Power chairs (Cindy) long :0

[Guest guest]

Cheri,

So sorry to hear you havent been feeling well! Please know you are thought

of and that I will pray for you that things improve soon! Take care of YOU!

Love Lana

[Guest guest]

Cheri,

So sorry to hear you havent been feeling well! Please know you are thought

of and that I will pray for you that things improve soon! Take care of YOU!

Love Lana

[Guest guest]

I am sorry to hear you are now in the same position as me...coming to the

acceptance that I *have* to get a power chair to be able to go anywhere!

Other than really really short! distances...ie from the car to one or two

(maximum) stores <briefly> and then home (plus I don't do the driving,

never learned...so have to pretty much rely on little outings with hubby...)

<sigh>....

Anyway I was going to start the process last year ..but needed to be able

to create a space in which to keep (said) chair when I get one...<fingers

crossed> as we have a few stairs up to the apartment building I will have

to keep it in my locker....

So, Thanks for posting about this, as you have accrued a much better

series of responses than I did. I posted a couple of times (last year)

requesting help, opinions, types of machines etc as well as on procedure,

experiences and only got about 2 or 3 responses....

Anyway, am glad to see all these and have saved them to read later and

also to show as examples (if neccessary) that it is common that many

EDS'ers *need* POWER chairs. Though I *hope* that there won't be any

hassles to get the 'partial', (financial) coverage through Randys work...

I am sortof expecting it could be a challenge and may have to " fight " the

insurance company...

I do already have my G.P.'s " backing " as well as a very nice O.T. I know

through the Arthritis clinic here...I figure that my approach will first

be to write down a long detailed letter to both of them listing the

multiple areas of problems and why neither a manual chair nor a scooter

would be appropiate and they can then write what they have to from there.

Perhaps you and I could exchange some of what we have in common and/or may

not have thought of ..when/if you write something like this out too???

Let me know....

I don't think either of them (Doctor and O.T.) has had much experience

going through an employers insurance for this speciafically... more so for

social services (welfare) clients...plus definitely neither or them are

all that EDS aware, Escept what I teach/tell them...

I wish us both luck!!!

(and Cindy , I *have* been thinking 'bout ya...but have not been

feeling well lately so...have mostly had to delete much of the mail

lately...kept those of pertinent interest like this though...)

ttfn

Cheri