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Hi ,

We also did not need a specialist to write the prescription....our

pediatrician did it. However, I too was feeling pretty guilty

because our pediatrician did not seem to think it was a very big

deal that his head was " flat " on the right rear portion. Thank God

my friend is a pediatric physical therapist and she recommended CT.

Our ped was like, " Well, just reposition him and that should take

care of it. If you guys decide you want to get him fitted for a

band, let me know and I'll write a prescription for it. " I love our

pediatrician but was a little confused as to why she wasn't worried

about his head. We noticed the flat spot when he was 6 weeks old

and tried repositioning him until he was 5 months old. That did not

even begin to take care of the problem, and we were diligent about

the repositioning! CT categorized him as severe. So, we were

feeling bad about not getting him banded sooner, but at least we did

it. His was on for about 3 months and it made a world of difference!

So, don't feel bad! You are doing something about it now and it's

definitely not too late!

> > > > >

> > > > > My name is . My son, Nate, is 12 months old. He was

> born

> > > 6 weeks

> > > > > premature and has a condition called schizencephaly.

> > > Currently, he

> > > > > can't sit, roll over, crawl and he hates tummy time. We

try

> > to

> > > use

> > > > the

> > > > > Bumbo, a ny jump up and a high chair as much as

> possible

> > > but it

> > > > > seems no matter how hard I try he spends a lot of time

on

> his

> > > back.

> > > > He

> > > > > has significant plagio as a result.

> > > > >

> > > > > I saw his neuro this week. She said he's symmetrical and

> > > therefore

> > > > > doesn't want to do a helmet or band. She said his skull

is

> > > still soft

> > > > > and might round out itself. I'm worried. Is the window of

> > > opportunity

> > > > > closed for him? Should I push for it? Is there anything

> else

> > I

> > > can be

> > > > > doing at home?

> > > > >

> > > > > Any advice would be greatly appreciated.

> > > > >

> > > > >

> > > > >

> > > >

> > >

> >

>

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