Re: CONFUSION: ONE FOOT OPERATED-ANOTHER -NOT

[Guest guest]

Aw you poor thing. I have no advice, I'm sorry - but you're welcome to cry on

our shoulders any time you need to!

s.

CONFUSION: ONE FOOT OPERATED-ANOTHER -NOT

MAYE SOME OF YOU HAVE experiencedOR KNOW SMTH.OF MY CASE. we are from

lithuania, that is, mom, and pijus, my 13months old boy. unfortunately

we came to know about the ponseti too late. my son's left leg was

operated already. however, the right leg we managed to correct by the

Ponseti treatment. now we are from the full time DBB wear, and myson

is learning to walk. he wears the bar 14-15hours per day.

NOW HERE IS THE BIG PROB! Ponseti says that the child is allowed togo

barefoot or in normal regular shoes. but what about my son's left

opertaed foot? here, in lithuania, sdoctors dont agree among

themselves: one part of them say that barefoot after operation is not

good, others-that it is good, especially walking on tiptoes.

i am so confused, it is so bad when the two feet are treated

differently.

also sad thopughts sometimes bother me. in the future, for instance,

if the operaed foot will relapse and will have to undergoanterior

tendon transfer, for instance, what will i do with the

right-Ponseti-foot? how will i get it in DBB? that means, his right

leg should be put into cast for while? that means we should travel

once more to germany????-(becauSe in our countr. ponseti method is not

yet practised, only introduced)

ah, many questions and i FEEL ALONE...

ANY HELP FROM YOU-WOULD BE JUST ...GOOD FOR ME.

[Guest guest]

Aw you poor thing. I have no advice, I'm sorry - but you're welcome to cry on

our shoulders any time you need to!

s.

CONFUSION: ONE FOOT OPERATED-ANOTHER -NOT

MAYE SOME OF YOU HAVE experiencedOR KNOW SMTH.OF MY CASE. we are from

lithuania, that is, mom, and pijus, my 13months old boy. unfortunately

we came to know about the ponseti too late. my son's left leg was

operated already. however, the right leg we managed to correct by the

Ponseti treatment. now we are from the full time DBB wear, and myson

is learning to walk. he wears the bar 14-15hours per day.

NOW HERE IS THE BIG PROB! Ponseti says that the child is allowed togo

barefoot or in normal regular shoes. but what about my son's left

opertaed foot? here, in lithuania, sdoctors dont agree among

themselves: one part of them say that barefoot after operation is not

good, others-that it is good, especially walking on tiptoes.

i am so confused, it is so bad when the two feet are treated

differently.

also sad thopughts sometimes bother me. in the future, for instance,

if the operaed foot will relapse and will have to undergoanterior

tendon transfer, for instance, what will i do with the

right-Ponseti-foot? how will i get it in DBB? that means, his right

leg should be put into cast for while? that means we should travel

once more to germany????-(becauSe in our countr. ponseti method is not

yet practised, only introduced)

ah, many questions and i FEEL ALONE...

ANY HELP FROM YOU-WOULD BE JUST ...GOOD FOR ME.

[Guest guest]

Aw you poor thing. I have no advice, I'm sorry - but you're welcome to cry on

our shoulders any time you need to!

s.

CONFUSION: ONE FOOT OPERATED-ANOTHER -NOT

MAYE SOME OF YOU HAVE experiencedOR KNOW SMTH.OF MY CASE. we are from

lithuania, that is, mom, and pijus, my 13months old boy. unfortunately

we came to know about the ponseti too late. my son's left leg was

operated already. however, the right leg we managed to correct by the

Ponseti treatment. now we are from the full time DBB wear, and myson

is learning to walk. he wears the bar 14-15hours per day.

NOW HERE IS THE BIG PROB! Ponseti says that the child is allowed togo

barefoot or in normal regular shoes. but what about my son's left

opertaed foot? here, in lithuania, sdoctors dont agree among

themselves: one part of them say that barefoot after operation is not

good, others-that it is good, especially walking on tiptoes.

i am so confused, it is so bad when the two feet are treated

differently.

also sad thopughts sometimes bother me. in the future, for instance,

if the operaed foot will relapse and will have to undergoanterior

tendon transfer, for instance, what will i do with the

right-Ponseti-foot? how will i get it in DBB? that means, his right

leg should be put into cast for while? that means we should travel

once more to germany????-(becauSe in our countr. ponseti method is not

yet practised, only introduced)

ah, many questions and i FEEL ALONE...

ANY HELP FROM YOU-WOULD BE JUST ...GOOD FOR ME.

[Guest guest]

Hellow and welcome to the list.

Have you spoken to your Ponseti doctor about this? I would think

that if there is a relapse with his left foot, perhaps the Ponseti

doctor (in Germany) would consider recasting it before you go ahead

with surgery. And yes, if it does require treatment, I would think

that the right foot would also need to be casted in order to maintain

the correction during the time out of the FAB (DBB).

I hope that this helps.

Daiga and Owen, 02/04/03

Unilateral LCF, FAB 14/24

> MAYE SOME OF YOU HAVE experiencedOR KNOW SMTH.OF MY CASE. we are

from

> lithuania, that is, mom, and pijus, my 13months old boy.

unfortunately

> we came to know about the ponseti too late. my son's left leg was

> operated already. however, the right leg we managed to correct by

the

> Ponseti treatment. now we are from the full time DBB wear, and

myson

> is learning to walk. he wears the bar 14-15hours per day.

>

> NOW HERE IS THE BIG PROB! Ponseti says that the child is allowed

togo

> barefoot or in normal regular shoes. but what about my son's left

> opertaed foot? here, in lithuania, sdoctors dont agree among

> themselves: one part of them say that barefoot after operation is

not

> good, others-that it is good, especially walking on tiptoes.

> i am so confused, it is so bad when the two feet are treated

> differently.

> also sad thopughts sometimes bother me. in the future, for

instance,

> if the operaed foot will relapse and will have to undergoanterior

> tendon transfer, for instance, what will i do with the

> right-Ponseti-foot? how will i get it in DBB? that means, his right

> leg should be put into cast for while? that means we should travel

> once more to germany????-(becauSe in our countr. ponseti method is

not

> yet practised, only introduced)

> ah, many questions and i FEEL ALONE...

> ANY HELP FROM YOU-WOULD BE JUST ...GOOD FOR ME.

[Guest guest]

It does sound difficult with the two different treatments. If the

foot that they did surgery on is totally healed I wouldn't see a

problem with letting him go bare foot. I am not a doctor of course

and you might want to e-mail Dr Ponseti to make sure. You might want

to post your question on the other clubfoot board. I know they have

several kids that have had surgery and they would be able to tell you

there experiences with shoes vs. bare feet.

http://health.groups.yahoo.com/group/clubfoot/

Sense both feet are in the DBB now hopefully you won't have to worry

about a relapse and additional casting. The DBB should hold both

feet's correction. Try not to stress too much about the future

because you can't change it. You have done the best you could for

your son!

Tori 1/30/04 bilateral atypical cf brace 18hrs