why do celiac symptoms return when eating GF foods?

[Guest guest]

Hi JH,

True celiac disease is an autoimmune reaction to a faction of the protein.

The body reads it as an attack and the time of reaction varies from person to person.

Some people have no outward symptoms at all but are found on biopsy to have extreme damage to the gut.....hence the importance of testing 1st. degree family members.

If you are a true celiac, it is not likely you can return to eating gluten long term and not have gut damage. There is currently testing to develop a product that will "counteract" the effects of gluten on celiacs. Research feels hopeful this will allow celiacs to eat gluten-containing foods. When available, this will be a personal choice.

I don't know if it is possible for people with a wheat allergy to "outgrow" the effects of gluten.

If you are biopsy-diagnosed as a celiac I feel it is unrealistic to expect you can return to a normal diet at this time. Sooner or later you will relapse and have intestinal damage again. Personally, I would never feel it was worth it.

I know what Elaine wrote in the book, but I would be very careful with re-introducing gluten into your diet. Years ago it was believed children would outgrow celiac disease but this has proven to be incorrect as many adults learned. It is a genetic problem.

Sorry, I also wish it were different.

Gen

[Guest guest]

No I would never go back to eating gluten, but just eating processed foods once in a while would be great. Just another  level to be peeled, poor me stage.I am a true Celiac and had DH since child hood, but never got diagnosed until later in adult years. Just wish some of my siblings were diagnosed, TO FEEL LIKE I BELONG AND NOT SOME ESTRANGED SIBLING. Oops didnt mean for caps.

My body when  I eat something that upsets my gut flora I get immediate reaction right away that my digestion is not happy, then have to go back to intro diet. Also I get the foggy feeling as well, I feel for the autism kids, then once I get back on scd, then I am come out of the fog, digestion is better and I have a life again!!

I want to make fz yogurt ice cream again, ususally I eat sorbets mostly and lemon sorbet. I have to take a lacto pill if I eat any dairy. I know it is best to pick one day to bake and cook, but still I find it tiring. I get my freezer stocked up but then it gets depeleted so need to build back up.....

SCD for life that is for me/....

Hi JH,

 

True celiac disease is an autoimmune reaction to a faction of the protein.

The body reads it as an attack and the time of reaction varies from person to person.

Some people have no outward symptoms at all but are found on biopsy to have extreme damage to the gut.....hence the importance of testing 1st. degree family members.

 

If you are a true celiac, it is not likely you can return to eating gluten long term and not have gut damage.  There is currently testing to develop a product that will " counteract " the effects of gluten on celiacs.  Research feels hopeful this will allow celiacs to eat gluten-containing foods.  When available, this will be a personal choice.

 

I don't know if it is possible for people with a wheat allergy to " outgrow " the effects of gluten. 

If you are biopsy-diagnosed as a celiac I feel it is unrealistic to expect you can return to a normal diet at this time.  Sooner or later you will relapse and have intestinal damage again.  Personally, I would never feel it was worth it. 

 

I know what Elaine wrote in the book, but I would be very careful with re-introducing gluten into your diet.  Years ago it was believed children would outgrow celiac disease but this has proven to be incorrect as many adults learned.  It is a genetic problem.

 

Sorry, I also wish it were different.

Gen

 

 

-- JHscd 4 years, Celiac Sprue " Strength does not come from winningYour struggles develop your strength. "

[Guest guest]

I hear you - 2 nights ago while standing on the icecream line for hubby (that I

alone kept in business for years I'm convinced - LOL_ it was the 1st time I

thought " hey maybe i can have this someday " then came the " just make it scd

style " then the " but it's not gluten and I never had diary probs - so what if it

feeds the bacteria and yeast and I'm off for what 3 months tops - maybe not even

"

followed by a " wake-up go home and keep living SCD at least for now " MAYBE a

small taste in a few years???? LOL - like how i talk to myself so well??? LOL

SCD is awesome but occasionally -it stinks :-)no desire last year??? yeasties

are hungry???

eileen 17 months scd

>

> >

> >

> > Hi JH,

> >

> > True celiac disease is an autoimmune reaction to a faction of the protein.

> > The body reads it as an attack and the time of reaction varies from person

> > to person.

> > Some people have no outward symptoms at all but are found on biopsy to have

> > extreme damage to the gut.....hence the importance of testing 1st. degree

> > family members.

> >

> > If you are a true celiac, it is not likely you can return to eating gluten

> > long term and not have gut damage. There is currently testing to develop a

> > product that will " counteract " the effects of gluten on celiacs. Research

> > feels hopeful this will allow celiacs to eat gluten-containing foods. When

> > available, this will be a personal choice.

> >

> > I don't know if it is possible for people with a wheat allergy to " outgrow "

> > the effects of gluten.

> > If you are biopsy-diagnosed as a celiac I feel it is unrealistic to expect

> > you can return to a normal diet at this time. Sooner or later you will

> > relapse and have intestinal damage again. Personally, I would never feel it

> > was worth it.

> >

> > I know what Elaine wrote in the book, but I would be very careful with

> > re-introducing gluten into your diet. Years ago it was believed children

> > would outgrow celiac disease but this has proven to be incorrect as many

> > adults learned. It is a genetic problem.

> >

> > Sorry, I also wish it were different.

> > Gen

> >

> >

> >

> >

> >

> >

> >

>

>

>

> --

> JH

> scd 4 years, Celiac Sprue

> " Strength does not come from winning

> Your struggles develop your strength. "

>

[Guest guest]

I hear you - 2 nights ago while standing on the icecream line for hubby (that I

alone kept in business for years I'm convinced - LOL_ it was the 1st time I

thought " hey maybe i can have this someday " then came the " just make it scd

style " then the " but it's not gluten and I never had diary probs - so what if it

feeds the bacteria and yeast and I'm off for what 3 months tops - maybe not even

"

followed by a " wake-up go home and keep living SCD at least for now " MAYBE a

small taste in a few years???? LOL - like how i talk to myself so well??? LOL

SCD is awesome but occasionally -it stinks :-)no desire last year??? yeasties

are hungry???

eileen 17 months scd

>

> >

> >

> > Hi JH,

> >

> > True celiac disease is an autoimmune reaction to a faction of the protein.

> > The body reads it as an attack and the time of reaction varies from person

> > to person.

> > Some people have no outward symptoms at all but are found on biopsy to have

> > extreme damage to the gut.....hence the importance of testing 1st. degree

> > family members.

> >

> > If you are a true celiac, it is not likely you can return to eating gluten

> > long term and not have gut damage. There is currently testing to develop a

> > product that will " counteract " the effects of gluten on celiacs. Research

> > feels hopeful this will allow celiacs to eat gluten-containing foods. When

> > available, this will be a personal choice.

> >

> > I don't know if it is possible for people with a wheat allergy to " outgrow "

> > the effects of gluten.

> > If you are biopsy-diagnosed as a celiac I feel it is unrealistic to expect

> > you can return to a normal diet at this time. Sooner or later you will

> > relapse and have intestinal damage again. Personally, I would never feel it

> > was worth it.

> >

> > I know what Elaine wrote in the book, but I would be very careful with

> > re-introducing gluten into your diet. Years ago it was believed children

> > would outgrow celiac disease but this has proven to be incorrect as many

> > adults learned. It is a genetic problem.

> >

> > Sorry, I also wish it were different.

> > Gen

> >

> >

> >

> >

> >

> >

> >

>

>

>

> --

> JH

> scd 4 years, Celiac Sprue

> " Strength does not come from winning

> Your struggles develop your strength. "

>

[Guest guest]

I hear you - 2 nights ago while standing on the icecream line for hubby (that I

alone kept in business for years I'm convinced - LOL_ it was the 1st time I

thought " hey maybe i can have this someday " then came the " just make it scd

style " then the " but it's not gluten and I never had diary probs - so what if it

feeds the bacteria and yeast and I'm off for what 3 months tops - maybe not even

"

followed by a " wake-up go home and keep living SCD at least for now " MAYBE a

small taste in a few years???? LOL - like how i talk to myself so well??? LOL

SCD is awesome but occasionally -it stinks :-)no desire last year??? yeasties

are hungry???

eileen 17 months scd

>

> >

> >

> > Hi JH,

> >

> > True celiac disease is an autoimmune reaction to a faction of the protein.

> > The body reads it as an attack and the time of reaction varies from person

> > to person.

> > Some people have no outward symptoms at all but are found on biopsy to have

> > extreme damage to the gut.....hence the importance of testing 1st. degree

> > family members.

> >

> > If you are a true celiac, it is not likely you can return to eating gluten

> > long term and not have gut damage. There is currently testing to develop a

> > product that will " counteract " the effects of gluten on celiacs. Research

> > feels hopeful this will allow celiacs to eat gluten-containing foods. When

> > available, this will be a personal choice.

> >

> > I don't know if it is possible for people with a wheat allergy to " outgrow "

> > the effects of gluten.

> > If you are biopsy-diagnosed as a celiac I feel it is unrealistic to expect

> > you can return to a normal diet at this time. Sooner or later you will

> > relapse and have intestinal damage again. Personally, I would never feel it

> > was worth it.

> >

> > I know what Elaine wrote in the book, but I would be very careful with

> > re-introducing gluten into your diet. Years ago it was believed children

> > would outgrow celiac disease but this has proven to be incorrect as many

> > adults learned. It is a genetic problem.

> >

> > Sorry, I also wish it were different.

> > Gen

> >

> >

> >

> >

> >

> >

> >

>

>

>

> --

> JH

> scd 4 years, Celiac Sprue

> " Strength does not come from winning

> Your struggles develop your strength. "

>