Re: I want to say something here tonight beneficially for all of you

[Guest guest]

Lou,

Oh this post makes my heart happy! I'm so glad that you've taken this step. It was exactly right and now you can relax and just let other people help you.

We love you Lou, this day and every day!!

Beth in North Carolina

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Friday, January 30, 2009 8:54:23 PMSubject: I want to say something here tonight beneficially for all of you

Even though I am on Hospice it is the best thing i have ever done for my family and myself. Itis nothing to be ashamed of. It is above all the most wonderful thing you could every do for your your family OR yourself. 'I am going to bed now, very tired tonight. The hospice bed is in the living room near our big tv, and is sleeping on the couch next to me and when Earl gets home shortly, he can stretch out in the queen size bed in our bedroom with .All the paper work has been done, and all my medical files and future procedures are to be done by my private physician. My Pulmo stopped by my house tonight to check me over good and said no change in my lungs, etc. Wants me to take one "revitio" pill once a day and see what happens. Maybe some of it will work. He was so pleased the way Hospice of Virginia took over so quickly and are so proficient and professional. They even have

a box of taped morphine with shringd droppr in the refrigerator if I can't breathe only have to call them first. Special dirctions. has been here all day yesterday and tonight staying too. Hospice has CNA which are nurses who come in 2-3 times a week to give you a nice bath if you like or they will do anything you want done around the house.I am blessed and thank God I don't have to go tot he dr. anymore. They deliver the pills right to your door, no charge, It is wonderful and I AM HOME, GUYS. HOME WITH MY BELOVED FAMILY AND KATIE TOO. wILL WRITE MORE TOMORROW.I LOVE YOU THIS DAYMARY LOUIPF 02

[Guest guest]

Lou, Rest easy my friend. I love you and know how wonderful it is to have there with you.Think Happy thoughts and know you are so loved by so many. I am glad hospice is so good to you..they would have to be. You would just love'em till they loved ya back, your such a sweetie.Lay back and rest and breathe easy. You are beneficial to us just being you.   Love & Prayers, PeggyFlorida,  IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly."  Even though I am on Hospice it is the best thing i have ever done for my family and myself. Itis nothing to be ashamed of. It is above all the most wonderful thing you could every do for your your family OR yourself. 'I am going to bed now, very tired tonight. The hospice bed is in the living room near our big tv, and is sleeping on the couch next to me and when Earl gets home shortly, he can stretch out in the queen size bed in our bedroom with .All the paper work has been done, and all my medical files and future procedures are to be done by my private physician. My Pulmo stopped by my house tonight to check me over good and said no change in my lungs, etc. Wants me to take one "revitio" pill once a day and see what happens. Maybe some of it will work. He was so pleased the way Hospice of Virginia took over so quickly and are so proficient and professional. They even have a box of taped morphine with shringd droppr in the refrigerator if I can't breathe only have to call them first. Special dirctions. has been here all day yesterday and tonight staying too. Hospice has CNA which are nurses who come in 2-3 times a week to give you a nice bath if you like or they will do anything you want done around the house.I am blessed and thank God I don't have to go tot he dr. anymore. They deliver the pills right to your door, no charge, It is wonderful and I AM HOME, GUYS. HOME WITH MY BELOVED FAMILY AND KATIE TOO. wILL WRITE MORE TOMORROW.I LOVE YOU THIS DAYMARY LOUIPF 02

[Guest guest]

Lou

So glad to read your post. I know the right hospice is so comforting. I

would be so much more frightened of the future than I am were it not for

knowing hospice is there. There comes that point that you don't care

what you have or how sick the labs say you are or anything else except

how you feel and please no pain. As I sit here thinking of you, just

knowing the morphine is taped and knowing you have someone to call and

someone who cares. There are exceptions like anything but the vast

majority of hospice workers are such dedicated, loving, caring people.

That's what has led them to that area of practice. It's nice knowing

they are there for you and your family.

>

>

> Even though I am on Hospice it is the best thing i have ever done for

> my family and myself. Itis nothing to be ashamed of. It is above

> all the most wonderful thing you could every do for your your family

> OR yourself. '

>

> I am going to bed now, very tired tonight. The hospice bed is in the

> living room near our big tv, and is sleeping on the couch next

> to me and when Earl gets home shortly, he can stretch out in the

> queen size bed in our bedroom with .

>

> All the paper work has been done, and all my medical files and future

> procedures are to be done by my private physician. My Pulmo stopped

> by my house tonight to check me over good and said no change in my

> lungs, etc. Wants me to take one " revitio " pill once a day and see

> what happens. Maybe some of it will work. He was so pleased the way

> Hospice of Virginia took over so quickly and are so proficient and

> professional. They even have a box of taped morphine with shringd

> droppr in the refrigerator if I can't breathe only have to call them

> first. Special dirctions. has been here all day yesterday and

> tonight staying too. Hospice has CNA which are nurses who come in 2-

> 3 times a week to give you a nice bath if you like or they will do

> anything you want done around the house.

>

> I am blessed and thank God I don't have to go tot he dr. anymore.

> They deliver the pills right to your door, no charge, It is

> wonderful and I AM HOME, GUYS. HOME WITH MY BELOVED FAMILY AND KATIE

> TOO. wILL WRITE MORE TOMORROW.

>

> I LOVE YOU THIS DAY

> MARY LOU

> IPF 02

>

[Guest guest]

Lou, Please take care of YOU and

allow the hospice people to help YOU.

I will keep you in my thoughts because you are a caring woman with a

wonderful sense of humor and strength.

I remember your battle with your eye and the panties you used as an eye

patch!!!

Your ability to find humor has helped you throughout this battle and

helped all of us as well.

Z fibriotic NSIP/05

Z 65,

fibriotic NSIP/o5/PA

And “mild”

PH/10/07 and Reynaud’s too!!

No, NSIP was not

self-inflicted…I never smoked!

Potter,

reader,carousel lover and MomMom to

Darah

and Sara

“I’m gonna

be iron like a lion in Zion” Bob Marley

Vinca

Minor-periwinkle is my flower

Lou wrote:

Even though I am on Hospice it is the best thing i have ever done for

my family and myself. Itis nothing to be ashamed of. It is above

all the most wonderful thing you could every do for your your family

OR yourself. '

I am going to bed now, very tired tonight. The hospice bed is in the

living room near our big tv, and is sleeping on the couch next

to me and when Earl gets home shortly, he can stretch out in the

queen size bed in our bedroom with .

All the paper work has been done, and all my medical files and future

procedures are to be done by my private physician. My Pulmo stopped

by my house tonight to check me over good and said no change in my

lungs, etc. Wants me to take one "revitio" pill once a day and see

what happens. Maybe some of it will work. He was so pleased the way

Hospice of Virginia took over so quickly and are so proficient and

professional. They even have a box of taped morphine with shringd

droppr in the refrigerator if I can't breathe only have to call them

first. Special dirctions. has been here all day yesterday and

tonight staying too. Hospice has CNA which are nurses who come in 2-

3 times a week to give you a nice bath if you like or they will do

anything you want done around the house.

I am blessed and thank God I don't have to go tot he dr. anymore.

They deliver the pills right to your door, no charge, It is

wonderful and I AM HOME, GUYS. HOME WITH MY BELOVED FAMILY AND KATIE

TOO. wILL WRITE MORE TOMORROW.

I LOVE YOU THIS DAY

MARY LOU

IPF 02

No virus found in this incoming message.

Checked by AVG - http://www.avg.com Version: 8.0.233 / Virus Database: 270.10.16/1925 - Release Date: 1/30/2009 7:37 AM

[Guest guest]

Lou, Please take care of YOU and

allow the hospice people to help YOU.

I will keep you in my thoughts because you are a caring woman with a

wonderful sense of humor and strength.

I remember your battle with your eye and the panties you used as an eye

patch!!!

Your ability to find humor has helped you throughout this battle and

helped all of us as well.

Z fibriotic NSIP/05

Z 65,

fibriotic NSIP/o5/PA

And “mild”

PH/10/07 and Reynaud’s too!!

No, NSIP was not

self-inflicted…I never smoked!

Potter,

reader,carousel lover and MomMom to

Darah

and Sara

“I’m gonna

be iron like a lion in Zion” Bob Marley

Vinca

Minor-periwinkle is my flower

Lou wrote:

Even though I am on Hospice it is the best thing i have ever done for

my family and myself. Itis nothing to be ashamed of. It is above

all the most wonderful thing you could every do for your your family

OR yourself. '

I am going to bed now, very tired tonight. The hospice bed is in the

living room near our big tv, and is sleeping on the couch next

to me and when Earl gets home shortly, he can stretch out in the

queen size bed in our bedroom with .

All the paper work has been done, and all my medical files and future

procedures are to be done by my private physician. My Pulmo stopped

by my house tonight to check me over good and said no change in my

lungs, etc. Wants me to take one "revitio" pill once a day and see

what happens. Maybe some of it will work. He was so pleased the way

Hospice of Virginia took over so quickly and are so proficient and

professional. They even have a box of taped morphine with shringd

droppr in the refrigerator if I can't breathe only have to call them

first. Special dirctions. has been here all day yesterday and

tonight staying too. Hospice has CNA which are nurses who come in 2-

3 times a week to give you a nice bath if you like or they will do

anything you want done around the house.

I am blessed and thank God I don't have to go tot he dr. anymore.

They deliver the pills right to your door, no charge, It is

wonderful and I AM HOME, GUYS. HOME WITH MY BELOVED FAMILY AND KATIE

TOO. wILL WRITE MORE TOMORROW.

I LOVE YOU THIS DAY

MARY LOU

IPF 02

No virus found in this incoming message.

Checked by AVG - http://www.avg.com Version: 8.0.233 / Virus Database: 270.10.16/1925 - Release Date: 1/30/2009 7:37 AM

[Guest guest]

Lou, Please take care of YOU and

allow the hospice people to help YOU.

I will keep you in my thoughts because you are a caring woman with a

wonderful sense of humor and strength.

I remember your battle with your eye and the panties you used as an eye

patch!!!

Your ability to find humor has helped you throughout this battle and

helped all of us as well.

Z fibriotic NSIP/05

Z 65,

fibriotic NSIP/o5/PA

And “mild”

PH/10/07 and Reynaud’s too!!

No, NSIP was not

self-inflicted…I never smoked!

Potter,

reader,carousel lover and MomMom to

Darah

and Sara

“I’m gonna

be iron like a lion in Zion” Bob Marley

Vinca

Minor-periwinkle is my flower

Lou wrote:

Even though I am on Hospice it is the best thing i have ever done for

my family and myself. Itis nothing to be ashamed of. It is above

all the most wonderful thing you could every do for your your family

OR yourself. '

I am going to bed now, very tired tonight. The hospice bed is in the

living room near our big tv, and is sleeping on the couch next

to me and when Earl gets home shortly, he can stretch out in the

queen size bed in our bedroom with .

All the paper work has been done, and all my medical files and future

procedures are to be done by my private physician. My Pulmo stopped

by my house tonight to check me over good and said no change in my

lungs, etc. Wants me to take one "revitio" pill once a day and see

what happens. Maybe some of it will work. He was so pleased the way

Hospice of Virginia took over so quickly and are so proficient and

professional. They even have a box of taped morphine with shringd

droppr in the refrigerator if I can't breathe only have to call them

first. Special dirctions. has been here all day yesterday and

tonight staying too. Hospice has CNA which are nurses who come in 2-

3 times a week to give you a nice bath if you like or they will do

anything you want done around the house.

I am blessed and thank God I don't have to go tot he dr. anymore.

They deliver the pills right to your door, no charge, It is

wonderful and I AM HOME, GUYS. HOME WITH MY BELOVED FAMILY AND KATIE

TOO. wILL WRITE MORE TOMORROW.

I LOVE YOU THIS DAY

MARY LOU

IPF 02

No virus found in this incoming message.

Checked by AVG - http://www.avg.com Version: 8.0.233 / Virus Database: 270.10.16/1925 - Release Date: 1/30/2009 7:37 AM

[Guest guest]

Bless you, bless you, bless you, Lou. May God keep you in the

palm of His hands and give you blessed peace. Enjoy your family and

feel the love. Hospice was a blessing for our family a couple of

years ago in Raleigh.

S, Lubbock, TX

nSIP w/PF 12/2006 et al

>

>

> Even though I am on Hospice it is the best thing i have ever done

for

> my family and myself. Itis nothing to be ashamed of. It is above

> all the most wonderful thing you could every do for your your

family

> OR yourself. '

>

> I am going to bed now, very tired tonight. The hospice bed is in

the

> living room near our big tv, and is sleeping on the couch next

> to me and when Earl gets home shortly, he can stretch out in the

> queen size bed in our bedroom with .

>

> All the paper work has been done, and all my medical files and

future

> procedures are to be done by my private physician. My Pulmo stopped

> by my house tonight to check me over good and said no change in my

> lungs, etc. Wants me to take one " revitio " pill once a day and see

> what happens. Maybe some of it will work. He was so pleased the

way

> Hospice of Virginia took over so quickly and are so proficient and

> professional. They even have a box of taped morphine with shringd

> droppr in the refrigerator if I can't breathe only have to call

them

> first. Special dirctions. has been here all day yesterday

and

> tonight staying too. Hospice has CNA which are nurses who come in

2-

> 3 times a week to give you a nice bath if you like or they will do

> anything you want done around the house.

>

> I am blessed and thank God I don't have to go tot he dr. anymore.

> They deliver the pills right to your door, no charge, It is

> wonderful and I AM HOME, GUYS. HOME WITH MY BELOVED FAMILY AND

KATIE

> TOO. wILL WRITE MORE TOMORROW.

>

> I LOVE YOU THIS DAY

> MARY LOU

> IPF 02

>

[Guest guest]

Bruce... I sure backup what you write here about hospice. I worked with hospice many years ago and my opinion is firmly rooted in the quality of care given to any and all. I will not hesitate to call in hospice when necessary.

I think some think that it's hospice/death. Not always...look at Vicky...and if we are close to transition what a comfort and compassionate way to transition.

I do think of L. however, who we know already transitioned to heaven but she said she had such a hard time with hospice. I won't forget her last few months and I'm glad her experience is not typical. Maybe it was meds...I'd like to think that when she returned to hospice after leaving for awhile, her final days were indeed better.

MamaSher, age 70. IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Re: I want to say something here tonight beneficially for all of you

LouSo glad to read your post. I know the right hospice is so comforting. Iwould be so much more frightened of the future than I am were it not forknowing hospice is there. There comes that point that you don't carewhat you have or how sick the labs say you are or anything else excepthow you feel and please no pain. As I sit here thinking of you, justknowing the morphine is taped and knowing you have someone to call andsomeone who cares. There are exceptions like anything but the vastmajority of hospice workers are such dedicated, loving, caring people.That's what has led them to that area of practice. It's nice knowingthey are there for you and your family.>>> Even though I am on Hospice it is the best thing i have ever done for> my family and myself. Itis nothing to be ashamed of. It is above> all the most wonderful thing you could every do for your your family> OR yourself. '>> I am going to bed now, very tired tonight. The hospice bed is in the> living room near our big tv, and is sleeping on the couch next> to me and when Earl gets home shortly, he can stretch out in the> queen size bed in our bedroom with .>> All the paper work has been done, and all my medical files and future> procedures are to be done by my private physician. My Pulmo stopped> by my house tonight to check me over good and said no change in my> lungs, etc. Wants me to take one "revitio" pill once a day and see> what happens. Maybe some of it will work. He was so pleased the way> Hospice of Virginia took over so quickly and are so proficient and> professional. They even have a box of taped morphine with shringd> droppr in the refrigerator if I can't breathe only have to call them> first. Special dirctions. has been here all day yesterday and> tonight staying too. Hospice has CNA which are nurses who come in 2-> 3 times a week to give you a nice bath if you like or they will do> anything you want done around the house.>> I am blessed and thank God I don't have to go tot he dr. anymore.> They deliver the pills right to your door, no charge, It is> wonderful and I AM HOME, GUYS. HOME WITH MY BELOVED FAMILY AND KATIE> TOO. wILL WRITE MORE TOMORROW.>> I LOVE YOU THIS DAY> MARY LOU> IPF 02>