RE: new diagnosis - Well said

[Guest guest]

I just popped in to read a little more about Myo before my IR

appointments because honestly I consider this the " Myomectomy " board.

In fact when I started asking about UFE I was directed to the " Embo "

group, which is where I now get most of my information. I have to say

that has made the right decision for her... as we all should

have the choice to do without being shamed for our decisions.

Personally, I am not going to have a hysterectomy even though I have

had all the kids I want and it seems to be what everyone wants for me

(in my family). But, that doesn't make wrong in her choice

and I like what she said. She even congratulated the women on this

board for suffering through a lot of pain in order to come to our own

conclusions in what is right for us. It takes a lot to possibly

disagree and still say 'Way to go'.

Now you can jump all over me if you want to, it's fine with me, but I

have to say that the title of this group is " UterineFibroids " , not

'Myomectomy' and that is where I feel this group has headed. Of

course I'm new to all of this and of course I have not had a

myomectomy, so you can say I don't know what I'm talking about if you

want. It's just an honest opinion from someone that joined this group

for information on fibroids and has gone elsewhere because the

procedure most discussed here is myomectomy and that is still a

surgery that I do not want.

Please don't be angry if this is your choice of procedures. Everyone

has a right to their own choices and I applaud all that have fought so

long and hard to get their voices heard. My opinion is simply that

this group is more geared toward one procedure. That being said I

still feel that I got a lot of information from all 3 groups (this,

Embo, and healingfibroidsnaturally) on what to expect and how these

fibroids affect our lives. I had no idea before I joined that the

symptoms I have had are not 'normal aging' pains. It is comforting to

talk to women about their experiences and ways of combating the pains.

So thank you for giving information so freely, it really does help us

all.

a

> I too am new diagnosed with fibroids uterus is 12 wks. I have been

researching this for two months not as long as you have probably.

What is so bad about a hysterectomy? It all the e-mail I have read

everyone says it is so bad. But noone says why. Correct me if I am

wrong. If you have the myo, the new fibroids will grow again. 30% in

ten years. then you have to have surgery again. the myo is major

surgery. why do to want to have more than one surgery. am I crazy?

UBE is a highly skilled procedure you do not want to lose a leg or

something else. Lupron is a temporary shrinkage. I am 35 years old

two kids and want no more. I hate hospitals. I have never been in the

hospital for anything (except childbirth) I am not bleeding, but I

have major cramps first days of period. I am a proactive not a

reactive person. I in no way want to put up with the bleeding for

weeks and pains and suffering the some of you ladies do. God bless

you. If I am going to have to have surgery

> both Drs I saw agreed I will have to do something at some time.

The tumor grew to baseball size in less the eighteen months. The pain

and bleeding is around the corner. I am scheduling a hysterectomy in

Dec. The doctor said I probably will not be happy with the surgery

because I am not in enough pain to appreciate the relief. I look at

it as I am saving myself future pain and suffering I don't want.

>

> Please answer my question, what is wrong with a hysterectomy?

[Guest guest]

I just popped in to read a little more about Myo before my IR

appointments because honestly I consider this the " Myomectomy " board.

In fact when I started asking about UFE I was directed to the " Embo "

group, which is where I now get most of my information. I have to say

that has made the right decision for her... as we all should

have the choice to do without being shamed for our decisions.

Personally, I am not going to have a hysterectomy even though I have

had all the kids I want and it seems to be what everyone wants for me

(in my family). But, that doesn't make wrong in her choice

and I like what she said. She even congratulated the women on this

board for suffering through a lot of pain in order to come to our own

conclusions in what is right for us. It takes a lot to possibly

disagree and still say 'Way to go'.

Now you can jump all over me if you want to, it's fine with me, but I

have to say that the title of this group is " UterineFibroids " , not

'Myomectomy' and that is where I feel this group has headed. Of

course I'm new to all of this and of course I have not had a

myomectomy, so you can say I don't know what I'm talking about if you

want. It's just an honest opinion from someone that joined this group

for information on fibroids and has gone elsewhere because the

procedure most discussed here is myomectomy and that is still a

surgery that I do not want.

Please don't be angry if this is your choice of procedures. Everyone

has a right to their own choices and I applaud all that have fought so

long and hard to get their voices heard. My opinion is simply that

this group is more geared toward one procedure. That being said I

still feel that I got a lot of information from all 3 groups (this,

Embo, and healingfibroidsnaturally) on what to expect and how these

fibroids affect our lives. I had no idea before I joined that the

symptoms I have had are not 'normal aging' pains. It is comforting to

talk to women about their experiences and ways of combating the pains.

So thank you for giving information so freely, it really does help us

all.

a

> I too am new diagnosed with fibroids uterus is 12 wks. I have been

researching this for two months not as long as you have probably.

What is so bad about a hysterectomy? It all the e-mail I have read

everyone says it is so bad. But noone says why. Correct me if I am

wrong. If you have the myo, the new fibroids will grow again. 30% in

ten years. then you have to have surgery again. the myo is major

surgery. why do to want to have more than one surgery. am I crazy?

UBE is a highly skilled procedure you do not want to lose a leg or

something else. Lupron is a temporary shrinkage. I am 35 years old

two kids and want no more. I hate hospitals. I have never been in the

hospital for anything (except childbirth) I am not bleeding, but I

have major cramps first days of period. I am a proactive not a

reactive person. I in no way want to put up with the bleeding for

weeks and pains and suffering the some of you ladies do. God bless

you. If I am going to have to have surgery

> both Drs I saw agreed I will have to do something at some time.

The tumor grew to baseball size in less the eighteen months. The pain

and bleeding is around the corner. I am scheduling a hysterectomy in

Dec. The doctor said I probably will not be happy with the surgery

because I am not in enough pain to appreciate the relief. I look at

it as I am saving myself future pain and suffering I don't want.

>

> Please answer my question, what is wrong with a hysterectomy?

[Guest guest]

I just popped in to read a little more about Myo before my IR

appointments because honestly I consider this the " Myomectomy " board.

In fact when I started asking about UFE I was directed to the " Embo "

group, which is where I now get most of my information. I have to say

that has made the right decision for her... as we all should

have the choice to do without being shamed for our decisions.

Personally, I am not going to have a hysterectomy even though I have

had all the kids I want and it seems to be what everyone wants for me

(in my family). But, that doesn't make wrong in her choice

and I like what she said. She even congratulated the women on this

board for suffering through a lot of pain in order to come to our own

conclusions in what is right for us. It takes a lot to possibly

disagree and still say 'Way to go'.

Now you can jump all over me if you want to, it's fine with me, but I

have to say that the title of this group is " UterineFibroids " , not

'Myomectomy' and that is where I feel this group has headed. Of

course I'm new to all of this and of course I have not had a

myomectomy, so you can say I don't know what I'm talking about if you

want. It's just an honest opinion from someone that joined this group

for information on fibroids and has gone elsewhere because the

procedure most discussed here is myomectomy and that is still a

surgery that I do not want.

Please don't be angry if this is your choice of procedures. Everyone

has a right to their own choices and I applaud all that have fought so

long and hard to get their voices heard. My opinion is simply that

this group is more geared toward one procedure. That being said I

still feel that I got a lot of information from all 3 groups (this,

Embo, and healingfibroidsnaturally) on what to expect and how these

fibroids affect our lives. I had no idea before I joined that the

symptoms I have had are not 'normal aging' pains. It is comforting to

talk to women about their experiences and ways of combating the pains.

So thank you for giving information so freely, it really does help us

all.

a

> I too am new diagnosed with fibroids uterus is 12 wks. I have been

researching this for two months not as long as you have probably.

What is so bad about a hysterectomy? It all the e-mail I have read

everyone says it is so bad. But noone says why. Correct me if I am

wrong. If you have the myo, the new fibroids will grow again. 30% in

ten years. then you have to have surgery again. the myo is major

surgery. why do to want to have more than one surgery. am I crazy?

UBE is a highly skilled procedure you do not want to lose a leg or

something else. Lupron is a temporary shrinkage. I am 35 years old

two kids and want no more. I hate hospitals. I have never been in the

hospital for anything (except childbirth) I am not bleeding, but I

have major cramps first days of period. I am a proactive not a

reactive person. I in no way want to put up with the bleeding for

weeks and pains and suffering the some of you ladies do. God bless

you. If I am going to have to have surgery

> both Drs I saw agreed I will have to do something at some time.

The tumor grew to baseball size in less the eighteen months. The pain

and bleeding is around the corner. I am scheduling a hysterectomy in

Dec. The doctor said I probably will not be happy with the surgery

because I am not in enough pain to appreciate the relief. I look at

it as I am saving myself future pain and suffering I don't want.

>

> Please answer my question, what is wrong with a hysterectomy?

[Guest guest]

I agree that many women in this group (including me) have decided

that a myomectomy is their preferred treatment option. I support a

woman's decision to make whatever choice is best for her. I'm not

concerned about which treatment someone chooses as long as she has

thoroughly researched her options and has open two-way communication

with her doctor. If it seems like someone might be unaware of

hysterectomy alternatives, I might write to them (either via the

group or privately) to make sure they know of the alternatives. Of

course, that's a delicate subject--sometimes it's difficult to

provide information without making it sound as if you're trying to

pressure someone into taking a particular course of action.

Fibroid treatment can be a controversial issue, and different women

have different reasons for choosing a particular option. Also,

recovery times and long-term outcomes can vary quite a bit, even

among women who've had the same treatment. That's why I think it's

best to join several fibroid-related groups before making a decision

about treatment. I knew I didn't want a hysterectomy because I wanted

to have another child, but if hysterectomy had been one of the

options I was considering, I would have joined a mailing list or

bulletin board that's frequented by women who've are thinking of

having or have already had a hysterectomy. I'd want to know what

influenced their decision and whether they were pleased with the

outcome. Before I had my myo, I wasn't sure whether I wanted a myo or

uterine artery embolization, so I also joined the Embo list on Yahoo

(http://health.groups.yahoo.com/group/embo). I unsubscribed from

that group once I had enough information to decide that a myo was

the best choice for my particular situation.

Cheryl

> I just popped in to read a little more about Myo before my IR

> appointments because honestly I consider this the " Myomectomy "

board.

[Guest guest]

I agree that many women in this group (including me) have decided

that a myomectomy is their preferred treatment option. I support a

woman's decision to make whatever choice is best for her. I'm not

concerned about which treatment someone chooses as long as she has

thoroughly researched her options and has open two-way communication

with her doctor. If it seems like someone might be unaware of

hysterectomy alternatives, I might write to them (either via the

group or privately) to make sure they know of the alternatives. Of

course, that's a delicate subject--sometimes it's difficult to

provide information without making it sound as if you're trying to

pressure someone into taking a particular course of action.

Fibroid treatment can be a controversial issue, and different women

have different reasons for choosing a particular option. Also,

recovery times and long-term outcomes can vary quite a bit, even

among women who've had the same treatment. That's why I think it's

best to join several fibroid-related groups before making a decision

about treatment. I knew I didn't want a hysterectomy because I wanted

to have another child, but if hysterectomy had been one of the

options I was considering, I would have joined a mailing list or

bulletin board that's frequented by women who've are thinking of

having or have already had a hysterectomy. I'd want to know what

influenced their decision and whether they were pleased with the

outcome. Before I had my myo, I wasn't sure whether I wanted a myo or

uterine artery embolization, so I also joined the Embo list on Yahoo

(http://health.groups.yahoo.com/group/embo). I unsubscribed from

that group once I had enough information to decide that a myo was

the best choice for my particular situation.

Cheryl

> I just popped in to read a little more about Myo before my IR

> appointments because honestly I consider this the " Myomectomy "

board.

[Guest guest]

I agree that many women in this group (including me) have decided

that a myomectomy is their preferred treatment option. I support a

woman's decision to make whatever choice is best for her. I'm not

concerned about which treatment someone chooses as long as she has

thoroughly researched her options and has open two-way communication

with her doctor. If it seems like someone might be unaware of

hysterectomy alternatives, I might write to them (either via the

group or privately) to make sure they know of the alternatives. Of

course, that's a delicate subject--sometimes it's difficult to

provide information without making it sound as if you're trying to

pressure someone into taking a particular course of action.

Fibroid treatment can be a controversial issue, and different women

have different reasons for choosing a particular option. Also,

recovery times and long-term outcomes can vary quite a bit, even

among women who've had the same treatment. That's why I think it's

best to join several fibroid-related groups before making a decision

about treatment. I knew I didn't want a hysterectomy because I wanted

to have another child, but if hysterectomy had been one of the

options I was considering, I would have joined a mailing list or

bulletin board that's frequented by women who've are thinking of

having or have already had a hysterectomy. I'd want to know what

influenced their decision and whether they were pleased with the

outcome. Before I had my myo, I wasn't sure whether I wanted a myo or

uterine artery embolization, so I also joined the Embo list on Yahoo

(http://health.groups.yahoo.com/group/embo). I unsubscribed from

that group once I had enough information to decide that a myo was

the best choice for my particular situation.

Cheryl

> I just popped in to read a little more about Myo before my IR

> appointments because honestly I consider this the " Myomectomy "

board.

[Guest guest]

Here's my opinion:

1. You don't know what you are talking about.

2. You don't throw the baby out with the bath water.

3. Best of luck.

gg

kristinacy wrote:

>I just popped in to read a little more about Myo before my IR

>appointments because honestly I consider this the " Myomectomy " board.

> In fact when I started asking about UFE I was directed to the " Embo "

>group, which is where I now get most of my information. I have to say

>that has made the right decision for her... as we all should

>have the choice to do without being shamed for our decisions.

>Personally, I am not going to have a hysterectomy even though I have

>had all the kids I want and it seems to be what everyone wants for me

>(in my family). But, that doesn't make wrong in her choice

>and I like what she said. She even congratulated the women on this

>board for suffering through a lot of pain in order to come to our own

>conclusions in what is right for us. It takes a lot to possibly

>disagree and still say 'Way to go'.

>

>Now you can jump all over me if you want to, it's fine with me, but I

>have to say that the title of this group is " UterineFibroids " , not

>'Myomectomy' and that is where I feel this group has headed. Of

>course I'm new to all of this and of course I have not had a

>myomectomy, so you can say I don't know what I'm talking about if you

>want. It's just an honest opinion from someone that joined this group

>for information on fibroids and has gone elsewhere because the

>procedure most discussed here is myomectomy and that is still a

>surgery that I do not want.

>

>Please don't be angry if this is your choice of procedures. Everyone

>has a right to their own choices and I applaud all that have fought so

>long and hard to get their voices heard. My opinion is simply that

>this group is more geared toward one procedure. That being said I

>still feel that I got a lot of information from all 3 groups (this,

>Embo, and healingfibroidsnaturally) on what to expect and how these

>fibroids affect our lives. I had no idea before I joined that the

>symptoms I have had are not 'normal aging' pains. It is comforting to

>talk to women about their experiences and ways of combating the pains.

> So thank you for giving information so freely, it really does help us

>all.

>

>a

>

>

>

>

>

>>I too am new diagnosed with fibroids uterus is 12 wks. I have been

>>

>>

>researching this for two months not as long as you have probably.

>What is so bad about a hysterectomy? It all the e-mail I have read

>everyone says it is so bad. But noone says why. Correct me if I am

>wrong. If you have the myo, the new fibroids will grow again. 30% in

>ten years. then you have to have surgery again. the myo is major

>surgery. why do to want to have more than one surgery. am I crazy?

>UBE is a highly skilled procedure you do not want to lose a leg or

>something else. Lupron is a temporary shrinkage. I am 35 years old

>two kids and want no more. I hate hospitals. I have never been in the

>hospital for anything (except childbirth) I am not bleeding, but I

>have major cramps first days of period. I am a proactive not a

>reactive person. I in no way want to put up with the bleeding for

>weeks and pains and suffering the some of you ladies do. God bless

>you. If I am going to have to have surgery

>

>

>> both Drs I saw agreed I will have to do something at some time.

>>

>>

>The tumor grew to baseball size in less the eighteen months. The pain

>and bleeding is around the corner. I am scheduling a hysterectomy in

>Dec. The doctor said I probably will not be happy with the surgery

>because I am not in enough pain to appreciate the relief. I look at

>it as I am saving myself future pain and suffering I don't want.

>

>

>>

>>Please answer my question, what is wrong with a hysterectomy?

>>

>>

>

>

>

>

>

[Guest guest]

Here's my opinion:

1. You don't know what you are talking about.

2. You don't throw the baby out with the bath water.

3. Best of luck.

gg

kristinacy wrote:

>I just popped in to read a little more about Myo before my IR

>appointments because honestly I consider this the " Myomectomy " board.

> In fact when I started asking about UFE I was directed to the " Embo "

>group, which is where I now get most of my information. I have to say

>that has made the right decision for her... as we all should

>have the choice to do without being shamed for our decisions.

>Personally, I am not going to have a hysterectomy even though I have

>had all the kids I want and it seems to be what everyone wants for me

>(in my family). But, that doesn't make wrong in her choice

>and I like what she said. She even congratulated the women on this

>board for suffering through a lot of pain in order to come to our own

>conclusions in what is right for us. It takes a lot to possibly

>disagree and still say 'Way to go'.

>

>Now you can jump all over me if you want to, it's fine with me, but I

>have to say that the title of this group is " UterineFibroids " , not

>'Myomectomy' and that is where I feel this group has headed. Of

>course I'm new to all of this and of course I have not had a

>myomectomy, so you can say I don't know what I'm talking about if you

>want. It's just an honest opinion from someone that joined this group

>for information on fibroids and has gone elsewhere because the

>procedure most discussed here is myomectomy and that is still a

>surgery that I do not want.

>

>Please don't be angry if this is your choice of procedures. Everyone

>has a right to their own choices and I applaud all that have fought so

>long and hard to get their voices heard. My opinion is simply that

>this group is more geared toward one procedure. That being said I

>still feel that I got a lot of information from all 3 groups (this,

>Embo, and healingfibroidsnaturally) on what to expect and how these

>fibroids affect our lives. I had no idea before I joined that the

>symptoms I have had are not 'normal aging' pains. It is comforting to

>talk to women about their experiences and ways of combating the pains.

> So thank you for giving information so freely, it really does help us

>all.

>

>a

>

>

>

>

>

>>I too am new diagnosed with fibroids uterus is 12 wks. I have been

>>

>>

>researching this for two months not as long as you have probably.

>What is so bad about a hysterectomy? It all the e-mail I have read

>everyone says it is so bad. But noone says why. Correct me if I am

>wrong. If you have the myo, the new fibroids will grow again. 30% in

>ten years. then you have to have surgery again. the myo is major

>surgery. why do to want to have more than one surgery. am I crazy?

>UBE is a highly skilled procedure you do not want to lose a leg or

>something else. Lupron is a temporary shrinkage. I am 35 years old

>two kids and want no more. I hate hospitals. I have never been in the

>hospital for anything (except childbirth) I am not bleeding, but I

>have major cramps first days of period. I am a proactive not a

>reactive person. I in no way want to put up with the bleeding for

>weeks and pains and suffering the some of you ladies do. God bless

>you. If I am going to have to have surgery

>

>

>> both Drs I saw agreed I will have to do something at some time.

>>

>>

>The tumor grew to baseball size in less the eighteen months. The pain

>and bleeding is around the corner. I am scheduling a hysterectomy in

>Dec. The doctor said I probably will not be happy with the surgery

>because I am not in enough pain to appreciate the relief. I look at

>it as I am saving myself future pain and suffering I don't want.

>

>

>>

>>Please answer my question, what is wrong with a hysterectomy?

>>

>>

>

>

>

>

>

[Guest guest]

Here's my opinion:

1. You don't know what you are talking about.

2. You don't throw the baby out with the bath water.

3. Best of luck.

gg

kristinacy wrote:

>I just popped in to read a little more about Myo before my IR

>appointments because honestly I consider this the " Myomectomy " board.

> In fact when I started asking about UFE I was directed to the " Embo "

>group, which is where I now get most of my information. I have to say

>that has made the right decision for her... as we all should

>have the choice to do without being shamed for our decisions.

>Personally, I am not going to have a hysterectomy even though I have

>had all the kids I want and it seems to be what everyone wants for me

>(in my family). But, that doesn't make wrong in her choice

>and I like what she said. She even congratulated the women on this

>board for suffering through a lot of pain in order to come to our own

>conclusions in what is right for us. It takes a lot to possibly

>disagree and still say 'Way to go'.

>

>Now you can jump all over me if you want to, it's fine with me, but I

>have to say that the title of this group is " UterineFibroids " , not

>'Myomectomy' and that is where I feel this group has headed. Of

>course I'm new to all of this and of course I have not had a

>myomectomy, so you can say I don't know what I'm talking about if you

>want. It's just an honest opinion from someone that joined this group

>for information on fibroids and has gone elsewhere because the

>procedure most discussed here is myomectomy and that is still a

>surgery that I do not want.

>

>Please don't be angry if this is your choice of procedures. Everyone

>has a right to their own choices and I applaud all that have fought so

>long and hard to get their voices heard. My opinion is simply that

>this group is more geared toward one procedure. That being said I

>still feel that I got a lot of information from all 3 groups (this,

>Embo, and healingfibroidsnaturally) on what to expect and how these

>fibroids affect our lives. I had no idea before I joined that the

>symptoms I have had are not 'normal aging' pains. It is comforting to

>talk to women about their experiences and ways of combating the pains.

> So thank you for giving information so freely, it really does help us

>all.

>

>a

>

>

>

>

>

>>I too am new diagnosed with fibroids uterus is 12 wks. I have been

>>

>>

>researching this for two months not as long as you have probably.

>What is so bad about a hysterectomy? It all the e-mail I have read

>everyone says it is so bad. But noone says why. Correct me if I am

>wrong. If you have the myo, the new fibroids will grow again. 30% in

>ten years. then you have to have surgery again. the myo is major

>surgery. why do to want to have more than one surgery. am I crazy?

>UBE is a highly skilled procedure you do not want to lose a leg or

>something else. Lupron is a temporary shrinkage. I am 35 years old

>two kids and want no more. I hate hospitals. I have never been in the

>hospital for anything (except childbirth) I am not bleeding, but I

>have major cramps first days of period. I am a proactive not a

>reactive person. I in no way want to put up with the bleeding for

>weeks and pains and suffering the some of you ladies do. God bless

>you. If I am going to have to have surgery

>

>

>> both Drs I saw agreed I will have to do something at some time.

>>

>>

>The tumor grew to baseball size in less the eighteen months. The pain

>and bleeding is around the corner. I am scheduling a hysterectomy in

>Dec. The doctor said I probably will not be happy with the surgery

>because I am not in enough pain to appreciate the relief. I look at

>it as I am saving myself future pain and suffering I don't want.

>

>

>>

>>Please answer my question, what is wrong with a hysterectomy?

>>

>>

>

>

>

>

>

[Guest guest]

I agree with you GG..

We are not pro myomectomy..it appears so because most of the women have chosen

to go that route including myself..it suited my needs best..It really bothers me

when a new member is so quick to stereotype this group after joining for just 1

day??? Thats ridiculous..

We all have choices to make in life and dont knock us for making these

choices..TO EACH IT'S OWN

Sorry ..i just had to vent!!!!!!!!!!

G Schaumburg wrote:

Here's my opinion:

1. You don't know what you are talking about.

2. You don't throw the baby out with the bath water.

3. Best of luck.

gg

[Guest guest]

That's exactly what I said - we all need to make our own choices.

> Here's my opinion:

> 1. You don't know what you are talking about.

> 2. You don't throw the baby out with the bath water.

> 3. Best of luck.

> gg

[Guest guest]

That's exactly what I said - we all need to make our own choices.

> Here's my opinion:

> 1. You don't know what you are talking about.

> 2. You don't throw the baby out with the bath water.

> 3. Best of luck.

> gg

[Guest guest]

That's exactly what I said - we all need to make our own choices.

> Here's my opinion:

> 1. You don't know what you are talking about.

> 2. You don't throw the baby out with the bath water.

> 3. Best of luck.

> gg

[Guest guest]

Okay I will say this again

asked why not a hysterectomy and I gave her my

answer (mine and mine alone). I have not put up with

bad luck, bad medical care and hemorraging for this

many years to be someone's hero I did it to have a

baby. (I have raised lots of kids but they weren't

mine and eventually someone takes them away or they

grow up and the state moves them to " adult

placement " .) I want my own!!!!!!!!

I will continue to oppose a hysterectomy despite the

parade of people who tell me I should give it up (the

latest one was today a woman with two kids who told me

she would have had the hysterectomy even if she had no

kids.) and feel free to join the line

with my family, friends and complete strangers and I

will tell you too: NO...NO...NO...NO >>>and in case no

one heard me " NO!!! "

I will not risk dying early like my mom's Dad because

I thought the odds were good that I would not have

complications. I HAVE NEVER BEATEN MEDICAL ODDS EVER

IN MY LIFE

my left hand is permanently disabled because I played

the odds and lost

my left ankle is not disabled because I fought tooth

and nail to walk again

I don't care if it takes ten more transfusions, or

more Lupron, or more doctors I will find a way not to

have to bet on the odds I won't follow after my

grandmother. No bet I refuse to play. My last

myomectomy was a cake walk except for the bleeding

which came from the tumor that was misdiagnosed as

adenomyosis. I did not set any records for recovery

but I was going out to eat with my mom a week after

the last myo and driving at two weeks. I never took

more than tylenol once I got out of the hospital. So

if they do it again and this time no one leaves the

big tumor in why should I not believe I will feel

better.

Hell even with all the pain the Lupron has me in I am

still doing more this week than I could a year ago. A

year ago my hemo level was 7.0 before I began that

month's period. I could not walk and breathe a year

ago...yesterday I raked leaves...slowly, painfully but

I did.

I'll say it one more time I made my choice I just have

to find a way to make that choice a reality. I did

the research and decided to take the natural route. I

keep what I have where I had them and no one plays God

with my parts. He put them there so there they stay.

If I'd been meant to not have the uterus he would have

put a nice zipper on me for easy removal.

Feel free to do your research, weigh your odds, and

then place your bet.

tick-tick-tick-tick and the wheel spins on(good luck)

e

[Guest guest]

Just to put my two cents in this.

I have joined this group over a year now. I have a small fibroid and have

not made any decisions yet because I am in control of the situation using

bcps.

This group has taught me so much, I have learned so many new things but most

important I have learned to look at all things medical with a critical eye.

This group exists to give women support and help and answers to their

questions. This group is not sponsoring any particular procedure. We simply

think that fibroids are a condition that can be treated with less radical

procedures than hysterectomy. I think its only fair to say that this group

is only pro-uterus.

Save the uterus is the message not have a myo or a UFE or whatever.

I rest my case.

andra

[Guest guest]

a, I have to admit I was shocked when I heard you say that you felt this

was more of a myomectomy board than a uterine fibroids board. But as I thought

about that, I realized that I have noticed over time that more of the women

coming here seem to be opting for myomectomy than UAE.

I don't know if we're getting younger women for whom fertility is an issue and

that is why we're seeing more myos? I do think that's part of it. But also

when this list group was started -- gosh, it will be 5 years in November! --

less was known about UAE patient selection. If fact, it was being touted by

some as appropriate for just about any woman who did not plan on having more

pregnancies.

As time has gone by and IRs have gained experience, we've learned a lot about

which women are most suited for UAE. We've also learned what the risk factors

are and, in particular, that for some women sexual function can be impacted. I

think until we can definitively say just what women are at risk of being

sexually impacted, a number of women will might have chosen UAE will chose

myomectomy.

The irony of all this is that of the founding group of us who were with Carla

when she started both NUFF and this list group, I think almost all had UAE.

That could have been because most of us were older -- in our 40s and

perimenopausal and therefore done with childbearing.

I am sorry that you see the referral to the embo group as an indication that

we're not pro-UAE here. The reason I would suggest to a woman inquiring about

UAE that she might want to ALSO join the embo group is because the focus of that

group is sepcifically UAE, not because I feel we are not pro-UAE here.

Leonie Finkel

Patient Advocate,

NUFF, Inc.

--

" The line that divides Good versus Evil runs NOT between nations or parties or

armies... but right down the middle of every human soul. " -Solzhenitsyn

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