SSD Application

[Guest guest]

In a message dated 1/22/04 10:19:27 PM, Joy writes:

> I didn't know that if they say " Do

> you read books? " that instead of yes or no, I should say something like

> " not as much as I used to as I can no longer hold the book for any

> length of time " or something to that effect

>

I think that was the other major factor in my application, apart from the

sheer volume (BTW, I even included an extract from my pain journal), I think. I

made sure that every answer made it clear how much EDS affected me. Not only

like Joy's example, but I made sure, too, that every time I said EDS I also

defined it -- so that anywhere in the application that someone went, they would

read the physical effects EDS had on me. Over and over, with variations to fit

the question....as an old expression goes, " What I tell you three times is

true. "

[Guest guest]

For the doctors that I weren't sure what they would put on the forms and

things, the doctors that I didn't know as well, I actually gave them a typed

letter telling them what limitations I have and what they needed to put on the

form. I asked people first too if they were " able " to fill one out for me. They

knew that I needed doctor's who were supportive of my cause. They all basicallyl

put in the blank acting when I could expect to improve or recover..... they

all basically put " never " .

I was very very lucky as I know there are many of you who suffer more than I

do.For that I am so sorry and truly wish I could help. If there is anything I

can do, I'd be glad tohelp. I'm no expert but I'll be glad to go over what I

did exactly to get ready. It took a couple of month to get everything ready.

I am due this fall to be reevaluated by the private disability carrier and

then fall of 2005 again by SS. It was so easy this time that being reevaluated

is a thought that makes me sick in my stomach!!

I was approved the very first month that Iwas eligiable. In fact, I had not

even sent in the horrible form that talks about if you read or not. When I

called them with a question, they told me not bother about theform because I had

already been approved. I was shocked that day outof my socks!!

I hope that you all can get some happy news soon too!!

[Guest guest]

For the doctors that I weren't sure what they would put on the forms and

things, the doctors that I didn't know as well, I actually gave them a typed

letter telling them what limitations I have and what they needed to put on the

form. I asked people first too if they were " able " to fill one out for me. They

knew that I needed doctor's who were supportive of my cause. They all basicallyl

put in the blank acting when I could expect to improve or recover..... they

all basically put " never " .

I was very very lucky as I know there are many of you who suffer more than I

do.For that I am so sorry and truly wish I could help. If there is anything I

can do, I'd be glad tohelp. I'm no expert but I'll be glad to go over what I

did exactly to get ready. It took a couple of month to get everything ready.

I am due this fall to be reevaluated by the private disability carrier and

then fall of 2005 again by SS. It was so easy this time that being reevaluated

is a thought that makes me sick in my stomach!!

I was approved the very first month that Iwas eligiable. In fact, I had not

even sent in the horrible form that talks about if you read or not. When I

called them with a question, they told me not bother about theform because I had

already been approved. I was shocked that day outof my socks!!

I hope that you all can get some happy news soon too!!