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Hi Pam and Becky, I'm just really looking for a bright side to this cold

that I have... I'm so misserable and I can't take anything for it :((

It would be nice if it was a sign that I was getting better -thyroid wise -

I haven't been sick with anything but thyroid stuff since December...

Pam B.

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Hi Pam,

I was just now reading that, and went to 's site as suggested. Now I am

once again more confused. I had non stop colds and flu the whole time I was

hyper but not diagnosed...you know , the time leading up to my storm. So I

KNOW I was hyper .

But I have NOT had a cold or flu for the four years since I started

treatment. Go figure??? I have stopped being nice to people that tell me how

sick they are and stand there and breath on me ! I just tell then I have a

problem with my immune system and PLEASE stay away from me. But, you know, I

have tried all that before, and it never worked, I still got sick, I just

didn't have as good a story.

-Pam L -

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But you know that makes me remember, Becki...

Every single year I always got a flu or cold, it always turned into

bronchitis and then pneumonia..every year, for years on end.

The year before my storm I got a flu shot and also the shot for pneumonia,

which they say is good for a life time. I have often wondered if that was

one more contributing factor to the 'big bang' ?

-Pam L -

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When I brought up about me having to fight off bugs more now since my

antibodies are coming down than when they were all elevated, it was strictly

the ab levels I was talking about.

I have not been hyper graves for over 6 years BUT my ab's have remained

elevated since RAI, until this past 10 months since I have taken my PTU and

all ab's are decreasing significantly. With the decrease I have seen a lot

more of the sniffles and scratchy throat/ sore throat, my first ear

infection ever.

This is my own theory about the ab's, with them being elevated, the immune

system is still working in high gear, this has nothing to do with an almost

dead thyroid working overtime. With the immune system staying revved up, we

get sick less, with the immune surpressors of the the atd's our immune

system slows back down. Hey, I may be way off base here, it is just what

makes sense to *me*.

Jody

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Yes, Jody, that's what I meant too... it makes sense to me - if our immune

system is in overdrive doing all it's damage it would also be able to wipe

out colds much faster than if it's acting normal or sluggish. It will be

interesting to see what antibodies she ran this time and what they are at...

and if it fits in this theory or not.

Pam B.

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Yes, Jody, that's what I meant too... it makes sense to me - if our immune

system is in overdrive doing all it's damage it would also be able to wipe

out colds much faster than if it's acting normal or sluggish. It will be

interesting to see what antibodies she ran this time and what they are at...

and if it fits in this theory or not.

Pam B.

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Yes, Jody, that's what I meant too... it makes sense to me - if our immune

system is in overdrive doing all it's damage it would also be able to wipe

out colds much faster than if it's acting normal or sluggish. It will be

interesting to see what antibodies she ran this time and what they are at...

and if it fits in this theory or not.

Pam B.

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At the risk of sounding dumb...I saw a Naturapath yesterday and he explained

that it depends on the quality of your white blood cells as to how they defend

the body. My wbc count was slightly low this week, and he has prescribed

echinacea, goldenseal and thymus concoction for me to take. I am still hyper as

my FT3 came back as 8.5 (norm 6.5) but in 3 1/2 weeks of ATD's they came down

from 15.8! So if I'm still hyper, but with low white blood count I presume my

fighting of virus ability is compromised.

Phew, so much to get my mushy brain round!

Aldyth

Pam B

wrote:Yes, Jody, that's what I meant too... it makes sense to me - if our immune

system is in overdrive doing all it's damage it would also be able to wipe

out colds much faster than if it's acting normal or sluggish. It will be

interesting to see what antibodies she ran this time and what they are at...

and if it fits in this theory or not.

Pam B.

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At the risk of sounding dumb...I saw a Naturapath yesterday and he explained

that it depends on the quality of your white blood cells as to how they defend

the body. My wbc count was slightly low this week, and he has prescribed

echinacea, goldenseal and thymus concoction for me to take. I am still hyper as

my FT3 came back as 8.5 (norm 6.5) but in 3 1/2 weeks of ATD's they came down

from 15.8! So if I'm still hyper, but with low white blood count I presume my

fighting of virus ability is compromised.

Phew, so much to get my mushy brain round!

Aldyth

Pam B

wrote:Yes, Jody, that's what I meant too... it makes sense to me - if our immune

system is in overdrive doing all it's damage it would also be able to wipe

out colds much faster than if it's acting normal or sluggish. It will be

interesting to see what antibodies she ran this time and what they are at...

and if it fits in this theory or not.

Pam B.

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I'm definitely sending those tablets straight back!!! Would like to know of an

alternative to strengthen the immune response. The naturopath gave my son

something to enhance his immune system that is yeast based (he has autoimmune

s). Maybe I should try that instead.

Thanks Jody.. Aldyth

Jody Spitale wrote:ACK Aldyth!!!!!!!

Your naturopath must NOT know or understand about autoimmune disease to have

given you anything with echinacea in it!!! I don't know anything about the

other ingrediants but WE, those with autoimmune diseases of any kind MUST

NOT take echinacea...PERIOD! Echinacea stimulates the immune system and

ours is already in high gear, if you continue to take this, you may well

find yourself right back up where you started with your hyper numbers!

We need things to strengthen our immune systems but not stimulate them.

This is a big issue. If you read on any of the tea's or echinacea

containers it states right on them do NOT take if you have an autoimmune

disease. Hopefully others will pop in and recommend the better and much

safer herbs for us as I am on the way out the door.

Take care but don't take echinacea, please!

Jody

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I'm definitely sending those tablets straight back!!! Would like to know of an

alternative to strengthen the immune response. The naturopath gave my son

something to enhance his immune system that is yeast based (he has autoimmune

s). Maybe I should try that instead.

Thanks Jody.. Aldyth

Jody Spitale wrote:ACK Aldyth!!!!!!!

Your naturopath must NOT know or understand about autoimmune disease to have

given you anything with echinacea in it!!! I don't know anything about the

other ingrediants but WE, those with autoimmune diseases of any kind MUST

NOT take echinacea...PERIOD! Echinacea stimulates the immune system and

ours is already in high gear, if you continue to take this, you may well

find yourself right back up where you started with your hyper numbers!

We need things to strengthen our immune systems but not stimulate them.

This is a big issue. If you read on any of the tea's or echinacea

containers it states right on them do NOT take if you have an autoimmune

disease. Hopefully others will pop in and recommend the better and much

safer herbs for us as I am on the way out the door.

Take care but don't take echinacea, please!

Jody

_________________________________________________________________

Send and receive Hotmail on your mobile device: http://mobile.msn.com

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Hi Aldyth,

When we get home I will pull out my Graves Disease; A Practical Guide by

Elaine ...Elaine has things listed in there I believe. Maybe someone

will jump in before we get home as we will be out most of the day.

I am so glad your not taking those pills Aldyth!

Jody - who really must run as hubby is into the foot-tapping witht he

impatient sound to it.

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Thanks Jody, I've ordered Elaines book, but they said there was a 6 week delay

on delivery...I don't know if they have to have it sent over from the States.

Hope you had a good day out.

Angry Aldyth who will give the Naturopath what for tomorrow!

Jody Spitale wrote:Hi Aldyth,

When we get home I will pull out my Graves Disease; A Practical Guide by

Elaine ...Elaine has things listed in there I believe. Maybe someone

will jump in before we get home as we will be out most of the day.

I am so glad your not taking those pills Aldyth!

Jody - who really must run as hubby is into the foot-tapping witht he

impatient sound to it.

_________________________________________________________________

Join the world’s largest e-mail service with MSN Hotmail.

http://www.hotmail.com

-------------------------------------

The Graves' list is intended for informational purposes only and is not intended

to replace expert medical care.

Please consult your doctor before changing or trying new treatments.

----------------------------------------

DISCLAIMER

Advertisments placed on this yahoo groups list do not have the endorsement of

the listowner. I have no input as to what ads are attached to emails.

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The " other ingredient " , Thymus, is (I think) a bovine glandular extract; I

assume you're in the UK Aldyth, and am surprised they offer it! The thymus

(read that 'sweetbreads' culinarily) is a gland that disappears as the calf

reaches maturity; in humans, problems w/ the thymus cause a serious disease,

myesthenia gravis, which a friend's daughter has. All in all, something I

wouldn't mess with unless a lot of research first.

Terry

>

> Reply-To: graves_support

> Date: Sun, 08 Sep 2002 11:04:08 -0400

> To: graves_support

> Subject: Re: Colds and Flu

>

> ACK Aldyth!!!!!!!

> Your naturopath must NOT know or understand about autoimmune disease to have

> given you anything with echinacea in it!!! I don't know anything about the

> other ingrediants but WE, those with autoimmune diseases of any kind MUST

> NOT take echinacea...PERIOD! Echinacea stimulates the immune system and

> ours is already in high gear, if you continue to take this, you may well

> find yourself right back up where you started with your hyper numbers!

>

> We need things to strengthen our immune systems but not stimulate them.

> This is a big issue. If you read on any of the tea's or echinacea

> containers it states right on them do NOT take if you have an autoimmune

> disease. Hopefully others will pop in and recommend the better and much

> safer herbs for us as I am on the way out the door.

>

> Take care but don't take echinacea, please!

> Jody

>

>

>

>

>

>

> _________________________________________________________________

> Send and receive Hotmail on your mobile device: http://mobile.msn.com

>

>

>

> -------------------------------------

> The Graves' list is intended for informational purposes only and is not

> intended to replace expert medical care.

> Please consult your doctor before changing or trying new treatments.

> ----------------------------------------

> DISCLAIMER

>

> Advertisments placed on this yahoo groups list do not have the endorsement of

> the listowner. I have no input as to what ads are attached to emails.

> ------------------------------------------------------------------------------

> --------

>

>

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Hi all -

I thought the " colds and flu " observation was pretty interesting,

even if it does not pertain to *everyone*. It was also very

informative info about using viruses to destroy cancer cells (farther

down in that colds and flu link at iThyroid).

I'll just bet that when we DO find the correct answer to

the thyroid disorder mystery, it will probably include some off-the-

wall, never-in-a-million-years, answers that we had all overlooked

because it seemed too silly to consider.

We need to be open minded, which is more than most of our pathetic

doctors are.

Best Wishes,

Chris

> Hi Pam and Becky, I'm just really looking for a bright side to this

cold

> that I have... I'm so misserable and I can't take anything for it :

((

>

> It would be nice if it was a sign that I was getting better -

thyroid wise -

> I haven't been sick with anything but thyroid stuff since

December...

>

> Pam B.

>

>

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Hi all -

I thought the " colds and flu " observation was pretty interesting,

even if it does not pertain to *everyone*. It was also very

informative info about using viruses to destroy cancer cells (farther

down in that colds and flu link at iThyroid).

I'll just bet that when we DO find the correct answer to

the thyroid disorder mystery, it will probably include some off-the-

wall, never-in-a-million-years, answers that we had all overlooked

because it seemed too silly to consider.

We need to be open minded, which is more than most of our pathetic

doctors are.

Best Wishes,

Chris

> Hi Pam and Becky, I'm just really looking for a bright side to this

cold

> that I have... I'm so misserable and I can't take anything for it :

((

>

> It would be nice if it was a sign that I was getting better -

thyroid wise -

> I haven't been sick with anything but thyroid stuff since

December...

>

> Pam B.

>

>

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Hi all -

I thought the " colds and flu " observation was pretty interesting,

even if it does not pertain to *everyone*. It was also very

informative info about using viruses to destroy cancer cells (farther

down in that colds and flu link at iThyroid).

I'll just bet that when we DO find the correct answer to

the thyroid disorder mystery, it will probably include some off-the-

wall, never-in-a-million-years, answers that we had all overlooked

because it seemed too silly to consider.

We need to be open minded, which is more than most of our pathetic

doctors are.

Best Wishes,

Chris

> Hi Pam and Becky, I'm just really looking for a bright side to this

cold

> that I have... I'm so misserable and I can't take anything for it :

((

>

> It would be nice if it was a sign that I was getting better -

thyroid wise -

> I haven't been sick with anything but thyroid stuff since

December...

>

> Pam B.

>

>

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Thanks so much Simon -

The sore throat theory sure makes sense. Is your throat sore that

far down (behind the thyroid gland), or is it in the back of the

mouth too? (That's not easy to describe, but you know what I mean.)

The one case of flu I DID have a couple of years back was one heck of

a whopper! Trying to remember where my thyroid levels were back

then, but senility is creeping up on me.

Do you by any chance have a reference to any of those studies about

Lupus and anti-viral drugs? I'd be interested if you remember any.

Not sure what a retrovirus is.

Also a while back you mentioned somewhere you had read about

remission after 9 yrs, 20 yrs, etc. Scientist's name was something

like Shizeike. I searched Google quite a bit, but used the words

antithyroid drug, long-term, with his name, but couldn't find the

right one. Do you have any link to that?

Hope you have a great evening - or morning whichever it is there in

the UK -

Best regards,

Chris

My faith in the retrovirus explanation took a knock when reading

> studies on Lupus and antiviral drugs, although I guess any

> effect good or bad, may indicate it is tweaking relevant

> chemistry.

> >

> > I'll just bet that when we DO find the correct answer to

> > the thyroid disorder mystery, it will probably include some off-

the-

> > wall, never-in-a-million-years, answers that we had all overlooked

> > because it seemed too silly to consider.

>

> Hmm, I know my recent sore throat made me wonder. I'd swear the

> swelling started in the thyroid and rose up my throat, and then

> retreated the way it had come. Of course it could be some

> mundane explanation like the thyroid swelling and trapping food

> particles in the throat to trigger infection, but it was classic

> " viral infection " symptoms lasting a month, except no swelling

> of the glands in my neck.

>

> Although mild, the only infections I've had lasting that long

> before were a particularly bad dose of flu followed by chest

> infection (everyone had it), and a chest infection picked up

> working in a barley dressing factory (student vacation job).

>

> Since most of my health problems seem to stem from the thyroid,

> you'll have to excuse my fascination with an infection

> originating from the same area, along with my previous case of

> hand, foot and mouth (a Sackie virus also once alleged to be

> a possible cause of Grave's, along with many other things). I'm

> assured it is a common childhood disease, so why hadn't the

> doctor seen it.

>

> Maybe the illness, or the ATD, are knocking my defences about a

> bit, but I'm not convinced. Maybe these alleged viral causes are

> just common viruses we can't fight off as well, but I agree with

> the thread, I don't get many colds or other infections, and

> those I have all seem to have something to do with thyroid

> disease, or other obvious explanation.

>

> My faith in the retrovirus explanation took a knock when reading

> studies on Lupus and antiviral drugs, although I guess any

> effect good or bad, may indicate it is tweaking relevant

> chemistry.

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grannychristine wrote:

>

> Thanks so much Simon -

>

> The sore throat theory sure makes sense. Is your throat sore that

> far down (behind the thyroid gland), or is it in the back of the

> mouth too? (That's not easy to describe, but you know what I mean.)

It's gone now, although my thyroid still feels swollen (it did

before). My thyroid no longer feels raw. Every other time it has

been swollen it felt raw, even before the sore throat.

> Do you by any chance have a reference to any of those studies about

> Lupus and anti-viral drugs? I'd be interested if you remember any.

> Not sure what a retrovirus is.

No, I was just browsing around. I figured if the Tulane people

were right about retroviruses then antivirals might work. Most

of us learnt at school that antibiotics kill bacteria, but

viruses are largely untouchable, but that is less true these

days.

Looked for studies on Grave's and antivirals - none found, so

tried Lupus and Sjorgen's as Tulane research suggests it is the

same retrovirus. The main conclusion is it is under researched!

Sjorgen's looked promising, the little research there was showed

successful treatment with AZT. Lupus looked less promising, but

I couldn't find a " we gave AZT to Lupus patients in a controlled

double blind clinical trial " paper.

The Lupus research was dominated by HIV related work, HIV

patients get a lot of antiviral drugs, and the T cells attacked

in HIV are the same ones as cause some of the symptoms in Lupus

(if I read it right). My mother, who understood these things

better, always thought AIDS research would throw out cures for

lots of other things, including possibly Lupus, and she wasn't

aware of the possible retrovirus link.

Retroviruses are just a class of viruses, I believe it is the

specific way they get themselves copied that makes them

retroviruses. The best known is HIV. Since all retroviruses have

some common genetic components, some of the anti-AIDS drugs

might be expected to work against other retroviruses, although

the anti-AIDS drugs aren't brilliant.

> Also a while back you mentioned somewhere you had read about

> remission after 9 yrs, 20 yrs, etc. .... Do you have any link to that?

Endocrinol Jpn 1978 Aug;25(4):377-9

Long term antithyroid drug therapy for intractable cases of

Graves'

disease.

Shizume K.

I guess 20 years takes the patient back to starting drugs before

1957 (probably earlier as most papers take a while to appear),

so you can't really expect any cases of remission occurring

after more than 20 years on antithyroid drugs in 1978, as

antithyroid drugs had only just been around that long.

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grannychristine wrote:

>

> Thanks so much Simon -

>

> The sore throat theory sure makes sense. Is your throat sore that

> far down (behind the thyroid gland), or is it in the back of the

> mouth too? (That's not easy to describe, but you know what I mean.)

It's gone now, although my thyroid still feels swollen (it did

before). My thyroid no longer feels raw. Every other time it has

been swollen it felt raw, even before the sore throat.

> Do you by any chance have a reference to any of those studies about

> Lupus and anti-viral drugs? I'd be interested if you remember any.

> Not sure what a retrovirus is.

No, I was just browsing around. I figured if the Tulane people

were right about retroviruses then antivirals might work. Most

of us learnt at school that antibiotics kill bacteria, but

viruses are largely untouchable, but that is less true these

days.

Looked for studies on Grave's and antivirals - none found, so

tried Lupus and Sjorgen's as Tulane research suggests it is the

same retrovirus. The main conclusion is it is under researched!

Sjorgen's looked promising, the little research there was showed

successful treatment with AZT. Lupus looked less promising, but

I couldn't find a " we gave AZT to Lupus patients in a controlled

double blind clinical trial " paper.

The Lupus research was dominated by HIV related work, HIV

patients get a lot of antiviral drugs, and the T cells attacked

in HIV are the same ones as cause some of the symptoms in Lupus

(if I read it right). My mother, who understood these things

better, always thought AIDS research would throw out cures for

lots of other things, including possibly Lupus, and she wasn't

aware of the possible retrovirus link.

Retroviruses are just a class of viruses, I believe it is the

specific way they get themselves copied that makes them

retroviruses. The best known is HIV. Since all retroviruses have

some common genetic components, some of the anti-AIDS drugs

might be expected to work against other retroviruses, although

the anti-AIDS drugs aren't brilliant.

> Also a while back you mentioned somewhere you had read about

> remission after 9 yrs, 20 yrs, etc. .... Do you have any link to that?

Endocrinol Jpn 1978 Aug;25(4):377-9

Long term antithyroid drug therapy for intractable cases of

Graves'

disease.

Shizume K.

I guess 20 years takes the patient back to starting drugs before

1957 (probably earlier as most papers take a while to appear),

so you can't really expect any cases of remission occurring

after more than 20 years on antithyroid drugs in 1978, as

antithyroid drugs had only just been around that long.

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grannychristine wrote:

>

> Thanks so much Simon -

>

> The sore throat theory sure makes sense. Is your throat sore that

> far down (behind the thyroid gland), or is it in the back of the

> mouth too? (That's not easy to describe, but you know what I mean.)

It's gone now, although my thyroid still feels swollen (it did

before). My thyroid no longer feels raw. Every other time it has

been swollen it felt raw, even before the sore throat.

> Do you by any chance have a reference to any of those studies about

> Lupus and anti-viral drugs? I'd be interested if you remember any.

> Not sure what a retrovirus is.

No, I was just browsing around. I figured if the Tulane people

were right about retroviruses then antivirals might work. Most

of us learnt at school that antibiotics kill bacteria, but

viruses are largely untouchable, but that is less true these

days.

Looked for studies on Grave's and antivirals - none found, so

tried Lupus and Sjorgen's as Tulane research suggests it is the

same retrovirus. The main conclusion is it is under researched!

Sjorgen's looked promising, the little research there was showed

successful treatment with AZT. Lupus looked less promising, but

I couldn't find a " we gave AZT to Lupus patients in a controlled

double blind clinical trial " paper.

The Lupus research was dominated by HIV related work, HIV

patients get a lot of antiviral drugs, and the T cells attacked

in HIV are the same ones as cause some of the symptoms in Lupus

(if I read it right). My mother, who understood these things

better, always thought AIDS research would throw out cures for

lots of other things, including possibly Lupus, and she wasn't

aware of the possible retrovirus link.

Retroviruses are just a class of viruses, I believe it is the

specific way they get themselves copied that makes them

retroviruses. The best known is HIV. Since all retroviruses have

some common genetic components, some of the anti-AIDS drugs

might be expected to work against other retroviruses, although

the anti-AIDS drugs aren't brilliant.

> Also a while back you mentioned somewhere you had read about

> remission after 9 yrs, 20 yrs, etc. .... Do you have any link to that?

Endocrinol Jpn 1978 Aug;25(4):377-9

Long term antithyroid drug therapy for intractable cases of

Graves'

disease.

Shizume K.

I guess 20 years takes the patient back to starting drugs before

1957 (probably earlier as most papers take a while to appear),

so you can't really expect any cases of remission occurring

after more than 20 years on antithyroid drugs in 1978, as

antithyroid drugs had only just been around that long.

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Hi Simon -

Thank you so much for the info. Isn't it funny how searches take you

way into territory that you never expected to end up. I'm

particularly interested in other bodily parasites causing problems -

as well as viral and bacterial pests.

Yeast, mold and fungus seem to wreak havoc on our systems. Candida

is a yeast that can develop into a fungus. I just stumbled upon a

case history where a person's pancreas was infested with Candida.

There are, I'm sure, many other types of molds and fungi that

might " set up house " in other tissues and organs, besides the gut.

Wouldn't it be funny if the thyroid antibodies were going after

yeast, mold and fungus in the thyroid gland? These could pass

through the tissues in your neck and cause inflammation in your

throat?? Who knows?

Especially curious is the fact that methimazole contains " imidazole "

which is and anti-fungal, and PTU contains " uracil " which is also an

anti-fungal.

Wonder exactly which mechanism does what in slowing thyroid

production? I keep hearing that ATDs block coupling of iodine and

tyrosine. These antithyroid drugs also contain carbon and sulphur.

Wonder which component affects which part of the thyroid disease? I

wonder just exactly what gives ATDs their so-called immunosuppressant

activity? I'm just a bundle of questions, but this is a QUEST.

Guess it would be difficult to have a double-blind study on all 3

traditional Graves' treatments, huh?

Thanks so much for the Shizume reference. A few years back, someone

told me they had read about someone in Japan going into remission

after 20 years on ATDs. Was glad to see your mentioning something

about this. Since I " ve been on Tapazole for 23 years, a case history

like that gives an old bag like me some hope! I'll take the meds

life-time if I have to, but hope we all resolve this mystery soon.

Best Wishes,

Chris

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Hi Simon -

Thank you so much for the info. Isn't it funny how searches take you

way into territory that you never expected to end up. I'm

particularly interested in other bodily parasites causing problems -

as well as viral and bacterial pests.

Yeast, mold and fungus seem to wreak havoc on our systems. Candida

is a yeast that can develop into a fungus. I just stumbled upon a

case history where a person's pancreas was infested with Candida.

There are, I'm sure, many other types of molds and fungi that

might " set up house " in other tissues and organs, besides the gut.

Wouldn't it be funny if the thyroid antibodies were going after

yeast, mold and fungus in the thyroid gland? These could pass

through the tissues in your neck and cause inflammation in your

throat?? Who knows?

Especially curious is the fact that methimazole contains " imidazole "

which is and anti-fungal, and PTU contains " uracil " which is also an

anti-fungal.

Wonder exactly which mechanism does what in slowing thyroid

production? I keep hearing that ATDs block coupling of iodine and

tyrosine. These antithyroid drugs also contain carbon and sulphur.

Wonder which component affects which part of the thyroid disease? I

wonder just exactly what gives ATDs their so-called immunosuppressant

activity? I'm just a bundle of questions, but this is a QUEST.

Guess it would be difficult to have a double-blind study on all 3

traditional Graves' treatments, huh?

Thanks so much for the Shizume reference. A few years back, someone

told me they had read about someone in Japan going into remission

after 20 years on ATDs. Was glad to see your mentioning something

about this. Since I " ve been on Tapazole for 23 years, a case history

like that gives an old bag like me some hope! I'll take the meds

life-time if I have to, but hope we all resolve this mystery soon.

Best Wishes,

Chris

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