Guest guest Posted March 30, 2004 Report Share Posted March 30, 2004 Hello Kas. It is so nice of you to be so involved in Peggy's illness. She definitely needs your support now than ever. I was about 22 when I was diagnosed and I was considered lucky to be diagnosed immediately. My symptoms started in August of 1986, that was at the time when I was getting married. My legs started to swell and I was generally tired. I blamed it all on the wedding. By the end of that year I started getting up " stiff " in the morning, but I was 22 and could not be bothered. I have suffered from kidney sand and colic for years before then as well, but it was always treated as a forming stone problem and that was that. By April of 1987 I was in major pain, had a constant low grade fever and a rash formed on my face. Getting up in the morning was painful, my hubby couldn't touch me and actually started sleeping separately being afraid he would hurt me. Even his slightest touch was hurting to me. Due to family history of arthritis, I decided to seek help with a rheumatologist. I lived in Warsaw, Poland at that time and a block away from the Rheumatology Institute. When one of the doctors saw me there she hospitalized me immediately. I was in the hospital for two months with major joint and kidney involvement. That was the first time I heard of the name Lupus. My first few years were very rocky, but then I went into a long lasting remission during which I was able to consider pregnancies. Two were planned, the third one kind of happened (ha). Now I am a mother of three boys 9, almost 7 and 3.5. Almost two years ago I went into a major flare and into renal failure and have since been on cytoxan. As far as your question is concerned. It really varies from person to person on the symptoms they start of with and how soon they are diagnosed. Diagnosis is still not always so easy, therefore some people have the symptoms but not the test results. This is my first message to you. Please forgive me for not answering right away, but you may be aware that you have joined at a very sad time for the group and some of us needed to get our thoughts and our hearts together. Mojo Thanking y'all for welcoming me > Hi all, > > My name is Kasandra, my friends call me Kas, and my life partner > (Peggy) was just diagnosed 3 weeks ago with Lupus. We are trying to > get a handle on what she can and cant do, and where to go from > here. Im 28 and she turned 40 yesterday. Im hoping to get > knowledge from people such as yourselves that deal with this disease > on a daily basis. We have done a lot of research on our own, but as > you all know it helps to hear the truth about this disease from > others with it. I was wondering if some of you can tell me how it > started out for you? How long did you have Lupus symptoms before > you were diagnosed? Were you to the point of degenteration before > you knew, or did it start out with fatigue and achiness or other > slight symptoms? > > Thanks for your time... > > Kas > > > > > > " The LUPIES Store " Come check out our store... > http://www.cafepress.com/thelupies > > " The LUPIES Web Page " > http://www.itzarion.com/lupusgroup.html > > " The LUPIES online photo albums! " > Check out what your fellow Lupies look like... > http://www.picturetrail.com/gallery/view?username=lupies > Quote Link to comment Share on other sites More sharing options...
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