New Member

Posted December 27, 2000 · December 27, 2000

>Thanks a for all your help.

Both Grandchildren are taking speech therapy, grandson at Headstart 3

30 min. sessions a week and once a week at Function Junction,

Granddaughter once a week at Function Junction 45 minutes. I don't

really think this is enough. We are going to try to work with them

both at least 2 hours a day, patterned after the Lovass Clinic Books

we bought. We sure can't afford having therapists come to house for

40 hours a week. Does anyone here use Lovass Clinic?

We both went shopping today at health food store and grocery store

with a 50 page list! lol. We took forever deciding if each item was

ok for the kids to eat. We both are getting anxious to get started.

The kids were quite rowdy all through the grocery store, especially

my grandson. Hope this diet helps the little fellow. I have a Downs

Syndrome 15 year old whom I hope to put on this diet also if he

doesn't put up too much of a fuss!! Just kidding, I'm going to put

him on this diet also for sure but do dread the resistance which I

know is coming, lol.

There is a lot of information on this site, I've been reading all

the posts and getting some good ideas.

Waiting now on my cook books I've ordered to help me make the

bread. What do y'all do for bread? Do you make it, or buy it? My

health food store only had gluten free bread, not casian(not spelled

right) also. Any Ideas would be appreciated.

Happy New Year all!!!

(Please forgive me for going on and on about nothing, not very good

at this)

> > My question is, does anyone think this diet will benefit them?

Does

> > anyone have any tips, etc. regarding helping our grandson's

speech?

>

> My advice would be to try the diet and see. That is the approach I

took,

> and I did it gradually. First I removed the major and obvious

offenders

> like icecream, milk, and cheese. After that I removed the subtle

hidden

> sources of casein. My approach to gluten was the same.

>

> You're grandson definately needs to be seen by a speech therapist.

It has

> helped our son tremendously.

>

> > Also, is going on this diet for 3 months the only way to test if a

> > child is having trouble digesting gluten and casain (not spelled

> > right)?

>

> Yes, I personally recommend a 6 month trial.

>

> > It's hard to believe that he would be autistic, he's so alert

to

> > things, etc. But like I said, there are some areas that are very

> > behind.

>

> This is what makes autism so difficult. It comes in many forms and

> varieties. My son has had language since 12 months, yet he is still

> autistic. He does not fit the so called " criteria " . I haven't

seen one

> child that has. The best advice I can give you on this is to

assume the

> worse. Assume he is autistic, and if down the road it turns out

otherwise,

> nothing will be lost. However, to simply ride out the storm would

be a huge

> mistake. I have a friend who has been doing this for 5 years with

her son.

> She and her family were not convinced he was autistic. However,

seeing my

> son and how high functioning he is helped her to realize how severe

her son

> really was. Now she's busy trying to play catch up with her son.

>

> Good luck!

>

> a - Wisconsin

Posted December 27, 2000 · December 27, 2000

Don't wait for your recipe books. Go to the archives of the

GFCFrecipes@egroups or even the archives of this group and click on bread.

It will be a lot of work but you should check the back posts of the

GFCFrecipes list and save all the recipes that look like something your

family would want to eat.

You will find that some will become favorites and some just do not work for

your family. That is another thing so great about this list. A great

variety of tastes.

Betty in Central Ca.

Posted January 5, 2001 · January 5, 2001

,

I went to the site GFCTdiet.com and copied on my printer the

printable GFCF list. It was 50 pages. It has several different

peanut butters and tomato paste that you can use. My daughter put

my list in a notebook and I take it with me to the grocery store.

We like to check the updates about once a week, because the products

change. It really helps us.

Good luck!

> Hi, I am new to the GFCF diet and am very overwhelmed at this

moment. There

> is so much to learn. Just a few quick questions. Is peanut butter

and tuna

> fish GFCF? Also I read that Contadina's tomato paste is o.k. to

use but is

> the sause?

> Thanks for your help ahead of time.

>

> , mother to Meagan

>

Posted January 8, 2001 · January 8, 2001

In a message dated 1/8/01 8:30:47 AM Pacific Standard Time, houstond@...

writes:

> Yes, SerenAid can be mixed with foods and still remain effective for

> several hours.

Yes, but will it begin to break down the foods before they're eaten...(like

meat tenderizers) if the food and enzymes are mixed long before time to eat

them?

Posted January 9, 2001 · January 9, 2001

Most certainly, the enzymes will begin to breakdown proteins in the

food within several minutes, with visible indications in about 20

minutes. It was not really a recommendation, more just a statement

of the stability of the enzymes.

> In a message dated 1/8/01 8:30:47 AM Pacific Standard Time,

houstond@i...

> writes:

>

> > Yes, SerenAid can be mixed with foods and still remain effective

for

> > several hours.

>

> Yes, but will it begin to break down the foods before they're

eaten...(like

> meat tenderizers) if the food and enzymes are mixed long before

time to eat

> them?

>

Posted December 10, 2001 · December 10, 2001

, what did you do to lose the weight? I am getting geared up to start

" Body for Life " Has anyone done this?

Sincerely, Pamela Rauch

New Member

Hello Group....The following is my story in a nut shell. My name is

and I hope to find help somewhere! Have a great day!!!

Age range: 33

Male/female: Female

What are the symptoms? *Severe pain in my hips and legs, extreme

fatigue, sleep apnea, severe frustration, At times I take high doses of

medication with no results at all, extremely warm blooded, cannot see

well at night (driving), severe bruises all over my body, restless leg

syndrome, very sensitive to light & extremely emotional....More if

necessary

Has you illness been diagnosed? *Yes...Fibromyalgia, CFS, Chronic Pain,

Degenerative Disk Disease, Restless Leg Syndrome

How long was it that you suffered before you found out what was wrong?

*Ever since I was a teenager

If Fibro-CFS How long have you been suffering with it? *4 years Actually ever

since a child, but severely in the past 4 years

Is there a time that you can remember when it started? *I was sexually

abused as a child/teenager....I had Osgood Schlatter disease when I was

13

Some of us have found lack of exercise we are overweight. Have you

found this to be a problem also? *I was severely overweight for many

years...in March of this year (2001) I began to loose weight and to date

I have lost 85 lbs.

Are you on disability? *No...applied but was denied due to age (Does anyone

know if I can reapply at a any certain time?)

If you are any pointers for others trying to get on disability?

What have you found that helps ease the pain, warm baths, medications

etc.? *Still searching

Do you have sleep problems? How do you deal with it? *Yes...Sleep apnea

and restless leg syndrome...I currently take Clonazepam & Ambien

Do you have family that understands your illness? *They try as hard as

they can

Some have found certain foods causes problems with CFS or Fibro, have

you? *Not so far

What type of Dr have you found that has helped you the most? *My family

doctor, but still not as good as I would like

*I just want to be able to find friends that understand what I am going

through and ones who don't think I am crazy.

Thanks for listening!

Posted December 10, 2001 · December 10, 2001

, what did you do to lose the weight? I am getting geared up to start

" Body for Life " Has anyone done this?

Sincerely, Pamela Rauch

New Member

Hello Group....The following is my story in a nut shell. My name is

and I hope to find help somewhere! Have a great day!!!

Age range: 33

Male/female: Female

What are the symptoms? *Severe pain in my hips and legs, extreme

fatigue, sleep apnea, severe frustration, At times I take high doses of

medication with no results at all, extremely warm blooded, cannot see

well at night (driving), severe bruises all over my body, restless leg

syndrome, very sensitive to light & extremely emotional....More if

necessary

Has you illness been diagnosed? *Yes...Fibromyalgia, CFS, Chronic Pain,

Degenerative Disk Disease, Restless Leg Syndrome

How long was it that you suffered before you found out what was wrong?

*Ever since I was a teenager

If Fibro-CFS How long have you been suffering with it? *4 years Actually ever

since a child, but severely in the past 4 years

Is there a time that you can remember when it started? *I was sexually

abused as a child/teenager....I had Osgood Schlatter disease when I was

13

Some of us have found lack of exercise we are overweight. Have you

found this to be a problem also? *I was severely overweight for many

years...in March of this year (2001) I began to loose weight and to date

I have lost 85 lbs.

Are you on disability? *No...applied but was denied due to age (Does anyone

know if I can reapply at a any certain time?)

If you are any pointers for others trying to get on disability?

What have you found that helps ease the pain, warm baths, medications

etc.? *Still searching

Do you have sleep problems? How do you deal with it? *Yes...Sleep apnea

and restless leg syndrome...I currently take Clonazepam & Ambien

Do you have family that understands your illness? *They try as hard as

they can

Some have found certain foods causes problems with CFS or Fibro, have

you? *Not so far

What type of Dr have you found that has helped you the most? *My family

doctor, but still not as good as I would like

*I just want to be able to find friends that understand what I am going

through and ones who don't think I am crazy.

Thanks for listening!

Posted December 10, 2001 · December 10, 2001

, what did you do to lose the weight? I am getting geared up to start

" Body for Life " Has anyone done this?

Sincerely, Pamela Rauch

New Member

Hello Group....The following is my story in a nut shell. My name is

and I hope to find help somewhere! Have a great day!!!

Age range: 33

Male/female: Female

What are the symptoms? *Severe pain in my hips and legs, extreme

fatigue, sleep apnea, severe frustration, At times I take high doses of

medication with no results at all, extremely warm blooded, cannot see

well at night (driving), severe bruises all over my body, restless leg

syndrome, very sensitive to light & extremely emotional....More if

necessary

Has you illness been diagnosed? *Yes...Fibromyalgia, CFS, Chronic Pain,

Degenerative Disk Disease, Restless Leg Syndrome

How long was it that you suffered before you found out what was wrong?

*Ever since I was a teenager

If Fibro-CFS How long have you been suffering with it? *4 years Actually ever

since a child, but severely in the past 4 years

Is there a time that you can remember when it started? *I was sexually

abused as a child/teenager....I had Osgood Schlatter disease when I was

13

Some of us have found lack of exercise we are overweight. Have you

found this to be a problem also? *I was severely overweight for many

years...in March of this year (2001) I began to loose weight and to date

I have lost 85 lbs.

Are you on disability? *No...applied but was denied due to age (Does anyone

know if I can reapply at a any certain time?)

If you are any pointers for others trying to get on disability?

What have you found that helps ease the pain, warm baths, medications

etc.? *Still searching

Do you have sleep problems? How do you deal with it? *Yes...Sleep apnea

and restless leg syndrome...I currently take Clonazepam & Ambien

Do you have family that understands your illness? *They try as hard as

they can

Some have found certain foods causes problems with CFS or Fibro, have

you? *Not so far

What type of Dr have you found that has helped you the most? *My family

doctor, but still not as good as I would like

*I just want to be able to find friends that understand what I am going

through and ones who don't think I am crazy.

Thanks for listening!

Posted December 13, 2001 · December 13, 2001

patidu@... wrote:

> I have depression and most, if not all, of the fibros on this list do. A lot

> of time the depression comes from the fact that they have fibromyalgia. As

> you know, this is a very depressing disease. I take medication for

> depression. It helps but I think that we are going to have to change. I

> have been taking it for quite a long time and I thing that the effect is

> wearing off.

>

> Take care,

> Irene

I don't have clinical depression. Pain itself can be depressing at times. Also

the pain meds we take may tend to make us depressed. Some of them are CNS

Depressants, so it stands to reason that they would have that effect.

Lyndi

Posted December 14, 2001 · December 14, 2001

<< Do any of

you also have depression? Thanks for your help, >>

,

I have depression and most, if not all, of the fibros on this list do. A lot

of time the depression comes from the fact that they have fibromyalgia. As

you know, this is a very depressing disease. I take medication for

depression. It helps but I think that we are going to have to change. I

have been taking it for quite a long time and I thing that the effect is

wearing off.

Take care,

Irene

Books may well be the only true magic

Alice Hoffman

Posted December 14, 2001 · December 14, 2001

> but I was wondering if the Buspar is one of the meds that is commonly used

> for

> > this.

>

I don't remember who originally wrote this but I was watching CNN yesterday

and they were talking about Buspar being taken off the market. I don't know

if they are in the process of doing it or if it's just a maybe.

Posted December 14, 2001 · December 14, 2001

jollyojo wrote:

> I started having bowel problems, chest pain,

> terrible headaches (that keep me in the bed), TMJ pain, super sensitivity to

> smells (can smell a poopie diaper from a block away :-), bizarre localized

aches and pains that last about 10 seconds, muscle spasms that run up my spine

and into my neck when I sit or lay down, tingling in my feet and toes and an

aggrevating twitch in my back that will not quit! Is anyone else having similar

symptoms, are these all common with Fibromyalgia?

Some of them are certainly associated with fibro like the bowel

problems, possibly the chest pain, terrible headaches, super sensitivity

to smells, possibly the localized aches and pains that don't last long,

possibly the muscles spasm, and the twitch that won't quit. Do you have

the tender points? Problems sleeping? If you have the tender points,

you probably do have fibro.

> but I was wondering if the Buspar is one of the meds that is commonly used for

> this.

To the best of my knowledge, Buspar isn't used for fibro, although

someone somewhere's doctor may have tried it.

>Any other meds/herbs that are working for any of you? How long do these

" exploded " symptoms last? Also, about 3 months ago I had some steroid

> injections in my foot, could this be the reason for my " flare-up " ? Do any of

> you also have depression?

A flare can very in length even in the same person, let alone between

different people. I set myself off in a flare that lasted 7 months this

past spring. I am not sure about the steroid setting a flare off.

Quite a few of us do have depression, in my case, it occurred before the

last of my fibro symptoms showed up.

Darcy

Posted February 2, 2002 · February 2, 2002

Hi Liz, welcome to the group, just hang out and feel free to comment,

complaint, vent, or giggle!

Darcy

Posted March 8, 2002 · March 8, 2002

Hope your feeling well , take care. Peg

hypatia_of_egypt hypatia_of_egypt@...> wrote: Welcome Jen!

We all have so much to share and care, here in our group. Ask and

share away! I have (but IT DOESN'T HAVE ME! LOL) FMS, RA, OA,

stenosis, and cervical disk disease. In fact one week past, I

underwent the last surgery I can have on my neck-a multi-level

diskectomy with anterior plating! Hate this neck brace--yucky!! Oh

well! This disease REALLY SUCKS (literally the life plum out of a

body!), so complain and share with us all!

LOVE & LIGHT,

Posted April 16, 2002 · April 16, 2002

Hi Sherry,

I meant to reply to you earlier, but in my fog, I replied to someone

else!! I hate the mental confusion of fibro!

This is a great place to find helpful hints. If you have a question,

you'll usually get answers, and from more than one person.

Fibro is a hard journey that involves many doctors, and as I have

found out, not all understanding. I also have found my life

overwhelmed with pain, fatigue, twitching, and weakness. Everyday I

feel like I have the flu. Did you come into all your meds gradually?

My doctor started me off slow, percoset, ibuprofen, and

amitriptylin. I have to admit, pains meds can only dull it slightly,

I haven't found them helpful yet, save for the one that knocks me

out.

How are you handling the depression? My sleep med is supposed to do

something for mine, but I cry all the time. I think therapy is

important, if you can get it. I can't afford it right now, or I

would.

Do you have a lawyer or a good doctor helping you with SSI? I am

also struggling with it, can't seem to get my doctor to take it

seriously, despite the fact she diagnosed me with it. She acts like

it's some phase or temporary thing. From what I understand, you have

to get a really interested doctor who is an advocate for this sort

of thing to help you fill out forms and such.

I wish you good luck, Sherry, glad you have some support from your

husband. It's hard, and some people aren't sure how to help, so it's

important to tell people what you need. Ask us questions, we're here.

Shandi

> Hello Group

>

> I would like to introduce myself, as I am new to this group. My

name is

> Sherry and I live in Columbia, South Carolina with my husband of

37 years. I

> have two boys that are grown and out on their own. I used to work

and loved

> it then pain took over my life. I have gone from one doctor to

another; I

> have seen more doctors than I can remember. I am taking 12

different pills

> a day, (feel like a Pharmacist) but my doctor says they are all

necessary so

> I take them. I just went off Kadian (morphine); I had some side

effects that

> was to uncomfortable to continue taking it. (Lost my voice) so now

I am back

> to taking Celebrex and Dorvonex again (which don't really help). I

joined

> this group to get support and hopefully some ideas of how I can

deal with

> all this. I am not able to work and cannot get disability. I have

tried to

> get #SS about 5 times and keep getting refused. It is so hard not

to work

> when you need the money so bad. My husband is doing the best he

can but he

> hurts too. I just feel if I could contribute something, I would

feel better

> physically. I am depressed and I cry a lot. I am on two different

> anti-depressants. I really feel I would not be able to exist

without them. I

> have more days with pain then I don't but when I do feel like

doing

> something and the flare is not so bad, I get up and do what I can

but then I

> have to lay down for an hour or so. My legs and lower back hurt me

whenever

> I do anything; even walking around in a store is uncomfortable.

>

> My computer is mostly my world, I like to talk to people and have

met some

> really good friends. Having friends on the internet is easier than

having

> them in real life. Most do not understand all my ailments. There

is so much

> I cannot do, so I just backed off, they are not sick like I am.

There is so

> much I cannot do, they have stopped asking. But my friends on the

internet

> have always been here for me.

>

> I hope I have not bored to many of you but I just wanted everyone

to know my

> situation, in hopes of finding some helpful hints.

>

> Here are the answers to the form that was sent to me.

>

> Age range: 57

>

> Male/female: Female

>

> What are the symptoms? So many, but here goes. I have OA, FMS,

CFS,

> psoriatic arthritis, diabetes, Hyperthyroidism, high blood

pressure and

> reflux. So my joints hurt, my muscles hurt, I have pain from

diabetes, have

> headaches, my stomach hurts and the back of my neck hurts a lot.

In the past

> year, the doctors have discovered I have two blocked arteries (40%

on both),

> a heart murmur and irregular heart beat. I just feel like I am

falling

> apart.

>

> Has you illness been diagnosed? See Above

>

> How long did you suffer before you got help? About 2 years

>

> Is there a time that you can remember when it started? 1993

>

> Some of us have found lack of exercise we are overweight. Have you

found

> this to be a problem also? Yes, I have gained weight and hate it.

It is hard

> for me to walk around and do housework, how can I exercise?

>

> Are you on disability? I have tried but they keep refusing me.

>

> If you have any pointers for others trying to get on disability? I

wish I

> knew some.

>

> What have you found that helps ease the pain, warm baths,

medications etc.?

> The only thing that eases my pain is to sleep. I can take some

narcotics and

> feel drunk all day but I have chosen not to do that, I have tried

so many

> medicines and nothing seems to help. So when I hurt, I sleep (when

I can).

>

> Do you have sleep problems? How do you deal with it? My doctor put

me on

> ambien so I can get sleep at night. It works.

>

> Do you have family that understands your illness? Yes, my husband

and Mother

> have FSM also.

>

> Some have found certain foods causes problems with CFS or Fibro,

have you?

> no, I have never considered thinking about food causing any of my

problems

> with CFS or Fibro, but I have to be careful cause of my diabetes.

>

> What type of Doctor have you found that has helped you the most?

My primary

> care physician.

>

> Thank you for listening to me

> Sherry

>

> _________________________________________________________________

> Get your FREE download of MSN Explorer at

http://explorer.msn.com/intl.asp.

Posted October 12, 2003 · October 12, 2003

Welcome to the group. Good luck TTC after your first year. SOmetimes you can

try a bit earlier if you are doing really well and can eat well.. As for being

35, that is not the end of the world and you can still TTC. I never had my

first PG until I was 34 and my second time I was almost 37 and I am trying one

more time at 41

HUGS, ROBIN, NY

Age- 41

TTC#4 -

OPEN RNY

10-18-02

378/246/170???

DR.EDWARD HIXSON

SARANAC LAKE, NY

Mom to:

&

7 1/2 year twin boys and

Madison age 4 1/2 yrs.

Miscarraige August 2001

Miscarraige August 2003

Married to Pup:

15 years this

Halloween : )

Posted October 12, 2003 · October 12, 2003

Hello!! I'm new too!! I just wanted to wish you the best of luck! I

too have PCOS and took me many years to conceive my daughter.. Took

me to get on metformin to actually conceive..

I wish you the best of luck and pray that this surgery brings you

the baby that you want/need. Best of luck! *HUGS*

JenNY

> Hi everyone. I am hoping this group will be a great source of info

> for the future.

>

> I am a new post op(7weeks) and doing well. Part of the reason I

had

> WLS was because of my inability to conceive. I have PCOS and

insulin

> resistance. I have not had a period on my own for almost two

years. I

> know that weight has alot to do with it. Any time in the past I

lost

> weight, I always started my period and they were like clockwork. I

> know losing weight will help my chances.

>

> Another problem is that next week I will be 35. I know I have to

wait

> at least a year to try. That puts me at 37 if I can get pregnant.

I

> know women older than me have children all the time. My husband is

> not so eager to be an older parent(we are childless). I just can't

> imagine going through this life and never having a baby. My

husband

> would make a great dad.

>

> I will probably not do alot of posting, but I will be here reading

> and gaining knowledge. Good luck to all the expecting parents!

Posted October 13, 2003 · October 13, 2003

Please make sure you are using protection when you have sex. I was a PCOer

before surgery too and became extremely fertile afterwards. You may think you

can't conceive only to find out that you have soon after surgery.

Posted October 13, 2003 · October 13, 2003

Hi! Welcome!!

Don't worry about being an older parent... I am 39 and pregnant with my

first child, ever! :~) It just takes minor adapting! :~)

Good luck!

Sharon

thill68 said:

> Hi everyone. I am hoping this group will be a great source of info

> for the future.

>

> I am a new post op(7weeks) and doing well. Part of the reason I had

> WLS was because of my inability to conceive. I have PCOS and insulin

> resistance. I have not had a period on my own for almost two years. I

> know that weight has alot to do with it. Any time in the past I lost

> weight, I always started my period and they were like clockwork. I

> know losing weight will help my chances.

>

> Another problem is that next week I will be 35. I know I have to wait

> at least a year to try. That puts me at 37 if I can get pregnant. I

> know women older than me have children all the time. My husband is

> not so eager to be an older parent(we are childless). I just can't

> imagine going through this life and never having a baby. My husband

> would make a great dad.

>

> I will probably not do alot of posting, but I will be here reading

> and gaining knowledge. Good luck to all the expecting parents!

>

> Children are a blessing, and a gift from the Lord. -Psalm 127:3

>

Posted October 18, 2003 · October 18, 2003

,

I take the following supplements on the advice of my doctor because he is

unsure how much I really absorb and wants to make sure the baby is

covered, and that I am covered, too! :~) Have your doc draw a complete

nutritional supplement lab/blood draws on you, and assess from there. But,

you can start with these until you can have that done...! :~) I have the

blood tests done every other month to keep my vitamin levels in the mid to

upper ranges.

2 Natachews (I take the generic version) with Iron (one every 12 hours)

2400 mg Calcium Citrate every day

2400 mg Calcium Carbonate with Magnesium every day

1, 40 mg Slow FE (Slow Release Iron) one time per week (otherwise, I get

too consitipated and can't handle it -- I was anemic and now am

running mid to high on iron, taking it this way)

1, 1000 mg Sublingual B12 each week (decreased from one

every day... was getting way too much according to blood tests)

3 MILLIGRAMS of additional Folic Acid (doc prescribed) -- not micrograms!!

Better to have TOO much of this than not enough... it

can actually prevent breast cancer! Goodle it! :~) )

400 mg Vitamin E Oil

2 Tablespoons each day of honey -- for the B vitamins... usually have it

in cereal, oatmeal, or even in my herbal tea... it's yummy! :~) If you

don't like honey, they do sell it in capsules called " Royal Bee Jelly "

Some people take additional supplements... but these are just what I take.

Hope this helps you!! Be SURE you get your doc to take those blood

tests... that way you will know exactly what you need to supplement your

body with the most. If any of the tests are below mid-level, do yourself a

favor and supplement for it. They can drop rapidly and radically!!

Good Luck!!

Sharon

maggiebosmom said:

> Sharon,

>

> What is your vitamin and Supplement schedule? I am trying to get

> pregnant and want to be as helthy as possible. I am not sure my PC

> is familiar enough with wls nutritional needs to give me the right

> advice. I am currently taking one prenatal a day. Thank you for any

> suggestion you may have.

>

> Y.

> OPen RNY 11/02

>

>>

>> Congrats on the weight loss and good luck with getting pregnant!

>>

>> The standard advice is to wait at least 12 months after wls to

> ttc... just

>> to make sure you are stable. LOTS of reasons for this, but mainly

> to make

>> sure you are able to have a good nutrition intake ability.

>>

>> My ob is treating me like a " normal " pregnant person... except not

> doing

>> the typical glucose test... instead doing a fasting glucose, then a

> two

>> hour after eating glucose. The other test requires us to intake too

> many

>> carbs/sugars at once and the results are inconclusive (typically).

> It is

>> more accurate with the dual glucose test (don't remember what it is

>> called).

>>

>> The main difference between me and a " regular " pregnant woman is

> that I

>> take double the prenatal vitamins and a few other supplements. You

> might

>> get your lab work done now so you can keep track of your own

> particular

>> supplementation needs...

>>

>> Again, welcome and good luck!

>> Sharon

>>

>> said:

>> > Hello!

>> >

>> > My name is and I had my open RNY in Feb or 2003. My husband

>> > and I are hoping to get pregnant in March of 04. I would love any

>> > advice. I am a high rish pregnancy RNY or not, and I would love

> to

>> > know how your OB's are treating you. I am a little nervous about

>> > weight gain but I am hopeful. I have lost all of my weight and I

> am

>> > working on maintaining (and not losing too much).

>> >

>> > Thanks!

>> >

>> > Children are a blessing, and a gift from the Lord. -Psalm 127:3

>> >

Posted July 14, 2004 · July 14, 2004

Lori, welcome to you and Elijah! I'm sorry that he's had such a

rough time of it. You'll find that this group is extremely

supportive and knowledgeable about the Ponseti Method of treatment.

If you have any questions at all, ask away!

I just wanted to ask though, were Elijah's casts toe to groin casts

or were they toe to knee? I ask because with the toe to groin casts,

if applied properly, it is very rare that we hear of babies slipping

in them...although, it is common in the toe to knee casts. Because

of this, Dr. Ponseti's Method calls for toe to groin casts. Also, it

is absolutely normal (and expected) for the heel of the post-tenotomy

cast to become discoloured (with blood) within the first day or so.

Qualified Ponseti doctors are aware of this and let parents know so

that they don't become alarmed when they see it. By the time the

cast comes off 3 weeks later, the incision is fully healed beneath

the cast and all is well.

I hate to say it but it doesn't sound like Elijah's doctor has had

much experience with the Ponseti Method - as such, Elijah's care is

being compromised. There are a number of doctors who will tell you

that they are using the Ponseti Method when in fact, they are only

using bits and pieces. These doctors are also not seeing the 90-95%

success rate that the Method boasts.

On Dr. Ponseti's site, there is a list of doctors qualified in the

method. Is there any way that you could get Elijah to one of these

doctors for a second opinion? There are many resources available for

those wishing to take that leap.

Daiga and Owen, 02/04/03

Unilateral LCF, FAB 14/24

> I found this link thru Dr Ponsetti's website.

>

> We're kinda new to all this. My son, Elijah is 3.5 months old.

He's

> the youngest of four. Siblings are 12, 8 and almost 2.

>

> We are live in Mississippi and are being treated by a military Dr

> using Dr Posetti's techniques.

>

> Elijah was casted at 1.5 wks old. We had weekly castings until he

had

> the tendon release surgery done at 7 wks. They casted him after

that

> and by that night, he was bleeding thru the cast. We went back the

> next day for them to cut the cast off w/the cast saw and they put

> another on. That cast came off early b/c he was pulling his foot

out

> of the boot part of the cast which caused his foot to heal at a

> downward angle instead of upward. We got another cast and that one

> stayed on 3 wks but the damage was already done. The tendon release

> was basically a waste. He was fitted for shoes but due to the

angle

> of his foot, he couldnt wear them so he went back into casts for 2

> wks.

> Upon taking that cast off and adjusting the FAB to a 5 degree pitch

> vice the 15 degree pitch, he was able to wear the shoes.

> So here we are at 3.5 months, waiting for Daddy to come home from a

6

> month deployment so we can schedule another tendon release.

>

> I look forward to reading your personal accounts and finding hope

in

> your success stories.

>

> Lori

Posted August 29, 2004 · August 29, 2004

Thanks for the info. Well the first day Addisyn was in the DBB she

kept slipping out of them no matter how much we tightened them. We

went back to the orthotist and he put in a soft foam piece on the

inside top of the heel to keep her feet in. It worked! But

unfortunately we had a huge problem with them the next day!! When

we took them off to give her a bath last night (day 3) we noticed

horrible bruises on her heels. I don't think her feet are quite

ready to be in the shoes. Our doctor (Dr Schwend) told me when we

got them last Thursday that she may not be ready but we would give

it a try for a week. The creases on the base of her heels are very

deep and its not allowing her feet to sit flat. She is definately

going to need surgery which he doesn't to until she is 8 mos old.

It will be interesting to see what his suggestion will be in the

meantime since the shoes aren't working right now.

> > Hi everyone, I am a new member the the group and just wanted to

> give

> > some background. My daughter Addisyn is just over 2 mos old and

> was

> > born w/ bilateral club feet. She has been in casts since she

was 2

> > wks. We had the tenotomy done 3 wks ago this Monday and we just

> got

> > into the DBB today. If anyone has some tips about the DBB or

> things

> > to look for it would be greatly appreciated. This is definately

a

> > huge adjustment from the freedom she had in the casts!!

Posted August 29, 2004 · August 29, 2004