working towards a diagnosis

[Guest guest]

Elodia,

Thanks, I am not usually one for tears. But I wont rule it out completely.

And for all,

The neurologist I selected was a maroon and after telling me to seek

treatment for the spots on my brain MRI from my pulmonologist I resorted to

faxes,… figured a paper trail might prove helpful. Its actually been

hysterical, complete inaccuracies, contradictory statements, denial and

deferment of treatment. Now I have appointments with leading

Neurosarcoidosis specialist out of Mt. Sinai, Dr. Naiiar for a treatment

plan, and I have just been approved for a series diagnostics from a

neuropsychologist to determine if and to what extent of neuro involvement I

have. Also, just today my pulmonologist agreed to draw up the paperwork to

get me in to see Dr Alvin Teirstein, leading sarcoid specialist that was

suggested to me by a member of the group, but I cant remember who (if I

remember I will tell my Dr. about my memory problems, ha ha).

What I am wondering about is the procedures, namely the neuropsychologist

stuff, so far what’s on plate is an interview, 2 hour and half long IQ

tests, a QEEG brain map and a results finding. Since I already had MRI that

showed irregularities that my former neurologist described as “I don’t know

what to make of that”, so I guess what I am getting at is what am I doing

futzing around with IQ tests when there are blurbs on my brain MRI? Does

anyone have any pointers or ideas?

Again any input is invaluable at this point.

Louis

>

>Reply-To: Neurosarcoidosis

>To: Neurosarcoidosis

>Subject: Re: working towards a diagnosis

>Date: Wed, 23 Nov 2005 05:36:29 -0000

>

>Louis be prepared for an emotional tidal wave. I sat in my car and

>cried after mine. It was a combination of realizing just how much I

>had lost and dealing with an idiot. My report was that I was

>DEPRESSED. Funny though how those lesions on my next MRI kinda made

>them do an about

>face.

>

> Elodia -

>-- In Neurosarcoidosis , " Louis Peraino "

> wrote:

> >

> > After much work I just got approved for a neuropsychological

>evaluation.

> > Seeing as I have sarcoid and I have all these neurosarcoid

>symptoms, but I

> > know that many doctors are knuckleheads, does anyone have any

>suggestions?

> > Any cautions? All is welcome.

> >

> > Thanks,

> >

> > Louis

> >

> > _________________________________________________________________

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>

>

>

>

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