Guest guest Posted February 25, 2004 Report Share Posted February 25, 2004 Welcome Joyce, Hop on board! This is a good place to get info and support. The people here are real nice. (I'm even nice sometimes). How many Dr's have you tried? Have you seen a Rheumatologist? That is the kind of Dr you need. We can have lupus with the tests coming out borderline. We know how you feel about being tired and having pain. We are not just tired in the way our friends and family feel tired. When we feel tired they don't understand that we are exausted! Sometimes the bed seems to be calling me and I just have to crawl in to it. I used to feel guilty about taking naps but my Dr said I have to nap when I am tired if I want to feel better & hurt less. I finally realized that it is what I have to do and that is that! Now I just enjoy it. Joyce,, do you live in a large city? I know that NY isn't all NY city. Call hospitals and see if you can find a support group meeting at a hospital. Meanwhile we can help you too. Learn all you can about Lupus. Pull up the American Lupus Foundation on the web. Cheryl in CA ???????????_____________ ubject: Re: Looking for an understanding person ... Hi, my name is Joyce, I don't know if I have Lupus, but it tested borderline 3 times in a row. Anyway, I do feel rotten, have absolutely no support. In fact life stinks.Tired all the time, and in pain. I live in NY and the quality of the air is awful.Love, Joyce ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Quote Link to comment Share on other sites More sharing options...
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