Re: Cheryl - Dr H New Computer?

[Guest guest]

Hi Alison,

They have a new computer system where they enter all the patient

information. Now no more progress notes on the paper. The patients

chart itself will be on the computer. Last time we were there, she

even printed out the prescribtion for us from the same computer. But

she spent a lot of time on the computer that day. Atleast if we get

the medical records from the hospital we may not have to struggle to

read through the doctors notes.

Mini

> > Hi Jodi,

> >

> > Although I don't write much, I have been following your recent

> ordeal with

> > Max. I can't even imagine what you're going through on this

one.

> All I can

> > say is that at times like that I'm glad 's deaf. She

can't

> speak to

> > him in sign so I'm the interpreter for her. Let me tell you, if

> she ever

> > goes off on , I won't be interrupting those words for

sure.

> I guess

> > I got one up on her there. Just thought I'd pass that along.

> >

> > Take care and hope things calm down with her soon.

> >

> > Cheryl

> > PS I love the new computer system too. At our last visit we got

> in within

> > an hour and I thought we were smooth sailing. Then, she brought

up

> this

> > computer system. Great! Our visit turned into about 2 hours.

> > Continuing on re: Dr. H. visit

> >

> >

> > > The emotions are still rolling over here regarding Max's visit

> last

> > > week with Dr. Harbison. Max is still quite depressed over this

> and

> > > we are trying to get him to move on and not perceverate over

it.

> As

> > > usual, this effects a lot of things in his life, so we are

trying

> to

> > > make him see the " good " that has come out of this - and it is a

> very

> > > difficult thing to do!

> > >

> > > I have decided to not take this " lying down. " I emailed Dr. H.

> and

> > > told her in a tactful way what I thought of the visit. She

> replied

> > > yesterday and I was so angry at her reply that I had to take a

day

> > > before I could digest it, calm down, and then reply back to her.

> > >

> > > Basically she said she treated Max the way she did on purpose,

> that

> > > it was part of a master plan. She wanted to stress him out to

see

> > > what would happen. She knows he has difficulty dealing with the

> > > abstract and wanted to make him see and hear the concepts we are

> > > talking about regarding our choice of a high school for him.

> (Keep

> > > in mind, I am being much kinder with my words here than she was

> with

> > > me.) She also said that the therapists working with Max are

> > > charging us big bucks and just putting bandaids on what really

> > > underlies Max's problems and actually quoted, " The truth shall

set

> > > you free! "

> > >

> > > A little extra info here: I asked Dr. H. to write a letter to

the

> > > child study team in support of Max going to the private high

> school

> > > we think he should attend. We are fighting our school district

to

> > > pay the tuition because it is about time they picked up the tab.

> > > Dr. H's response was that, while she would like to help us out,

> she

> > > did not think this was her area of expertise and we should

leave

> it

> > > up to Max's psychologist and psychiatrist. EXCUSE ME here!!!!

> Then

> > > why the HECK did she do what she did to my son? She was playing

> > > armchair psychologist with him and did not even have the guts to

> > > wrap things up at the end. Usually a psychologist will bring up

> > > painful thoughts, but at least before you leave, there is some

> > > closure and you don't leave the office feeling like your doctor

> has

> > > just destroyed you!

> > >

> > > I have replied to Dr. H. along those lines and told her that we

> > > will probably have to agree to disagree on this. My mother is

> angry

> > > at me because she thinks I should not get Dr. H. mad, but I

told

> her

> > > that if I don't speak up and let her know how I feel, she will

> > > continue to do this to Max, and probably anyone else she wants

to

> do

> > > this to. I need Max to trust her so that if he has a concern

> about

> > > his growth and physical development, then he will feel free to

> talk

> > > to her about it. He is really scared now.

> > >

> > > My next step is to have Max email her directly. He is not

ready

> to

> > > do that yet, but I am working on it. Probably over the next

week

> he

> > > will get his voice and be able to write.

> > >

> > > I will keep you posted.

> > >

> > > Jodi

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Cheryl,

I know you have received many responses to your post regarding

your son's visit with DR. H. However, please let me also extend my

outrage. I haven't posted in a very long time, but my name is

and my daughter is Raven . Raven is a two year old RSS baby

and we have had our share of unwelcome comments from strangers. The

key word here is " strangers " . As parents, we brace ourselves for

insensitive (yet well intended) comments from those we don't know.

These people have no expereince with RSS and usually do not know the

damage a harsh comment could create.

But Dr. H. has dealt with hundreds of RSS patients and should

know better and act accordingly. I can only imagine the shock and

betrayal you and Max felt upon hearing the things Dr. H. had to say.

What she calls " Tough Love " , I call ego.

I am certainly not suggesting that our children be treated with

kid gloves. They will have to brace themselves for whatever

challenges they will face socially, among their classmates or

strangers. However, they (and you) should not have to brace yourself

from unwanted comments from trusted caregivers. This was clearly out

of line on her part.

I want you to know that my I admire you and your son's strength.

I cannot promise I would have used as much tact in expressing my

complaints to Dr. H.. You wrote that Max took these comments in

stride in her presence. To sit quietly while a trusted caregiver

verbally berates him demonstrates tremendous maturity on Max's part.

I'm sure you are very proud of him.

In closing, my husband and I would like to thank you for sharing

your experience. We had been toying with the idea of making the trek

to New York. However, after reading previous posts, and now your

story, we have decided to stay with our Endo. in Children's Hospital

of P.A.. There is no room in our lives for Dr. H's bad moods, good

intentions, ego, or whatever you want to call it. Hope you have a

wonderful holiday.

(Mother to Raven, thriving @ age 2, 20lbs.,

pure attitude and spunk)