Guest guest Posted June 24, 2004 Report Share Posted June 24, 2004 Hi , My daughter was born 3/9/04 with a LCF. We have some experience with the AFO, but my first question is why are you using the AFO instead of the DBB? The DBB is known to have a much lower relapse rate because of the external rotation position of the foot. I don't know if you can look back at the posts from 1-2 weeks ago, but there are several discussions about the AFO. My daughter got one made 2 weeks ago b/c we were having so much trouble with the DBB (namely sores). After some research and a short trial period in the AFO I realized that the likely-hood of her relapsing would be significantly increased if she only used the AFO. We changed to a Ponseti Certified doctor and he as much as told me to throw the AFO away b/c it was pretty close to useless. He also had to recast my daughter's leg and is considering a tenotomy now. Does your doctor follow the Ponseti Method? Our last doctor claimed to follow it but was not certified. He told me that we could even stop treatment of Kaitlin's foot and watch to see what happened and when I refused that option he prescribed an AFO. I realized that his lack of aggressiveness in her treatment would cause more problems in the future and that we needed to be as aggressive as possible in her treatment so that we would not face a relapse one day and have to start all over again. Research shows that AFO's are not as effective and someone told me that Dr. Ponseti himself said that they are " Useless in the treatment of clubfoot. " Some doctors use a KAFO (Knee+AFO) and that those can be more effective than an AFO but has the unfortunate side effect of poor calf development due to lack of use in the affected leg. I am not an expert on this subject but I have learned a lot about AFO's in the last few weeks as we were going to use one. I am not sure why your doctor is choosing to prescribe an AFO instead of a DBB this time. I am sure there is a lot more info in the archive posts from 2 weeks ago. Actually, I will reforward the email with the information that Kori sent to me about AFOs if I can. Oh yeah, to answer your main questions, they are not as hard to put on as the DBB, they go up to just below the knee, but they still can cause sores, redness and be uncomfortable if they are made too tight. Also there can be problems with sweating. I hope this helps you some. Freeman Kaitlin Freeman 3/9/04 LCF Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2004 Report Share Posted June 24, 2004 Hi , My daughter was born 3/9/04 with a LCF. We have some experience with the AFO, but my first question is why are you using the AFO instead of the DBB? The DBB is known to have a much lower relapse rate because of the external rotation position of the foot. I don't know if you can look back at the posts from 1-2 weeks ago, but there are several discussions about the AFO. My daughter got one made 2 weeks ago b/c we were having so much trouble with the DBB (namely sores). After some research and a short trial period in the AFO I realized that the likely-hood of her relapsing would be significantly increased if she only used the AFO. We changed to a Ponseti Certified doctor and he as much as told me to throw the AFO away b/c it was pretty close to useless. He also had to recast my daughter's leg and is considering a tenotomy now. Does your doctor follow the Ponseti Method? Our last doctor claimed to follow it but was not certified. He told me that we could even stop treatment of Kaitlin's foot and watch to see what happened and when I refused that option he prescribed an AFO. I realized that his lack of aggressiveness in her treatment would cause more problems in the future and that we needed to be as aggressive as possible in her treatment so that we would not face a relapse one day and have to start all over again. Research shows that AFO's are not as effective and someone told me that Dr. Ponseti himself said that they are " Useless in the treatment of clubfoot. " Some doctors use a KAFO (Knee+AFO) and that those can be more effective than an AFO but has the unfortunate side effect of poor calf development due to lack of use in the affected leg. I am not an expert on this subject but I have learned a lot about AFO's in the last few weeks as we were going to use one. I am not sure why your doctor is choosing to prescribe an AFO instead of a DBB this time. I am sure there is a lot more info in the archive posts from 2 weeks ago. Actually, I will reforward the email with the information that Kori sent to me about AFOs if I can. Oh yeah, to answer your main questions, they are not as hard to put on as the DBB, they go up to just below the knee, but they still can cause sores, redness and be uncomfortable if they are made too tight. Also there can be problems with sweating. I hope this helps you some. Freeman Kaitlin Freeman 3/9/04 LCF Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2004 Report Share Posted June 24, 2004 Actually, I can't forward the message but the number is 21860 in the archive. There is a lot of info from that week for sure (6/14). Maybe it will help you. Freeman Kaitlin Freeman 3/9/04 LCF Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2004 Report Share Posted June 24, 2004 , Dr. Ponseti does not use AFO's in his method. He feels that since they don't maintain the external rotation of the foot that they allow the foot to relapse easier. In the recent Global HELP Publication on the Ponseti method it says on page 15, " Importance of bracing " " The Ponseti manipulations combined with the percutaneous tenotomy regularly achieve an excellent result. However, without a diligent follow-up bracing program,recurrence and relapse occur in more than 80% of cases. This is in contrast to a relapse rate of only 6%in compliant families (Morcuende et al.). " " Alternatives to foot abduction brace " " Some surgeons have tried to " improve " Ponseti management by modifying the brace protocol or by using different braces. They think that the child will be more comfortable without the bar and so advise use of straight last shoes alone. This strategy always fails. The straight last shoes by themselves do nothing. They function only as an attachment point for the bar. " " Some braces are no better than the shoes by themselves and, therefore, have no place in the bracing protocol. If well fitted, the knee-ankle-foot braces (KAFO's), such as the Wheaton brace, maintain the foot abducted and externally rotated. However, the knee-ankle-foot braces keep the knee bent in 90 degrees of flexion. This position causes the gastrocnemius muscle and Achilles tendon to atrophy and shorten, leading to recurrence of the equinus deformity. This is particularly a problem if a knee- ankle-foot brace is used during the initial 3 months of bracing, when the braces are worn full time. " " In summary, only the brace as described by Ponseti is an acceptable brace for Ponseti management and should be worn at night until the child is 3 to 4 years of age. " http://www.global-help.org/publications/pdfs/PonsetiBook.pdf and (3-17-99) > Hi everyone:) > > Well, Kris has learned to walk again after being in the cast's for almost a month and a half:) I posted more pictures of him in cfpics if anyone wants to see his feet:) > He also is wearing the AFO's during the day from time to time. I was not sure he needed to have them after having been casted, but saw him pulling in the big toes and making his feet turn inward...I put the AFO's on real quick!! > If anything it will keep him from doing that:) > The most strange thing about all this is ...for as long as I can remember, he has fought me about putting on the FAB/DBB's every night! > But after he got out of the cast's I had increased his time in them and started putting them on as soon as he got out of bathtime (almost 11/2 hours or more before bedtime) > and not one complaint! I could not believe it!! > he also likes the AFO's!! > I am speechless... > but very happy:) > so far he is doing fine:) > If the feet start to turn in again, he will have to get the inside tendons cut to release the tension. Has anyone gone through this? would love to hear any story's:) > bye for now > Carole and Kris in Hawaii > 6-11-02 Bilateral clubfoot > Ponseti method since birth, just finished a frontal relapse (?) of feet w/ casting. > FAB?DBB 14to 16 hrs/7 days a week > Also using AFO's when out and about running around ( still let him run barefoot as much as I can:) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2004 Report Share Posted June 25, 2004 My dd was in AFO's for a short time. I can send you some pictures of them if you want. I just want to repeat what everyone else has said though. I was the one that Dr Ponseti e-mailed and told that " AFO's useless in maintaining a corrected clubfoot " so I would not recommend them. They are easier to put on and fit under most clothes. I was told that they stay on better if you put shoes over them and sometimes it is a problem to find shoes wide enough to fit. Also my dd would not stay in them and kicked them off all of the time. Why did your doctor want to use AFO's instead of the DBB? Let me know if you want the pictures. Tori 1/30/04 atypical bilateral cf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2004 Report Share Posted June 25, 2004 My dd was in AFO's for a short time. I can send you some pictures of them if you want. I just want to repeat what everyone else has said though. I was the one that Dr Ponseti e-mailed and told that " AFO's useless in maintaining a corrected clubfoot " so I would not recommend them. They are easier to put on and fit under most clothes. I was told that they stay on better if you put shoes over them and sometimes it is a problem to find shoes wide enough to fit. Also my dd would not stay in them and kicked them off all of the time. Why did your doctor want to use AFO's instead of the DBB? Let me know if you want the pictures. Tori 1/30/04 atypical bilateral cf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2004 Report Share Posted June 25, 2004 My dd was in AFO's for a short time. I can send you some pictures of them if you want. I just want to repeat what everyone else has said though. I was the one that Dr Ponseti e-mailed and told that " AFO's useless in maintaining a corrected clubfoot " so I would not recommend them. They are easier to put on and fit under most clothes. I was told that they stay on better if you put shoes over them and sometimes it is a problem to find shoes wide enough to fit. Also my dd would not stay in them and kicked them off all of the time. Why did your doctor want to use AFO's instead of the DBB? Let me know if you want the pictures. Tori 1/30/04 atypical bilateral cf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2004 Report Share Posted June 25, 2004 Hi ... I would really like to see the pics of your daughter in the AFO's. My dr. said he can either use the AFO's or the DBB. was in the DBB's for 4 weeks before they decided to do the tenotomy. He absolutely hated the shoes... and I did too! They were so hard to get on his feet and he got huge blisters from them. That is why I was leaning towards the AFO's instead. The dr. recommended that we get high top sneakers to wear with them. Many people have said they aren't great though, so I wonder if I should reconsider. will have his tenotomy done on June 30th, so we won't need to worry about it until August. That is another question that I have... Do the casts have to be on for 4 weeks after the tenotomy? I wrote to Dr. Ponseti and he recommends 3 weeks.. my dr. said 4. What do u all think? Thanks again for all of your help. Tichauer 4 months BLCF sarah.beaver@...> wrote: My dd was in AFO's for a short time. I can send you some pictures of them if you want. I just want to repeat what everyone else has said though. I was the one that Dr Ponseti e-mailed and told that " AFO's useless in maintaining a corrected clubfoot " so I would not recommend them. They are easier to put on and fit under most clothes. I was told that they stay on better if you put shoes over them and sometimes it is a problem to find shoes wide enough to fit. Also my dd would not stay in them and kicked them off all of the time. Why did your doctor want to use AFO's instead of the DBB? Let me know if you want the pictures. Tori 1/30/04 atypical bilateral cf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2004 Report Share Posted June 25, 2004 Hi ... I would really like to see the pics of your daughter in the AFO's. My dr. said he can either use the AFO's or the DBB. was in the DBB's for 4 weeks before they decided to do the tenotomy. He absolutely hated the shoes... and I did too! They were so hard to get on his feet and he got huge blisters from them. That is why I was leaning towards the AFO's instead. The dr. recommended that we get high top sneakers to wear with them. Many people have said they aren't great though, so I wonder if I should reconsider. will have his tenotomy done on June 30th, so we won't need to worry about it until August. That is another question that I have... Do the casts have to be on for 4 weeks after the tenotomy? I wrote to Dr. Ponseti and he recommends 3 weeks.. my dr. said 4. What do u all think? Thanks again for all of your help. Tichauer 4 months BLCF sarah.beaver@...> wrote: My dd was in AFO's for a short time. I can send you some pictures of them if you want. I just want to repeat what everyone else has said though. I was the one that Dr Ponseti e-mailed and told that " AFO's useless in maintaining a corrected clubfoot " so I would not recommend them. They are easier to put on and fit under most clothes. I was told that they stay on better if you put shoes over them and sometimes it is a problem to find shoes wide enough to fit. Also my dd would not stay in them and kicked them off all of the time. Why did your doctor want to use AFO's instead of the DBB? Let me know if you want the pictures. Tori 1/30/04 atypical bilateral cf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2004 Report Share Posted June 25, 2004 Hi ... I would really like to see the pics of your daughter in the AFO's. My dr. said he can either use the AFO's or the DBB. was in the DBB's for 4 weeks before they decided to do the tenotomy. He absolutely hated the shoes... and I did too! They were so hard to get on his feet and he got huge blisters from them. That is why I was leaning towards the AFO's instead. The dr. recommended that we get high top sneakers to wear with them. Many people have said they aren't great though, so I wonder if I should reconsider. will have his tenotomy done on June 30th, so we won't need to worry about it until August. That is another question that I have... Do the casts have to be on for 4 weeks after the tenotomy? I wrote to Dr. Ponseti and he recommends 3 weeks.. my dr. said 4. What do u all think? Thanks again for all of your help. Tichauer 4 months BLCF sarah.beaver@...> wrote: My dd was in AFO's for a short time. I can send you some pictures of them if you want. I just want to repeat what everyone else has said though. I was the one that Dr Ponseti e-mailed and told that " AFO's useless in maintaining a corrected clubfoot " so I would not recommend them. They are easier to put on and fit under most clothes. I was told that they stay on better if you put shoes over them and sometimes it is a problem to find shoes wide enough to fit. Also my dd would not stay in them and kicked them off all of the time. Why did your doctor want to use AFO's instead of the DBB? Let me know if you want the pictures. Tori 1/30/04 atypical bilateral cf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2004 Report Share Posted June 25, 2004 , I think it can be said with certainty that the reason the DBB was so bad for your son and you is that his feet were not fully corrected. If he still needed a tenotomy after being in the DBB, then the DBB was likely causing him pain and that would also explain the blisters. I would really suggest you give the DBB another try now that his foot should be fully corrected. Your doctor really should have told you all this rather than suggesting the AFO's. If you need help with suggestions on how to get the shoes on right and other things everyone here is always willing to help. Angel Re: Re: AFO's Hi ... I would really like to see the pics of your daughter in the AFO's. My dr. said he can either use the AFO's or the DBB. was in the DBB's for 4 weeks before they decided to do the tenotomy. He absolutely hated the shoes... and I did too! They were so hard to get on his feet and he got huge blisters from them. That is why I was leaning towards the AFO's instead. The dr. recommended that we get high top sneakers to wear with them. Many people have said they aren't great though, so I wonder if I should reconsider. will have his tenotomy done on June 30th, so we won't need to worry about it until August. That is another question that I have... Do the casts have to be on for 4 weeks after the tenotomy? I wrote to Dr. Ponseti and he recommends 3 weeks.. my dr. said 4. What do u all think? Thanks again for all of your help. Tichauer 4 months BLCF sarah.beaver@...> wrote: My dd was in AFO's for a short time. I can send you some pictures of them if you want. I just want to repeat what everyone else has said though. I was the one that Dr Ponseti e-mailed and told that " AFO's useless in maintaining a corrected clubfoot " so I would not recommend them. They are easier to put on and fit under most clothes. I was told that they stay on better if you put shoes over them and sometimes it is a problem to find shoes wide enough to fit. Also my dd would not stay in them and kicked them off all of the time. Why did your doctor want to use AFO's instead of the DBB? Let me know if you want the pictures. Tori 1/30/04 atypical bilateral cf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2004 Report Share Posted June 25, 2004 , I think it can be said with certainty that the reason the DBB was so bad for your son and you is that his feet were not fully corrected. If he still needed a tenotomy after being in the DBB, then the DBB was likely causing him pain and that would also explain the blisters. I would really suggest you give the DBB another try now that his foot should be fully corrected. Your doctor really should have told you all this rather than suggesting the AFO's. If you need help with suggestions on how to get the shoes on right and other things everyone here is always willing to help. Angel Re: Re: AFO's Hi ... I would really like to see the pics of your daughter in the AFO's. My dr. said he can either use the AFO's or the DBB. was in the DBB's for 4 weeks before they decided to do the tenotomy. He absolutely hated the shoes... and I did too! They were so hard to get on his feet and he got huge blisters from them. That is why I was leaning towards the AFO's instead. The dr. recommended that we get high top sneakers to wear with them. Many people have said they aren't great though, so I wonder if I should reconsider. will have his tenotomy done on June 30th, so we won't need to worry about it until August. That is another question that I have... Do the casts have to be on for 4 weeks after the tenotomy? I wrote to Dr. Ponseti and he recommends 3 weeks.. my dr. said 4. What do u all think? Thanks again for all of your help. Tichauer 4 months BLCF sarah.beaver@...> wrote: My dd was in AFO's for a short time. I can send you some pictures of them if you want. I just want to repeat what everyone else has said though. I was the one that Dr Ponseti e-mailed and told that " AFO's useless in maintaining a corrected clubfoot " so I would not recommend them. They are easier to put on and fit under most clothes. I was told that they stay on better if you put shoes over them and sometimes it is a problem to find shoes wide enough to fit. Also my dd would not stay in them and kicked them off all of the time. Why did your doctor want to use AFO's instead of the DBB? Let me know if you want the pictures. Tori 1/30/04 atypical bilateral cf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2004 Report Share Posted June 25, 2004 , I thought I would just jump in here and put in my 2 cents. The DBB will probably be much easier to use once the tenotomy is done. Usually the only time the children get blisters is when their feet are not corrected enough. Hopefully, with the Tenotomy, his feet will be fully corrected and then the shoes won't bother him. You don't say if you had the red bar or the gold bar. The shoes on the gold bar are removable and you can put them on his feet one at a time just like normal shoes and then attach the bar. It makes it much simpler to use. I just set Rose in her highchair and give her a bottle or a toy to distract her and put them on! Rose wore her cast 3 weeks after her tenotomy and then wore the DBB 23/7 for 3 months. I don't know anything about AFO's except what I read here, but they sure don't sound good. The shoes really keep the foot in the position it needs to be in and don't impact the legs like the AFO's. I mean, you don't have to wrap a piece of plastic around your baby's leg to correct his foot. That makes sense to me. Anyway, good luck with whatever you decide. Feel free to email me anytime if you have questions or just want to talk. Robin & Rose 3/11/03 Right club foot. Tichauer ntichauer@...> wrote: Hi ... I would really like to see the pics of your daughter in the AFO's. My dr. said he can either use the AFO's or the DBB. was in the DBB's for 4 weeks before they decided to do the tenotomy. He absolutely hated the shoes... and I did too! They were so hard to get on his feet and he got huge blisters from them. That is why I was leaning towards the AFO's instead. The dr. recommended that we get high top sneakers to wear with them. Many people have said they aren't great though, so I wonder if I should reconsider. will have his tenotomy done on June 30th, so we won't need to worry about it until August. That is another question that I have... Do the casts have to be on for 4 weeks after the tenotomy? I wrote to Dr. Ponseti and he recommends 3 weeks.. my dr. said 4. What do u all think? Thanks again for all of your help. Tichauer 4 months BLCF sarah.beaver@...> wrote: My dd was in AFO's for a short time. I can send you some pictures of them if you want. I just want to repeat what everyone else has said though. I was the one that Dr Ponseti e-mailed and told that " AFO's useless in maintaining a corrected clubfoot " so I would not recommend them. They are easier to put on and fit under most clothes. I was told that they stay on better if you put shoes over them and sometimes it is a problem to find shoes wide enough to fit. Also my dd would not stay in them and kicked them off all of the time. Why did your doctor want to use AFO's instead of the DBB? Let me know if you want the pictures. Tori 1/30/04 atypical bilateral cf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2004 Report Share Posted June 25, 2004 , I thought I would just jump in here and put in my 2 cents. The DBB will probably be much easier to use once the tenotomy is done. Usually the only time the children get blisters is when their feet are not corrected enough. Hopefully, with the Tenotomy, his feet will be fully corrected and then the shoes won't bother him. You don't say if you had the red bar or the gold bar. The shoes on the gold bar are removable and you can put them on his feet one at a time just like normal shoes and then attach the bar. It makes it much simpler to use. I just set Rose in her highchair and give her a bottle or a toy to distract her and put them on! Rose wore her cast 3 weeks after her tenotomy and then wore the DBB 23/7 for 3 months. I don't know anything about AFO's except what I read here, but they sure don't sound good. The shoes really keep the foot in the position it needs to be in and don't impact the legs like the AFO's. I mean, you don't have to wrap a piece of plastic around your baby's leg to correct his foot. That makes sense to me. Anyway, good luck with whatever you decide. Feel free to email me anytime if you have questions or just want to talk. Robin & Rose 3/11/03 Right club foot. Tichauer ntichauer@...> wrote: Hi ... I would really like to see the pics of your daughter in the AFO's. My dr. said he can either use the AFO's or the DBB. was in the DBB's for 4 weeks before they decided to do the tenotomy. He absolutely hated the shoes... and I did too! They were so hard to get on his feet and he got huge blisters from them. That is why I was leaning towards the AFO's instead. The dr. recommended that we get high top sneakers to wear with them. Many people have said they aren't great though, so I wonder if I should reconsider. will have his tenotomy done on June 30th, so we won't need to worry about it until August. That is another question that I have... Do the casts have to be on for 4 weeks after the tenotomy? I wrote to Dr. Ponseti and he recommends 3 weeks.. my dr. said 4. What do u all think? Thanks again for all of your help. Tichauer 4 months BLCF sarah.beaver@...> wrote: My dd was in AFO's for a short time. I can send you some pictures of them if you want. I just want to repeat what everyone else has said though. I was the one that Dr Ponseti e-mailed and told that " AFO's useless in maintaining a corrected clubfoot " so I would not recommend them. They are easier to put on and fit under most clothes. I was told that they stay on better if you put shoes over them and sometimes it is a problem to find shoes wide enough to fit. Also my dd would not stay in them and kicked them off all of the time. Why did your doctor want to use AFO's instead of the DBB? Let me know if you want the pictures. Tori 1/30/04 atypical bilateral cf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2004 Report Share Posted June 25, 2004 , I thought I would just jump in here and put in my 2 cents. The DBB will probably be much easier to use once the tenotomy is done. Usually the only time the children get blisters is when their feet are not corrected enough. Hopefully, with the Tenotomy, his feet will be fully corrected and then the shoes won't bother him. You don't say if you had the red bar or the gold bar. The shoes on the gold bar are removable and you can put them on his feet one at a time just like normal shoes and then attach the bar. It makes it much simpler to use. I just set Rose in her highchair and give her a bottle or a toy to distract her and put them on! Rose wore her cast 3 weeks after her tenotomy and then wore the DBB 23/7 for 3 months. I don't know anything about AFO's except what I read here, but they sure don't sound good. The shoes really keep the foot in the position it needs to be in and don't impact the legs like the AFO's. I mean, you don't have to wrap a piece of plastic around your baby's leg to correct his foot. That makes sense to me. Anyway, good luck with whatever you decide. Feel free to email me anytime if you have questions or just want to talk. Robin & Rose 3/11/03 Right club foot. Tichauer ntichauer@...> wrote: Hi ... I would really like to see the pics of your daughter in the AFO's. My dr. said he can either use the AFO's or the DBB. was in the DBB's for 4 weeks before they decided to do the tenotomy. He absolutely hated the shoes... and I did too! They were so hard to get on his feet and he got huge blisters from them. That is why I was leaning towards the AFO's instead. The dr. recommended that we get high top sneakers to wear with them. Many people have said they aren't great though, so I wonder if I should reconsider. will have his tenotomy done on June 30th, so we won't need to worry about it until August. That is another question that I have... Do the casts have to be on for 4 weeks after the tenotomy? I wrote to Dr. Ponseti and he recommends 3 weeks.. my dr. said 4. What do u all think? Thanks again for all of your help. Tichauer 4 months BLCF sarah.beaver@...> wrote: My dd was in AFO's for a short time. I can send you some pictures of them if you want. I just want to repeat what everyone else has said though. I was the one that Dr Ponseti e-mailed and told that " AFO's useless in maintaining a corrected clubfoot " so I would not recommend them. They are easier to put on and fit under most clothes. I was told that they stay on better if you put shoes over them and sometimes it is a problem to find shoes wide enough to fit. Also my dd would not stay in them and kicked them off all of the time. Why did your doctor want to use AFO's instead of the DBB? Let me know if you want the pictures. Tori 1/30/04 atypical bilateral cf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2004 Report Share Posted June 26, 2004 , I must echo what others have said already - if your son went into the DBB before having the tenotomy, chances are his feet weren't fully corrected - thus creating the difficulty you had with the DBB. Honestly, if the feet are fully corrected, getting accustomed to putting the DBB on and wearing the DBB doesn't take long at all. Seriously, even the gals at Zach's day care can put them on without thinking about it. They are as easy as a pair of shoes. I do remember at first, literally it took both my husband and I to put them on - we both broke into a sweat each time we put them on, no kidding. Now, Zach is wearing them at nights only - we've still been putting them on at naps because he can't fall asleep without them, imagine that. At the beginning of the whole process he couldn't sleep because of them, now he can't sleep without them. If your interested in following the Ponseti method in it's entirety, then you'll use the DBB rather than the AFO's. I can almost promise you that if your sons feet are fully corrected now, you won't have the same problems with the DBB as you did previously. Holly Zachary 7/27/02 Unilateral Right Clubfoot Treated by Dr. Ponseti DBB night only #2 due 1/8 > Hi everyone:) > > Well, Kris has learned to walk again after being in the cast's for almost a month and a half:) I posted more pictures of him in cfpics if anyone wants to see his feet:) > He also is wearing the AFO's during the day from time to time. I was not sure he needed to have them after having been casted, but saw him pulling in the big toes and making his feet turn inward...I put the AFO's on real quick!! > If anything it will keep him from doing that:) > The most strange thing about all this is ...for as long as I can remember, he has fought me about putting on the FAB/DBB's every night! > But after he got out of the cast's I had increased his time in them and started putting them on as soon as he got out of bathtime (almost 11/2 hours or more before bedtime) > and not one complaint! I could not believe it!! > he also likes the AFO's!! > I am speechless... > but very happy:) > so far he is doing fine:) > If the feet start to turn in again, he will have to get the inside tendons cut to release the tension. Has anyone gone through this? would love to hear any story's:) > bye for now > Carole and Kris in Hawaii > 6-11-02 Bilateral clubfoot > Ponseti method since birth, just finished a frontal relapse (?) of feet w/ casting. > FAB?DBB 14to 16 hrs/7 days a week > Also using AFO's when out and about running around ( still let him run barefoot as much as I can:) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2004 Report Share Posted June 26, 2004 , I must echo what others have said already - if your son went into the DBB before having the tenotomy, chances are his feet weren't fully corrected - thus creating the difficulty you had with the DBB. Honestly, if the feet are fully corrected, getting accustomed to putting the DBB on and wearing the DBB doesn't take long at all. Seriously, even the gals at Zach's day care can put them on without thinking about it. They are as easy as a pair of shoes. I do remember at first, literally it took both my husband and I to put them on - we both broke into a sweat each time we put them on, no kidding. Now, Zach is wearing them at nights only - we've still been putting them on at naps because he can't fall asleep without them, imagine that. At the beginning of the whole process he couldn't sleep because of them, now he can't sleep without them. If your interested in following the Ponseti method in it's entirety, then you'll use the DBB rather than the AFO's. I can almost promise you that if your sons feet are fully corrected now, you won't have the same problems with the DBB as you did previously. Holly Zachary 7/27/02 Unilateral Right Clubfoot Treated by Dr. Ponseti DBB night only #2 due 1/8 > Hi everyone:) > > Well, Kris has learned to walk again after being in the cast's for almost a month and a half:) I posted more pictures of him in cfpics if anyone wants to see his feet:) > He also is wearing the AFO's during the day from time to time. I was not sure he needed to have them after having been casted, but saw him pulling in the big toes and making his feet turn inward...I put the AFO's on real quick!! > If anything it will keep him from doing that:) > The most strange thing about all this is ...for as long as I can remember, he has fought me about putting on the FAB/DBB's every night! > But after he got out of the cast's I had increased his time in them and started putting them on as soon as he got out of bathtime (almost 11/2 hours or more before bedtime) > and not one complaint! I could not believe it!! > he also likes the AFO's!! > I am speechless... > but very happy:) > so far he is doing fine:) > If the feet start to turn in again, he will have to get the inside tendons cut to release the tension. Has anyone gone through this? would love to hear any story's:) > bye for now > Carole and Kris in Hawaii > 6-11-02 Bilateral clubfoot > Ponseti method since birth, just finished a frontal relapse (?) of feet w/ casting. > FAB?DBB 14to 16 hrs/7 days a week > Also using AFO's when out and about running around ( still let him run barefoot as much as I can:) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2004 Report Share Posted June 26, 2004 , I must echo what others have said already - if your son went into the DBB before having the tenotomy, chances are his feet weren't fully corrected - thus creating the difficulty you had with the DBB. Honestly, if the feet are fully corrected, getting accustomed to putting the DBB on and wearing the DBB doesn't take long at all. Seriously, even the gals at Zach's day care can put them on without thinking about it. They are as easy as a pair of shoes. I do remember at first, literally it took both my husband and I to put them on - we both broke into a sweat each time we put them on, no kidding. Now, Zach is wearing them at nights only - we've still been putting them on at naps because he can't fall asleep without them, imagine that. At the beginning of the whole process he couldn't sleep because of them, now he can't sleep without them. If your interested in following the Ponseti method in it's entirety, then you'll use the DBB rather than the AFO's. I can almost promise you that if your sons feet are fully corrected now, you won't have the same problems with the DBB as you did previously. Holly Zachary 7/27/02 Unilateral Right Clubfoot Treated by Dr. Ponseti DBB night only #2 due 1/8 > Hi everyone:) > > Well, Kris has learned to walk again after being in the cast's for almost a month and a half:) I posted more pictures of him in cfpics if anyone wants to see his feet:) > He also is wearing the AFO's during the day from time to time. I was not sure he needed to have them after having been casted, but saw him pulling in the big toes and making his feet turn inward...I put the AFO's on real quick!! > If anything it will keep him from doing that:) > The most strange thing about all this is ...for as long as I can remember, he has fought me about putting on the FAB/DBB's every night! > But after he got out of the cast's I had increased his time in them and started putting them on as soon as he got out of bathtime (almost 11/2 hours or more before bedtime) > and not one complaint! I could not believe it!! > he also likes the AFO's!! > I am speechless... > but very happy:) > so far he is doing fine:) > If the feet start to turn in again, he will have to get the inside tendons cut to release the tension. Has anyone gone through this? would love to hear any story's:) > bye for now > Carole and Kris in Hawaii > 6-11-02 Bilateral clubfoot > Ponseti method since birth, just finished a frontal relapse (?) of feet w/ casting. > FAB?DBB 14to 16 hrs/7 days a week > Also using AFO's when out and about running around ( still let him run barefoot as much as I can:) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2004 Report Share Posted June 26, 2004 >I would really like to see the pics of your daughter in the AFO's. My dr. >said he can either use the AFO's or the DBB. We are using both the AFO and DBB. Her bar has clamps that we can attach a variety of shoes to, though we've found a pair of sneakers that works best so we don't change very often. There are several pics of her in her DBB and AFO at http://kids.sunfire.org/leah , with an AFO pic in June (will be adding more pics to June this weekend); the DBB didn't start till April. We've had some problems with slipping, but they've got that fixed for the moment. A few red spots, but they've healed. The correction is being maintained well, especially in the left foot. The right foot has had a few problems, but I don't think that it came out of the Achilles release surgery quite as well as the left foot. We agree with others here though that the AFO by itself won't hold the external correction. They are holding her vertical correction nicely, especially after a modification they made. Rob, , Leah (12/18/03, bilateral, 23/7 DBB/AFO till July) Great Bend, KS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2004 Report Share Posted June 26, 2004 >I would really like to see the pics of your daughter in the AFO's. My dr. >said he can either use the AFO's or the DBB. We are using both the AFO and DBB. Her bar has clamps that we can attach a variety of shoes to, though we've found a pair of sneakers that works best so we don't change very often. There are several pics of her in her DBB and AFO at http://kids.sunfire.org/leah , with an AFO pic in June (will be adding more pics to June this weekend); the DBB didn't start till April. We've had some problems with slipping, but they've got that fixed for the moment. A few red spots, but they've healed. The correction is being maintained well, especially in the left foot. The right foot has had a few problems, but I don't think that it came out of the Achilles release surgery quite as well as the left foot. We agree with others here though that the AFO by itself won't hold the external correction. They are holding her vertical correction nicely, especially after a modification they made. Rob, , Leah (12/18/03, bilateral, 23/7 DBB/AFO till July) Great Bend, KS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2004 Report Share Posted June 26, 2004 >I would really like to see the pics of your daughter in the AFO's. My dr. >said he can either use the AFO's or the DBB. We are using both the AFO and DBB. Her bar has clamps that we can attach a variety of shoes to, though we've found a pair of sneakers that works best so we don't change very often. There are several pics of her in her DBB and AFO at http://kids.sunfire.org/leah , with an AFO pic in June (will be adding more pics to June this weekend); the DBB didn't start till April. We've had some problems with slipping, but they've got that fixed for the moment. A few red spots, but they've healed. The correction is being maintained well, especially in the left foot. The right foot has had a few problems, but I don't think that it came out of the Achilles release surgery quite as well as the left foot. We agree with others here though that the AFO by itself won't hold the external correction. They are holding her vertical correction nicely, especially after a modification they made. Rob, , Leah (12/18/03, bilateral, 23/7 DBB/AFO till July) Great Bend, KS Quote Link to comment Share on other sites More sharing options...
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