Re: hip problems and a strange toe?

[Guest guest]

I will answer the toe question because my daughter also has this

only on her big toes. They bend upwards so that the entire nail is

almost impossible to cut. The actual nail looks folded in half. I

have had two takes on this. One person said it was from her being

casted improperly before Ponseti method. Her toes were closed in

the cast and could not grow straight, so it began to grow upwards.

I would think that it would have straightened out by now (she is

almost 3). It has not gotten any better or any worse. I thought

myself it could be a short tendon. It was not this way at birth,

didn't show up until around 4 months old.

The hip problems in clubfoot are more common that in

nonclubfoot. It is called hip displaysia. There is a harness that

can be worn to correct the condition. Although I have no personnal

experience, just what I have read. Graces hips are checked at all

appointments because the two are related sometimes. I am pretty sure

there are a couple members on this board who have experience with

this.

> hi everybody!

>

> i really enjoy this ponseti forum. i am reading everything but not

writing

> so much ( my english is not so good, as you can see *lol*)

>

> to be honest with you all i'm now asking you some questions for

another

> clubfoot mum who thinks she is much more bad in english that i am

*lol*

>

> she wonders if it is common for children with clubfoot to have

problems

> with the hips also? her 6 months old daughter has recently been at

a check

> up and the doctor thought it was some problems with the hips cause

they

> were clicking and moved not as they should. she is now waiting for

an

> orthopedic check up next week to see if there is any problems with

the

> hips. does anyone here have any experience about problems with the

hips

> combined with clubfoot? does anyone knowes if it's possible to

combine the

> treatment of a hip problems and the dbb?

>

> and i've got a question for you too *lol*

>

> my son have very curved big toes. is anyone else having that too?

i noticed

> it some days ago. the outermost part of the toes (the part with

the nail

> on) is pointing straight up in the air when he stands on his feet.

the rest

> of the toes are looking normal, besides they're pointing inwards,

but as i

> know is that not so unusal and as long it's just the toes and not

the hole

> forefoot should i not worry. so does anyone here have some

experience of

> curved toes? please tell me if it is common and if i can do

anything to

> straighten them? it looks like the tendon is too short so i use

too

> bend/stretch the toes when the dbb is off.

>

> that was all for now and i hope you can understand some parts of

my post )

>

> plenty of big hugs from sweden!

>

> /veronica and wiggo 22/12/03, bcf, dbb 23/7 (and kajza with hanna

07/11/03,

> bcf, dbb 23/7)

[Guest guest]

>she wonders if it is common for children with clubfoot >to have problems

>with the hips also?

Originally it was my understanding that it is common, and I know that all babies

with clubfoot are usually check frequently for hip displasia (what usually

causes clicking, which is too shallow a hip socket); however in the past few

months the information came from someone that hip displasia is not necessarily

more common in a clubfoot baby than in any other baby. Having said that, I have

heard of several babies that have clubfoot that also have hip displasia.

Perhaps their clubfoot is actually part of a bigger thing. I know in the case

of an acquaintance of mine, her son had arthrogryposis affecting the hands and

feet, and hip displasia.

Not sure how the DBB would work with the hip casting, but someone else may know.

>the outermost part of the toes (the part with the nail >on) is pointing

straight up in the air when he stands

I think this is really common in clubfoot babies. My son's big toe on his

clubfoot does this really bad (not just when standing, either!) BUT his

non-clubfoot does it too. On his clubfoot his nails also tend to be kind of

curly and only attached to the toe at the nail bed. Dont have any idea what

causes it but it seems to be just a variation of normal!

Angel

[Guest guest]

Hi -

Regarding the hips it is propably Hip Dysplasia which can be treated with a

harness while correcting the club feet.

Regarding the toes. My son is a unilateral and both his big toes did this

for some time. He is 2 now and I barely notice it now. My older son not CF

had the same with his big toes, so I think it is propably just a heriditary

thing. Also my son's toes do curve inward on his CF foot and non CF foot. It

is nothing to worry about. Believe me I've asked the doctor 1000 times:)!

>

>Reply-To: nosurgery4clubfoot

>To: nosurgery4clubfoot

>Subject: hip problems and a strange toe?

>Date: Sun, 16 May 2004 17:43:35 +0200

>

>hi everybody!

>

>i really enjoy this ponseti forum. i am reading everything but not writing

>so much ( my english is not so good, as you can see *lol*)

>

>to be honest with you all i'm now asking you some questions for another

>clubfoot mum who thinks she is much more bad in english that i am *lol*

>

>she wonders if it is common for children with clubfoot to have problems

>with the hips also? her 6 months old daughter has recently been at a check

>up and the doctor thought it was some problems with the hips cause they

>were clicking and moved not as they should. she is now waiting for an

>orthopedic check up next week to see if there is any problems with the

>hips. does anyone here have any experience about problems with the hips

>combined with clubfoot? does anyone knowes if it's possible to combine the

>treatment of a hip problems and the dbb?

>

>and i've got a question for you too *lol*

>

>my son have very curved big toes. is anyone else having that too? i noticed

>it some days ago. the outermost part of the toes (the part with the nail

>on) is pointing straight up in the air when he stands on his feet. the rest

>of the toes are looking normal, besides they're pointing inwards, but as i

>know is that not so unusal and as long it's just the toes and not the hole

>forefoot should i not worry. so does anyone here have some experience of

>curved toes? please tell me if it is common and if i can do anything to

>straighten them? it looks like the tendon is too short so i use too

>bend/stretch the toes when the dbb is off.

>

>that was all for now and i hope you can understand some parts of my post

>)

>

>plenty of big hugs from sweden!

>

>/veronica and wiggo 22/12/03, bcf, dbb 23/7 (and kajza with hanna 07/11/03,

>bcf, dbb 23/7)

>

_________________________________________________________________

Check out the coupons and bargains on MSN Offers! http://youroffers.msn.com

[Guest guest]

Our Doctor said that " there is no medical correlation between club feet and

hip displasia " .

I asked because our pediatrician gave me a script for an e-ray (maybe

because our baby was breech too).

and Cole BL Clubfeeet

At 09:37 AM 5/16/2004 -0700, you wrote:

> >she wonders if it is common for children with clubfoot >to have problems

> >with the hips also?

>

>Originally it was my understanding that it is common, and I know that all

>babies with clubfoot are usually check frequently for hip displasia (what

>usually causes clicking, which is too shallow a hip socket); however in

>the past few months the information came from someone that hip displasia

>is not necessarily more common in a clubfoot baby than in any other

>baby. Having said that, I have heard of several babies that have clubfoot

>that also have hip displasia. Perhaps their clubfoot is actually part of

>a bigger thing. I know in the case of an acquaintance of mine, her son

>had arthrogryposis affecting the hands and feet, and hip displasia.

>

>Not sure how the DBB would work with the hip casting, but someone else may

>know.

>

> >the outermost part of the toes (the part with the nail >on) is pointing

> straight up in the air when he stands

>

>I think this is really common in clubfoot babies. My son's big toe on his

>clubfoot does this really bad (not just when standing, either!) BUT his

>non-clubfoot does it too. On his clubfoot his nails also tend to be kind

>of curly and only attached to the toe at the nail bed. Dont have any idea

>what causes it but it seems to be just a variation of normal!

>

>Angel

>

>

[Guest guest]

My sons toes also do this. They were definately not like it when he was born

and we think it was after he went into the DBB. First they started to grow

sideways and now the toes point upwards and back onto themselves. All of his

toe nails do this and you cannot see the little toe nails except when the

grow too long out of the crease. I have noticed I can bend them back when he

has been in the bath. I have talked to the Specialist about this as I was

quite concerned and he said they have 'never seen anything like it'. They

also said the answers to my question as to why is 'they simply don't know'.

I have to watch for ingrowing toe nails as the corners can grow into his

toes if I am not careful. I am hoping they might straighten up as he walks

more. He still has pudgy little feet but at least they work and look lovely

He also had an ultra sound scan when he was a few weeks old and I was told

they always check C/F babies for hip dysplasia.

Rach, Steve & Connor

-- Re: hip problems and a strange toe?

I will answer the toe question because my daughter also has this

only on her big toes. They bend upwards so that the entire nail is

almost impossible to cut. The actual nail looks folded in half. I

have had two takes on this. One person said it was from her being

casted improperly before Ponseti method. Her toes were closed in

the cast and could not grow straight, so it began to grow upwards.

I would think that it would have straightened out by now (she is

almost 3). It has not gotten any better or any worse. I thought

myself it could be a short tendon. It was not this way at birth,

didn't show up until around 4 months old.

The hip problems in clubfoot are more common that in

nonclubfoot. It is called hip displaysia. There is a harness that

can be worn to correct the condition. Although I have no personnal

experience, just what I have read. Graces hips are checked at all

appointments because the two are related sometimes. I am pretty sure

there are a couple members on this board who have experience with

this.

> hi everybody!

>

> i really enjoy this ponseti forum. i am reading everything but not

writing

> so much ( my english is not so good, as you can see *lol*)

>

> to be honest with you all i'm now asking you some questions for

another

> clubfoot mum who thinks she is much more bad in english that i am

*lol*

>

> she wonders if it is common for children with clubfoot to have

problems

> with the hips also? her 6 months old daughter has recently been at

a check

> up and the doctor thought it was some problems with the hips cause

they

> were clicking and moved not as they should. she is now waiting for

an

> orthopedic check up next week to see if there is any problems with

the

> hips. does anyone here have any experience about problems with the

hips

> combined with clubfoot? does anyone knowes if it's possible to

combine the

> treatment of a hip problems and the dbb?

>

> and i've got a question for you too *lol*

>

> my son have very curved big toes. is anyone else having that too?

i noticed

> it some days ago. the outermost part of the toes (the part with

the nail

> on) is pointing straight up in the air when he stands on his feet.

the rest

> of the toes are looking normal, besides they're pointing inwards,

but as i

> know is that not so unusal and as long it's just the toes and not

the hole

> forefoot should i not worry. so does anyone here have some

experience of

> curved toes? please tell me if it is common and if i can do

anything to

> straighten them? it looks like the tendon is too short so i use

too

> bend/stretch the toes when the dbb is off.

>

> that was all for now and i hope you can understand some parts of

my post )

>

> plenty of big hugs from sweden!

>

> /veronica and wiggo 22/12/03, bcf, dbb 23/7 (and kajza with hanna

07/11/03,

> bcf, dbb 23/7)

[Guest guest]

Yes, we were told by our Dr. that they check an x-ray of the hips

because clubfoot kids are more likely to have hip dysplasia.

Pam and (8-12-01)

> hi everybody!

>

> i really enjoy this ponseti forum. i am reading everything but not

writing

> so much ( my english is not so good, as you can see *lol*)

>

> to be honest with you all i'm now asking you some questions for

another

> clubfoot mum who thinks she is much more bad in english that i am

*lol*

>

> she wonders if it is common for children with clubfoot to have

problems

> with the hips also? her 6 months old daughter has recently been at

a check

> up and the doctor thought it was some problems with the hips cause

they

> were clicking and moved not as they should. she is now waiting for

an

> orthopedic check up next week to see if there is any problems with

the

> hips. does anyone here have any experience about problems with the

hips

> combined with clubfoot? does anyone knowes if it's possible to

combine the

> treatment of a hip problems and the dbb?

>

> and i've got a question for you too *lol*

>

> my son have very curved big toes. is anyone else having that too? i

noticed

> it some days ago. the outermost part of the toes (the part with the

nail

> on) is pointing straight up in the air when he stands on his feet.

the rest

> of the toes are looking normal, besides they're pointing inwards,

but as i

> know is that not so unusal and as long it's just the toes and not

the hole

> forefoot should i not worry. so does anyone here have some

experience of

> curved toes? please tell me if it is common and if i can do

anything to

> straighten them? it looks like the tendon is too short so i use too

> bend/stretch the toes when the dbb is off.

>

> that was all for now and i hope you can understand some parts of my

post )

>

> plenty of big hugs from sweden!

>

> /veronica and wiggo 22/12/03, bcf, dbb 23/7 (and kajza with hanna

07/11/03,

> bcf, dbb 23/7)

[Guest guest]

Ref the toes - two of 's were plastered underneath the rest

by mistake and though we regularly maniuplate them back they still

are not quite right. The plastering also affected his toe nails and

they are all over the place and very difficult to cut. I do try and

softly squeeze and manipulate his toes - hopefully this will improve

them.

Mum to

Bilateral Clubfeet - 5 months old

[Guest guest]

At 12:46 PM 5/16/2004, you wrote:

>He also had an ultra sound scan when he was a few weeks old and I was told

>they always check C/F babies for hip dysplasia.

Hi Rach! That's kind of strange about Connor's toes. I'd be concerned

too. Do you have any pics, I'm curious to see what this looks like. I do

however think the DBB puts stress on the toe nails. I am sure it's caused

Darbi's toes to curve from being squished and her toe nails are curved to

almost point in the middle too. My other two boys toe nails aren't like

that, mine have never been like that and while he dad's are a little more

roundie than mine are they aren't like hers. It's not too bad, just that I

notice it.

Also, each and every one of my children has been checked for hip dysplasia

at their ped appointments. Multiple times. I think they check all babies

for this, not just CF babies.

As a side note, we had a dog that had hip dysplasia (my parents). He had

surgery to cut the tendons. Was an English Springer Spaniel. Good

dog. Would have been put down otherwise. He was a pedigreed runt and we

found him at the pound.

Kori

Mama of

Kenton - 6/98

Merek - 3/00

Darbi - 3/28/03 - Rt. CF - DBB 12hr/d

(¨`·.·´¨)

`·.¸(¨`·.·´¨)

`·.¸.·´

[Guest guest]

hi veronica,

although many people have responded to you already, ill still throw in my two

cents. its

been ages it seems since i posted here. my son was born with bilateral cf and

bilaterally

dislocated hips. in our case, my ortho decided to first treat the hips with a

harness before

casting my son's feet. when that didnt work, we started with the casting of the

feet and

thought we would return to the hips. we tried a closed hip reduction and the

thought was

that the bar would be attached to the spica cast and worn for 6 weeks, but that

failed also.

so, while it is difficult to treat both simultaneously, it can be done, although

it wouldnt be

nuts if your ortho wanted to treat them sequentially. my understanding is that

the hips

can be treated up till about year 4, although the earlier the better (although

depending on

how difficult it is to correct, certain hip procedures cant be done till over 1

year). as you

probably know, clubfoot occurs about 1 in 1000 births; ddh occurs about 1 in

1000 births,

so if they were uncorrelated then to have both would be 1 in a million chances,

pretty rare.

in my case, the ddh and clubfeet appear to have a common cause of damaged spinal

cord

which also resulted in paralysis of the lower extremities.

my boy also has funny toes that you describe. my ortho and another one that i

saw for

second opinion concurred that this is common in clubfeet and nothing to worry

about.

stretching the tendon will help.

best regards,

bill

> hi everybody!

>

> i really enjoy this ponseti forum. i am reading everything but not writing

> so much ( my english is not so good, as you can see *lol*)

>

> to be honest with you all i'm now asking you some questions for another

> clubfoot mum who thinks she is much more bad in english that i am *lol*

>

> she wonders if it is common for children with clubfoot to have problems

> with the hips also? her 6 months old daughter has recently been at a check

> up and the doctor thought it was some problems with the hips cause they

> were clicking and moved not as they should. she is now waiting for an

> orthopedic check up next week to see if there is any problems with the

> hips. does anyone here have any experience about problems with the hips

> combined with clubfoot? does anyone knowes if it's possible to combine the

> treatment of a hip problems and the dbb?

>

> and i've got a question for you too *lol*

>

> my son have very curved big toes. is anyone else having that too? i noticed

> it some days ago. the outermost part of the toes (the part with the nail

> on) is pointing straight up in the air when he stands on his feet. the rest

> of the toes are looking normal, besides they're pointing inwards, but as i

> know is that not so unusal and as long it's just the toes and not the hole

> forefoot should i not worry. so does anyone here have some experience of

> curved toes? please tell me if it is common and if i can do anything to

> straighten them? it looks like the tendon is too short so i use too

> bend/stretch the toes when the dbb is off.

>

> that was all for now and i hope you can understand some parts of my post )

>

> plenty of big hugs from sweden!

>

> /veronica and wiggo 22/12/03, bcf, dbb 23/7 (and kajza with hanna 07/11/03,

> bcf, dbb 23/7)

[Guest guest]

Hi Kori

I will try to take a pic of his toes to send you. I noticed you are talking

about a new bar and must have missed it. What have you got now?? I find it

hard to measure Connors shoulder width as his shoulders seem to run into his

arms and it is hard to tell which is which. Do the shoes have to actually

fit between the shoulders or sit on the shoulders. He is in the gold non

adjustable 12 " at the moment but am wondering if maybe this is getting short

Our Physio says it is not but she has always gone on the smaller side and

does it by looking How many hours a day is Darbi in the shoes now??

Take care

Rach, Steve & Connor (13 months b/l)

-- Re: Re: hip problems and a strange toe?

At 12:46 PM 5/16/2004, you wrote:

>He also had an ultra sound scan when he was a few weeks old and I was told

>they always check C/F babies for hip dysplasia.

Hi Rach! That's kind of strange about Connor's toes. I'd be concerned

too. Do you have any pics, I'm curious to see what this looks like. I do

however think the DBB puts stress on the toe nails. I am sure it's caused

Darbi's toes to curve from being squished and her toe nails are curved to

almost point in the middle too. My other two boys toe nails aren't like

that, mine have never been like that and while he dad's are a little more

roundie than mine are they aren't like hers. It's not too bad, just that I

notice it.

Also, each and every one of my children has been checked for hip dysplasia

at their ped appointments. Multiple times. I think they check all babies

for this, not just CF babies.

As a side note, we had a dog that had hip dysplasia (my parents). He had

surgery to cut the tendons. Was an English Springer Spaniel. Good

dog. Would have been put down otherwise. He was a pedigreed runt and we

found him at the pound.

Kori

Mama of

Kenton - 6/98

Merek - 3/00

Darbi - 3/28/03 - Rt. CF - DBB 12hr/d

(¨`·.·´¨)

`·.¸(¨`·.·´¨)

`·.¸.·´

[Guest guest]

Hi Kori

I will try to take a pic of his toes to send you. I noticed you are talking

about a new bar and must have missed it. What have you got now?? I find it

hard to measure Connors shoulder width as his shoulders seem to run into his

arms and it is hard to tell which is which. Do the shoes have to actually

fit between the shoulders or sit on the shoulders. He is in the gold non

adjustable 12 " at the moment but am wondering if maybe this is getting short

Our Physio says it is not but she has always gone on the smaller side and

does it by looking How many hours a day is Darbi in the shoes now??

Take care

Rach, Steve & Connor (13 months b/l)

-- Re: Re: hip problems and a strange toe?

At 12:46 PM 5/16/2004, you wrote:

>He also had an ultra sound scan when he was a few weeks old and I was told

>they always check C/F babies for hip dysplasia.

Hi Rach! That's kind of strange about Connor's toes. I'd be concerned

too. Do you have any pics, I'm curious to see what this looks like. I do

however think the DBB puts stress on the toe nails. I am sure it's caused

Darbi's toes to curve from being squished and her toe nails are curved to

almost point in the middle too. My other two boys toe nails aren't like

that, mine have never been like that and while he dad's are a little more

roundie than mine are they aren't like hers. It's not too bad, just that I

notice it.

Also, each and every one of my children has been checked for hip dysplasia

at their ped appointments. Multiple times. I think they check all babies

for this, not just CF babies.

As a side note, we had a dog that had hip dysplasia (my parents). He had

surgery to cut the tendons. Was an English Springer Spaniel. Good

dog. Would have been put down otherwise. He was a pedigreed runt and we

found him at the pound.

Kori

Mama of

Kenton - 6/98

Merek - 3/00

Darbi - 3/28/03 - Rt. CF - DBB 12hr/d

(¨`·.·´¨)

`·.¸(¨`·.·´¨)

`·.¸.·´

[Guest guest]

Hi Kori

I will try to take a pic of his toes to send you. I noticed you are talking

about a new bar and must have missed it. What have you got now?? I find it

hard to measure Connors shoulder width as his shoulders seem to run into his

arms and it is hard to tell which is which. Do the shoes have to actually

fit between the shoulders or sit on the shoulders. He is in the gold non

adjustable 12 " at the moment but am wondering if maybe this is getting short

Our Physio says it is not but she has always gone on the smaller side and

does it by looking How many hours a day is Darbi in the shoes now??

Take care

Rach, Steve & Connor (13 months b/l)

-- Re: Re: hip problems and a strange toe?

At 12:46 PM 5/16/2004, you wrote:

>He also had an ultra sound scan when he was a few weeks old and I was told

>they always check C/F babies for hip dysplasia.

Hi Rach! That's kind of strange about Connor's toes. I'd be concerned

too. Do you have any pics, I'm curious to see what this looks like. I do

however think the DBB puts stress on the toe nails. I am sure it's caused

Darbi's toes to curve from being squished and her toe nails are curved to

almost point in the middle too. My other two boys toe nails aren't like

that, mine have never been like that and while he dad's are a little more

roundie than mine are they aren't like hers. It's not too bad, just that I

notice it.

Also, each and every one of my children has been checked for hip dysplasia

at their ped appointments. Multiple times. I think they check all babies

for this, not just CF babies.

As a side note, we had a dog that had hip dysplasia (my parents). He had

surgery to cut the tendons. Was an English Springer Spaniel. Good

dog. Would have been put down otherwise. He was a pedigreed runt and we

found him at the pound.

Kori

Mama of

Kenton - 6/98

Merek - 3/00

Darbi - 3/28/03 - Rt. CF - DBB 12hr/d

(¨`·.·´¨)

`·.¸(¨`·.·´¨)

`·.¸.·´