Re: advice on biopsy

[Guest guest]

Hi Phil, I know the worries of having your child go thru any kind of surgery,

when my youngest son was three we found a lump under his arm. A few day before

he went into surgery we told him he would be asleep while the doctor takes your

lump away. He was actually quite fascinated by what the nurses were doing and

asked them questions the day of his surgery. My husband got to be with him

until he feel asleep in the operating room. The tough part when he came home,

was to keep him still so he wouldn't rip his stitches out. We watched movies,

read alot of books, I had bought him some new paint by numbers, and a chalk

board that was his favorite. Good luck with your sons biopsy, I wish you all

the best!

W4JC@... wrote:

Hi Phil,

You have already gotten some excellent replies to your son's biopsy, so

there is nothing I can add by way of advise but what I can do is pray for him on

Wednesday.

I have added him to my prayer calendar and will do just that on Wednesday.

Please let us know how it went when you have a chance.

God bless you

In a message dated 4/1/2005 8:36:53 A.M. Pacific Standard Time,

phil_m_palmer@... writes:

My 3 year old is getting a kidney biopsy this Wednesday. Can anyone who

has experience with this procedure on a young child offer me advice on

what to tell my son? He needs to know what is going to happen so he

feels safe and secure. In the past, I made a point to explain

everything to my son before we got to the

doctors/hospital/radiologist/etc. This time I don't understand the

detailed steps to this procedure so it is difficult for me to explain

what will happen to him without scaring him unnecessarily. I have

placed a call with the case nurse, but she has not called me back, yet.

Phil

[Guest guest]

Hi Phil,

Just wanted to let you know, we are from the Boston area, we drove out with

our daughter for a second opinion at s Hopkins. We saw a Dr. Geetha,

she is an angel, we saw her on 3/25/04 and although we are now seeing a

doctor her in Boston, you know, she calls me every other day to check on

Jennell. She is even talking with the new doctor we have chosen here and

they will be working together for Jennell. I loved s Hopkins, I wish we

lived closer.

Best of luck and God bless you and your child for good news

Cathy....Jennell's Mom

[Guest guest]

Hi Phil,

Just wanted to let you know, we are from the Boston area, we drove out with

our daughter for a second opinion at s Hopkins. We saw a Dr. Geetha,

she is an angel, we saw her on 3/25/04 and although we are now seeing a

doctor her in Boston, you know, she calls me every other day to check on

Jennell. She is even talking with the new doctor we have chosen here and

they will be working together for Jennell. I loved s Hopkins, I wish we

lived closer.

Best of luck and God bless you and your child for good news

Cathy....Jennell's Mom

[Guest guest]

Hi Phil,

Just wanted to let you know, we are from the Boston area, we drove out with

our daughter for a second opinion at s Hopkins. We saw a Dr. Geetha,

she is an angel, we saw her on 3/25/04 and although we are now seeing a

doctor her in Boston, you know, she calls me every other day to check on

Jennell. She is even talking with the new doctor we have chosen here and

they will be working together for Jennell. I loved s Hopkins, I wish we

lived closer.

Best of luck and God bless you and your child for good news

Cathy....Jennell's Mom

[Guest guest]

Hi Phil,

I'm just back from a few days off so forgive my late reply. Hopefully,

some of our experience might be useful.

For and I, the anticipation was worse than the actual biopsy. I

know I was running on raw terror at the time trying to find any disease that

matched 's symptoms. was petrified until the fentenyl kicked

in (no surprise there). They let me stay in until the IV was in place.

The biopsy went quickly after that (maybe 10-15 minutes). Right after the

biopsy, was moved into pediatric intensive care for an hour during

which they took vitals every five minutes. After IC, he went to the day

hospital for the balance of the day. We were at the hospital for 8-9 hours.

The big post-biopsy warnings were to avoid bumps on the road (as if we could

get out of the hospital without going over speedbumps! It was a memorable

drive) and to stay as immobile as possible for a day or so. Essentially,

any activities that might cause the tiny clot to dislodge were off limits

for a few days. His docs admitted they were very conservative and ruled out

school for two weeks. Many adults go to work the next day.

Analysis of the biopsy sample involves light microscopy, electron microscopy

and immunoflourescence. Light microscopy results are available almost

immediately (we got these the next day by phone). A pretty definitive

diagnosis can be made on the basis of light microscopy alone. The other

results take substantially longer (6 weeks for us).

Good luck on Wednesday. Please let us know how it goes.

Cy

Re: advice on biopsy

>

>

>

> Thanks .

>

> People in this group are the absolute warmiest, most supportive I

> have ever experienced. Thanks so much.

>

> Phil

>

>

> >

> > Hi Phil,

> >

> > You have already gotten some excellent replies to your son's

> biopsy, so

> > there is nothing I can add by way of advise but what I can do is

> pray for him on

> > Wednesday.

> >

> > I have added him to my prayer calendar and will do just that on

> Wednesday.

> > Please let us know how it went when you have a chance.

> >

> > God bless you

> >

> >

> >

> >

> >

> > In a message dated 4/1/2005 8:36:53 A.M. Pacific Standard Time,

> > phil_m_palmer@y... writes:

> >

> >

> > My 3 year old is getting a kidney biopsy this Wednesday. Can

> anyone who

> > has experience with this procedure on a young child offer me

> advice on

> > what to tell my son? He needs to know what is going to happen so

> he

> > feels safe and secure. In the past, I made a point to explain

> > everything to my son before we got to the

> > doctors/hospital/radiologist/etc. This time I don't understand the

> > detailed steps to this procedure so it is difficult for me to

> explain

> > what will happen to him without scaring him unnecessarily. I have

> > placed a call with the case nurse, but she has not called me back,

> yet.

> >

> > Phil

> >

> >

> >

> >

> >

> >

[Guest guest]

Hi... I'm fairly new here, but thought I would drop a quick note.

My 3 1/2 yr old daughter, , had a renal biopsy last winter when

she was just barely 2 yrs old. Overall it was a fairly good

experience. She was relatively sore afterwards for about 2 weeks,

but didn't have any major problems. We told her about what was

going to happen, but of course since she was only 2, I'm not sure

how much she took in. (Ironically, though, having said that, just

last week out of no-where she said she did not want to go to the

hospital and get anymore shots in the back! amazing...) I just KNEW

she was going to be terrified since she had already been poked and

prodded for weeks... BUT... they gave her Versed (sedative) right

after we got to the hospital and she was good and drunk when they

took her back to the OR. When the tech came to get her, he asked

her if she wanted to go breathe some candy air. A tipsy little

went willingly and happily! The only thing we weren't prepared for

was the swelling from the fluids. She was very sleepy for the rest

of the day... but once everything wore off she was good to go. I

told her dr the next day that we were having a hard time keeping her

still, and her doc said not to worry about it. So long as she

wasn't doing things like jumping on a trampoline, or other contact

sports, she would be fine.

I hope everything goes well for you. It was pretty scary for us and

she was diagnosed with IgAN, but is now in remission and doing very

well. Good luck!

Kris (mom to , 3 1/2 IgAN)

> > >

> > > Hi Phil,

> > >

> > > You have already gotten some excellent replies to your son's

> > biopsy, so

> > > there is nothing I can add by way of advise but what I can do

is

> > pray for him on

> > > Wednesday.

> > >

> > > I have added him to my prayer calendar and will do just that on

> > Wednesday.

> > > Please let us know how it went when you have a chance.

> > >

> > > God bless you

> > >

> > >

> > >

> > >

> > >

> > > In a message dated 4/1/2005 8:36:53 A.M. Pacific Standard Time,

> > > phil_m_palmer@y... writes:

> > >

> > >

> > > My 3 year old is getting a kidney biopsy this Wednesday. Can

> > anyone who

> > > has experience with this procedure on a young child offer me

> > advice on

> > > what to tell my son? He needs to know what is going to happen

so

> > he

> > > feels safe and secure. In the past, I made a point to explain

> > > everything to my son before we got to the

> > > doctors/hospital/radiologist/etc. This time I don't

understand the

> > > detailed steps to this procedure so it is difficult for me to

> > explain

> > > what will happen to him without scaring him unnecessarily. I

have

> > > placed a call with the case nurse, but she has not called me

back,

> > yet.

> > >

> > > Phil

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Hi Kris,

I am so sorry to hear that little has IgAN, but I did want to extend a

warm welcome to you. We have so many mothers and fathers of children with

IgAN here. I hope you can find this group a great source of encouragement.

Welcome again.

In a message dated 4/4/2005 4:15:04 A.M. Pacific Daylight Time,

kebmoore0405@... writes:

Hi... I'm fairly new here, but thought I would drop a quick note.

My 3 1/2 yr old daughter, , had a renal biopsy last winter when

she was just barely 2 yrs old. Overall it was a fairly good

experience. She was relatively sore afterwards for about 2 weeks,

but didn't have any major problems. We told her about what was

going to happen, but of course since she was only 2, I'm not sure

how much she took in. (Ironically, though, having said that, just

last week out of no-where she said she did not want to go to the

hospital and get anymore shots in the back! amazing...) I just KNEW

she was going to be terrified since she had already been poked and

prodded for weeks... BUT... they gave her Versed (sedative) right

after we got to the hospital and she was good and drunk when they

took her back to the OR. When the tech came to get her, he asked

her if she wanted to go breathe some candy air. A tipsy little

went willingly and happily! The only thing we weren't prepared for

was the swelling from the fluids. She was very sleepy for the rest

of the day... but once everything wore off she was good to go. I

told her dr the next day that we were having a hard time keeping her

still, and her doc said not to worry about it. So long as she

wasn't doing things like jumping on a trampoline, or other contact

sports, she would be fine.

I hope everything goes well for you. It was pretty scary for us and

she was diagnosed with IgAN, but is now in remission and doing very

well. Good luck!

Kris (mom to , 3 1/2 IgAN)

[Guest guest]

Hi Kris,

I am so sorry to hear that little has IgAN, but I did want to extend a

warm welcome to you. We have so many mothers and fathers of children with

IgAN here. I hope you can find this group a great source of encouragement.

Welcome again.

In a message dated 4/4/2005 4:15:04 A.M. Pacific Daylight Time,

kebmoore0405@... writes:

Hi... I'm fairly new here, but thought I would drop a quick note.

My 3 1/2 yr old daughter, , had a renal biopsy last winter when

she was just barely 2 yrs old. Overall it was a fairly good

experience. She was relatively sore afterwards for about 2 weeks,

but didn't have any major problems. We told her about what was

going to happen, but of course since she was only 2, I'm not sure

how much she took in. (Ironically, though, having said that, just

last week out of no-where she said she did not want to go to the

hospital and get anymore shots in the back! amazing...) I just KNEW

she was going to be terrified since she had already been poked and

prodded for weeks... BUT... they gave her Versed (sedative) right

after we got to the hospital and she was good and drunk when they

took her back to the OR. When the tech came to get her, he asked

her if she wanted to go breathe some candy air. A tipsy little

went willingly and happily! The only thing we weren't prepared for

was the swelling from the fluids. She was very sleepy for the rest

of the day... but once everything wore off she was good to go. I

told her dr the next day that we were having a hard time keeping her

still, and her doc said not to worry about it. So long as she

wasn't doing things like jumping on a trampoline, or other contact

sports, she would be fine.

I hope everything goes well for you. It was pretty scary for us and

she was diagnosed with IgAN, but is now in remission and doing very

well. Good luck!

Kris (mom to , 3 1/2 IgAN)

[Guest guest]

Hi Kris,

I am so sorry to hear that little has IgAN, but I did want to extend a

warm welcome to you. We have so many mothers and fathers of children with

IgAN here. I hope you can find this group a great source of encouragement.

Welcome again.

In a message dated 4/4/2005 4:15:04 A.M. Pacific Daylight Time,

kebmoore0405@... writes:

Hi... I'm fairly new here, but thought I would drop a quick note.

My 3 1/2 yr old daughter, , had a renal biopsy last winter when

she was just barely 2 yrs old. Overall it was a fairly good

experience. She was relatively sore afterwards for about 2 weeks,

but didn't have any major problems. We told her about what was

going to happen, but of course since she was only 2, I'm not sure

how much she took in. (Ironically, though, having said that, just

last week out of no-where she said she did not want to go to the

hospital and get anymore shots in the back! amazing...) I just KNEW

she was going to be terrified since she had already been poked and

prodded for weeks... BUT... they gave her Versed (sedative) right

after we got to the hospital and she was good and drunk when they

took her back to the OR. When the tech came to get her, he asked

her if she wanted to go breathe some candy air. A tipsy little

went willingly and happily! The only thing we weren't prepared for

was the swelling from the fluids. She was very sleepy for the rest

of the day... but once everything wore off she was good to go. I

told her dr the next day that we were having a hard time keeping her

still, and her doc said not to worry about it. So long as she

wasn't doing things like jumping on a trampoline, or other contact

sports, she would be fine.

I hope everything goes well for you. It was pretty scary for us and

she was diagnosed with IgAN, but is now in remission and doing very

well. Good luck!

Kris (mom to , 3 1/2 IgAN)