Guest guest Posted March 26, 2008 Report Share Posted March 26, 2008 What made them do a biopsy? Was it a liver biopsy? Did you have a ERCP? This sounds strange to me.....maybe I'm nuts but I think I would have a second opinon ASAP.....Did you have symptoms at the time they did the biopsy? I'm on 1200 mg of Urso each day.....and all my test are showing PSC..... Hope you find out soon what is going on.....Maybe your Urso just is working wonderful for you and you had all the signs of PSC before....CJ > > I had a biopsy last Jan 2007 when they told me I had PSC. I have no > symptoms at this time. I just had my first MRCP done March 2008 and > everything came back normal - I have a little sludge in my posterior > gallbladder. Everything in my liver, kidney , spleen, intrahepatic or > extrahepatic bile ducts ect normal. > > My blood work in the past is normal. I am going this week or next > week to have it checked again. > > I am going to seek a second opinion in Philly. > > I am curently using DR Bach. New York/ New Jersey > > I will be seeing her soon. > > Any suggestions as to what I should ask? I feel a bit confused that > my tests are back and looking good. I am on 2500mg of Urso a day, > which is making my hair fall out, I have about half of it left. Other > than the hair loss the Urso does not seem to bother me. > > Any guidance would be great. > > Thanks, > Tammy > > UC 2006( no symptoms), PSC 2007 (no symptoms) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2008 Report Share Posted March 26, 2008 What made them do a biopsy? Was it a liver biopsy? Did you have a ERCP? This sounds strange to me.....maybe I'm nuts but I think I would have a second opinon ASAP.....Did you have symptoms at the time they did the biopsy? I'm on 1200 mg of Urso each day.....and all my test are showing PSC..... Hope you find out soon what is going on.....Maybe your Urso just is working wonderful for you and you had all the signs of PSC before....CJ > > I had a biopsy last Jan 2007 when they told me I had PSC. I have no > symptoms at this time. I just had my first MRCP done March 2008 and > everything came back normal - I have a little sludge in my posterior > gallbladder. Everything in my liver, kidney , spleen, intrahepatic or > extrahepatic bile ducts ect normal. > > My blood work in the past is normal. I am going this week or next > week to have it checked again. > > I am going to seek a second opinion in Philly. > > I am curently using DR Bach. New York/ New Jersey > > I will be seeing her soon. > > Any suggestions as to what I should ask? I feel a bit confused that > my tests are back and looking good. I am on 2500mg of Urso a day, > which is making my hair fall out, I have about half of it left. Other > than the hair loss the Urso does not seem to bother me. > > Any guidance would be great. > > Thanks, > Tammy > > UC 2006( no symptoms), PSC 2007 (no symptoms) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2009 Report Share Posted June 26, 2009 Go for it, Jodi! You are going to be healthy now! You need to internalize that and start moving your thought stream to embrace that. By the bye, do you start back up with the LDN after the Lyme stuff is over? Mara ---- Original message ---- >Date: Fri, 26 Jun 2009 19:24:58 -0000 > >Subject: advice >To: BTVC-SCD > >So my husband has to go to London on business some time in August. >He invited me to go with him since his timing will be pretty loose and we could have some fun. All of his expenses are paid for and he has frequent flier miles he can transfer over to me. > >I will just about be finished with my alternative Lyme treatment. > >Do you guys think this is too soon for me to travel? >Am I gambling? I am having a much easier time eating.. Was able to have shredded coconut, nut butter, many veggies (none raw yet) and just an assortment of food I have never eaten in years. > >Obviously, I just want input and ideas... > >Jodi > > > >------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2009 Report Share Posted June 26, 2009 Mara.. You are totally right... must retrain mind so health becomes a self fulfilling prophecy. The alternative doc wants me to wait with the LDN as well- he is worried about how I am going to detox and cope with the antimicrobial treatment for the Lyme. He wants me to give it a couple of months too. He told me (this isn't the first time I heard this) that my detox system is excruciatingly sluggish and having all the anesthesia in me doesn't help. Seems pretty unanimous on the doctor front about waiting with LDN. I need to meditate on it. They are kind of making me feel that LDN will make these coinfections worse during this first year post surgery post treatment. Not sure what to think.. Taking it one day at a time happy I am feeling better and stronger! Super psyched that I am even considering London. I just may do it! Woohoo! I sure hope the food has gotten better in the past decade Jodi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2009 Report Share Posted June 26, 2009 I think you should go--don't wait to live. You are 200% better than you were when you went to Israel and you will do great. Terry advice So my husband has to go to London on business some time in August.He invited me to go with him since his timing will be pretty loose and we could have some fun. All of his expenses are paid for and he has frequent flier miles he can transfer over to me.I will just about be finished with my alternative Lyme treatment.Do you guys think this is too soon for me to travel?Am I gambling? I am having a much easier time eating.. Was able to have shredded coconut, nut butter, many veggies (none raw yet) and just an assortment of food I have never eaten in years.Obviously, I just want input and ideas...Jodi Quote Link to comment Share on other sites More sharing options...
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