aol chat..

[Guest guest]

Well I joined the group for messages and stuff but because I dont use aol I can

not join in the chats. Why dont we just use the chat rooms that yahoo has set up

for the clubfeet? It would make it easier on everyone.. Because everyone on here

has a yahoo id im sure of.. and its 10 times simpler than aol. Aol is a pain in

the butt.. And I for one dont have the money to use aol

There are 22 messages in this issue.

Topics in this digest:

1. Tenotomy for premature baby

From: " iditwagner "

2. Re: Re: new to group

From: Robin Lane

3. Re: new to group

From: " pammi_kay "

4. Re: Re: Chat 8:00 p.m.

From: Robin Lane

5. Re: new to group

From: " "

6. Re: Does anyone have an appointment with Dr.Dobbs July 15th???

From: " Kathy Gutierrez "

7. Re: Tenotomy for premature baby

From: " kitaki "

8. Re: Re: new to group

From: " kitaki "

9. Re: Re: Chat 8:00 p.m.

From: Tichauer

10. Re: Chat 8:00 p.m.

From: " littlebrat2002 "

11. Re: Does anyone get SSI benefits for their children with clubbed feet?

From: " littlebrat2002 "

12. Re: Re: Chat 8:00 p.m.

From: " Kori Rush "

13. Re: Chat 8:00 p.m.

From: " Marilouise Tozier "

14. Re: new to group

From: " littlebrat2002 "

15. Re: Chat 8:00 p.m.

From: " Holly "

16. Re: Re: Chat 8:00 p.m.

From: Tichauer

17. Re: Chat 8:00 p.m.

From: " Marilouise Tozier "

18. Re: Does anyone have an appointment with Dr.Dobbs July 15th???

From: " pammi_kay "

19. Re: Does anyone have an appointment with Dr.Dobbs July 15th???

From: " pammi_kay "

20. Re: UGH. Will it ever end!?!

From: MJZ28SS@...

21. Re: Tenotomy for premature baby (shoes donations for tiny feet)

From: " iditwagner "

22. Re: Does anyone get SSI benefits for their children with clubbed feet?

From: " Lundsten "

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Message: 1

Date: Sat, 10 Jul 2004 14:52:12 -0000

From: " iditwagner "

Subject: Tenotomy for premature baby

Hello,

Hello, my friends daughter decided to come out when she was 29 weeks

in her mom's belly (-: they started the casting pretty soon after

that and she is about to have the Tenotomy a week from today. – this

is one week before her " original " due date.

Her parents already know they might have problems with shoes size.-

any ideas?

Dose anyone no if it is safe to go through tenotomy at this point?

Can it be too early for the ligaments?

Thanks

Idit, mom to Oshri, 10 month. BL ClubFoot, heavy DBB for 16/24

hours.. http://truly_clubfoot.tripod.com - website in Hebrew. To see

the photos click on the leftist link on the top frame.

________________________________________________________________________

________________________________________________________________________

Message: 2

Date: Sat, 10 Jul 2004 08:35:20 -0700 (PDT)

From: Robin Lane

Subject: Re: Re: new to group

Hi Angel,

That Dr. Mosca is something isn't he? I am so impressed with his knowledge. I

know he hasn't been doing the Ponseti method but about 5 years, but what he

knows about club foot is astounding. That is great information about how to

stimulate the tendon to get it to stretch. And when he showed that her

little boy's foot was not relapsing, it is the femoral torsion that is causing

his unusual gate, I said a little prayer of thanks that we ended up in his

office. Just over a year ago, we walked into his office for what we thought was

a consultation for surgery and found out that Rose's foot could be corrected

without surgery. We so won the lottery that day! Our little girl is so busy all

the time and her foot looks so great. I have to really look to tell her feet

apart. Her club foot still has all that extra skin and of course she has the

little scar from the tenotony, but otherwise, her feet loot so great. It is too

early to tell if there will be much of a size

difference. I don't care from the standpoint of buying two pairs of shoes or

whatever, we do what we have to do for our kids. I just don't want her to get

made fun of when she gets to school. Although, my little red-headed girl is

pretty tough and she already holds her own with the older kids at daycare.

Also, Angel, I felt so bad for you when you posted about Kai's blister on his

foot. I truly hope it is a flaw in the shoe as they suspect. If his foot is

growing and the strap is rubbing, that may be all it is. Rose gets funny marks

on her feet from time to time, and every time I see a wierd red spot, my heart

stops. Then I have to check and see which foot it is on : ),

Take care,

Robin & Rose

3/11/03

Right club foot.

kitaki wrote:

Dr Mosca and Dr Ponseti both told me the same thing. They both also said that

just because it is imballanced now (18 mo) doesnt mean it wont straighten out.

Dr M said to stimulate the outside of the foot/ankle by tickling it to try to

get him to stretch is foot in that direction. Both doc's said to use high-tops

for everyday shoes to help keep the ankle straight, thereby stretching the

inside tendon. Both also concurred that it would be some time yet before it was

known if he would need the ATTT.

Angel

> Hi Angel and ,

>

> I just wanted to drop in here and tell you what I found out

recently. At Rose's last appointment with Dr. Mosca, he explained

to me that we have two major tendons on the tops of our foot and in

a normal foot, they work together to raise the foot. In about 30%

of club foot children, one tendon is stronger than the other and

this causes the foot to be raised sideways instead of straight up

and down. That is were the ATTT surgery comes in because they take

the strong tendon and cross it over to foot and attach it to the

other side so the foot lifts properly. Lucky for us Rose does not

have this problem but I just thought it was very good information.

>

> Robin & Rose

> 3/12/03

> right club foot

>

> kitaki wrote:

> As a side note, both Dr Mosca and Dr Ponseti have mentioned that

Kai may need the ATTT in the future, but they are talking a few

years. He is also 18 months. Even then, sometimes casting can

manage/correct the sittuation without needing to resort to the

ATTT. Recently someone on list reported that they had thought an

ATTT was needed, but after Dr Ponseti casted, it was not needed -

the child was 3, I think.

>

> Angel

> new to group

> >

> >

> > Hi my name is and I have a son with Bi-lateral club

feet.

> > His name is Tyler. He is now 18 months and we have been through

3

> > surgeries, countless castings, braces and dennis brown shoes

with

> > bar. His doc says if he is not walking this month he is

thinking

> of

> > doing another surgery. I looked on the internet and found a

place

> > here that helps kids with special needs and found that they came

> to

> > the house and now has started physical therepy. In my searches

on

> > the internet I also found Shriner's hospital. I have gotten him

> an

> > appt. hoping to get a second opinion. This last pair of shoes

his

> > doc put him in knowing that his heel did not fit into the bottom

> of

> > the shoe. His doc even took xrays and seen that his heel was

not

> > fitting into the shoe and he said to just let it go for a month

> and

> > hope that the shoes with the bar would help. I didn't think

this

> > was right. Tyler has not wore the shoes in the past couple of

> weeks

> > cause they do not fit right. I am hoping that not too much

damage

> > will have been done. He goes to the Shriner's hospital the 27th

of

> > this month. I just don't want to go back to his regular

> orthopedic

> > doc cause I don't want him to do surgery on Tyler. He is an

> > pediatric orthopedic surgeon so I think that his first thought

is

> > surgery and I am hoping maybe correction can be obtained in

> another

> > way. I was just wondering if anyone else has had probs with

docs

> > like this? I also thought it would be good to know that we are

> not

> > alone in going through what we have and will go through.

> >

> >

> > thanks

> >

> >

> >

> >

> >

> >