Guest guest Posted April 27, 2006 Report Share Posted April 27, 2006 I would be skeptical of this...otherwise we'd of heard about it here and the Alba Pharmaceutical group would not currently be testing their drug to do this same thing.... From: SillyYaks [mailto:SillyYaks ] On Behalf Of gzimmizSent: Thursday, April 27, 2006 1:58 PMTo: SillyYaks Subject: Miracle Cure or Not? We have been given information on supplement (I don't know what else to call it) called Ambrotose made by a company called Mannatech. They say they have helped 30,000 people with a variety of autoimmune diseases and including gluten intolerant people. If I understand correctly, after taking these supplements for 5 months you can put gluten back in your diet and successfully tolerate it without with effects. But what effects, I do not know, immediate effects or long term damage to villi. Has anyone done any research into this product. I am skeptical. My response was to question weather or not endoscopies were done prior to starting the Ambrotose to measure the villi and again before eating gluten and then again after eating gluten and continuing the Ambrotose. To remind, you my internet friends, I am not gluten intolerant, my husband and daughter are both endoscopy and blood test confirmed gluten intolerant. Both have dropped from the 180's in their transglutaminase test to a 5 and a 2. We would all appreciate your thoughts, ideas and research. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2006 Report Share Posted April 27, 2006 I live by the words...."If it sounds too good to be true, it probably is". Although I like remain optomistic about a cure. :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2006 Report Share Posted April 27, 2006 Ditto... I believe that cures are possible, but until their is proof of this, I simply will remain hopeful that a cure will some day be found. Isabel in CAkawasasski@... wrote: I live by the words...."If it sounds too good to be true, it probably is". Although I like remain optomistic about a cure. :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2006 Report Share Posted April 28, 2006 I am positive that this is not a reputable product for celiacs. It may help gluten intolerant(allergic?) individuals digest glutens, but there is no pill currently available on the market for celiacs that will combat the antibody response. The main researchers in the field are working on it, but it's not out there yet! Maybe someday! I was a little unclear though, if your family members were diagnosed with Celiac or a different condition... > > We have been given information on supplement (I don't know what > else to call it) called Ambrotose made by a company called > Mannatech. They say they have helped 30,000 people with a variety > of autoimmune diseases and including gluten intolerant people. If I > understand correctly, after taking these supplements for 5 months > you can put gluten back in your diet and successfully tolerate it > without with effects. But what effects, I do not know, immediate > effects or long term damage to villi. > Has anyone done any research into this product. I am > skeptical. My response was to question weather or not endoscopies > were done prior to starting the Ambrotose to measure the villi and > again before eating gluten and then again after eating gluten and > continuing the Ambrotose. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2006 Report Share Posted April 28, 2006 I am positive that this is not a reputable product for celiacs. It may help gluten intolerant(allergic?) individuals digest glutens, but there is no pill currently available on the market for celiacs that will combat the antibody response. The main researchers in the field are working on it, but it's not out there yet! Maybe someday! I was a little unclear though, if your family members were diagnosed with Celiac or a different condition... > > We have been given information on supplement (I don't know what > else to call it) called Ambrotose made by a company called > Mannatech. They say they have helped 30,000 people with a variety > of autoimmune diseases and including gluten intolerant people. If I > understand correctly, after taking these supplements for 5 months > you can put gluten back in your diet and successfully tolerate it > without with effects. But what effects, I do not know, immediate > effects or long term damage to villi. > Has anyone done any research into this product. I am > skeptical. My response was to question weather or not endoscopies > were done prior to starting the Ambrotose to measure the villi and > again before eating gluten and then again after eating gluten and > continuing the Ambrotose. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2006 Report Share Posted April 28, 2006 I am positive that this is not a reputable product for celiacs. It may help gluten intolerant(allergic?) individuals digest glutens, but there is no pill currently available on the market for celiacs that will combat the antibody response. The main researchers in the field are working on it, but it's not out there yet! Maybe someday! I was a little unclear though, if your family members were diagnosed with Celiac or a different condition... > > We have been given information on supplement (I don't know what > else to call it) called Ambrotose made by a company called > Mannatech. They say they have helped 30,000 people with a variety > of autoimmune diseases and including gluten intolerant people. If I > understand correctly, after taking these supplements for 5 months > you can put gluten back in your diet and successfully tolerate it > without with effects. But what effects, I do not know, immediate > effects or long term damage to villi. > Has anyone done any research into this product. I am > skeptical. My response was to question weather or not endoscopies > were done prior to starting the Ambrotose to measure the villi and > again before eating gluten and then again after eating gluten and > continuing the Ambrotose. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2006 Report Share Posted April 28, 2006 > > ...after taking these supplements for 5 months > you can put gluten back in your diet and successfully tolerate it > without with effects. Suppose celiac disease were a matter of a simple missing enzyme, like lactose intolerance is. Then the fix would be to simply add the enzyme to the diet. Voila. Digest gliadin, hordein, and all the other gluten goblins with ease. Suppose celiac disease were a classic allergy, like allergy to pollen or bee stings. Then the fix would be antihistamines. But celiac disease is neither of those. Celiac disease is an auto-immune disorder in which the body attacks its own intestines when exposed to the glutens. Fixing THAT won't be as easy as supplying an enzyme or breaking the histamine response cycle with antihistamines. Perhaps (I don't know / haven't a clue) there are folks for whom comfortable digestion of wheat, rye and barley IS a matter of a missing enzyme. Perhaps for those people, this product helps. I don't know. All I know is that I'm in the category of people with antibodies in my blood that show auto-immune response to wheat, rye, and barley. When I take those things out of my diet, the antibodies go away. Breaking the celiac disease cycle is going to be trickier than fixing a simple allergy or a simple enzyme need. It's a completely different process. I have my doubts that an itty bitty company could sell an over-the-counter remedy. If there's a remedy that breaks the auto-immune response, it'll be found with kaboodles and gazillions of research dollars, and the FDA will be overseeing the testing. It won't be something you learn about in a direct mail 3rd class envelope that comes to your house. The news will come to you through glossy ads on TV and in magazines, pamphlets in your doctor's office, Health Beat on the 11 PM news, and the like. If I thought it were true, I'd be the first lady in line to go get some. I'd still hate to have to wait five more months for a particular kind of donut I miss! Esther in RI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2006 Report Share Posted April 28, 2006 Just research Mannatech -- it's a multilevel company with independent sales consultants. My FIL tried selling it about 8 yrs ago. He was going to send us some vitamins, but I told him I was pregnant and he then decided they were not safe for me or anyone else after he did his own research. http://www.mlmwatch.org/04C/Mannatech/mannatech00.html I wouldn't personally attempt to Cure Celiacs. I believe that there is a problem with wheat in general and that genetics are telling 30% of the population (DQ2ers) at least that they should not be eating this " food " . It is a dangerous grain and I firmly believe not everyone was designed to eat it. Rejoyce Winchester,VA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2006 Report Share Posted April 28, 2006 There are digestive enzyme supplements on the market for NON-CELIACS who are intollerant to gluten and other proteins, but the reputable companies would NEVER claim to cure anything or that their products would enable a celiac to ingest gluten. Not all people who are intollerant to gluten are celiacs. If the person is missing the enzymes required for digestion of gluten AND they're not celiac then these enzymes are beneficial. I know they're used some in the autistic community. If they work for the individual then these enzymes have to be used for the rest of the person's life if they want to ingest gluten. They do NOT cure the body of the inability to create these enzymes. It's kind of like a diabetic requiring insulin to replace their body's inability to produce it. That ability won't come back once it's gone. To date, there is no cure for celiac. There is the ability to become symptom free by complete removal of all traces of gluten (as everybody here knows). Any product or diet plan or anything else that claims to cure celiac immediate should raise red flags in your mind regarding their credibility. Trudy in NH > > We have been given information on supplement (I don't know what > else to call it) called Ambrotose made by a company called > Mannatech. They say they have helped 30,000 people with a variety > of autoimmune diseases and including gluten intolerant people. If I > understand correctly, after taking these supplements for 5 months > you can put gluten back in your diet and successfully tolerate it > without with effects. But what effects, I do not know, immediate > effects or long term damage to villi. > Has anyone done any research into this product. I am > skeptical. My response was to question weather or not endoscopies > were done prior to starting the Ambrotose to measure the villi and > again before eating gluten and then again after eating gluten and > continuing the Ambrotose. > To remind, you my internet friends, I am not gluten > intolerant, my husband and daughter are both endoscopy and blood > test confirmed gluten intolerant. Both have dropped from the 180's > in their transglutaminase test to a 5 and a 2. > We would all appreciate your thoughts, ideas and research. > Thanks! > Quote Link to comment Share on other sites More sharing options...
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