Guest guest Posted July 1, 2002 Report Share Posted July 1, 2002 - Dear Jodi I am so sorry to hear about Max. Please let me know what happens when he goes to see the doctor. Your family has been through enough I hope that it works out. But with all that is going on with you how do you find the time to be sooooo great with others. Please let us know if there is anything we can do for Max or you to help you out. Please tell Max to have a very happy and special birthday. And by the way we have a 4 1/2 foot pool we live in philly., but if every you want to come here you are more then welcome and I have a big home that you can stay here and he can swim his heart out. And that is an open invation for anytime so please someday take me up on it. We would love to have you here. n (madison's grandmom) -- In RSS-Support@y..., " magicrss3 " wrote: > Things with Max are getting worse. We are really worried and tense > around here, which does not help. Today Max was having such bad > tremors that I begged and pleaded with the new doctor to see Max > before July 31. We just cannot wait any longer. > > I'm happy to say that it worked. We have an appointment to see Dr. > Frucht on Wednesday at 10am. I am so excited!!! It's too bad that > things had to get this bad for Max, but at least he will be seen > within 48 hours and maybe we will have something for him to take to > help this condition he has, whatever it is. > > Max will be 14 tomorrow. Please hope and pray that his day is > good. All he wants is to make it through the day at camp so that he > can celebrate with his new friends and be part of the group. He > also wants to swim very badly - something that should be good for > his legs and feet. > > Now I have to go wrap presents. We usually don't wrap the kids' > birthday gifts anymore, but if it makes Max feel special, I'll do it. > > Jodi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2002 Report Share Posted July 1, 2002 Nica I will certainly keep you posted. It has been such a relief to be able to vent to this group and have so many people understand! It is what gets me through the day. Jodi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2002 Report Share Posted July 1, 2002 n, I would love to take you up on your offer someday. Right now, both you and I have two precious children to take care of and get well. Once they are better, we should have a party or something for them. It has been a long, tough road for us all. How are Madison and Chrissy? I don't have her new phone number, so I have not called. When are they going to be going home? I never thought that one visit to Dr. H. would bring so much for Chrissy. Madison is the one being taken care of, so she is okay. I worry that Chrissy is just lost and lonely. I am so happy for the psople on this list who have rallied behind her and gotten her through this. What a great group of people we have here!!! I can't wait to see you all at the convention. It will be one big celebration, right? People will just fall in love with Madison, I just know it. As for how I can take the time to help others, it is what gets me through the day. If I focus on my own " stuff, " then I become sad and depressed. By helping others, I feel like I am going through this with Max for a reason and it gives me strength. One vow that I made what Max was diagnosed and we had nowhere to turn was that I would NEVER let anyone feel that hopeless and lonely again. Jodi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2002 Report Share Posted July 2, 2002 Jodi and Max, First of all - Happy Birthday Max. I hope you have an absolutely wonderful day. We hope that this doctor is able to help you. The two of you deserve all the mazel you can get. Hang in there. Judith, Steve, (RSS) and (non RSS) 28 mo twins > Things with Max are getting worse. We are really worried and tense > around here, which does not help. Today Max was having such bad > tremors that I begged and pleaded with the new doctor to see Max > before July 31. We just cannot wait any longer. > > I'm happy to say that it worked. We have an appointment to see Dr. > Frucht on Wednesday at 10am. I am so excited!!! It's too bad that > things had to get this bad for Max, but at least he will be seen > within 48 hours and maybe we will have something for him to take to > help this condition he has, whatever it is. > > Max will be 14 tomorrow. Please hope and pray that his day is > good. All he wants is to make it through the day at camp so that he > can celebrate with his new friends and be part of the group. He > also wants to swim very badly - something that should be good for > his legs and feet. > > Now I have to go wrap presents. We usually don't wrap the kids' > birthday gifts anymore, but if it makes Max feel special, I'll do it. > > Jodi Quote Link to comment Share on other sites More sharing options...
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