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Re: treatment facilities

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Alyssa,

Where do you live? Denver has a sarcoidosis speciality clinic, so does Seattle, and Los Angeles. There are several on the East coast-- so let us know and we'll see what we can find listed.

Sincerely,

Tracie

NS co-owner/moderator

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I'm not sure where you live, and I haven't been diagnosed with neuro, but I live in land and just started going to a sarcoid clinic at s Hopkins in Baltimore with good results. If you live in the area, give them a call. You can email me directly and I'll give you all the contact information and which doctor I use.

Hope this helps...

Naa Koshiefaye710 wrote:

Im looking for a place that specializes in sacroid or neurosarcoidosis. I realize its a rare sort of beast, but are there places in north america, or canada, even, that pay special attention to sarc? I just feel like my GP is giving me the half-a**ed treatment here. Can anyone reccomend a place to help a neurosarc like me? I'm only 24 and I want to get on with life! Soon.Alyssa

Start your day with Yahoo! - make it your home page

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Good morning can someone tell me where the sarcoidosis specialty clinic is located in "Southern Calif".Los Angeles, Santa Ana,San Diego if possible let me know I'd be greatful .Ing tiodaat@... wrote:

Alyssa,Where do you live? Denver has a sarcoidosis speciality clinic, so does Seattle, and Los Angeles. There are several on the East coast-- so let us know and we'll see what we can find listed.Sincerely,TracieNS co-owner/moderator __________________________________________________

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Alyssa,

My name is Todd, I have NS since Oct of 04

and I went to the Mayo Clinic in Rochester, MN. There

is a Dr named J. Askamit he's a nuerologist who

specializes in NS. When I seen him he said he was

working on over 80 other cases of NS. Here's Mayo

Clinics phone # . I hope this helps!

Todd

--- faye710 alyssawindsor@...> wrote:

> Im looking for a place that specializes in sacroid

> or

> neurosarcoidosis. I realize its a rare sort of

> beast, but are there

> places in north america, or canada, even, that pay

> special attention

> to sarc? I just feel like my GP is giving me the

> half-a**ed treatment

> here. Can anyone reccomend a place to help a

> neurosarc like me? I'm

> only 24 and I want to get on with life! Soon.

>

> Alyssa

>

>

>

>

Todd Bown If you are flying in a canoe and 4540 East Paris SE

the wheels fall off, how many Grand Rapids, MI 49512 pancakes can you stack on

a dog © house? Take a guess and I'll

givertb2466@... you the answer. Jesus died for

you and me!

____________________________________________________

Start your day with Yahoo! - make it your home page

http://www.yahoo.com/r/hs

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I'm currently living in Prince BC. A city that does not even have a neurosurgeon. One nuerologist only, and it takes months to see him. There is, however, and MRI here. Any testing beyond that requires me to be air ambulanced to Kelowna BC or Vancouver, and I've done so many times!. So, since I have to travel great distances for medical care anyway, I thought I might aim for a sarcoid clinic next time. Seattle is probably the closest....do you have a link or website for me to check the place out?

Thanx, Alyssa>Reply-To: Neurosarcoidosis >To: Neurosarcoidosis >Subject: Re: treatment facilities>Date: Fri, 12 Aug 2005 03:38:22 EDT>>Alyssa,>>Where do you live? Denver has a sarcoidosis speciality clinic, so does>Seattle, and Los Angeles. There are several on the East coast-- so let us know and>we'll see what we can find listed.>>Sincerely,>Tracie>NS co-owner/moderator

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