Cheryl......vent or explode !!

[Guest guest]

Dear Dear Cheryl,

If we didn't vent ........we'd all explode !!.......Can you imagine all the LUPIES exploding at once....?

Lonewolf/ C.

Vent/changed life/long

I too have lost my old way of life. My husband and I enjoyed ballroom dancing. We took lessons once a week and went dancing almost every week-end. We enjoy hiking and bird watching. I used to be able to continue doing these things if I took a nap first and had lupus and a part-time job. I went to the gym twice a week and had a good figure. I had IBS and TMJ dysfunction but lived with it. My friends used to call us the dancing couple and loved to watch us dance at parties and weddings. We especially love swing both East Coast and West Coast swing.

I have trouble just walking a straight line now. I have trouble with the nerves of my legs due to fibro. I am on meds but they still tingle, hurt, and feel weak with pin pricking sensations. Wouldn't you know It had to be my legs when I love to dance?

I got cancer 7 years ago and haven't been the same since. The treatments were very rough and lasted for many months. Because of having mental and physical stress, I got fibromyalgia. The treatments ruined our sex life because I had internal radiation treatments that burned and scared me. The Dr. went in and got rid of some of my scars, it helped but sex is still painful. My husband doesn't like to hurt me so it is a turn-off for him.

I then got arthritis, osteoporosis, interstitial cystitis and benign familial tremor. I am now on disability and cannot work anymore.

We enjoy fine art and go to museums and galleries together. We do a little dancing when we go to see music.

I am depressed about loosing my way of life but try to be grateful for what I have. I have a kind and faithful husband, nice friends, my religion, a beautiful house, a companion dog and other blessings.

I have never joined a cancer group because I always thought that once you get over cancer you are all better and look at life in a fresh new way, happy to be alive and all that s#@*. I didn't want them to know that if they survived like I did that their life may never be the same again. I didn't want to depress them.

One thing about lupus, we can get better and even go into remission. We don't always stay the same or get worse.

Thanks for letting me vent.

Cheryl in CA

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