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Rejoyce – what is a Celiac restaurant card?

Thanks, Kayce

Message 19

From: " Rejoyce

Hanson " rejoyce1@...

Date: Tue May 23, 2006

8:24am(PDT)

Subject: Re: interested in

your input

Just my .02

I'm sorry your dh's family

is the way they are, I too have been

treated poorly by my dh's

family when telling them that he was the DQ2

gene carrier -- they don't

get that CD cause other things like cancers

even though I've e-mail them

about it before the gene testing came

back. We don't have much

contact with them either mostly b/c of the

caulous words they spouted

off when told about the disease, the

genetic link, etc. I just

don't need that from anyone.

My son is 4 and there is no

way I'd let him go stay with my MIL or

SIL, he is not old enough

right now to see if CC is happening or old

enough to be an active voice

for himself, med ID bracelet or not

(which might help the family

see the seriousness of the issue).

Now, were he 15 and knew his

diet and knew about CC and knew how to

voice his needs -- then yes,

I'd let him go. I'd make sure he could

educate the family when he

arrived with fact pamphlets and that he had

his " cooking & food

items " with him. I might even have him carry a

letter from his doctor

explaining the seriousness of Celiac Disease

and remaining GF for life.

I would check out the town

on-line and the hotel, see what's near by

the she could walk to if she

needs a GF meal or request a family

member to take her to or

give her enough $$ for a taxi ride to and

from a store when she first

arrives. Check to see if there is a

health food store near by or

if a local grocery carries the products

she likes. Have her take

with her the Restaurant guide portions that

would be helpful if the

family is trying to decide on a restraunt.

I would probably pack a

small " mess kit " for her to use. And a small

amount of dish soap for her

to wash and keep her dishes separate in

her bag (bowl and spoon for

cereal and soup, plastic to heat in the

microwave etc). I would

pack cereal, bread, soup, PB small travel

conviences packages,

raisins, etc. I would pack enough food that she

could eat before they go out

in the event food selections were not

available or that she could

port in her purse.

Bottom line most places have

salad and fruit which are more than

likely 'safe'. Real eggs

are usually available too. Be sure she has

one of those Celiac

restaurant cards, they are helpful. I've had the

waitress take it to the chef

in the back and come back with the

manager (1x was great at

Ruby Tuesdays, 1x was bad at Applebees).

I know all Celiacs are different,

but my son is very sensitive to

gluten and his reaction is

within 12 hours and last about 24 hours.

And being 4, you might

imagine that glutening happens on occassion. I

caught him under the dinning

room table with a box of Cheez-Its my dh

brought in from his car! I

don't keep that stuff around, it's too

easy for him to see it and

eat it without asking which he use to do.

So, hopefully if she did get

sick, it would be short lived once the

gluten leaves her system.

Rejoyce

VA