Re: Does anyone get SSI benefits for their children ...

[Guest guest]

What is SSI?

Freeman

[Guest guest]

Wow Angel, it sounds like you have had your hands full! They probably don't

like you (or any of us for that matter!) Insurance companies make too much

money anyway!

[Guest guest]

I found a web site for anyone interested in SSI. My problem is that

I don't think Tori is developmentally delayed so I don't think we

would qualify. She is a little behind in speech but sense she is

only 5 months old I don't think it is a big deal yet. Anyway here is

the address http://www.ssa.gov/pubs/10026.html#pgfId-1037281

Tori 1/30/04 bilateral atypical cf, brace 23/7

[Guest guest]

speech? How do you gauge a speech delay at 5 mo's? LOL, I say if she's

making sounds at all she's doing great! Babies that age don't need to talk

hehe... At 5 mo's with my preemie, he was doing all the things a regular

5 mo old did except pull a blanket off his face so speech was absolutely

not even considered at that age. The Dr. actually brought in a video

recorder and taped him doing all his 5 mo things (before he was

gestationally 5 mo's - the doc wanted to show students in some presentation

he was going to do what a 5 mo old was supposed to do and he thought a

preemie doing all that would make a good impression). I would think

however, that as long as the child is wearing the DBB they'd qualify as

disabled since they can't get around very well with it on. Then

again... there's that part of me that likes to think she's absolutely

perfect and her feet work just like other feet and she doesn't fall into

that category of *disabled*. Maybe that's just the mom in me who thinks her

baby is perfect :~}

It's too bad there aren't more Shriners hospitals doing Ponseti. I KNOW

this would be digging me deeper and deeper into medical debt if we had to

pay out of pocket or even with insurance (and their percentages, ugh). I

can't even imagine if we had to pay percentages from surgeries~!! Darbi's

first cast with the ped Ortho. that went toward the deductible last year

was $200 and that was just ONE cast! We went to Shriners for the next and

subsequent castings and treatment so that's all I had to pay (well no, not

all... we have other medical bills of course with dh's cancer surveillance

and me having surgical births but....) I am so grateful for them taking

care of her and me not having to worry about paying. They are now my

favorite charity and I tell everyone that they should donate to Shriners if

they feel the need to donate anything.

At 07:53 AM 7/12/2004, you wrote:

>I found a web site for anyone interested in SSI. My problem is that

>I don't think Tori is developmentally delayed so I don't think we

>would qualify. She is a little behind in speech but sense she is

>only 5 months old I don't think it is a big deal yet. Anyway here is

>the address http://www.ssa.gov/pubs/10026.html#pgfId-1037281

>

>Tori 1/30/04 bilateral atypical cf, brace 23/7

>

>

>

>

>

>

[Guest guest]

speech? How do you gauge a speech delay at 5 mo's? LOL, I say if she's

making sounds at all she's doing great! Babies that age don't need to talk

hehe... At 5 mo's with my preemie, he was doing all the things a regular

5 mo old did except pull a blanket off his face so speech was absolutely

not even considered at that age. The Dr. actually brought in a video

recorder and taped him doing all his 5 mo things (before he was

gestationally 5 mo's - the doc wanted to show students in some presentation

he was going to do what a 5 mo old was supposed to do and he thought a

preemie doing all that would make a good impression). I would think

however, that as long as the child is wearing the DBB they'd qualify as

disabled since they can't get around very well with it on. Then

again... there's that part of me that likes to think she's absolutely

perfect and her feet work just like other feet and she doesn't fall into

that category of *disabled*. Maybe that's just the mom in me who thinks her

baby is perfect :~}

It's too bad there aren't more Shriners hospitals doing Ponseti. I KNOW

this would be digging me deeper and deeper into medical debt if we had to

pay out of pocket or even with insurance (and their percentages, ugh). I

can't even imagine if we had to pay percentages from surgeries~!! Darbi's

first cast with the ped Ortho. that went toward the deductible last year

was $200 and that was just ONE cast! We went to Shriners for the next and

subsequent castings and treatment so that's all I had to pay (well no, not

all... we have other medical bills of course with dh's cancer surveillance

and me having surgical births but....) I am so grateful for them taking

care of her and me not having to worry about paying. They are now my

favorite charity and I tell everyone that they should donate to Shriners if

they feel the need to donate anything.

At 07:53 AM 7/12/2004, you wrote:

>I found a web site for anyone interested in SSI. My problem is that

>I don't think Tori is developmentally delayed so I don't think we

>would qualify. She is a little behind in speech but sense she is

>only 5 months old I don't think it is a big deal yet. Anyway here is

>the address http://www.ssa.gov/pubs/10026.html#pgfId-1037281

>

>Tori 1/30/04 bilateral atypical cf, brace 23/7

>

>

>

>

>

>

[Guest guest]

I think it was 6 months when Kai was referred to have developmental eval done.

The thing is, he WASNT making sounds beyond that of a newborn (cry, coo) Now he

is still behind - he still cannot speak a single WHOLE word (only the beginning

consonants) but he is improving daily and I am so glad we got the speech

therapist early.

Angel

Re: Re: Does anyone get SSI benefits for their

children ...

speech? How do you gauge a speech delay at 5 mo's? LOL, I say if she's

making sounds at all she's doing great! Babies that age don't need to talk

hehe...

[Guest guest]

you know what? Darbi, who spoke months earlier than her brothers still

doesn't care to say anything other than Mama or her version of baby

talk. She talks all the time trying to tell us things but it's total

gobbly goop. Very cute. And she calls daddy mama still. In fact it's been

a joke the past few days, when she sees him it's like she's greeting me and

running for her hug. Mama! lol... I think she's said variations on words

but really, nothing yet. And I thought that was normal for that

age. Kenton didn't say much other than dada, dog and hummmm... *no* till

he was 20 mo's old. I wasn't worried and neither was his Dr. Then the day

his brother was born at 34w he said mama the first time

and was at once clear and articulate with hundreds of words just

coming to him like crazy. Merek spoke a little earlier, 16 mo I think, and

has never had as clear of speech. Still sometimes... At any rate, perhaps

our ped is more relaxed about these things. He's kind of like that

sometimes. Father of 3 himself he's got some experience to draw on and is

pretty cool.

Thing is, I just have never known that it was an issue at this age but

we've been with this ped since Kenton was born in 98. Darbi is 15 mo now

and I know she's got it in her, she is choosing not to use it I think.

Oh, she also says *uhhuh* for yes and no lol.

Kori

At 02:18 PM 7/12/2004, you wrote:

>I think it was 6 months when Kai was referred to have developmental eval

>done. The thing is, he WASNT making sounds beyond that of a newborn (cry,

>coo) Now he is still behind - he still cannot speak a single WHOLE word

>(only the beginning consonants) but he is improving daily and I am so glad

>we got the speech therapist early.

>

>Angel

>

> Re: Re: Does anyone get SSI benefits for

>their children ...

>

>

>speech? How do you gauge a speech delay at 5 mo's? LOL, I say if she's

>making sounds at all she's doing great! Babies that age don't need to talk

>hehe...

>

>

[Guest guest]

I think you are likely right ... the main concern is there is a great history of

speech troubles in our families (my step-daughter, niece, SIL, a couple nephews)

that the doc is being a bit more cautious then normal

Angel

From: frogabog

To: nosurgery4clubfoot

Sent: Monday, July 12, 2004 3:00 PM

Subject: Re: Re: Does anyone get SSI benefits for their

children ...

you know what? Darbi, who spoke months earlier than her brothers still

doesn't care to say anything other than Mama or her version of baby

talk. She talks all the time trying to tell us things but it's total

gobbly goop. Very cute. And she calls daddy mama still. In fact it's been

a joke the past few days, when she sees him it's like she's greeting me and

running for her hug. Mama! lol... I think she's said variations on words

but really, nothing yet. And I thought that was normal for that

age. Kenton didn't say much other than dada, dog and hummmm... *no* till

he was 20 mo's old. I wasn't worried and neither was his Dr. Then the day

his brother was born at 34w he said mama the first time

and was at once clear and articulate with hundreds of words just

coming to him like crazy. Merek spoke a little earlier, 16 mo I think, and

has never had as clear of speech. Still sometimes... At any rate, perhaps

our ped is more relaxed about these things. He's kind of like that

sometimes. Father of 3 himself he's got some experience to draw on and is

pretty cool.

Thing is, I just have never known that it was an issue at this age but

we've been with this ped since Kenton was born in 98. Darbi is 15 mo now

and I know she's got it in her, she is choosing not to use it I think.

Oh, she also says *uhhuh* for yes and no lol.

Kori

At 02:18 PM 7/12/2004, you wrote:

>I think it was 6 months when Kai was referred to have developmental eval

>done. The thing is, he WASNT making sounds beyond that of a newborn (cry,

>coo) Now he is still behind - he still cannot speak a single WHOLE word

>(only the beginning consonants) but he is improving daily and I am so glad

>we got the speech therapist early.

>

>Angel

>

> Re: Re: Does anyone get SSI benefits for

>their children ...

>

>

>speech? How do you gauge a speech delay at 5 mo's? LOL, I say if she's

>making sounds at all she's doing great! Babies that age don't need to talk

>hehe...

>

>

[Guest guest]

Is the point of wanting SSI for the baby to recieve help with the medical bills

of having the club foot corrected? If the case is denied and the parents

appeal, the process could take months if not years - and aren't the parents

paying the medical bills during that time with out the help of SSI anyway? I'm

not trying to point fingers, I'm just wondering what is the reason to want SSI

and/or if it would really help in the long run.

s.

From: frogabog

To: nosurgery4clubfoot

Sent: Monday, July 12, 2004 4:09 PM

Subject: Re: Re: Does anyone get SSI benefits for their

children ...

speech? How do you gauge a speech delay at 5 mo's? LOL, I say if she's

making sounds at all she's doing great! Babies that age don't need to talk

hehe... At 5 mo's with my preemie, he was doing all the things a regular

5 mo old did except pull a blanket off his face so speech was absolutely

not even considered at that age. The Dr. actually brought in a video

recorder and taped him doing all his 5 mo things (before he was

gestationally 5 mo's - the doc wanted to show students in some presentation

he was going to do what a 5 mo old was supposed to do and he thought a

preemie doing all that would make a good impression). I would think

however, that as long as the child is wearing the DBB they'd qualify as

disabled since they can't get around very well with it on. Then

again... there's that part of me that likes to think she's absolutely

perfect and her feet work just like other feet and she doesn't fall into

that category of *disabled*. Maybe that's just the mom in me who thinks her

baby is perfect :~}

It's too bad there aren't more Shriners hospitals doing Ponseti. I KNOW

this would be digging me deeper and deeper into medical debt if we had to

pay out of pocket or even with insurance (and their percentages, ugh). I

can't even imagine if we had to pay percentages from surgeries~!! Darbi's

first cast with the ped Ortho. that went toward the deductible last year

was $200 and that was just ONE cast! We went to Shriners for the next and

subsequent castings and treatment so that's all I had to pay (well no, not

all... we have other medical bills of course with dh's cancer surveillance

and me having surgical births but....) I am so grateful for them taking

care of her and me not having to worry about paying. They are now my

favorite charity and I tell everyone that they should donate to Shriners if

they feel the need to donate anything.

At 07:53 AM 7/12/2004, you wrote:

>I found a web site for anyone interested in SSI. My problem is that

>I don't think Tori is developmentally delayed so I don't think we

>would qualify. She is a little behind in speech but sense she is

>only 5 months old I don't think it is a big deal yet. Anyway here is

>the address http://www.ssa.gov/pubs/10026.html#pgfId-1037281

>

>Tori 1/30/04 bilateral atypical cf, brace 23/7

>

>

>

>

>

>

[Guest guest]

There are a variety of reasons to get SSI. It may be that travelling for

medical care is a hardship and the money would help with that. With clubfoot, I

think the biggest reason for it would be the medical.

In cases of other disabilities the idea of SSI is to offset the burden of cost

for special equipment/accomodations, lack of ability to work (adult) as well as

medical costs.

My uncle can no longer work because of damage from a car wreck many years ago -

he began having brain seizures and dementia a couple years ago that were the

long term effects from 30 year old damage - and he gets SSI to help with living

costs and travel for medical purpose. The VA provides most of his medication

and doctors, but he has a neurosurgeon (who did the original repair) that is not

a part of the VA and the SSI pays for that, as well as things like basic check

ups, dental, etc. If it werent for the SSI they would literally be homeless,

even though my aunt works.

Angel

Re: Re: Does anyone get SSI benefits for their

children ...

Is the point of wanting SSI for the baby to recieve help with the medical bills

of having the club foot corrected? If the case is denied and the parents

appeal, the process could take months if not years - and aren't the parents

paying the medical bills during that time with out the help of SSI anyway? I'm

not trying to point fingers, I'm just wondering what is the reason to want SSI

and/or if it would really help in the long run.

s.