and we are from Texas. Now I need some advice...my son was >treated and corrected by Dr. P but he has relapsed. He no longer wears the >shoes because Texas Medicaid won't pay for them. I need to know where to >get them from and what I should do. I cannot return to Iowa City for some >time and I need your help. Should I take hime to a Dr. locally to aleast >get some treatment? I have spoken with Dr. P and he sayed that we need to >return right away. But I am unable to do that, because I am a single >mother in college. I just enrolled this semester. Do you know of anyone >who might be able to sell me there used shoes that they have outgrown or >someone who might sell them at a reduced price?! Please feel free to email >me with your thoughts about what I should do about Jayden's feet. >Bodindurd@... is my emial address and > Bodindurd is my yahooID I would love to talk to anyone that might have >some suggestions. Jayden is starting to try and walk and he is walking on >the side of his foot...he really needs those shoes with the DBB to hold the >correction that we once acheived. Dr. P. said Jayden's feet are the most >severe and the most sensitive that he has seen in 50 years. I really need >help! >Thank You-Robin > > Moss karen@...> wrote: >I think 's referring to Parent's Place, > >http://pages.ivillage.com/clubfootboard/ > > > > > Re: custom fit shoes for kids > > " PP Clubfoot board " ? What's that? > custom fit shoes for kids > > > I saw this posted on the PP clubfoot board and thought it would be > helpful to the families here. This company provides custom fit shoes > for kids. I contacted them, and they're willing to sell split sizes > for no additional cost. The prices are about the same or slightly > higher than Stride Rite. The advantages that I see over this > company's shoes versus any others that I've found are that the shoes > are machine washable and scuff resistant, so they should last longer > and look newer, plus they're pretty close to custom fit as they have > inserts for adjustable width. There are no shipping charges for US & > Canada and they claim to have low shipping fees for the rest of the > world. I have not ordered yet, so I cannot vouch for the product, > but I will be ordering some for so she can have a set of shoes > that fit *both* her feet! > Here's the website: http://preschoolians.com/ > Oh, and they also have " special " socks that are supposed to be made > from fibers that help to heat the foot when cold and keep it dry when > warm- might be worth trying for someone with a sweaty foot kid in the > FAB. The shoes are supposed to address the kids' sweaty feet also. > I'd love to hear from anyone if you have experience with this or > similar product! > Thanks, > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2004 Report Share Posted April 9, 2004 Robin, 's right. The shoes will do you no good at this point. He needs to be re-corrected before he wears the shoes again. He won't be able to tolerate them without correction. There are a few people here on this list from TX who can help you I'm sure, one of them travels to see Dr. Dobbs in St. Louis. Maybe that's an option for you. If as you say what Dr. P. says is true - I would really look into getting back to Dr. Ponseti. I actually wouldn't trust a different doctor unless he came with fantastic recommendations from other parents. This sounds like it needs to be taken care of immediately. Have you considered Angel Flights? Isn't there another NP organization that helps with travel for medical issues? What size shoe would Jayden need? I have some 2's that we won't need anymore in a few weeks. So, if his feet are small you're welcome to them. Is he bilateral? If so, I've got a 12 " bar you can have too but it may be too small if he's almost 2. I will be getting a new one that's only bent on one side when we get our new shoes, ours is set for a bilateral child. There has to be some way to get him back to see Dr. P. I understand financial issues - I doubt I could come up with the funds to make the trip but if I was faced with your situation I might call a local TV station or newspaper and tell them your story. I see things like that here all the time. If all you needed was the flight $ there's got to be some charity that can help. hugs, Kori At 09:01 PM 4/7/2004, you wrote: >Hello, > >My son Jayden is a little over 2 years old and has been treated by Dr. >Ponseti. I believe I was there when 's family was there I was staying >in the RMH and we are from Texas. Now I need some advice...my son was >treated and corrected by Dr. P but he has relapsed. He no longer wears >the shoes because Texas Medicaid won't pay for them. I need to know where >to get them from and what I should do. I cannot return to Iowa City for >some time and I need your help. Should I take hime to a Dr. locally to >aleast get some treatment? I have spoken with Dr. P and he sayed that we >need to return right away. But I am unable to do that, because I am a >single mother in college. I just enrolled this semester. Do you know of >anyone who might be able to sell me there used shoes that they have >outgrown or someone who might sell them at a reduced price?! Please feel >free to email me with your thoughts about what I should do about Jayden's >feet. Bodindurd@... is my emial address and > Bodindurd is my yahooID I would love to talk to anyone that might have > some suggestions. Jayden is starting to try and walk and he is walking > on the side of his foot...he really needs those shoes with the DBB to > hold the correction that we once acheived. Dr. P. said Jayden's feet are > the most severe and the most sensitive that he has seen in 50 years. I > really need help! >Thank You-Robin > > Moss karen@...> wrote: >I think 's referring to Parent's Place, > >http://pages.ivillage.com/clubfootboard/ > > > > > Re: custom fit shoes for kids > > " PP Clubfoot board " ? What's that? > custom fit shoes for kids > > > I saw this posted on the PP clubfoot board and thought it would be > helpful to the families here. This company provides custom fit shoes > for kids. I contacted them, and they're willing to sell split sizes > for no additional cost. The prices are about the same or slightly > higher than Stride Rite. The advantages that I see over this > company's shoes versus any others that I've found are that the shoes > are machine washable and scuff resistant, so they should last longer > and look newer, plus they're pretty close to custom fit as they have > inserts for adjustable width. There are no shipping charges for US & > Canada and they claim to have low shipping fees for the rest of the > world. I have not ordered yet, so I cannot vouch for the product, > but I will be ordering some for so she can have a set of shoes > that fit *both* her feet! > Here's the website: http://preschoolians.com/ > Oh, and they also have " special " socks that are supposed to be made > from fibers that help to heat the foot when cold and keep it dry when > warm- might be worth trying for someone with a sweaty foot kid in the > FAB. The shoes are supposed to address the kids' sweaty feet also. > I'd love to hear from anyone if you have experience with this or > similar product! > Thanks, > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2004 Report Share Posted April 9, 2004 Robin, I'm sure lots of people will offer their 2 cents. I'm pretty sure the relapse will need to be corrected before you can put him back in the shoes and bar. What size shoes will you need once his foot is corrected again? I did give some of Zoe's old shoes to her old docs at Children's hospital in DC. If you get treatment at a Shriners, the shoes will probably be free. I can't recall what the treatment options are in Texas. Where in Texas are you? I'm sure someone can give advice about a dr. If I have the size you need, I'm more than willing to give them to you once his foot is corrected. What kind of bar do you have? We've been borrowing the different bars from our shoe store, so I can't offer one to you. Keep me posted. Hope this helps. Joanne W. mom to Zoe (3-25-01, right clubfoot) www.geocities.com/joannewalton2003/clubfootstory.html > I think 's referring to Parent's Place, > > http://pages.ivillage.com/clubfootboard/ > > > > > Re: custom fit shoes for kids > > " PP Clubfoot board " ? What's that? > custom fit shoes for kids > > > I saw this posted on the PP clubfoot board and thought it would be > helpful to the families here. This company provides custom fit shoes > for kids. I contacted them, and they're willing to sell split sizes > for no additional cost. The prices are about the same or slightly > higher than Stride Rite. The advantages that I see over this > company's shoes versus any others that I've found are that the shoes > are machine washable and scuff resistant, so they should last longer > and look newer, plus they're pretty close to custom fit as they have > inserts for adjustable width. There are no shipping charges for US & > Canada and they claim to have low shipping fees for the rest of the > world. I have not ordered yet, so I cannot vouch for the product, > but I will be ordering some for so she can have a set of shoes > that fit *both* her feet! > Here's the website: http://preschoolians.com/ > Oh, and they also have " special " socks that are supposed to be made > from fibers that help to heat the foot when cold and keep it dry when > warm- might be worth trying for someone with a sweaty foot kid in the > FAB. The shoes are supposed to address the kids' sweaty feet also. > I'd love to hear from anyone if you have experience with this or > similar product! > Thanks, > > > > > > Quote Link to comment Share on other sites More sharing options...
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