Re: Hearing when CI is off

February 8, 2006

I read a book last year called " Alone in the Mainstream " written by a woman who

was born with a hearing loss. I believe that she breifly spoke about this

happening to her (or I'm confusing it with something else that I read). She

would wake in the middle of the night and " hear " what she thought were people in

the house. I also know a child who complained of hearing " noise " when there

wasn't any around. That father had mentioned a book to me about it, but I can't

remember it. I will see him next weekend and will ask about it.

Debbie, mom to , 6, moderate SNHL and , 3, hearing

Who Knows wrote:

Has anyone had their child say they are hearing sounds when their CI is off?

There has been a pretty bad cold going around our area (St. Louis) and for

the past few days we have all had headaches including our daughter (7yo

implanted with Clarion). Last night she woke up around 3 in the morning saying

that she was hearing a clicking sound and humming sound

" inside my head " . We asked her what it sounded like and she said it was like a

" toy man " and she made some motions like a toy wind up soldier.

Some men see things as they are and ask why. Others dream things that never were

and ask why not. G.B Shaw

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Yahoo! Mail - Helps protect you from nasty viruses.

February 8, 2006

This is an interesting topic for me. Sam, my younger son (he's 11) has

been complaining for the past month or so of an occasional " clicking "

sound. I don't think it's happened during sleep - it seems to be during

waking hours. Sam by the way is not implanted - he wears two hearing

aids. We have an appointment with our audiologist next week to see if

she can figure out what's going on. I've had Sam tracking the time of

day it happens and what he's doing but there seems to be no pattern to

it. It's weird...

Barbara

Deb DiAnni wrote:

> I read a book last year called " Alone in the Mainstream " written by a woman

who was born with a hearing loss. I believe that she breifly spoke about this

happening to her (or I'm confusing it with something else that I read). She

would wake in the middle of the night and " hear " what she thought were people in

the house. I also know a child who complained of hearing " noise " when there

wasn't any around. That father had mentioned a book to me about it, but I can't

remember it. I will see him next weekend and will ask about it.

>

> Debbie, mom to , 6, moderate SNHL and , 3, hearing

>

> Who Knows wrote:

> Has anyone had their child say they are hearing sounds when their CI is off?

There has been a pretty bad cold going around our area (St. Louis) and for

> the past few days we have all had headaches including our daughter (7yo

implanted with Clarion). Last night she woke up around 3 in the morning saying

that she was hearing a clicking sound and humming sound

> " inside my head " . We asked her what it sounded like and she said it was like

a " toy man " and she made some motions like a toy wind up soldier.

>

> Some men see things as they are and ask why. Others dream things that never

were and ask why not. G.B Shaw

>

> ---------------------------------

> Yahoo! Mail - Helps protect you from nasty viruses.

>

February 8, 2006

In a message dated 2/8/2006 9:37:58 A.M. Central Standard Time,

trydees@... writes:

Last night she woke up around 3 in the

morning saying that she was hearing a clicking sound and humming sound

" inside my head " . We asked her what it sounded like and she said it was

like a " toy man " and she made some motions like a toy wind up soldier.

I experienced this a lot when I would take my hearing aid off. Several of

my friends, including one with a CI, have experienced it too. It is tinnitus

or ringing in the ear. I compare it to Chinese Water Torture because

sometimes it is hard to sleep at night with that noise going on in the head.

Putz

Illinois Families for Hands & Voices

_www.handsandvoices.org_ (http://www.handsandvoices.org/)

_www.ilhandsandvoices.org_ (http://www.ilhandsandvoices.org/)

Email: support@...

February 8, 2006

That sounds like a form of tinnitis to me. Some people hear a noise like trains,

some hear

music, some hear sequences of clicking. I've read that if the " sound " disappears

when the CI

is turned back on, that's a sure sign of tinnitis.

Janet

February 8, 2006

<<Has anyone had their child say they are hearing sounds when their CI is off?

>>

Neal has actually said he hears sounds with his implant off a few times in the

past month or so. I assumed it was tinnitus. I asked his audiologist about it

and she agreed. I think tinnitus is often a more constant ringing in the ears,

like I have in my deaf ear, but the audiologist said that sometimes deaf kids

report it as being more sudden and brief, and definitely more likely to occur in

extreme quiet. It makes Neal mad. He grabs his head and says, " Aaargh. Why is

that stinkin' noise in my head. " The audiologist also said that that is a

normal reaction to it. She said the best way to handle it is just to tell the

kid what it is and explain that it's normal, etc. That was what I had already

done with Neal, so I was kind of proud to have figured it out on my own. LOL.

BTW: When Neal first heard it, he couldn't describe it very well. He said it

was too weird to explain. But once he figured out how to make the sound, I

could tell it was similar to the tinnitus I have.

Rhonda Savage

Mom to Audrey, 8, hearing; and Neal, 6, CII at 2.9 years

" Hard does not mean impossible. "

February 8, 2006