Guest guest Posted December 15, 2007 Report Share Posted December 15, 2007 Hi , I'm not sure how the band works with a child that is missing part of his brain (is that what schizencephaly is?). Cranial Tech or another banding company should be able to explain your options. Has your ped. mentioned banding? We went to CT then had them fax over measurements. Then I called our ped. and said we really wanted to band and CT was sending measurements to them. Our ped. said the measurements that day. > > > > > > My name is . My son, Nate, is 12 months old. He was born > 6 weeks > > > premature and has a condition called schizencephaly. > Currently, he > > > can't sit, roll over, crawl and he hates tummy time. We try to > use > > the > > > Bumbo, a ny jump up and a high chair as much as possible > but it > > > seems no matter how hard I try he spends a lot of time on his > back. > > He > > > has significant plagio as a result. > > > > > > I saw his neuro this week. She said he's symmetrical and > therefore > > > doesn't want to do a helmet or band. She said his skull is > still soft > > > and might round out itself. I'm worried. Is the window of > opportunity > > > closed for him? Should I push for it? Is there anything else I > can be > > > doing at home? > > > > > > Any advice would be greatly appreciated. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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