Guest guest Posted September 8, 2004 Report Share Posted September 8, 2004 Hi , I am so glad Kody is doing well and I am sure you were very relieved when they told you his previous dr. was doing a good job. I would not recommend putting any lotion on them now, just let them be. Also, after casting etc. the leg/foot can be very senstive. I know it is normal for them to be swollen, but not sure how long is too long. I bet it was great seeing him splashing around. Louisa 6-27-99 Zoe 2-22-04 RCF FAB 18/7 > Hi, > I haven't had time to check the postings or even post something for > a while. > Just to remind you: > Kody was born Feb 1 2004 with rt atypical CF. That it is an atypical > one we know only for a short time after I contacted Dr. P. > Kody is Dr. Kings patient in Tarzana. Since Dr. P recommended us to > go and see Dr Colburn we did so 3 weeks ago. It was a very nice trip. > Dr Colburn was very nice and the first Dr who really explained to us > everything just because of that it was already worth it! But the > good thing was that he said that Dr King was doing a good job and > that made me feel very relieved! He put on a new cast and said Kody > is going to be ready for his shoes. So he contacted > for us and ordered them. Last sunday we started putting Kody in the > shoes and it is not easy to deal with them eventhough there are > shoes and there are suppose to be much easier. > We can not get the heel where it belongs. I get it down but not in > the back of the shoe because his leg is so swollen! So it happened > already several times that his foot slipped out. I tried to make it > more tight and that helps but still the heel is lifting from the > bottom. Does anybody know how to get rid of the swollen leg (I tried > already to massage it with some lotion)? > I think if the swelling goes away the shoe will stay in its place. > Anyway I just wanted everybody to know that he is very happy now > (without the cast)! We went to the swimming pool after taking it off > and you guys should have seen that happy face!!! > He already adjusted to the shoes and the bar he knows how to roll > with it and I'm sure he will learn a lot more things! > Thanks for keeping this site up and for all the helpful tips > > Kody 2/1/04 rt atyp CF > Serendy 6/29/02 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2004 Report Share Posted September 8, 2004 Hi , I am so glad Kody is doing well and I am sure you were very relieved when they told you his previous dr. was doing a good job. I would not recommend putting any lotion on them now, just let them be. Also, after casting etc. the leg/foot can be very senstive. I know it is normal for them to be swollen, but not sure how long is too long. I bet it was great seeing him splashing around. Louisa 6-27-99 Zoe 2-22-04 RCF FAB 18/7 > Hi, > I haven't had time to check the postings or even post something for > a while. > Just to remind you: > Kody was born Feb 1 2004 with rt atypical CF. That it is an atypical > one we know only for a short time after I contacted Dr. P. > Kody is Dr. Kings patient in Tarzana. Since Dr. P recommended us to > go and see Dr Colburn we did so 3 weeks ago. It was a very nice trip. > Dr Colburn was very nice and the first Dr who really explained to us > everything just because of that it was already worth it! But the > good thing was that he said that Dr King was doing a good job and > that made me feel very relieved! He put on a new cast and said Kody > is going to be ready for his shoes. So he contacted > for us and ordered them. Last sunday we started putting Kody in the > shoes and it is not easy to deal with them eventhough there are > shoes and there are suppose to be much easier. > We can not get the heel where it belongs. I get it down but not in > the back of the shoe because his leg is so swollen! So it happened > already several times that his foot slipped out. I tried to make it > more tight and that helps but still the heel is lifting from the > bottom. Does anybody know how to get rid of the swollen leg (I tried > already to massage it with some lotion)? > I think if the swelling goes away the shoe will stay in its place. > Anyway I just wanted everybody to know that he is very happy now > (without the cast)! We went to the swimming pool after taking it off > and you guys should have seen that happy face!!! > He already adjusted to the shoes and the bar he knows how to roll > with it and I'm sure he will learn a lot more things! > Thanks for keeping this site up and for all the helpful tips > > Kody 2/1/04 rt atyp CF > Serendy 6/29/02 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2004 Report Share Posted September 8, 2004 Dd is in the shoes and we just got back from seeing Dr Ponseti. When we were there put the shoes on Tori and the heal was not completely down and I had also been having that problem so I asked about it. Both Dr Ponseti and said that even if the heal is not completely down that was ok. That it had a deep heal base for the heal to grow into. She hasn't kicked them off yet but did the Markell shoes and her casts. Do you use the gripper socks? I strap the middle strap then flex her toes up with her knee bent and strap the top then go back and retighten the middle strap then do the toe strap. HTH a little. Tori atypical bilateral cf brace 18 hrs a day 12/7/01 non cf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2004 Report Share Posted September 8, 2004 Dd is in the shoes and we just got back from seeing Dr Ponseti. When we were there put the shoes on Tori and the heal was not completely down and I had also been having that problem so I asked about it. Both Dr Ponseti and said that even if the heal is not completely down that was ok. That it had a deep heal base for the heal to grow into. She hasn't kicked them off yet but did the Markell shoes and her casts. Do you use the gripper socks? I strap the middle strap then flex her toes up with her knee bent and strap the top then go back and retighten the middle strap then do the toe strap. HTH a little. Tori atypical bilateral cf brace 18 hrs a day 12/7/01 non cf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2004 Report Share Posted September 8, 2004 There are some other tips ect at 's web site also. http://www.mdorthopaedics.org/forum/topic.asp?TOPIC_ID=429 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2004 Report Share Posted September 8, 2004 There are some other tips ect at 's web site also. http://www.mdorthopaedics.org/forum/topic.asp?TOPIC_ID=429 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2004 Report Share Posted September 8, 2004 There are some other tips ect at 's web site also. http://www.mdorthopaedics.org/forum/topic.asp?TOPIC_ID=429 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2004 Report Share Posted September 9, 2004 Hi , One of the problems of clubfoot is that the heel is not fully formed for awhile once the foot is corrected. Dr. Pirani explained to me that that was one reason why a cast might fall off and that if the cast is slipping and crushing the heel, that's when a lot of damage can occur to the shape of the foot and the heel. This is one reason why Dr. Ponseti prefers plaster over fiberglass which is much more difficult to mold. A recurring theme at the symposium echoed by several doctors was that once you correct the foot, there are now spaces between the bones which will fill in with bone as the child grows, especially the heel. It was really fascinating to see xrays of a newly corrected foot with hardly any bone and one of the foot a couple years later with all the bone grown in. The point of the doctors was this is why it's not good to use x-rays to diagnose a problem. I think this is one of Dr. POnseti's big points. " Don't treat the x-rays! " Some doctors see things on the xray that " don't look right " not knowing that over time, the corrected foot will start to look more normal as the child grows into the corrected position... Before I found this list, when my daughter first got the Markell shoes, they fell of her clubfoot CONSTANTLY, not her " good " foot. I thought I would go insane! After awhile, I noticed that it wasn't falling off as much, eventually it didn't fall off at all, and I wondered why... until I finally found this board and someone clued me in. I really wish that docs would share more info! It would've helped a lot to know this simple fact. I was thinking more about why the atypical feet may not have been discussed at the symposium. Of the approximately 80 doctors there, about half were using the method. I'm sure the point of the symposium was to explain the method simply to docs unfamiliar with it in a limited amount of time, so to launch into a discussion of the atypical foot might have been too overwhelming considering the amount of new information presented in a 10 hour period! Hope this helps! Joanne W. mom to big Zoe, (who has a cold and is mellow today) 3-25-01, right clubfoot Message: 22 Date: Wed, 08 Sep 2004 16:19:11 -0000 Subject: Update on Kody Hi, I haven't had time to check the postings or even post something for a while. Just to remind you: Kody was born Feb 1 2004 with rt atypical CF. That it is an atypical one we know only for a short time after I contacted Dr. P. Kody is Dr. Kings patient in Tarzana. Since Dr. P recommended us to go and see Dr Colburn we did so 3 weeks ago. It was a very nice trip. Dr Colburn was very nice and the first Dr who really explained to us everything just because of that it was already worth it! But the good thing was that he said that Dr King was doing a good job and that made me feel very relieved! He put on a new cast and said Kody is going to be ready for his shoes. So he contacted for us and ordered them. Last sunday we started putting Kody in the shoes and it is not easy to deal with them eventhough there are shoes and there are suppose to be much easier. We can not get the heel where it belongs. I get it down but not in the back of the shoe because his leg is so swollen! So it happened already several times that his foot slipped out. I tried to make it more tight and that helps but still the heel is lifting from the bottom. Does anybody know how to get rid of the swollen leg (I tried already to massage it with some lotion)? I think if the swelling goes away the shoe will stay in its place. Anyway I just wanted everybody to know that he is very happy now (without the cast)! We went to the swimming pool after taking it off and you guys should have seen that happy face!!! He already adjusted to the shoes and the bar he knows how to roll with it and I'm sure he will learn a lot more things! Thanks for keeping this site up and for all the helpful tips Kody 2/1/04 rt atyp CF Serendy 6/29/02 _________________________________________________________________ Express yourself instantly with MSN Messenger! Download today - it's FREE! http://messenger.msn.click-url.com/go/onm00200471ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2004 Report Share Posted September 9, 2004 Hi , One of the problems of clubfoot is that the heel is not fully formed for awhile once the foot is corrected. Dr. Pirani explained to me that that was one reason why a cast might fall off and that if the cast is slipping and crushing the heel, that's when a lot of damage can occur to the shape of the foot and the heel. This is one reason why Dr. Ponseti prefers plaster over fiberglass which is much more difficult to mold. A recurring theme at the symposium echoed by several doctors was that once you correct the foot, there are now spaces between the bones which will fill in with bone as the child grows, especially the heel. It was really fascinating to see xrays of a newly corrected foot with hardly any bone and one of the foot a couple years later with all the bone grown in. The point of the doctors was this is why it's not good to use x-rays to diagnose a problem. I think this is one of Dr. POnseti's big points. " Don't treat the x-rays! " Some doctors see things on the xray that " don't look right " not knowing that over time, the corrected foot will start to look more normal as the child grows into the corrected position... Before I found this list, when my daughter first got the Markell shoes, they fell of her clubfoot CONSTANTLY, not her " good " foot. I thought I would go insane! After awhile, I noticed that it wasn't falling off as much, eventually it didn't fall off at all, and I wondered why... until I finally found this board and someone clued me in. I really wish that docs would share more info! It would've helped a lot to know this simple fact. I was thinking more about why the atypical feet may not have been discussed at the symposium. Of the approximately 80 doctors there, about half were using the method. I'm sure the point of the symposium was to explain the method simply to docs unfamiliar with it in a limited amount of time, so to launch into a discussion of the atypical foot might have been too overwhelming considering the amount of new information presented in a 10 hour period! Hope this helps! Joanne W. mom to big Zoe, (who has a cold and is mellow today) 3-25-01, right clubfoot Message: 22 Date: Wed, 08 Sep 2004 16:19:11 -0000 Subject: Update on Kody Hi, I haven't had time to check the postings or even post something for a while. Just to remind you: Kody was born Feb 1 2004 with rt atypical CF. That it is an atypical one we know only for a short time after I contacted Dr. P. Kody is Dr. Kings patient in Tarzana. Since Dr. P recommended us to go and see Dr Colburn we did so 3 weeks ago. It was a very nice trip. Dr Colburn was very nice and the first Dr who really explained to us everything just because of that it was already worth it! But the good thing was that he said that Dr King was doing a good job and that made me feel very relieved! He put on a new cast and said Kody is going to be ready for his shoes. So he contacted for us and ordered them. Last sunday we started putting Kody in the shoes and it is not easy to deal with them eventhough there are shoes and there are suppose to be much easier. We can not get the heel where it belongs. I get it down but not in the back of the shoe because his leg is so swollen! So it happened already several times that his foot slipped out. I tried to make it more tight and that helps but still the heel is lifting from the bottom. Does anybody know how to get rid of the swollen leg (I tried already to massage it with some lotion)? I think if the swelling goes away the shoe will stay in its place. Anyway I just wanted everybody to know that he is very happy now (without the cast)! We went to the swimming pool after taking it off and you guys should have seen that happy face!!! He already adjusted to the shoes and the bar he knows how to roll with it and I'm sure he will learn a lot more things! Thanks for keeping this site up and for all the helpful tips Kody 2/1/04 rt atyp CF Serendy 6/29/02 _________________________________________________________________ Express yourself instantly with MSN Messenger! Download today - it's FREE! http://messenger.msn.click-url.com/go/onm00200471ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2004 Report Share Posted September 9, 2004 Hi , One of the problems of clubfoot is that the heel is not fully formed for awhile once the foot is corrected. Dr. Pirani explained to me that that was one reason why a cast might fall off and that if the cast is slipping and crushing the heel, that's when a lot of damage can occur to the shape of the foot and the heel. This is one reason why Dr. Ponseti prefers plaster over fiberglass which is much more difficult to mold. A recurring theme at the symposium echoed by several doctors was that once you correct the foot, there are now spaces between the bones which will fill in with bone as the child grows, especially the heel. It was really fascinating to see xrays of a newly corrected foot with hardly any bone and one of the foot a couple years later with all the bone grown in. The point of the doctors was this is why it's not good to use x-rays to diagnose a problem. I think this is one of Dr. POnseti's big points. " Don't treat the x-rays! " Some doctors see things on the xray that " don't look right " not knowing that over time, the corrected foot will start to look more normal as the child grows into the corrected position... Before I found this list, when my daughter first got the Markell shoes, they fell of her clubfoot CONSTANTLY, not her " good " foot. I thought I would go insane! After awhile, I noticed that it wasn't falling off as much, eventually it didn't fall off at all, and I wondered why... until I finally found this board and someone clued me in. I really wish that docs would share more info! It would've helped a lot to know this simple fact. I was thinking more about why the atypical feet may not have been discussed at the symposium. Of the approximately 80 doctors there, about half were using the method. I'm sure the point of the symposium was to explain the method simply to docs unfamiliar with it in a limited amount of time, so to launch into a discussion of the atypical foot might have been too overwhelming considering the amount of new information presented in a 10 hour period! Hope this helps! Joanne W. mom to big Zoe, (who has a cold and is mellow today) 3-25-01, right clubfoot Message: 22 Date: Wed, 08 Sep 2004 16:19:11 -0000 Subject: Update on Kody Hi, I haven't had time to check the postings or even post something for a while. Just to remind you: Kody was born Feb 1 2004 with rt atypical CF. That it is an atypical one we know only for a short time after I contacted Dr. P. Kody is Dr. Kings patient in Tarzana. Since Dr. P recommended us to go and see Dr Colburn we did so 3 weeks ago. It was a very nice trip. Dr Colburn was very nice and the first Dr who really explained to us everything just because of that it was already worth it! But the good thing was that he said that Dr King was doing a good job and that made me feel very relieved! He put on a new cast and said Kody is going to be ready for his shoes. So he contacted for us and ordered them. Last sunday we started putting Kody in the shoes and it is not easy to deal with them eventhough there are shoes and there are suppose to be much easier. We can not get the heel where it belongs. I get it down but not in the back of the shoe because his leg is so swollen! So it happened already several times that his foot slipped out. I tried to make it more tight and that helps but still the heel is lifting from the bottom. Does anybody know how to get rid of the swollen leg (I tried already to massage it with some lotion)? I think if the swelling goes away the shoe will stay in its place. Anyway I just wanted everybody to know that he is very happy now (without the cast)! We went to the swimming pool after taking it off and you guys should have seen that happy face!!! He already adjusted to the shoes and the bar he knows how to roll with it and I'm sure he will learn a lot more things! Thanks for keeping this site up and for all the helpful tips Kody 2/1/04 rt atyp CF Serendy 6/29/02 _________________________________________________________________ Express yourself instantly with MSN Messenger! Download today - it's FREE! http://messenger.msn.click-url.com/go/onm00200471ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2004 Report Share Posted September 9, 2004 Joanne, Thanks for explaining that. We were dealing w/ the same issue w/ the shoes prior to the second round of casting and that helps me to understand why the shoes fell off (in addition to his foot being atypical). Lori and Elijah 3.26.04 RCF w/ plantaris. Serial casting, recovering from the 2nd tenotomy today. > Hi , > > One of the problems of clubfoot is that the heel is not fully formed for > awhile once the foot is corrected. Dr. Pirani explained to me that that was > one reason why a cast might fall off and that if the cast is slipping and > crushing the heel, that's when a lot of damage can occur to the shape of the > foot and the heel. This is one reason why Dr. Ponseti prefers plaster over > fiberglass which is much more difficult to mold. > > A recurring theme at the symposium echoed by several doctors was that once > you correct the foot, there are now spaces between the bones which will fill > in with bone as the child grows, especially the heel. It was really > fascinating to see xrays of a newly corrected foot with hardly any bone and > one of the foot a couple years later with all the bone grown in. The point > of the doctors was this is why it's not good to use x-rays to diagnose a > problem. I think this is one of Dr. POnseti's big points. " Don't treat the > x-rays! " Some doctors see things on the xray that " don't look right " not > knowing that over time, the corrected foot will start to look more normal as > the child grows into the corrected position... > > Before I found this list, when my daughter first got the Markell shoes, they > fell of her clubfoot CONSTANTLY, not her " good " foot. I thought I would go > insane! After awhile, I noticed that it wasn't falling off as much, > eventually it didn't fall off at all, and I wondered why... until I finally > found this board and someone clued me in. I really wish that docs would > share more info! It would've helped a lot to know this simple fact. > > I was thinking more about why the atypical feet may not have been discussed > at the symposium. Of the approximately 80 doctors there, about half were > using the method. I'm sure the point of the symposium was to explain the > method simply to docs unfamiliar with it in a limited amount of time, so to > launch into a discussion of the atypical foot might have been too > overwhelming considering the amount of new information presented in a 10 > hour period! > > Hope this helps! > Joanne W. mom to big Zoe, (who has a cold and is mellow today) 3-25- 01, > right clubfoot > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2004 Report Share Posted September 9, 2004 Joanne, Thanks for explaining that. We were dealing w/ the same issue w/ the shoes prior to the second round of casting and that helps me to understand why the shoes fell off (in addition to his foot being atypical). Lori and Elijah 3.26.04 RCF w/ plantaris. Serial casting, recovering from the 2nd tenotomy today. > Hi , > > One of the problems of clubfoot is that the heel is not fully formed for > awhile once the foot is corrected. Dr. Pirani explained to me that that was > one reason why a cast might fall off and that if the cast is slipping and > crushing the heel, that's when a lot of damage can occur to the shape of the > foot and the heel. This is one reason why Dr. Ponseti prefers plaster over > fiberglass which is much more difficult to mold. > > A recurring theme at the symposium echoed by several doctors was that once > you correct the foot, there are now spaces between the bones which will fill > in with bone as the child grows, especially the heel. It was really > fascinating to see xrays of a newly corrected foot with hardly any bone and > one of the foot a couple years later with all the bone grown in. The point > of the doctors was this is why it's not good to use x-rays to diagnose a > problem. I think this is one of Dr. POnseti's big points. " Don't treat the > x-rays! " Some doctors see things on the xray that " don't look right " not > knowing that over time, the corrected foot will start to look more normal as > the child grows into the corrected position... > > Before I found this list, when my daughter first got the Markell shoes, they > fell of her clubfoot CONSTANTLY, not her " good " foot. I thought I would go > insane! After awhile, I noticed that it wasn't falling off as much, > eventually it didn't fall off at all, and I wondered why... until I finally > found this board and someone clued me in. I really wish that docs would > share more info! It would've helped a lot to know this simple fact. > > I was thinking more about why the atypical feet may not have been discussed > at the symposium. Of the approximately 80 doctors there, about half were > using the method. I'm sure the point of the symposium was to explain the > method simply to docs unfamiliar with it in a limited amount of time, so to > launch into a discussion of the atypical foot might have been too > overwhelming considering the amount of new information presented in a 10 > hour period! > > Hope this helps! > Joanne W. mom to big Zoe, (who has a cold and is mellow today) 3-25- 01, > right clubfoot > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2004 Report Share Posted September 9, 2004 Joanne, Thanks for explaining that. We were dealing w/ the same issue w/ the shoes prior to the second round of casting and that helps me to understand why the shoes fell off (in addition to his foot being atypical). Lori and Elijah 3.26.04 RCF w/ plantaris. Serial casting, recovering from the 2nd tenotomy today. > Hi , > > One of the problems of clubfoot is that the heel is not fully formed for > awhile once the foot is corrected. Dr. Pirani explained to me that that was > one reason why a cast might fall off and that if the cast is slipping and > crushing the heel, that's when a lot of damage can occur to the shape of the > foot and the heel. This is one reason why Dr. Ponseti prefers plaster over > fiberglass which is much more difficult to mold. > > A recurring theme at the symposium echoed by several doctors was that once > you correct the foot, there are now spaces between the bones which will fill > in with bone as the child grows, especially the heel. It was really > fascinating to see xrays of a newly corrected foot with hardly any bone and > one of the foot a couple years later with all the bone grown in. The point > of the doctors was this is why it's not good to use x-rays to diagnose a > problem. I think this is one of Dr. POnseti's big points. " Don't treat the > x-rays! " Some doctors see things on the xray that " don't look right " not > knowing that over time, the corrected foot will start to look more normal as > the child grows into the corrected position... > > Before I found this list, when my daughter first got the Markell shoes, they > fell of her clubfoot CONSTANTLY, not her " good " foot. I thought I would go > insane! After awhile, I noticed that it wasn't falling off as much, > eventually it didn't fall off at all, and I wondered why... until I finally > found this board and someone clued me in. I really wish that docs would > share more info! It would've helped a lot to know this simple fact. > > I was thinking more about why the atypical feet may not have been discussed > at the symposium. Of the approximately 80 doctors there, about half were > using the method. I'm sure the point of the symposium was to explain the > method simply to docs unfamiliar with it in a limited amount of time, so to > launch into a discussion of the atypical foot might have been too > overwhelming considering the amount of new information presented in a 10 > hour period! > > Hope this helps! > Joanne W. mom to big Zoe, (who has a cold and is mellow today) 3-25- 01, > right clubfoot > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2004 Report Share Posted September 9, 2004 Hi Joanne, I just want to say thanks for explaining the heel thing! Dr. H kept giving a rating for " emptiness of the heel " and I didn't understand what it meant at all...just knew it was another thing to do with CF. Thanks so much for the enlightenment!!! Marilouise 9/9/03, LCF, 3 week cast after 2nd tenotomy (4 days left!!) Owen and 3/20/99 > Hi , > > One of the problems of clubfoot is that the heel is not fully formed for > awhile once the foot is corrected. Dr. Pirani explained to me that that was > one reason why a cast might fall off and that if the cast is slipping and > crushing the heel, that's when a lot of damage can occur to the shape of the > foot and the heel. This is one reason why Dr. Ponseti prefers plaster over > fiberglass which is much more difficult to mold. > > A recurring theme at the symposium echoed by several doctors was that once > you correct the foot, there are now spaces between the bones which will fill > in with bone as the child grows, especially the heel. It was really > fascinating to see xrays of a newly corrected foot with hardly any bone and > one of the foot a couple years later with all the bone grown in. The point > of the doctors was this is why it's not good to use x-rays to diagnose a > problem. I think this is one of Dr. POnseti's big points. " Don't treat the > x-rays! " Some doctors see things on the xray that " don't look right " not > knowing that over time, the corrected foot will start to look more normal as > the child grows into the corrected position... > > Before I found this list, when my daughter first got the Markell shoes, they > fell of her clubfoot CONSTANTLY, not her " good " foot. I thought I would go > insane! After awhile, I noticed that it wasn't falling off as much, > eventually it didn't fall off at all, and I wondered why... until I finally > found this board and someone clued me in. I really wish that docs would > share more info! It would've helped a lot to know this simple fact. > > I was thinking more about why the atypical feet may not have been discussed > at the symposium. Of the approximately 80 doctors there, about half were > using the method. I'm sure the point of the symposium was to explain the > method simply to docs unfamiliar with it in a limited amount of time, so to > launch into a discussion of the atypical foot might have been too > overwhelming considering the amount of new information presented in a 10 > hour period! > > Hope this helps! > Joanne W. mom to big Zoe, (who has a cold and is mellow today) 3- 25-01, > right clubfoot Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2004 Report Share Posted September 9, 2004 This became a hot topic as well for a doc at the Symposium who felt that the empty heel rating on the Pirani scale for rating clubfoot was useless since the heel typically doesn't fill until after one year of age when the docs stop using the Pirani scale....He was playing " devil's advocate " . Dr. Pirani's comment was that he didn't want to change the scale at this point in time and confuse people. He did point out that if the heel wasn't empty during the casting process, that could indicate a problem as well... Best, Joanne W. > > Hi , > > > > One of the problems of clubfoot is that the heel is not fully > formed for > > awhile once the foot is corrected. Dr. Pirani explained to me that > that was > > one reason why a cast might fall off and that if the cast is > slipping and > > crushing the heel, that's when a lot of damage can occur to the > shape of the > > foot and the heel. This is one reason why Dr. Ponseti prefers > plaster over > > fiberglass which is much more difficult to mold. > > > > A recurring theme at the symposium echoed by several doctors was > that once > > you correct the foot, there are now spaces between the bones which > will fill > > in with bone as the child grows, especially the heel. It was > really > > fascinating to see xrays of a newly corrected foot with hardly any > bone and > > one of the foot a couple years later with all the bone grown in. > The point > > of the doctors was this is why it's not good to use x-rays to > diagnose a > > problem. I think this is one of Dr. POnseti's big points. " Don't > treat the > > x-rays! " Some doctors see things on the xray that " don't look > right " not > > knowing that over time, the corrected foot will start to look more > normal as > > the child grows into the corrected position... > > > > Before I found this list, when my daughter first got the Markell > shoes, they > > fell of her clubfoot CONSTANTLY, not her " good " foot. I thought I > would go > > insane! After awhile, I noticed that it wasn't falling off as > much, > > eventually it didn't fall off at all, and I wondered why... until > I finally > > found this board and someone clued me in. I really wish that docs > would > > share more info! It would've helped a lot to know this simple fact. > > > > I was thinking more about why the atypical feet may not have been > discussed > > at the symposium. Of the approximately 80 doctors there, about > half were > > using the method. I'm sure the point of the symposium was to > explain the > > method simply to docs unfamiliar with it in a limited amount of > time, so to > > launch into a discussion of the atypical foot might have been too > > overwhelming considering the amount of new information presented > in a 10 > > hour period! > > > > Hope this helps! > > Joanne W. mom to big Zoe, (who has a cold and is mellow today) 3- > 25-01, > > right clubfoot Quote Link to comment Share on other sites More sharing options...
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