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Re: DBB and clothes

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You should be able to change his diaper just fine with the bar on. It might

be a little tricky at first, but it is definently do-able. As for clothes, I

would always just pull them down over Kaitlin's feet while I changed her

diaper. A little more time consuming with all of the wiggling, but atleast she

could wear them. Of course if the diaper leaked I would have to take the shoes

off, but usually we were okay.

As for cutting the feet out and hemming....that is a little more difficult

and I never tried it. I think it could work though, if your up for the sewing.

Good Luck,

Freeman

Kaitlin Freeman 3-9-04 LCF

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You should be able to change his diaper just fine with the bar on. It might

be a little tricky at first, but it is definently do-able. As for clothes, I

would always just pull them down over Kaitlin's feet while I changed her

diaper. A little more time consuming with all of the wiggling, but atleast she

could wear them. Of course if the diaper leaked I would have to take the shoes

off, but usually we were okay.

As for cutting the feet out and hemming....that is a little more difficult

and I never tried it. I think it could work though, if your up for the sewing.

Good Luck,

Freeman

Kaitlin Freeman 3-9-04 LCF

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You should be able to change his diaper just fine with the bar on. It might

be a little tricky at first, but it is definently do-able. As for clothes, I

would always just pull them down over Kaitlin's feet while I changed her

diaper. A little more time consuming with all of the wiggling, but atleast she

could wear them. Of course if the diaper leaked I would have to take the shoes

off, but usually we were okay.

As for cutting the feet out and hemming....that is a little more difficult

and I never tried it. I think it could work though, if your up for the sewing.

Good Luck,

Freeman

Kaitlin Freeman 3-9-04 LCF

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We modified the footed jammies and it worked out just fine. Especially after

you get past the point of changing diapers in the middle of the nighe :) Now -

at almost 18 mo, we use zipper jammies with the feet cut out -did not even

bother to hem them, and it is great!

Angel

DBB and clothes

Well, hubby is taking 's shoes to work tomorrow to cut holes in

the heel so I can make sure they're on correctly and so we can see what's

going on back there. He still has a red mark on his heel, but thankfully

it's getting better. We have the red adjustable bar and I checked it

against his shoulders. His heels are pretty much in line with his

shoulders, so no problem there. We found out that the shoes actually come

off the bar really easily....just loosen a wing nut on each one and that

loosens the hold of the bracket thingys that hold the shoe. I figure that

now I can wear some of the shorts and stuff that he has that don't have

snaps on the legs. If I need to change his clothes, I can just remove the

bar for a minute and change his pants. Definitely a lot easier and not as

time consuming as removing the shoes. When I thought I'd always have to

remove the shoes to change clothes like that if necessary, there was no way

I was going to dress him in pants without snaps, but since it would only

take a minute or two with removing the bar, I'm willing to give it a

shot....if I'm able to change his diaper without removing the bar. If I

have to remove the bar each time a diaper needs changed, I guess it's pants

and shorts with snaps only.

The things he can't wear, of course, are all the footy pajamas he has.

Once we go to wearing the bar only at night, he can wear them during the day

in the fall and winter when it's colder, but I was wondering if anyone else

has ever tried to modify the footy pajamas by cutting off the feet and then

hemming the cuffs? If so, how'd it work out? I've been thinking about it

so he can get some use out of them, but I'm not sure how that would work.

I'm not exactly a great seamstress...I'm lucky if I can hem somthing, but I

do have a sewing maching so I may have to give it a try sometime.

Okay, sorry for rambling on... : )

and

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We modified the footed jammies and it worked out just fine. Especially after

you get past the point of changing diapers in the middle of the nighe :) Now -

at almost 18 mo, we use zipper jammies with the feet cut out -did not even

bother to hem them, and it is great!

Angel

DBB and clothes

Well, hubby is taking 's shoes to work tomorrow to cut holes in

the heel so I can make sure they're on correctly and so we can see what's

going on back there. He still has a red mark on his heel, but thankfully

it's getting better. We have the red adjustable bar and I checked it

against his shoulders. His heels are pretty much in line with his

shoulders, so no problem there. We found out that the shoes actually come

off the bar really easily....just loosen a wing nut on each one and that

loosens the hold of the bracket thingys that hold the shoe. I figure that

now I can wear some of the shorts and stuff that he has that don't have

snaps on the legs. If I need to change his clothes, I can just remove the

bar for a minute and change his pants. Definitely a lot easier and not as

time consuming as removing the shoes. When I thought I'd always have to

remove the shoes to change clothes like that if necessary, there was no way

I was going to dress him in pants without snaps, but since it would only

take a minute or two with removing the bar, I'm willing to give it a

shot....if I'm able to change his diaper without removing the bar. If I

have to remove the bar each time a diaper needs changed, I guess it's pants

and shorts with snaps only.

The things he can't wear, of course, are all the footy pajamas he has.

Once we go to wearing the bar only at night, he can wear them during the day

in the fall and winter when it's colder, but I was wondering if anyone else

has ever tried to modify the footy pajamas by cutting off the feet and then

hemming the cuffs? If so, how'd it work out? I've been thinking about it

so he can get some use out of them, but I'm not sure how that would work.

I'm not exactly a great seamstress...I'm lucky if I can hem somthing, but I

do have a sewing maching so I may have to give it a try sometime.

Okay, sorry for rambling on... : )

and

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We modified the footed jammies and it worked out just fine. Especially after

you get past the point of changing diapers in the middle of the nighe :) Now -

at almost 18 mo, we use zipper jammies with the feet cut out -did not even

bother to hem them, and it is great!

Angel

DBB and clothes

Well, hubby is taking 's shoes to work tomorrow to cut holes in

the heel so I can make sure they're on correctly and so we can see what's

going on back there. He still has a red mark on his heel, but thankfully

it's getting better. We have the red adjustable bar and I checked it

against his shoulders. His heels are pretty much in line with his

shoulders, so no problem there. We found out that the shoes actually come

off the bar really easily....just loosen a wing nut on each one and that

loosens the hold of the bracket thingys that hold the shoe. I figure that

now I can wear some of the shorts and stuff that he has that don't have

snaps on the legs. If I need to change his clothes, I can just remove the

bar for a minute and change his pants. Definitely a lot easier and not as

time consuming as removing the shoes. When I thought I'd always have to

remove the shoes to change clothes like that if necessary, there was no way

I was going to dress him in pants without snaps, but since it would only

take a minute or two with removing the bar, I'm willing to give it a

shot....if I'm able to change his diaper without removing the bar. If I

have to remove the bar each time a diaper needs changed, I guess it's pants

and shorts with snaps only.

The things he can't wear, of course, are all the footy pajamas he has.

Once we go to wearing the bar only at night, he can wear them during the day

in the fall and winter when it's colder, but I was wondering if anyone else

has ever tried to modify the footy pajamas by cutting off the feet and then

hemming the cuffs? If so, how'd it work out? I've been thinking about it

so he can get some use out of them, but I'm not sure how that would work.

I'm not exactly a great seamstress...I'm lucky if I can hem somthing, but I

do have a sewing maching so I may have to give it a try sometime.

Okay, sorry for rambling on... : )

and

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I have cut the feet out of some of our pajamas. It works pretty well

and a lot of the fabrics don't even have to be hemmed. Hemming the

outfit shortens it some so I would recommend doing it in a size

larger pajamas then he usually wears.

Tori 1/30/04 bilateral atypical cf brace 23/7

12/7/04 non cf

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I have cut the feet out of some of our pajamas. It works pretty well

and a lot of the fabrics don't even have to be hemmed. Hemming the

outfit shortens it some so I would recommend doing it in a size

larger pajamas then he usually wears.

Tori 1/30/04 bilateral atypical cf brace 23/7

12/7/04 non cf

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I have cut the feet out of some of our pajamas. It works pretty well

and a lot of the fabrics don't even have to be hemmed. Hemming the

outfit shortens it some so I would recommend doing it in a size

larger pajamas then he usually wears.

Tori 1/30/04 bilateral atypical cf brace 23/7

12/7/04 non cf

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I didn't even think about the hemming shortening it. Just glad to hear that

others came up with the same idea. I hate having all those clothes hanging

in his closet that he can't wear, but now I know it works to modify them so

he can wear them.

and

BLC 03/25/04

Re: DBB and clothes

> I have cut the feet out of some of our pajamas. It works pretty well

> and a lot of the fabrics don't even have to be hemmed. Hemming the

> outfit shortens it some so I would recommend doing it in a size

> larger pajamas then he usually wears.

>

> Tori 1/30/04 bilateral atypical cf brace 23/7

> 12/7/04 non cf

>

>

>

>

>

>

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,

What is this wing nut you're talking about? I remember many months back

someone saying *wing nut* yet the red bar that I have (thanks to Angel)

doesn't have any wing nuts. And getting the shoes back on the bar in the

right spot proves difficult because keeping the groves lined up with wiggly

foot isn't easy. So where are you taking the bar apart at? Under the

shoes or is each side coming apart (with half a bar still attached to the

shoes on each side)?

For whatever it's worth... I didn't do the snap jammies or pants or

suits. Finding these for girls is... well all about ugly. Also it was

summer for 23/7 so she wore shorts and dresses with little panties a lot

anyway. She also wore a lot of stretch pants. Had a ton of these given to

us and I would dress her the night before with stretch pants for the next

morning and she slept in her clothes. I found that I could pull the pants

down to the ankles while changing diapers and they were a little tight but

it totally worked. So whatever she wore - was not special or with snaps or

anything. I dressed her how I wanted and we worked around her brace. I

had the gold non-adjustable bar which is rather simple to get the shoes

off. And sure, there were a number of pant/clothes changes when she was

little and the diaper leaked but with the gold bar I just slipped them over

her feet with the shoes still on and it worked really well.

I never cut any outfits up... I just didn't use footed jammies anymore. I

still have some but she never wears them.

The one thing I found with the footless jammies last year is they would

make them snapped... but only on one leg or sometimes even with full cuffs

that didn't split apart but snaps in the legs and crotch so it was no

better than a non footed jammie. We worked around them because I had dh

buy her a few pairs on clearance before I realized they were only snapped

on one leg but they weren't ideal.

If you have a digital camera could you take a pic of this wing nut thing

for me? I'm really curious what this is and on what part of the brace it

is. If you can get a pic you could send it to the CFPics list. I'm still

interested in finding a way to make the red bar so the shoes can come off

easier (and go back on easier).

Let us know how it goes with the hole and the red mark. Hopefully soon

it'll be all gone!

Kori & Darbi

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,

What is this wing nut you're talking about? I remember many months back

someone saying *wing nut* yet the red bar that I have (thanks to Angel)

doesn't have any wing nuts. And getting the shoes back on the bar in the

right spot proves difficult because keeping the groves lined up with wiggly

foot isn't easy. So where are you taking the bar apart at? Under the

shoes or is each side coming apart (with half a bar still attached to the

shoes on each side)?

For whatever it's worth... I didn't do the snap jammies or pants or

suits. Finding these for girls is... well all about ugly. Also it was

summer for 23/7 so she wore shorts and dresses with little panties a lot

anyway. She also wore a lot of stretch pants. Had a ton of these given to

us and I would dress her the night before with stretch pants for the next

morning and she slept in her clothes. I found that I could pull the pants

down to the ankles while changing diapers and they were a little tight but

it totally worked. So whatever she wore - was not special or with snaps or

anything. I dressed her how I wanted and we worked around her brace. I

had the gold non-adjustable bar which is rather simple to get the shoes

off. And sure, there were a number of pant/clothes changes when she was

little and the diaper leaked but with the gold bar I just slipped them over

her feet with the shoes still on and it worked really well.

I never cut any outfits up... I just didn't use footed jammies anymore. I

still have some but she never wears them.

The one thing I found with the footless jammies last year is they would

make them snapped... but only on one leg or sometimes even with full cuffs

that didn't split apart but snaps in the legs and crotch so it was no

better than a non footed jammie. We worked around them because I had dh

buy her a few pairs on clearance before I realized they were only snapped

on one leg but they weren't ideal.

If you have a digital camera could you take a pic of this wing nut thing

for me? I'm really curious what this is and on what part of the brace it

is. If you can get a pic you could send it to the CFPics list. I'm still

interested in finding a way to make the red bar so the shoes can come off

easier (and go back on easier).

Let us know how it goes with the hole and the red mark. Hopefully soon

it'll be all gone!

Kori & Darbi

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,

What is this wing nut you're talking about? I remember many months back

someone saying *wing nut* yet the red bar that I have (thanks to Angel)

doesn't have any wing nuts. And getting the shoes back on the bar in the

right spot proves difficult because keeping the groves lined up with wiggly

foot isn't easy. So where are you taking the bar apart at? Under the

shoes or is each side coming apart (with half a bar still attached to the

shoes on each side)?

For whatever it's worth... I didn't do the snap jammies or pants or

suits. Finding these for girls is... well all about ugly. Also it was

summer for 23/7 so she wore shorts and dresses with little panties a lot

anyway. She also wore a lot of stretch pants. Had a ton of these given to

us and I would dress her the night before with stretch pants for the next

morning and she slept in her clothes. I found that I could pull the pants

down to the ankles while changing diapers and they were a little tight but

it totally worked. So whatever she wore - was not special or with snaps or

anything. I dressed her how I wanted and we worked around her brace. I

had the gold non-adjustable bar which is rather simple to get the shoes

off. And sure, there were a number of pant/clothes changes when she was

little and the diaper leaked but with the gold bar I just slipped them over

her feet with the shoes still on and it worked really well.

I never cut any outfits up... I just didn't use footed jammies anymore. I

still have some but she never wears them.

The one thing I found with the footless jammies last year is they would

make them snapped... but only on one leg or sometimes even with full cuffs

that didn't split apart but snaps in the legs and crotch so it was no

better than a non footed jammie. We worked around them because I had dh

buy her a few pairs on clearance before I realized they were only snapped

on one leg but they weren't ideal.

If you have a digital camera could you take a pic of this wing nut thing

for me? I'm really curious what this is and on what part of the brace it

is. If you can get a pic you could send it to the CFPics list. I'm still

interested in finding a way to make the red bar so the shoes can come off

easier (and go back on easier).

Let us know how it goes with the hole and the red mark. Hopefully soon

it'll be all gone!

Kori & Darbi

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Kori,

A wing nug is just basically a nut and bolt, but a wing nut is easier to

tighten with your fingers. It looks like there are two unmovable bracket

things and one that adjusts, depending the on the width of the shoe. I'm

taking the shoes themselves off the bar. Even though you can see the

indents where the brackets go, hubby marked the sides of the soles too.

I've never actually taken the bar apart, although I will if it ever needs

adjusted better to be lined up with his shoulders.

We received a ton of footed jammies, so I'm going to see how it goes if I

cut them, just so he can use them. I tried finding the ones that snap down

the legs, but haven't had a lot of luck. Some that I did find are like you

said...the cuffs don't split apart. He actually has two outfits like that

that were gifts. He's gotten to wear them a couple times though, when his

shoes were off while his blister healed.

I took pictures of the bar and joined the CFpics list. Membership is

pending, but I see that you're the list owner! I'll get the questions

answered and sent back to you shortly. Once hubby gets home and gets the

pictures off the camera and I'm able to post to the group, I'll send them

through for you.

Hubby did get the holes cut today and the red mark is looking better. His

shoes will be going back on tonight when hubby gets home. With the holes in

the back, the red mark should be able to finish healing without any friction

or pressure and I'll feel better with the shoes back on.

and

BCF 03/25/04

> What is this wing nut you're talking about? I remember many months back

> someone saying *wing nut* yet the red bar that I have (thanks to Angel)

> doesn't have any wing nuts. And getting the shoes back on the bar in the

> right spot proves difficult because keeping the groves lined up with

wiggly

> foot isn't easy. So where are you taking the bar apart at? Under the

> shoes or is each side coming apart (with half a bar still attached to the

> shoes on each side)?

> For whatever it's worth... I didn't do the snap jammies or pants or

> suits. Finding these for girls is... well all about ugly. Also it was

> summer for 23/7 so she wore shorts and dresses with little panties a lot

> anyway. She also wore a lot of stretch pants. Had a ton of these given

to

> us and I would dress her the night before with stretch pants for the next

> morning and she slept in her clothes. I found that I could pull the pants

> down to the ankles while changing diapers and they were a little tight but

> it totally worked. So whatever she wore - was not special or with snaps

or

> anything. I dressed her how I wanted and we worked around her brace. I

> had the gold non-adjustable bar which is rather simple to get the shoes

> off. And sure, there were a number of pant/clothes changes when she was

> little and the diaper leaked but with the gold bar I just slipped them

over

> her feet with the shoes still on and it worked really well.

>

> I never cut any outfits up... I just didn't use footed jammies anymore.

I

> still have some but she never wears them.

>

> The one thing I found with the footless jammies last year is they would

> make them snapped... but only on one leg or sometimes even with full

cuffs

> that didn't split apart but snaps in the legs and crotch so it was no

> better than a non footed jammie. We worked around them because I had dh

> buy her a few pairs on clearance before I realized they were only snapped

> on one leg but they weren't ideal.

>

> If you have a digital camera could you take a pic of this wing nut thing

> for me? I'm really curious what this is and on what part of the brace it

> is. If you can get a pic you could send it to the CFPics list. I'm still

> interested in finding a way to make the red bar so the shoes can come off

> easier (and go back on easier).

>

> Let us know how it goes with the hole and the red mark. Hopefully soon

> it'll be all gone!

>

> Kori & Darbi

>

>

>

>

>

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Kori,

A wing nug is just basically a nut and bolt, but a wing nut is easier to

tighten with your fingers. It looks like there are two unmovable bracket

things and one that adjusts, depending the on the width of the shoe. I'm

taking the shoes themselves off the bar. Even though you can see the

indents where the brackets go, hubby marked the sides of the soles too.

I've never actually taken the bar apart, although I will if it ever needs

adjusted better to be lined up with his shoulders.

We received a ton of footed jammies, so I'm going to see how it goes if I

cut them, just so he can use them. I tried finding the ones that snap down

the legs, but haven't had a lot of luck. Some that I did find are like you

said...the cuffs don't split apart. He actually has two outfits like that

that were gifts. He's gotten to wear them a couple times though, when his

shoes were off while his blister healed.

I took pictures of the bar and joined the CFpics list. Membership is

pending, but I see that you're the list owner! I'll get the questions

answered and sent back to you shortly. Once hubby gets home and gets the

pictures off the camera and I'm able to post to the group, I'll send them

through for you.

Hubby did get the holes cut today and the red mark is looking better. His

shoes will be going back on tonight when hubby gets home. With the holes in

the back, the red mark should be able to finish healing without any friction

or pressure and I'll feel better with the shoes back on.

and

BCF 03/25/04

> What is this wing nut you're talking about? I remember many months back

> someone saying *wing nut* yet the red bar that I have (thanks to Angel)

> doesn't have any wing nuts. And getting the shoes back on the bar in the

> right spot proves difficult because keeping the groves lined up with

wiggly

> foot isn't easy. So where are you taking the bar apart at? Under the

> shoes or is each side coming apart (with half a bar still attached to the

> shoes on each side)?

> For whatever it's worth... I didn't do the snap jammies or pants or

> suits. Finding these for girls is... well all about ugly. Also it was

> summer for 23/7 so she wore shorts and dresses with little panties a lot

> anyway. She also wore a lot of stretch pants. Had a ton of these given

to

> us and I would dress her the night before with stretch pants for the next

> morning and she slept in her clothes. I found that I could pull the pants

> down to the ankles while changing diapers and they were a little tight but

> it totally worked. So whatever she wore - was not special or with snaps

or

> anything. I dressed her how I wanted and we worked around her brace. I

> had the gold non-adjustable bar which is rather simple to get the shoes

> off. And sure, there were a number of pant/clothes changes when she was

> little and the diaper leaked but with the gold bar I just slipped them

over

> her feet with the shoes still on and it worked really well.

>

> I never cut any outfits up... I just didn't use footed jammies anymore.

I

> still have some but she never wears them.

>

> The one thing I found with the footless jammies last year is they would

> make them snapped... but only on one leg or sometimes even with full

cuffs

> that didn't split apart but snaps in the legs and crotch so it was no

> better than a non footed jammie. We worked around them because I had dh

> buy her a few pairs on clearance before I realized they were only snapped

> on one leg but they weren't ideal.

>

> If you have a digital camera could you take a pic of this wing nut thing

> for me? I'm really curious what this is and on what part of the brace it

> is. If you can get a pic you could send it to the CFPics list. I'm still

> interested in finding a way to make the red bar so the shoes can come off

> easier (and go back on easier).

>

> Let us know how it goes with the hole and the red mark. Hopefully soon

> it'll be all gone!

>

> Kori & Darbi

>

>

>

>

>

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Kori,

A wing nug is just basically a nut and bolt, but a wing nut is easier to

tighten with your fingers. It looks like there are two unmovable bracket

things and one that adjusts, depending the on the width of the shoe. I'm

taking the shoes themselves off the bar. Even though you can see the

indents where the brackets go, hubby marked the sides of the soles too.

I've never actually taken the bar apart, although I will if it ever needs

adjusted better to be lined up with his shoulders.

We received a ton of footed jammies, so I'm going to see how it goes if I

cut them, just so he can use them. I tried finding the ones that snap down

the legs, but haven't had a lot of luck. Some that I did find are like you

said...the cuffs don't split apart. He actually has two outfits like that

that were gifts. He's gotten to wear them a couple times though, when his

shoes were off while his blister healed.

I took pictures of the bar and joined the CFpics list. Membership is

pending, but I see that you're the list owner! I'll get the questions

answered and sent back to you shortly. Once hubby gets home and gets the

pictures off the camera and I'm able to post to the group, I'll send them

through for you.

Hubby did get the holes cut today and the red mark is looking better. His

shoes will be going back on tonight when hubby gets home. With the holes in

the back, the red mark should be able to finish healing without any friction

or pressure and I'll feel better with the shoes back on.

and

BCF 03/25/04

> What is this wing nut you're talking about? I remember many months back

> someone saying *wing nut* yet the red bar that I have (thanks to Angel)

> doesn't have any wing nuts. And getting the shoes back on the bar in the

> right spot proves difficult because keeping the groves lined up with

wiggly

> foot isn't easy. So where are you taking the bar apart at? Under the

> shoes or is each side coming apart (with half a bar still attached to the

> shoes on each side)?

> For whatever it's worth... I didn't do the snap jammies or pants or

> suits. Finding these for girls is... well all about ugly. Also it was

> summer for 23/7 so she wore shorts and dresses with little panties a lot

> anyway. She also wore a lot of stretch pants. Had a ton of these given

to

> us and I would dress her the night before with stretch pants for the next

> morning and she slept in her clothes. I found that I could pull the pants

> down to the ankles while changing diapers and they were a little tight but

> it totally worked. So whatever she wore - was not special or with snaps

or

> anything. I dressed her how I wanted and we worked around her brace. I

> had the gold non-adjustable bar which is rather simple to get the shoes

> off. And sure, there were a number of pant/clothes changes when she was

> little and the diaper leaked but with the gold bar I just slipped them

over

> her feet with the shoes still on and it worked really well.

>

> I never cut any outfits up... I just didn't use footed jammies anymore.

I

> still have some but she never wears them.

>

> The one thing I found with the footless jammies last year is they would

> make them snapped... but only on one leg or sometimes even with full

cuffs

> that didn't split apart but snaps in the legs and crotch so it was no

> better than a non footed jammie. We worked around them because I had dh

> buy her a few pairs on clearance before I realized they were only snapped

> on one leg but they weren't ideal.

>

> If you have a digital camera could you take a pic of this wing nut thing

> for me? I'm really curious what this is and on what part of the brace it

> is. If you can get a pic you could send it to the CFPics list. I'm still

> interested in finding a way to make the red bar so the shoes can come off

> easier (and go back on easier).

>

> Let us know how it goes with the hole and the red mark. Hopefully soon

> it'll be all gone!

>

> Kori & Darbi

>

>

>

>

>

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Share on other sites

Guest guest

,

With regards to the PJs. I found some at Kohls and Walmart with

snaps all the way down the leg. I know you hate to not use what was

given to you. I am going to try to alter our footie pjs too.

Louisa

> Kori,

>

> A wing nug is just basically a nut and bolt, but a wing nut is

easier to

> tighten with your fingers. It looks like there are two unmovable

bracket

> things and one that adjusts, depending the on the width of the

shoe. I'm

> taking the shoes themselves off the bar. Even though you can see

the

> indents where the brackets go, hubby marked the sides of the soles

too.

> I've never actually taken the bar apart, although I will if it ever

needs

> adjusted better to be lined up with his shoulders.

>

> We received a ton of footed jammies, so I'm going to see how it

goes if I

> cut them, just so he can use them. I tried finding the ones that

snap down

> the legs, but haven't had a lot of luck. Some that I did find are

like you

> said...the cuffs don't split apart. He actually has two outfits

like that

> that were gifts. He's gotten to wear them a couple times though,

when his

> shoes were off while his blister healed.

>

> I took pictures of the bar and joined the CFpics list. Membership

is

> pending, but I see that you're the list owner! I'll get the

questions

> answered and sent back to you shortly. Once hubby gets home and

gets the

> pictures off the camera and I'm able to post to the group, I'll

send them

> through for you.

>

> Hubby did get the holes cut today and the red mark is looking

better. His

> shoes will be going back on tonight when hubby gets home. With the

holes in

> the back, the red mark should be able to finish healing without any

friction

> or pressure and I'll feel better with the shoes back on.

>

> and

> BCF 03/25/04

>

>

> > What is this wing nut you're talking about? I remember many

months back

> > someone saying *wing nut* yet the red bar that I have (thanks to

Angel)

> > doesn't have any wing nuts. And getting the shoes back on the

bar in the

> > right spot proves difficult because keeping the groves lined up

with

> wiggly

> > foot isn't easy. So where are you taking the bar apart at?

Under the

> > shoes or is each side coming apart (with half a bar still

attached to the

> > shoes on each side)?

>

> > For whatever it's worth... I didn't do the snap jammies or pants

or

> > suits. Finding these for girls is... well all about ugly. Also

it was

> > summer for 23/7 so she wore shorts and dresses with little

panties a lot

> > anyway. She also wore a lot of stretch pants. Had a ton of

these given

> to

> > us and I would dress her the night before with stretch pants for

the next

> > morning and she slept in her clothes. I found that I could pull

the pants

> > down to the ankles while changing diapers and they were a little

tight but

> > it totally worked. So whatever she wore - was not special or

with snaps

> or

> > anything. I dressed her how I wanted and we worked around her

brace. I

> > had the gold non-adjustable bar which is rather simple to get the

shoes

> > off. And sure, there were a number of pant/clothes changes when

she was

> > little and the diaper leaked but with the gold bar I just slipped

them

> over

> > her feet with the shoes still on and it worked really well.

> >

> > I never cut any outfits up... I just didn't use footed jammies

anymore.

> I

> > still have some but she never wears them.

> >

> > The one thing I found with the footless jammies last year is they

would

> > make them snapped... but only on one leg or sometimes even with

full

> cuffs

> > that didn't split apart but snaps in the legs and crotch so it

was no

> > better than a non footed jammie. We worked around them because I

had dh

> > buy her a few pairs on clearance before I realized they were only

snapped

> > on one leg but they weren't ideal.

> >

> > If you have a digital camera could you take a pic of this wing

nut thing

> > for me? I'm really curious what this is and on what part of the

brace it

> > is. If you can get a pic you could send it to the CFPics list.

I'm still

> > interested in finding a way to make the red bar so the shoes can

come off

> > easier (and go back on easier).

> >

> > Let us know how it goes with the hole and the red mark.

Hopefully soon

> > it'll be all gone!

> >

> > Kori & Darbi

> >

> >

> >

> >

> >

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Share on other sites

Guest guest

,

With regards to the PJs. I found some at Kohls and Walmart with

snaps all the way down the leg. I know you hate to not use what was

given to you. I am going to try to alter our footie pjs too.

Louisa

> Kori,

>

> A wing nug is just basically a nut and bolt, but a wing nut is

easier to

> tighten with your fingers. It looks like there are two unmovable

bracket

> things and one that adjusts, depending the on the width of the

shoe. I'm

> taking the shoes themselves off the bar. Even though you can see

the

> indents where the brackets go, hubby marked the sides of the soles

too.

> I've never actually taken the bar apart, although I will if it ever

needs

> adjusted better to be lined up with his shoulders.

>

> We received a ton of footed jammies, so I'm going to see how it

goes if I

> cut them, just so he can use them. I tried finding the ones that

snap down

> the legs, but haven't had a lot of luck. Some that I did find are

like you

> said...the cuffs don't split apart. He actually has two outfits

like that

> that were gifts. He's gotten to wear them a couple times though,

when his

> shoes were off while his blister healed.

>

> I took pictures of the bar and joined the CFpics list. Membership

is

> pending, but I see that you're the list owner! I'll get the

questions

> answered and sent back to you shortly. Once hubby gets home and

gets the

> pictures off the camera and I'm able to post to the group, I'll

send them

> through for you.

>

> Hubby did get the holes cut today and the red mark is looking

better. His

> shoes will be going back on tonight when hubby gets home. With the

holes in

> the back, the red mark should be able to finish healing without any

friction

> or pressure and I'll feel better with the shoes back on.

>

> and

> BCF 03/25/04

>

>

> > What is this wing nut you're talking about? I remember many

months back

> > someone saying *wing nut* yet the red bar that I have (thanks to

Angel)

> > doesn't have any wing nuts. And getting the shoes back on the

bar in the

> > right spot proves difficult because keeping the groves lined up

with

> wiggly

> > foot isn't easy. So where are you taking the bar apart at?

Under the

> > shoes or is each side coming apart (with half a bar still

attached to the

> > shoes on each side)?

>

> > For whatever it's worth... I didn't do the snap jammies or pants

or

> > suits. Finding these for girls is... well all about ugly. Also

it was

> > summer for 23/7 so she wore shorts and dresses with little

panties a lot

> > anyway. She also wore a lot of stretch pants. Had a ton of

these given

> to

> > us and I would dress her the night before with stretch pants for

the next

> > morning and she slept in her clothes. I found that I could pull

the pants

> > down to the ankles while changing diapers and they were a little

tight but

> > it totally worked. So whatever she wore - was not special or

with snaps

> or

> > anything. I dressed her how I wanted and we worked around her

brace. I

> > had the gold non-adjustable bar which is rather simple to get the

shoes

> > off. And sure, there were a number of pant/clothes changes when

she was

> > little and the diaper leaked but with the gold bar I just slipped

them

> over

> > her feet with the shoes still on and it worked really well.

> >

> > I never cut any outfits up... I just didn't use footed jammies

anymore.

> I

> > still have some but she never wears them.

> >

> > The one thing I found with the footless jammies last year is they

would

> > make them snapped... but only on one leg or sometimes even with

full

> cuffs

> > that didn't split apart but snaps in the legs and crotch so it

was no

> > better than a non footed jammie. We worked around them because I

had dh

> > buy her a few pairs on clearance before I realized they were only

snapped

> > on one leg but they weren't ideal.

> >

> > If you have a digital camera could you take a pic of this wing

nut thing

> > for me? I'm really curious what this is and on what part of the

brace it

> > is. If you can get a pic you could send it to the CFPics list.

I'm still

> > interested in finding a way to make the red bar so the shoes can

come off

> > easier (and go back on easier).

> >

> > Let us know how it goes with the hole and the red mark.

Hopefully soon

> > it'll be all gone!

> >

> > Kori & Darbi

> >

> >

> >

> >

> >

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Share on other sites

Guest guest

,

With regards to the PJs. I found some at Kohls and Walmart with

snaps all the way down the leg. I know you hate to not use what was

given to you. I am going to try to alter our footie pjs too.

Louisa

> Kori,

>

> A wing nug is just basically a nut and bolt, but a wing nut is

easier to

> tighten with your fingers. It looks like there are two unmovable

bracket

> things and one that adjusts, depending the on the width of the

shoe. I'm

> taking the shoes themselves off the bar. Even though you can see

the

> indents where the brackets go, hubby marked the sides of the soles

too.

> I've never actually taken the bar apart, although I will if it ever

needs

> adjusted better to be lined up with his shoulders.

>

> We received a ton of footed jammies, so I'm going to see how it

goes if I

> cut them, just so he can use them. I tried finding the ones that

snap down

> the legs, but haven't had a lot of luck. Some that I did find are

like you

> said...the cuffs don't split apart. He actually has two outfits

like that

> that were gifts. He's gotten to wear them a couple times though,

when his

> shoes were off while his blister healed.

>

> I took pictures of the bar and joined the CFpics list. Membership

is

> pending, but I see that you're the list owner! I'll get the

questions

> answered and sent back to you shortly. Once hubby gets home and

gets the

> pictures off the camera and I'm able to post to the group, I'll

send them

> through for you.

>

> Hubby did get the holes cut today and the red mark is looking

better. His

> shoes will be going back on tonight when hubby gets home. With the

holes in

> the back, the red mark should be able to finish healing without any

friction

> or pressure and I'll feel better with the shoes back on.

>

> and

> BCF 03/25/04

>

>

> > What is this wing nut you're talking about? I remember many

months back

> > someone saying *wing nut* yet the red bar that I have (thanks to

Angel)

> > doesn't have any wing nuts. And getting the shoes back on the

bar in the

> > right spot proves difficult because keeping the groves lined up

with

> wiggly

> > foot isn't easy. So where are you taking the bar apart at?

Under the

> > shoes or is each side coming apart (with half a bar still

attached to the

> > shoes on each side)?

>

> > For whatever it's worth... I didn't do the snap jammies or pants

or

> > suits. Finding these for girls is... well all about ugly. Also

it was

> > summer for 23/7 so she wore shorts and dresses with little

panties a lot

> > anyway. She also wore a lot of stretch pants. Had a ton of

these given

> to

> > us and I would dress her the night before with stretch pants for

the next

> > morning and she slept in her clothes. I found that I could pull

the pants

> > down to the ankles while changing diapers and they were a little

tight but

> > it totally worked. So whatever she wore - was not special or

with snaps

> or

> > anything. I dressed her how I wanted and we worked around her

brace. I

> > had the gold non-adjustable bar which is rather simple to get the

shoes

> > off. And sure, there were a number of pant/clothes changes when

she was

> > little and the diaper leaked but with the gold bar I just slipped

them

> over

> > her feet with the shoes still on and it worked really well.

> >

> > I never cut any outfits up... I just didn't use footed jammies

anymore.

> I

> > still have some but she never wears them.

> >

> > The one thing I found with the footless jammies last year is they

would

> > make them snapped... but only on one leg or sometimes even with

full

> cuffs

> > that didn't split apart but snaps in the legs and crotch so it

was no

> > better than a non footed jammie. We worked around them because I

had dh

> > buy her a few pairs on clearance before I realized they were only

snapped

> > on one leg but they weren't ideal.

> >

> > If you have a digital camera could you take a pic of this wing

nut thing

> > for me? I'm really curious what this is and on what part of the

brace it

> > is. If you can get a pic you could send it to the CFPics list.

I'm still

> > interested in finding a way to make the red bar so the shoes can

come off

> > easier (and go back on easier).

> >

> > Let us know how it goes with the hole and the red mark.

Hopefully soon

> > it'll be all gone!

> >

> > Kori & Darbi

> >

> >

> >

> >

> >

Link to comment
Share on other sites

Guest guest

I also found some wonderful snap pjs at Kohls and Walmart. Some of

the ones from Walmart I got on clearance and only had 1 side with the

snaps, so I took the seam on the non-snap side out and bought some

little strips of fabric that have the snaps on them (don't know the

technical term for them) and had someone sew them onto the inside.

The person I took them to was so cheap because there wasn't much

labor to it. Just an idea....

Jaren 4-18-02 unilateral

> > Kori,

> >

> > A wing nug is just basically a nut and bolt, but a wing nut is

> easier to

> > tighten with your fingers. It looks like there are two unmovable

> bracket

> > things and one that adjusts, depending the on the width of the

> shoe. I'm

> > taking the shoes themselves off the bar. Even though you can

see

> the

> > indents where the brackets go, hubby marked the sides of the

soles

> too.

> > I've never actually taken the bar apart, although I will if it

ever

> needs

> > adjusted better to be lined up with his shoulders.

> >

> > We received a ton of footed jammies, so I'm going to see how it

> goes if I

> > cut them, just so he can use them. I tried finding the ones that

> snap down

> > the legs, but haven't had a lot of luck. Some that I did find

are

> like you

> > said...the cuffs don't split apart. He actually has two outfits

> like that

> > that were gifts. He's gotten to wear them a couple times though,

> when his

> > shoes were off while his blister healed.

> >

> > I took pictures of the bar and joined the CFpics list.

Membership

> is

> > pending, but I see that you're the list owner! I'll get the

> questions

> > answered and sent back to you shortly. Once hubby gets home and

> gets the

> > pictures off the camera and I'm able to post to the group, I'll

> send them

> > through for you.

> >

> > Hubby did get the holes cut today and the red mark is looking

> better. His

> > shoes will be going back on tonight when hubby gets home. With

the

> holes in

> > the back, the red mark should be able to finish healing without

any

> friction

> > or pressure and I'll feel better with the shoes back on.

> >

> > and

> > BCF 03/25/04

> >

> >

> > > What is this wing nut you're talking about? I remember many

> months back

> > > someone saying *wing nut* yet the red bar that I have (thanks

to

> Angel)

> > > doesn't have any wing nuts. And getting the shoes back on the

> bar in the

> > > right spot proves difficult because keeping the groves lined up

> with

> > wiggly

> > > foot isn't easy. So where are you taking the bar apart at?

> Under the

> > > shoes or is each side coming apart (with half a bar still

> attached to the

> > > shoes on each side)?

> >

> > > For whatever it's worth... I didn't do the snap jammies or

pants

> or

> > > suits. Finding these for girls is... well all about ugly.

Also

> it was

> > > summer for 23/7 so she wore shorts and dresses with little

> panties a lot

> > > anyway. She also wore a lot of stretch pants. Had a ton of

> these given

> > to

> > > us and I would dress her the night before with stretch pants

for

> the next

> > > morning and she slept in her clothes. I found that I could

pull

> the pants

> > > down to the ankles while changing diapers and they were a

little

> tight but

> > > it totally worked. So whatever she wore - was not special or

> with snaps

> > or

> > > anything. I dressed her how I wanted and we worked around her

> brace. I

> > > had the gold non-adjustable bar which is rather simple to get

the

> shoes

> > > off. And sure, there were a number of pant/clothes changes

when

> she was

> > > little and the diaper leaked but with the gold bar I just

slipped

> them

> > over

> > > her feet with the shoes still on and it worked really well.

> > >

> > > I never cut any outfits up... I just didn't use footed jammies

> anymore.

> > I

> > > still have some but she never wears them.

> > >

> > > The one thing I found with the footless jammies last year is

they

> would

> > > make them snapped... but only on one leg or sometimes even

with

> full

> > cuffs

> > > that didn't split apart but snaps in the legs and crotch so it

> was no

> > > better than a non footed jammie. We worked around them because

I

> had dh

> > > buy her a few pairs on clearance before I realized they were

only

> snapped

> > > on one leg but they weren't ideal.

> > >

> > > If you have a digital camera could you take a pic of this wing

> nut thing

> > > for me? I'm really curious what this is and on what part of

the

> brace it

> > > is. If you can get a pic you could send it to the CFPics

list.

> I'm still

> > > interested in finding a way to make the red bar so the shoes

can

> come off

> > > easier (and go back on easier).

> > >

> > > Let us know how it goes with the hole and the red mark.

> Hopefully soon

> > > it'll be all gone!

> > >

> > > Kori & Darbi

> > >

> > >

> > >

> > >

> > >

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Share on other sites

Guest guest

I also found some wonderful snap pjs at Kohls and Walmart. Some of

the ones from Walmart I got on clearance and only had 1 side with the

snaps, so I took the seam on the non-snap side out and bought some

little strips of fabric that have the snaps on them (don't know the

technical term for them) and had someone sew them onto the inside.

The person I took them to was so cheap because there wasn't much

labor to it. Just an idea....

Jaren 4-18-02 unilateral

> > Kori,

> >

> > A wing nug is just basically a nut and bolt, but a wing nut is

> easier to

> > tighten with your fingers. It looks like there are two unmovable

> bracket

> > things and one that adjusts, depending the on the width of the

> shoe. I'm

> > taking the shoes themselves off the bar. Even though you can

see

> the

> > indents where the brackets go, hubby marked the sides of the

soles

> too.

> > I've never actually taken the bar apart, although I will if it

ever

> needs

> > adjusted better to be lined up with his shoulders.

> >

> > We received a ton of footed jammies, so I'm going to see how it

> goes if I

> > cut them, just so he can use them. I tried finding the ones that

> snap down

> > the legs, but haven't had a lot of luck. Some that I did find

are

> like you

> > said...the cuffs don't split apart. He actually has two outfits

> like that

> > that were gifts. He's gotten to wear them a couple times though,

> when his

> > shoes were off while his blister healed.

> >

> > I took pictures of the bar and joined the CFpics list.

Membership

> is

> > pending, but I see that you're the list owner! I'll get the

> questions

> > answered and sent back to you shortly. Once hubby gets home and

> gets the

> > pictures off the camera and I'm able to post to the group, I'll

> send them

> > through for you.

> >

> > Hubby did get the holes cut today and the red mark is looking

> better. His

> > shoes will be going back on tonight when hubby gets home. With

the

> holes in

> > the back, the red mark should be able to finish healing without

any

> friction

> > or pressure and I'll feel better with the shoes back on.

> >

> > and

> > BCF 03/25/04

> >

> >

> > > What is this wing nut you're talking about? I remember many

> months back

> > > someone saying *wing nut* yet the red bar that I have (thanks

to

> Angel)

> > > doesn't have any wing nuts. And getting the shoes back on the

> bar in the

> > > right spot proves difficult because keeping the groves lined up

> with

> > wiggly

> > > foot isn't easy. So where are you taking the bar apart at?

> Under the

> > > shoes or is each side coming apart (with half a bar still

> attached to the

> > > shoes on each side)?

> >

> > > For whatever it's worth... I didn't do the snap jammies or

pants

> or

> > > suits. Finding these for girls is... well all about ugly.

Also

> it was

> > > summer for 23/7 so she wore shorts and dresses with little

> panties a lot

> > > anyway. She also wore a lot of stretch pants. Had a ton of

> these given

> > to

> > > us and I would dress her the night before with stretch pants

for

> the next

> > > morning and she slept in her clothes. I found that I could

pull

> the pants

> > > down to the ankles while changing diapers and they were a

little

> tight but

> > > it totally worked. So whatever she wore - was not special or

> with snaps

> > or

> > > anything. I dressed her how I wanted and we worked around her

> brace. I

> > > had the gold non-adjustable bar which is rather simple to get

the

> shoes

> > > off. And sure, there were a number of pant/clothes changes

when

> she was

> > > little and the diaper leaked but with the gold bar I just

slipped

> them

> > over

> > > her feet with the shoes still on and it worked really well.

> > >

> > > I never cut any outfits up... I just didn't use footed jammies

> anymore.

> > I

> > > still have some but she never wears them.

> > >

> > > The one thing I found with the footless jammies last year is

they

> would

> > > make them snapped... but only on one leg or sometimes even

with

> full

> > cuffs

> > > that didn't split apart but snaps in the legs and crotch so it

> was no

> > > better than a non footed jammie. We worked around them because

I

> had dh

> > > buy her a few pairs on clearance before I realized they were

only

> snapped

> > > on one leg but they weren't ideal.

> > >

> > > If you have a digital camera could you take a pic of this wing

> nut thing

> > > for me? I'm really curious what this is and on what part of

the

> brace it

> > > is. If you can get a pic you could send it to the CFPics

list.

> I'm still

> > > interested in finding a way to make the red bar so the shoes

can

> come off

> > > easier (and go back on easier).

> > >

> > > Let us know how it goes with the hole and the red mark.

> Hopefully soon

> > > it'll be all gone!

> > >

> > > Kori & Darbi

> > >

> > >

> > >

> > >

> > >

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Guest guest

I have added snaps to a bunch of Tori's outfits. They sell a hand

snap putter oner thing at Walmart that is pretty easy to use. If

anyone wants me to add snaps or hemm legs I would be more than happy

to do pretty cheep. Just drop me an e-mail. I can send you some

pictures of stuff I have done for Tori if you wanted.

Tori 1/30/04 bilateral atypical cf

12/7/01 non cf

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Guest guest

I have added snaps to a bunch of Tori's outfits. They sell a hand

snap putter oner thing at Walmart that is pretty easy to use. If

anyone wants me to add snaps or hemm legs I would be more than happy

to do pretty cheep. Just drop me an e-mail. I can send you some

pictures of stuff I have done for Tori if you wanted.

Tori 1/30/04 bilateral atypical cf

12/7/01 non cf

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Guest guest

I modified p.j.'s for also. If you sew it's easy. I bought jacket

zippers and put them in the inseam of the blanket sleepers (cutting the feet off

below the elastic with the pinking shears). I did this to some of his outfits

too. It made for easy access and it didn't really change the look of the outfit

either.

Good Luck

Tonya and

San Diego, CA

bcf, Dr. Colburn

DBB and clothes

>

>

> Well, hubby is taking 's shoes to work tomorrow to cut holes in

> the heel so I can make sure they're on correctly and so we can see what's

> going on back there. He still has a red mark on his heel, but thankfully

> it's getting better. We have the red adjustable bar and I checked it

> against his shoulders. His heels are pretty much in line with his

> shoulders, so no problem there. We found out that the shoes actually come

> off the bar really easily....just loosen a wing nut on each one and that

> loosens the hold of the bracket thingys that hold the shoe. I figure that

> now I can wear some of the shorts and stuff that he has that don't have

> snaps on the legs. If I need to change his clothes, I can just remove the

> bar for a minute and change his pants. Definitely a lot easier and not as

> time consuming as removing the shoes. When I thought I'd always have to

> remove the shoes to change clothes like that if necessary, there was no

way

> I was going to dress him in pants without snaps, but since it would only

> take a minute or two with removing the bar, I'm willing to give it a

> shot....if I'm able to change his diaper without removing the bar. If I

> have to remove the bar each time a diaper needs changed, I guess it's

pants

> and shorts with snaps only.

>

> The things he can't wear, of course, are all the footy pajamas he has.

> Once we go to wearing the bar only at night, he can wear them during the

day

> in the fall and winter when it's colder, but I was wondering if anyone

else

> has ever tried to modify the footy pajamas by cutting off the feet and

then

> hemming the cuffs? If so, how'd it work out? I've been thinking about it

> so he can get some use out of them, but I'm not sure how that would work.

> I'm not exactly a great seamstress...I'm lucky if I can hem somthing, but

I

> do have a sewing maching so I may have to give it a try sometime.

>

> Okay, sorry for rambling on... : )

>

> and

>

>

>

>

>

>

>

>

>

>

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I actually tried modifying one last night and it worked out pretty well. I

have a Singer tiny serger, which doesn't cut the fabric, so I serged around

the fabric after cutting it to keep it from unravelling. Not necessarily

the prettiest thing, but it works and he was able to wear the sleeper.

and

BCF 03/25/2004

DBB 23/7

DBB and clothes

> >

> >

> > Well, hubby is taking 's shoes to work tomorrow to cut

holes in

> > the heel so I can make sure they're on correctly and so we can see

what's

> > going on back there. He still has a red mark on his heel, but

thankfully

> > it's getting better. We have the red adjustable bar and I checked it

> > against his shoulders. His heels are pretty much in line with his

> > shoulders, so no problem there. We found out that the shoes actually

come

> > off the bar really easily....just loosen a wing nut on each one and

that

> > loosens the hold of the bracket thingys that hold the shoe. I figure

that

> > now I can wear some of the shorts and stuff that he has that don't

have

> > snaps on the legs. If I need to change his clothes, I can just remove

the

> > bar for a minute and change his pants. Definitely a lot easier and

not as

> > time consuming as removing the shoes. When I thought I'd always have

to

> > remove the shoes to change clothes like that if necessary, there was

no

> way

> > I was going to dress him in pants without snaps, but since it would

only

> > take a minute or two with removing the bar, I'm willing to give it a

> > shot....if I'm able to change his diaper without removing the bar. If

I

> > have to remove the bar each time a diaper needs changed, I guess it's

> pants

> > and shorts with snaps only.

> >

> > The things he can't wear, of course, are all the footy pajamas he

has.

> > Once we go to wearing the bar only at night, he can wear them during

the

> day

> > in the fall and winter when it's colder, but I was wondering if anyone

> else

> > has ever tried to modify the footy pajamas by cutting off the feet and

> then

> > hemming the cuffs? If so, how'd it work out? I've been thinking

about it

> > so he can get some use out of them, but I'm not sure how that would

work.

> > I'm not exactly a great seamstress...I'm lucky if I can hem somthing,

but

> I

> > do have a sewing maching so I may have to give it a try sometime.

> >

> > Okay, sorry for rambling on... : )

> >

> > and

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

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