Guest guest Posted April 12, 2005 Report Share Posted April 12, 2005 Wow Joan , you really are just about like my Joe then , sounds like the same regiment he is on , except they also have him on Avastin and Calcium magnesium for the tingles. Has the doc mentioned anything about the calcium magnesium for the tingles? if not mention it to him , its not a cure all by any means but it does help some, Deb 33yrold husband Joe, was diagnosed with CC in Sept, resection on Sept 27th 2004 found mets to the abdominal wall lining 3 lymph nodes involved open wound from infection until Jan 2005 Ileostomy reversal Dec 7th 2004 Chemo regiment begun Jan 2005 5fu/levorican/Oxaplatin/ Avastin added Feb 14 2005 (Happy Valentines Calcium Magnesium added for the Tingles Feb 28 2005 Ct Scan done March 23rd 2005 , 16 millimeter cyst like object on liver found April 1 2005 PET scan done awaiting results April 11 PET SCAN SHOWS NED!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2005 Report Share Posted April 12, 2005 I'm starting FOLFOX next week, Wednesday/Thursday, hope all goes well...I'm dreading it! But I say... " Bring It " > > Every other week for 12 treatments or 6 months. 2 IVs of nausea meds > then IV of oxaplatin (Sp?) and Leucorvin then 1 Iv of 5 Fu then a take > home infuser of 5 Fu for 42 or 46 hours. She slows it down depending > on when the dr comes in on wed. My last treatment should be in July. > > I feel tired out for the 3 chemo days and don't feel like eating. The > nausea is a lot better since they started me on the 2nd iv bag of > nausea med. The worst problem for me is the cold. It feels like an > electric shock to me when I forget to use gloves in the fridge. > > Joan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2005 Report Share Posted April 12, 2005 Don't worry to much about the hand timgling thing. It will go away when chemo is done. It is just a pain right now for you. If it gets real bad and it gets to the point you cannot function very well then talk to the ONC. He can reduce the dosage. He reduced mine on tenth cycle. It has helped alot. Still tingles but at least I can funtion and pick things up without dropping. And my hands are not as swollen. Still turn red but not that purple tinge my hands was wearing. Hope you are tolerating it well. Praying for YOU, Ingrid > > Every other week for 12 treatments or 6 months. 2 IVs of nausea meds > then IV of oxaplatin (Sp?) and Leucorvin then 1 Iv of 5 Fu then a take > home infuser of 5 Fu for 42 or 46 hours. She slows it down depending > on when the dr comes in on wed. My last treatment should be in July. > > I feel tired out for the 3 chemo days and don't feel like eating. The > nausea is a lot better since they started me on the 2nd iv bag of > nausea med. The worst problem for me is the cold. It feels like an > electric shock to me when I forget to use gloves in the fridge. > > Joan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2005 Report Share Posted April 12, 2005 Don't worry to much about the hand timgling thing. It will go away when chemo is done. It is just a pain right now for you. If it gets real bad and it gets to the point you cannot function very well then talk to the ONC. He can reduce the dosage. He reduced mine on tenth cycle. It has helped alot. Still tingles but at least I can funtion and pick things up without dropping. And my hands are not as swollen. Still turn red but not that purple tinge my hands was wearing. Hope you are tolerating it well. Praying for YOU, Ingrid > > Every other week for 12 treatments or 6 months. 2 IVs of nausea meds > then IV of oxaplatin (Sp?) and Leucorvin then 1 Iv of 5 Fu then a take > home infuser of 5 Fu for 42 or 46 hours. She slows it down depending > on when the dr comes in on wed. My last treatment should be in July. > > I feel tired out for the 3 chemo days and don't feel like eating. The > nausea is a lot better since they started me on the 2nd iv bag of > nausea med. The worst problem for me is the cold. It feels like an > electric shock to me when I forget to use gloves in the fridge. > > Joan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2005 Report Share Posted April 12, 2005 Don't worry to much about the hand timgling thing. It will go away when chemo is done. It is just a pain right now for you. If it gets real bad and it gets to the point you cannot function very well then talk to the ONC. He can reduce the dosage. He reduced mine on tenth cycle. It has helped alot. Still tingles but at least I can funtion and pick things up without dropping. And my hands are not as swollen. Still turn red but not that purple tinge my hands was wearing. Hope you are tolerating it well. Praying for YOU, Ingrid > > Every other week for 12 treatments or 6 months. 2 IVs of nausea meds > then IV of oxaplatin (Sp?) and Leucorvin then 1 Iv of 5 Fu then a take > home infuser of 5 Fu for 42 or 46 hours. She slows it down depending > on when the dr comes in on wed. My last treatment should be in July. > > I feel tired out for the 3 chemo days and don't feel like eating. The > nausea is a lot better since they started me on the 2nd iv bag of > nausea med. The worst problem for me is the cold. It feels like an > electric shock to me when I forget to use gloves in the fridge. > > Joan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2005 Report Share Posted April 12, 2005 Do not think there is a person in the world that does not dread the chemo days. It is normal I am sure. It will be alright. All here seem to survive it. Best of all and I am going to Pray that all is easy for you. Ingriid > > > > Every other week for 12 treatments or 6 months. 2 IVs of nausea meds > > then IV of oxaplatin (Sp?) and Leucorvin then 1 Iv of 5 Fu then a > take > > home infuser of 5 Fu for 42 or 46 hours. She slows it down depending > > on when the dr comes in on wed. My last treatment should be in July. > > > > I feel tired out for the 3 chemo days and don't feel like eating. The > > nausea is a lot better since they started me on the 2nd iv bag of > > nausea med. The worst problem for me is the cold. It feels like an > > electric shock to me when I forget to use gloves in the fridge. > > > > Joan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2005 Report Share Posted April 13, 2005 Have you asked about Zofran for the nausea? It works well and might help with your appetite. Narice Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2005 Report Share Posted April 13, 2005 Have you asked about Zofran for the nausea? It works well and might help with your appetite. Narice Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2005 Report Share Posted April 13, 2005 Have you asked about Zofran for the nausea? It works well and might help with your appetite. Narice Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2005 Report Share Posted April 13, 2005 Starting chemo is scary but we're all praying for you. Now go kick some cancer butt! Best wishes, Narice Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.