HELP

[Guest guest]

Irisheyes - go get that Pap smear! I work in a cytology lab where they read

pap smear results and I can't tell you how important it is to get a yearly

pap whether you have a uterus or not. The latest and best pap is the

ThinPrep pap - demand it! It is so much better than the old conventional

style pap smears. Now I will get down off my soap box - LOL - and tell you

that I am new to the group and I want to know everything about WLS - both

good and bad. Email me anytime you want, if you want. I am hoping to have

surgery in late April or the first week of May.

Let me know how you're doing, and yes, get those hormone levels checked, and

please have that pap done.

Dorita

[Guest guest]

thanks ... I order my protein from you (pure whey stack chocolate..mmm) so I

know its good protein and I mix with water... just paranoid with the

calories...but ...I am going to increase my shakes. I was drinking two a day

earlier after my surgery but stopped a month or so ago and dropped to 1 per

day as my weight wasn't coming off too fast and I thought maybe the extra

calorie drop would help.

I will increase the protein sups and make sure I drink my water and see what

happens...

sherry in tn

[Guest guest]

Hi Carla,

The test with the dye contrast is not a good idea if you have reduced renal

function, and it will not give a diagnosis for IgAN. The only way to get a

definitive diagnosis for IgAN is with a biopsy. The IVP test (dye contrast)

is normally to see if all the plumbing to the kidneys is working, but it

cannot tell if there are IgA deposits in the kidneys. Only a biopsy can do

that.

I am sorry you are getting the runaround. I hope you can get some better

answers at your appointment at the Ohio University Hospital.

In a message dated 3/24/2005 9:04:06 A.M. Pacific Standard Time,

bh.carla@... writes:

So if I'm understanding you the only way to tell if you have IgaN is with a

biopsy if I was to have a dye test to see the functioning of the kidney's

would it show anything?

Thanks for your assistance,

Carla

[Guest guest]

Carla,

I want to add my welcome as well. Unfortunately, the only sure fire way to truly

diagnose IgAN is a needle biopsy. I had the dye tests too, but they only show

the function, not the cause of any issues.

PS - sounds like your doctor failed bedside manner.

Carla wrote:

Actually I'm only getting the run around from all of the doctors that I've seen

and I have an appt pending with the Ohio University Hosipital doctors, I hope.

The neph I saw basically said he couldn't or wouldn't help me. I have been very

frustrated with the lack of medical care I have received my doctor at least will

tell me that he doesn't know what's going on. So if I'm understanding you the

only way to tell if you have IgaN is with a biopsy if I was to have a dye test

to see the functioning of the kidney's would it show anything?

Thanks for your assistance,

Carla

Help

I have had a 10 yr history of kidney infections that have associated

flank pain. As of Dec 2004 the pain is now daily but the hospital and

doctors haven't been able to diagnosis me with any specific problem.

The pain was at first associated with high frutose corn syrup but as

it has progressed in the past 4 months I have increased pain after I

eat and when I urinate. The flank pain area feels like it swollen,

inflammed, and hard. My urinalysis tests of late have shown normal

results whereas in Dec and Jan every test I had showed I have high

protein in my urine. I have also since developed high blood pressure

and low blood sugar. I have been successful in lowering my pain by

working on and changing my diet but I still have pain. I feel that by

reading the information on your website that I have some of the

symptoms listed but not all. I have been very frustrated with how

little help doctors have been able to give me or how willing they

have been to help me. I'm not looking for anyone to diagnosis me but

to see if there are other people out there that have simular problems

and/or suggestions to help.

Sincerely,

Carla

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Thank you

[Guest guest]

Yuksel,

I have the burning in the leg at night when I am in bed. If this

happens

I turn to the other side and it goes away. Try to do the stretches they do

help with this. Do it in the morning after you get up and again at night

before you go to bed. It will hurt at first but you are so much better off

in the long run. Hope this helps.

Jane Anne from Georgia

help

[Guest guest]

Yuksel,

I have the burning in the leg at night when I am in bed. If this

happens

I turn to the other side and it goes away. Try to do the stretches they do

help with this. Do it in the morning after you get up and again at night

before you go to bed. It will hurt at first but you are so much better off

in the long run. Hope this helps.

Jane Anne from Georgia

help

[Guest guest]

I have terrible burning in my hamstrings. Are your muscles always

constricted? No, I have not found a solution yet.

Do you have swallow problems also?

dale

help

> Dear PLS Friends,

>

> May be some of you will remember me.I have joined the group three years

> ago, but I have not been active in the group since then. I have been

> trying to find a solution for the problem in my legs for one year. I have

> severe pain and the feeling of burn in my upper left leg. Do any of you

> guys have the same problem?

> And do you know any kind of cure? I am really wondering if this pain is a

> part of our illness. Also my speech is getting worse since one year. I am

> looking for an answer.

> Best wishes from Istanbul, Turkey.

>

> Yuksel Ustun

>

>

>

> ---------------------------------

> Start your day with Yahoo! - make it your home page

>

>

[Guest guest]

I have terrible burning in my hamstrings. Are your muscles always

constricted? No, I have not found a solution yet.

Do you have swallow problems also?

dale

help

> Dear PLS Friends,

>

> May be some of you will remember me.I have joined the group three years

> ago, but I have not been active in the group since then. I have been

> trying to find a solution for the problem in my legs for one year. I have

> severe pain and the feeling of burn in my upper left leg. Do any of you

> guys have the same problem?

> And do you know any kind of cure? I am really wondering if this pain is a

> part of our illness. Also my speech is getting worse since one year. I am

> looking for an answer.

> Best wishes from Istanbul, Turkey.

>

> Yuksel Ustun

>

>

>

> ---------------------------------

> Start your day with Yahoo! - make it your home page

>

>

[Guest guest]

Marna wrote:Hi there - I am in the hospital with mine.

Sounds like you need to be

converted and then placed on medication,

I'd keep going back until I got results.

Marna

help

> My name is Danny and I'm 37 years old,

> It started on the 1st June 2005 with palputions while playing golf,

> next day I went to hospital with pains in my chest ecg etc were ok.

> Two more visits after feeling worse, same again ok, my doctor put it

> down to a virus (I like my doctor and feel she is understanding and

> helpful).

> 4 weeks later still no better, so my doctor sent me to the emergancy

> assement unit at the hospital. They felt I was over worried but

> would refer me to a cardiolgist.

> I paid to see one a week later, he agreed with the doctor that it

> could be a virus but agreed to do an exerise test. During this my

> heart went to 230bpm and I was told I had AF and put on 50mg Atenolo

> and asprin.

> I have since had a angiograph (my heart is fine)and another exersise

> test await results (although was better).

> I still get pain in my chest daily and the last 4 nights my heart

> wakes me up in the night it feels like an old diesel engine chugging

> away in my chest,is this normal?

> As I typre this my feet are freezing again, is this normal with AF?

> I also get a pain in my left leg when in AF does anyone else?

> Will I just settle down over time or do I need to do anything else?

> Thank you for reading this I have found this group very helpful.

>

>

>

>

>

>

>

>

>

>

> Web Page - http://www.afibsupport.com

> List owner: AFIBsupport-owner

> For help on how to use the group, including how to drive it via email,

> send a blank email to AFIBsupport-help

>

> Nothing in this message should be considered as medical advice, or should

> be acted upon without consultation with one's physician.

>

[Guest guest]

> My name is Danny and I'm 37 years old,

> It started on the 1st June 2005 with palputions while playing golf,

> next day I went to hospital with pains in my chest ecg etc were ok.

> Two more visits after feeling worse, same again ok, my doctor put

it

> down to a virus (I like my doctor and feel she is understanding and

> helpful).

> 4 weeks later still no better, so my doctor sent me to the

emergancy

> assement unit at the hospital. They felt I was over worried but

> would refer me to a cardiolgist.

> I paid to see one a week later, he agreed with the doctor that it

> could be a virus but agreed to do an exerise test. During this my

> heart went to 230bpm and I was told I had AF and put on 50mg

Atenolo

> and asprin.

> I have since had a angiograph (my heart is fine)and another

exersise

> test await results (although was better).

> I still get pain in my chest daily and the last 4 nights my heart

> wakes me up in the night it feels like an old diesel engine

chugging

> away in my chest,is this normal?

> As I typre this my feet are freezing again, is this normal with AF?

> I also get a pain in my left leg when in AF does anyone else?

> Will I just settle down over time or do I need to do anything else?

> Thank you for reading this I have found this group very helpful.

Your blood pressure can drop when in afib due to the atria not

pumping adequately to fill the ventricles. Also a side affect of

atenolol is to lower blood pressure and to make you more sensitive to

cold. When I was on atenolol I was cold all the time. It turned out

that I probably shouldn't have been on a beta blocker in the first

place. Learn all you can about your condition and challenge your

cardio as necessary. Unless you have a very very good cardio, you

will soon know more about the details than he/she does. Murray

[Guest guest]

To all,

Am I getting through?

Jane Anne

[Guest guest]

In a message dated 12/12/2005 1:38:49 P.M. Eastern Standard Time,

hurstk_2000@... writes:

I know he is exhausted right about now with all of this testing and going to

the doctors. But I am trying to space out the appointments so it is not soo

overwhelming! I suppose all the testing and poking and prodding are something

to be reckoned with.

I use to make it a point to add in something fun at the end of the day.

Nothing big or expensive, but something that took the edge off the day as it

came

to an end.

For instance, near Ian's audiologist is a Borders books store. We'd go in

there because they have a bigger comic book section that the one near us --

the store is twice the size of ours. He'd look over the comic books and I'd let

him pick out one or two while I got a cup of coffee for the drive home.

When we were going into NYC often, I'd stop on the way home at this pizza

place near where I use to live. It's still owned by the same family and they

still have the biggest slices of pizza you've ever seen. Plus it's great pizza,

just like when we were in high school.

It's not fun to be poked and prodded and treated like a lab rat. After a

while it got to Ian, but I would point out that the lab-rat stage had to end

soon since there were only so many tests they could run.

It did end, and Borders is still near the audiologist. So it's now a

tradition for us to go there after the audi visits even though the visits aren't

at

all traumatic anymore.. Ian saves his b'day money or Christmas gift cards so

he can buy graphic novels (big bound comic books that cost $10-12) at that

store where the selection is better. It's 45 minutes away from home, so we

don't go there every often.

Find something to soften the lab-rat feeling. Something as simple as trying

to hold up and eat a huge slice of pizza was enough to get my Ian smiling and

laughing again after a really long doctor-day. (FYI, I look absolutely

lovely with pizza sauce all over my hands and face, LOL)

Best -- Jill

[Guest guest]

I found out in January that I was Type 2, and had been living on

pasta, rice, potatoes, cheetos, and chocolate. Might have had

someting to do with my disease. I think alot of us fell victim to the

low fat diet syndrome and overdid carbs. I had lost 25 pounds before

January, and have lost 11 more since. The day my doctor tested me, I

poured out my Coke and got a bottle of water. I went to diabetes

school, and guess what they told me to eat three servings of per meal,

bread, potatoes, pasta, etc. So I loved the diet. Huh!!! My BG went

even higher, so doctor increased my meds. Finally, I started

investigating what other diabetics do, and found out that I cannot eat

those things and get my BG down to normal. So I increased low fat

protein and eat lots of low glycemic vegetables, some fruit, etc. I

have discovered that sugar free, low fat pudding and ice cream are

real treats if you just have to have something sweet. Also, the

dietician said if I just had to have chocolate, eat a few M & Ms or a

fun size candy bar. Just don't overdo it. My fasting BG is now under

110 and never over 170 after meals. I have not had a new a1c test but

know it will be lower than the 12.7 in January. I agree once you get

off the foods you shouldn't eat, you will feel so much better, and may

be able to sneak some back in later. My husband of 37 years is skinny

and can eat anything he wants, but is very supportive of me and helps

me cook things I can eat. Maybe for awhile you should stay away from

people who eat things in front of you that you can't have. Hope you

can do this, it will really help your health. Rose

>

> ever since i have found out that i have type 2 (on meds) i have

turned

> into an eating machine. I want sugar and i want carbs. I find myself

> binging. Then I feel terrible. Can anyone please give me advice on

how

> to control this crazy behavior

>