Re: please help me with a question i have

[Guest guest]

-i am so sorry to hear about the reoccurance of it. you beat it once

so you can beat it again girl. please know i appreciate you sharing

your story with me. it did leave me with a question of how did you

go into remission the first time? please hang in there, my thoughts

are with you.

isebee

-- In RSD-CRPSofAmerica , " lynlorraine "

<lynlorraine@y...> wrote:

>

>

> >

> > In a message dated 11/04/2004 11:12:08 AM Eastern Standard

Time,

> > isebee92@y... writes: guess i am asking does anyone have any

info

> good or bad about there blocks. again thanks for your input.

>

>

> Hi Isebee and anyone who is interested in this long tale:

>

> I would like to add my experience to Donnas in message 46980 and

> Dawn's in message 46984.

> After 6 years of RSD I went into full remission No Pain! After 4

> years of remission RSD has recurred just two weeks ago. I

developed

> RSD of my left lower limb from a crush and fracture and surgery

> placing a screw in Sept 1994 I was at 3 months into RSD

> debilitating pain before I was finally diagnosed and sent

> immediately that day to the hospital for a block. This procedure

> was called Lumbar Sympathetic Nerve Block. I had two blocks and

by

> the time I got home (l ½ hr away) I was in major pain and had no

> relief at all. When I went back for the three block I found out

> that the Dr. had recorded that I was successfully treated with the

> previous blocks. We actually got into an heated argument. Can you

> imagine he insisted that I was better and reported it in HIS STUDY

> because he was able to raise the temperature in my foot while I

was

> under the needle.

> (Ginny! Good idea about the hard pin for the DR ROFLMAO )

> Anyway, where was I,,,oh, I called him a few choice words and

> kicked him out of my life. Later I talked to the other

> anesthesiologist at this hospital and he talked with me at length

> and concluded privately that I was obviously not being helped by

> them.

>

> Later I was furnished a copy of a study of 829 patients with RSD

> published in the Lancet Oct 23, 1993 Vol 342

> Instead of feeling like a malingerer as I was called by that jerk

of

> a Doctor I saw that I had company.

> Here is an excerpt:

> TREATMENT BEFORE PRESENTATION;

> 489 patients received physiotherapy before examination and 322

(66%)

> complaints temporarily increased in the hours following treatment.

> -In 273, treatment was directed towards the sympathetic nervous

> system:

> - operative or chemical sympathectomy (29), Guanethidine blockades

> (191)Lumbar, axillary, or stellate ganglion blockades (53),

> -In 19 (7%) Results were good and lasting, In 66 moderate and

> temporary, In 157 no change was a found,

> While in 21 complaints became more sever. In 10 results were

unknown

>

> This, of course, is not the definitive answer to your question.

In

> fact, the study points out that the group of referred patients is

> highly selected (cured patients are not referred), " the results

> clearly show that interruption of the sympathetic system is not a

> panacea in RSD. "

> I just thought you might want to add it to your mental notes. I

am

> sure someone could come up with numbers that support blocks. I

> didn't have access to information in 1994 that we have today.

>

> Maybe you will be one of the few that is helped! Somebody makes

up

> that group. I just don't know of anyone. Maybe we need to

> advertise for people who are in remission so we can poll them on

> their experience and see what makes up the difference.

>

> I wish you the best and hope that whatever you decide for yourself

> that you get relief. Keep us posted on this. We all care so

very

> much and want to help each other.

> If you want to come out and play - Give me your town and State

so

> I can " pin " you on my wall map with the rest of this

> delightful

> group! With love and caring, Lyn

[Guest guest]

Dawn,

Good idea. I'd sure like to know their reactions. Keep me informed

if you are able. Sounds like you've been under the weather in

another post to I'll send good healing thoughts your way.

With love and caring, Lyn

dawn lorenz <dawny402002000@y...> wrote:

> Lyn,

> Thanks so very much for this info and I am actually going to print

and send to both of my lawyers helping me with my cases. Both SSDI

and WC, I think it is important that they know these statistics!

Thanks again and LOL and best wishes with the map.

> Dawn

>

> TREATMENT BEFORE PRESENTATION;

> 489 patients received physiotherapy before examination and 322

(66%)

> complaints temporarily increased in the hours following treatment.

> -In 273, treatment was directed towards the sympathetic nervous

> system:

> - operative or chemical sympathectomy (29), Guanethidine blockades

> (191)Lumbar, axillary, or stellate ganglion blockades (53),

> -In 19 (7%) Results were good and lasting, In 66 moderate and

> temporary, In 157 no change was a found,

> While in 21 complaints became more sever. In 10 results were

unknown

>

> This, of course, is not the definitive answer to your question.

[Guest guest]

Dawn,

Good idea. I'd sure like to know their reactions. Keep me informed

if you are able. Sounds like you've been under the weather in

another post to I'll send good healing thoughts your way.

With love and caring, Lyn

dawn lorenz <dawny402002000@y...> wrote:

> Lyn,

> Thanks so very much for this info and I am actually going to print

and send to both of my lawyers helping me with my cases. Both SSDI

and WC, I think it is important that they know these statistics!

Thanks again and LOL and best wishes with the map.

> Dawn

>

> TREATMENT BEFORE PRESENTATION;

> 489 patients received physiotherapy before examination and 322

(66%)

> complaints temporarily increased in the hours following treatment.

> -In 273, treatment was directed towards the sympathetic nervous

> system:

> - operative or chemical sympathectomy (29), Guanethidine blockades

> (191)Lumbar, axillary, or stellate ganglion blockades (53),

> -In 19 (7%) Results were good and lasting, In 66 moderate and

> temporary, In 157 no change was a found,

> While in 21 complaints became more sever. In 10 results were

unknown

>

> This, of course, is not the definitive answer to your question.

[Guest guest]

Hi Isebee,

I had a Lumbar sympathetic Block done, it helped some but it didn't take all the pain away but it helped for a few days. I don't think we have "talked" before, my name is Lin I live in Oregon, where are you from?

-- please help me with a question i have

hello,i need to take a little survey because i have an important decission to make. i am very glad to have found this site; so let me first say its nice to meet everyone and thank you for reading this. i have had rsd for a year and i have never had a lumbar sympathetic block. i just got back from conference in maine and i found out that i should have probably had one done within at least the first 3 mths of dx. it seems that everyone i talk to that had one done did not put it into remission. in fact there was 3 people that said it made them go full body. i fear i have waited to long and i don't want to have the procedure to just ease my pain b/c as of right now my neurontin is doing that. i guess i am asking does anyone have any info good or bad about there blocks. again thanks for your input.isebee