Guest guest Posted June 11, 2005 Report Share Posted June 11, 2005 Debbie, Sorry you are having to go through the nervous of yet another test and wondering what will come of it! Know tthat you are in my thoughts and prayers. It is nerve-racking being told something is wrong but not being told exactly what it is. I haven't had a bone scan so can't help you with that one. It doesn't so too painful from what describes, other than the awfulness of having to lay still so long like she says. That in itself is painful I know. When is it scheduled for? Please keep us updated Debbie, we are thinking of you. Take care, Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2005 Report Share Posted June 11, 2005 Debbie, for a bone scan they lay you flat on your back...without ANY moving...and run you through the machine. The test takes about 45-60 minutes. Mine took a little longer cuz i moved my leg once. oops. The table was so hard to lay on and I needed three people to help me get up and then I had a tremendous body cramp all up my abdomen. That was painful, too. The hardest part was laying so still for so long on such a hard table. But i've had worse tests. Hope all turns out well. hugs S.......ps I've heard of people getting sarc in the bone marrow and I think they may be checking for that, too, Debbie wrote: Hi all. Recently my neurologist ordered a couple of MRI's for me. One for the cervical spine, the other for the thoracic spine. The one for the thoracic spine came back abnormal. Now they want to do a bone scan on me. I am kind of nervous. Has anyone had this done? WHat should I expect? The neurologist said they are doing it to make sure it isn't cancer or more sarcoid in my body. I would appreciate any info in this matter. Thanks. Luv, Debbie __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2005 Report Share Posted June 11, 2005 Dear , Thank you for your prompt response and your information on the bone scan. It doesn't sound as bad as I thought it would be. I am still worried about the results though. I hope they aren't serious. Thanks for your help. Luv, Debbie Solberg wrote: Debbie, for a bone scan they lay you flat on your back...without ANY moving...and run you through the machine. The test takes about 45-60 minutes. Mine took a little longer cuz i moved my leg once. oops. The table was so hard to lay on and I needed three people to help me get up and then I had a tremendous body cramp all up my abdomen. That was painful, too. The hardest part was laying so still for so long on such a hard table. But i've had worse tests. Hope all turns out well. hugs S.......ps I've heard of people getting sarc in the bone marrow and I think they may be checking for that, too, Debbie wrote: Hi all. Recently my neurologist ordered a couple of MRI's for me. One for the cervical spine, the other for the thoracic spine. The one for the thoracic spine came back abnormal. Now they want to do a bone scan on me. I am kind of nervous. Has anyone had this done? WHat should I expect? The neurologist said they are doing it to make sure it isn't cancer or more sarcoid in my body. I would appreciate any info in this matter. Thanks. Luv, Debbie __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2005 Report Share Posted June 12, 2005 Sorry, Debbie..........I have never had a bone scan so cannot help you with this one. Good luck with it. Hugs, Darlene NS Co-Owner/Moderator Bone scan Hi all. Recently my neurologist ordered a couple of MRI's for me. One for the cervical spine, the other for the thoracic spine. The one for the thoracic spine came back abnormal. Now they want to do a bone scan on me. I am kind of nervous. Has anyone had this done? WHat should I expect? The neurologist said they are doing it to make sure it isn't cancer or more sarcoid in my body. I would appreciate any info in this matter. Thanks. Luv, Debbie __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2005 Report Share Posted June 12, 2005 Debbie, My cervical and thoracic spine MRI's also came back abnormal, but my neuro ordered a Spinal tap. Don't know if it is relevant. Amy Debbie wrote: > Hi all. > Recently my neurologist ordered a couple of MRI's for me. One for > the cervical spine, the other for the thoracic spine. The one for the > thoracic spine came back abnormal. Now they want to do a bone scan > on me. I am kind of nervous. Has anyone had this done? WHat should > I expect? The neurologist said they are doing it to make sure it > isn't cancer or more sarcoid in my body. I would appreciate any info > in this matter. Thanks. Luv, Debbie > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2005 Report Share Posted June 12, 2005 Debbie, My cervical and thoracic spine MRI's also came back abnormal, but my neuro ordered a Spinal tap. Don't know if it is relevant. Amy Debbie wrote: > Hi all. > Recently my neurologist ordered a couple of MRI's for me. One for > the cervical spine, the other for the thoracic spine. The one for the > thoracic spine came back abnormal. Now they want to do a bone scan > on me. I am kind of nervous. Has anyone had this done? WHat should > I expect? The neurologist said they are doing it to make sure it > isn't cancer or more sarcoid in my body. I would appreciate any info > in this matter. Thanks. Luv, Debbie > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2005 Report Share Posted June 12, 2005 Debbie, My cervical and thoracic spine MRI's also came back abnormal, but my neuro ordered a Spinal tap. Don't know if it is relevant. Amy Debbie wrote: > Hi all. > Recently my neurologist ordered a couple of MRI's for me. One for > the cervical spine, the other for the thoracic spine. The one for the > thoracic spine came back abnormal. Now they want to do a bone scan > on me. I am kind of nervous. Has anyone had this done? WHat should > I expect? The neurologist said they are doing it to make sure it > isn't cancer or more sarcoid in my body. I would appreciate any info > in this matter. Thanks. Luv, Debbie > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2005 Report Share Posted June 13, 2005 Debbie, did they say what " abnormal " meant? All of my spine MRI's--cervical, thoracic & lumbar--are abnormal because of degenerative changes, herniated disks, stenosis, etc. Other than a cervical spinal fusion in 2000, not much to do about any of it. I did have a bone scan last year because of my persistent hip & thigh pain, which didn't seem to correlate with the MRI's. I can't remember for sure, but I think I just went in and had an injection of dye, then went back later for some kind of full body scan. I never mind any of that stuff; I can doze off in the closed MRI machine. The only thing it showed was degenerative changes of my right knee, which I've torn up twice, and a probable rib fracture! I have no idea when that happened! So, all in all, the test didn't bother me, but didn't enlighten us either. A neurosurgeon had ordered it. As a last resort after that, I was referred to an orthopedic surgeon, who immediately told me I had hip bursitis, gave me a Kenalog (like a steroid, I think) injection into the joint, with immediate pain relief in the hip. Didn't help the thigh, but the hip was a biggie. The relief lasted about 3 months, then I got another, but no insurance by then & it costs $200. So I'll be sucking it up & tolerating the pain in the future. I'm still feeling pretty good, but I'm coming up on the 3 month line; hope I get a few more weeks relief. Rose Re: Bone scan > Debbie, > My cervical and thoracic spine MRI's also came back abnormal, but my > neuro ordered a Spinal tap. Don't know if it is relevant. > Amy > Debbie wrote: > > > Hi all. > > Recently my neurologist ordered a couple of MRI's for me. One for > > the cervical spine, the other for the thoracic spine. The one for the > > thoracic spine came back abnormal. Now they want to do a bone scan > > on me. I am kind of nervous. Has anyone had this done? WHat should > > I expect? The neurologist said they are doing it to make sure it > > isn't cancer or more sarcoid in my body. I would appreciate any info > > in this matter. Thanks. Luv, Debbie > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2005 Report Share Posted June 13, 2005 Debbie, did they say what " abnormal " meant? All of my spine MRI's--cervical, thoracic & lumbar--are abnormal because of degenerative changes, herniated disks, stenosis, etc. Other than a cervical spinal fusion in 2000, not much to do about any of it. I did have a bone scan last year because of my persistent hip & thigh pain, which didn't seem to correlate with the MRI's. I can't remember for sure, but I think I just went in and had an injection of dye, then went back later for some kind of full body scan. I never mind any of that stuff; I can doze off in the closed MRI machine. The only thing it showed was degenerative changes of my right knee, which I've torn up twice, and a probable rib fracture! I have no idea when that happened! So, all in all, the test didn't bother me, but didn't enlighten us either. A neurosurgeon had ordered it. As a last resort after that, I was referred to an orthopedic surgeon, who immediately told me I had hip bursitis, gave me a Kenalog (like a steroid, I think) injection into the joint, with immediate pain relief in the hip. Didn't help the thigh, but the hip was a biggie. The relief lasted about 3 months, then I got another, but no insurance by then & it costs $200. So I'll be sucking it up & tolerating the pain in the future. I'm still feeling pretty good, but I'm coming up on the 3 month line; hope I get a few more weeks relief. Rose Re: Bone scan > Debbie, > My cervical and thoracic spine MRI's also came back abnormal, but my > neuro ordered a Spinal tap. Don't know if it is relevant. > Amy > Debbie wrote: > > > Hi all. > > Recently my neurologist ordered a couple of MRI's for me. One for > > the cervical spine, the other for the thoracic spine. The one for the > > thoracic spine came back abnormal. Now they want to do a bone scan > > on me. I am kind of nervous. Has anyone had this done? WHat should > > I expect? The neurologist said they are doing it to make sure it > > isn't cancer or more sarcoid in my body. I would appreciate any info > > in this matter. Thanks. Luv, Debbie > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2005 Report Share Posted June 13, 2005 Debbie, did they say what " abnormal " meant? All of my spine MRI's--cervical, thoracic & lumbar--are abnormal because of degenerative changes, herniated disks, stenosis, etc. Other than a cervical spinal fusion in 2000, not much to do about any of it. I did have a bone scan last year because of my persistent hip & thigh pain, which didn't seem to correlate with the MRI's. I can't remember for sure, but I think I just went in and had an injection of dye, then went back later for some kind of full body scan. I never mind any of that stuff; I can doze off in the closed MRI machine. The only thing it showed was degenerative changes of my right knee, which I've torn up twice, and a probable rib fracture! I have no idea when that happened! So, all in all, the test didn't bother me, but didn't enlighten us either. A neurosurgeon had ordered it. As a last resort after that, I was referred to an orthopedic surgeon, who immediately told me I had hip bursitis, gave me a Kenalog (like a steroid, I think) injection into the joint, with immediate pain relief in the hip. Didn't help the thigh, but the hip was a biggie. The relief lasted about 3 months, then I got another, but no insurance by then & it costs $200. So I'll be sucking it up & tolerating the pain in the future. I'm still feeling pretty good, but I'm coming up on the 3 month line; hope I get a few more weeks relief. Rose Re: Bone scan > Debbie, > My cervical and thoracic spine MRI's also came back abnormal, but my > neuro ordered a Spinal tap. Don't know if it is relevant. > Amy > Debbie wrote: > > > Hi all. > > Recently my neurologist ordered a couple of MRI's for me. One for > > the cervical spine, the other for the thoracic spine. The one for the > > thoracic spine came back abnormal. Now they want to do a bone scan > > on me. I am kind of nervous. Has anyone had this done? WHat should > > I expect? The neurologist said they are doing it to make sure it > > isn't cancer or more sarcoid in my body. I would appreciate any info > > in this matter. Thanks. Luv, Debbie > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2005 Report Share Posted June 13, 2005 Debbie, I did ask for a folded towel to put under the small of my back and a foam roll for under my knees. I told them I could not lie still for very long without something under my back & knees. Rose Re: Bone scan Dear , Thank you for your prompt response and your information on the bone scan. It doesn't sound as bad as I thought it would be. I am still worried about the results though. I hope they aren't serious. Thanks for your help. Luv, Debbie Solberg wrote: Debbie, for a bone scan they lay you flat on your back...without ANY moving...and run you through the machine. The test takes about 45-60 minutes. Mine took a little longer cuz i moved my leg once. oops. The table was so hard to lay on and I needed three people to help me get up and then I had a tremendous body cramp all up my abdomen. That was painful, too. The hardest part was laying so still for so long on such a hard table. But i've had worse tests. Hope all turns out well. hugs S.......ps I've heard of people getting sarc in the bone marrow and I think they may be checking for that, too, Debbie wrote: Hi all. Recently my neurologist ordered a couple of MRI's for me. One for the cervical spine, the other for the thoracic spine. The one for the thoracic spine came back abnormal. Now they want to do a bone scan on me. I am kind of nervous. Has anyone had this done? WHat should I expect? The neurologist said they are doing it to make sure it isn't cancer or more sarcoid in my body. I would appreciate any info in this matter. Thanks. Luv, Debbie __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2005 Report Share Posted June 13, 2005 Debbie, Like Rose all of my MRI's are normal. The bone scan though is easier and not as "closed" as the traditional MRI. I went in and got the contrast to drink and went back a few hours later for the scan. I have actually had two. Mine are never normal nor abnormal. They see weird things but chalk it up to "pooling of the contrast". Like Rose mine shows rib fractures but almost in every rib. Go figure. Could it be from the NS? Who knows. Take care TerriRose wrote: Debbie, did they say what "abnormal" meant? All of my spineMRI's--cervical, thoracic & lumbar--are abnormal because of degenerativechanges, herniated disks, stenosis, etc. Other than a cervical spinalfusion in 2000, not much to do about any of it. I did have a bone scan lastyear because of my persistent hip & thigh pain, which didn't seem tocorrelate with the MRI's. I can't remember for sure, but I think I justwent in and had an injection of dye, then went back later for some kind offull body scan. I never mind any of that stuff; I can doze off in theclosed MRI machine. The only thing it showed was degenerative changes of myright knee, which I've torn up twice, and a probable rib fracture! I haveno idea when that happened! So, all in all, the test didn't bother me, butdidn't enlighten us either. A neurosurgeon had ordered it. As a lastresort after that, I was referred to an orthopedic surgeon, who immediatelytold me I had hip bursitis, gave me a Kenalog (like a steroid, I think)injection into the joint, with immediate pain relief in the hip. Didn'thelp the thigh, but the hip was a biggie. The relief lasted about 3 months,then I got another, but no insurance by then & it costs $200. So I'll besucking it up & tolerating the pain in the future. I'm still feeling prettygood, but I'm coming up on the 3 month line; hope I get a few more weeksrelief. Rose Re: Bone scan> Debbie,> My cervical and thoracic spine MRI's also came back abnormal, but my> neuro ordered a Spinal tap. Don't know if it is relevant.> Amy> Debbie wrote:>> > Hi all.> > Recently my neurologist ordered a couple of MRI's for me. One for> > the cervical spine, the other for the thoracic spine. The one for the> > thoracic spine came back abnormal. Now they want to do a bone scan> > on me. I am kind of nervous. Has anyone had this done? WHat should> > I expect? The neurologist said they are doing it to make sure it> > isn't cancer or more sarcoid in my body. I would appreciate any info> > in this matter. Thanks. Luv, Debbie> >> > __________________________________________________> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2005 Report Share Posted June 13, 2005 Thanks Terri for your outlook on the bone scans. Luv, Debbie.Terri e wrote: Debbie, Like Rose all of my MRI's are normal. The bone scan though is easier and not as "closed" as the traditional MRI. I went in and got the contrast to drink and went back a few hours later for the scan. I have actually had two. Mine are never normal nor abnormal. They see weird things but chalk it up to "pooling of the contrast". Like Rose mine shows rib fractures but almost in every rib. Go figure. Could it be from the NS? Who knows. Take care TerriRose wrote: Debbie, did they say what "abnormal" meant? All of my spineMRI's--cervical, thoracic & lumbar--are abnormal because of degenerativechanges, herniated disks, stenosis, etc. Other than a cervical spinalfusion in 2000, not much to do about any of it. I did have a bone scan lastyear because of my persistent hip & thigh pain, which didn't seem tocorrelate with the MRI's. I can't remember for sure, but I think I justwent in and had an injection of dye, then went back later for some kind offull body scan. I never mind any of that stuff; I can doze off in theclosed MRI machine. The only thing it showed was degenerative changes of myright knee, which I've torn up twice, and a probable rib fracture! I haveno idea when that happened! So, all in all, the test didn't bother me, butdidn't enlighten us either. A neurosurgeon had ordered it. As a lastresort after that, I was referred to an orthopedic surgeon, who immediatelytold me I had hip bursitis, gave me a Kenalog (like a steroid, I think)injection into the joint, with immediate pain relief in the hip. Didn'thelp the thigh, but the hip was a biggie. The relief lasted about 3 months,then I got another, but no insurance by then & it costs $200. So I'll besucking it up & tolerating the pain in the future. I'm still feeling prettygood, but I'm coming up on the 3 month line; hope I get a few more weeksrelief. Rose Re: Bone scan> Debbie,> My cervical and thoracic spine MRI's also came back abnormal, but my> neuro ordered a Spinal tap. Don't know if it is relevant.> Amy> Debbie wrote:>> > Hi all.> > Recently my neurologist ordered a couple of MRI's for me. One for> > the cervical spine, the other for the thoracic spine. The one for the> > thoracic spine came back abnormal. Now they want to do a bone scan> > on me. I am kind of nervous. Has anyone had this done? WHat should> > I expect? The neurologist said they are doing it to make sure it> > isn't cancer or more sarcoid in my body. I would appreciate any info> > in this matter. Thanks. Luv, Debbie> >> > __________________________________________________> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2005 Report Share Posted June 13, 2005 Rose, Thanks for your advice on the bone scan. I appreciate it. Luv, DebbieRose wrote: Debbie, I did ask for a folded towel to put under the small of my back and a foam roll for under my knees. I told them I could not lie still for very long without something under my back & knees. Rose Re: Bone scan Dear , Thank you for your prompt response and your information on the bone scan. It doesn't sound as bad as I thought it would be. I am still worried about the results though. I hope they aren't serious. Thanks for your help. Luv, Debbie Solberg wrote: Debbie, for a bone scan they lay you flat on your back...without ANY moving...and run you through the machine. The test takes about 45-60 minutes. Mine took a little longer cuz i moved my leg once. oops. The table was so hard to lay on and I needed three people to help me get up and then I had a tremendous body cramp all up my abdomen. That was painful, too. The hardest part was laying so still for so long on such a hard table. But i've had worse tests. Hope all turns out well. hugs S.......ps I've heard of people getting sarc in the bone marrow and I think they may be checking for that, too, Debbie wrote: Hi all. Recently my neurologist ordered a couple of MRI's for me. One for the cervical spine, the other for the thoracic spine. The one for the thoracic spine came back abnormal. Now they want to do a bone scan on me. I am kind of nervous. Has anyone had this done? WHat should I expect? The neurologist said they are doing it to make sure it isn't cancer or more sarcoid in my body. I would appreciate any info in this matter. Thanks. Luv, Debbie __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2005 Report Share Posted June 13, 2005 Rose, The neurologist thinks it may either be more sarcoid or cancer . I don't how she came to that conclusion. I am going myself today to get the records on the orignal MRI's from the Xray dept to get the actual reports so I can read them for myself. I like to keep my medical records updated anyway. Luv, DebbieRose wrote: Debbie, did they say what "abnormal" meant? All of my spineMRI's--cervical, thoracic & lumbar--are abnormal because of degenerativechanges, herniated disks, stenosis, etc. Other than a cervical spinalfusion in 2000, not much to do about any of it. I did have a bone scan lastyear because of my persistent hip & thigh pain, which didn't seem tocorrelate with the MRI's. I can't remember for sure, but I think I justwent in and had an injection of dye, then went back later for some kind offull body scan. I never mind any of that stuff; I can doze off in theclosed MRI machine. The only thing it showed was degenerative changes of myright knee, which I've torn up twice, and a probable rib fracture! I haveno idea when that happened! So, all in all, the test didn't bother me, butdidn't enlighten us either. A neurosurgeon had ordered it. As a lastresort after that, I was referred to an orthopedic surgeon, who immediatelytold me I had hip bursitis, gave me a Kenalog (like a steroid, I think)injection into the joint, with immediate pain relief in the hip. Didn'thelp the thigh, but the hip was a biggie. The relief lasted about 3 months,then I got another, but no insurance by then & it costs $200. So I'll besucking it up & tolerating the pain in the future. I'm still feeling prettygood, but I'm coming up on the 3 month line; hope I get a few more weeksrelief. Rose Re: Bone scan> Debbie,> My cervical and thoracic spine MRI's also came back abnormal, but my> neuro ordered a Spinal tap. Don't know if it is relevant.> Amy> Debbie wrote:>> > Hi all.> > Recently my neurologist ordered a couple of MRI's for me. One for> > the cervical spine, the other for the thoracic spine. The one for the> > thoracic spine came back abnormal. Now they want to do a bone scan> > on me. I am kind of nervous. Has anyone had this done? WHat should> > I expect? The neurologist said they are doing it to make sure it> > isn't cancer or more sarcoid in my body. I would appreciate any info> > in this matter. Thanks. Luv, Debbie> >> > __________________________________________________> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2005 Report Share Posted June 13, 2005 Amy, I had a spinal tap done a year and a half ago and supposedly everything was okay according to the results from that. I don't know if it's relevant either. But thanks for your info . It was helpful and I appreciate it . Luv, DebbieAmy Cashen wrote: Debbie,My cervical and thoracic spine MRI's also came back abnormal, but my neuro ordered a Spinal tap. Don't know if it is relevant.AmyDebbie wrote:> Hi all.> Recently my neurologist ordered a couple of MRI's for me. One for > the cervical spine, the other for the thoracic spine. The one for the > thoracic spine came back abnormal. Now they want to do a bone scan > on me. I am kind of nervous. Has anyone had this done? WHat should > I expect? The neurologist said they are doing it to make sure it > isn't cancer or more sarcoid in my body. I would appreciate any info > in this matter. Thanks. Luv, Debbie>> __________________________________________________> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2005 Report Share Posted June 14, 2005 that's interesting about the rib fractures. I've actually had an intermittent severe pain in the front ribs, just above the liver. It comes on every few months & takes my breath away, then is just very tender for a few days. But this pain isn't where the alleged fracture is. Rose, My last ct scan showed multiple rib fractures over an extended period of time (like the prednisone years), and once in awhile, my DC will manage to trigger another bout of them. I figure with all the steroids, all the immuno-suppressants, and now with the lungs themselves stiffening, the muscle/ligament band that surrounds my thoracic spine is bound to give-- to usually a good cough. As far as the pain above the liver-- drink more fluids. And know that it's your liver fighting the drugs you're using to poison yourself with-- (MILK THISTLE!!!!) as well as the inflammation from the sarc hitting the liver. Nasty bugger. Hugs, gently to not hurt anyone elses ribs, Tracie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2005 Report Share Posted June 15, 2005 Terri, that's interesting about the rib fractures. I've actually had an intermittent severe pain in the front ribs, just above the liver. It comes on every few months & takes my breath away, then is just very tender for a few days. But this pain isn't where the alleged fracture is. Huh. Maybe the radiologists don't know how to read the scans! Nah, surely not. There I go, being cynical again. Rose Re: Bone scan> Debbie,> My cervical and thoracic spine MRI's also came back abnormal, but my> neuro ordered a Spinal tap. Don't know if it is relevant.> Amy> Debbie wrote:>> > Hi all.> > Recently my neurologist ordered a couple of MRI's for me. One for> > the cervical spine, the other for the thoracic spine. The one for the> > thoracic spine came back abnormal. Now they want to do a bone scan> > on me. I am kind of nervous. Has anyone had this done? WHat should> > I expect? The neurologist said they are doing it to make sure it> > isn't cancer or more sarcoid in my body. I would appreciate any info> > in this matter. Thanks. Luv, Debbie> >> > __________________________________________________> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2005 Report Share Posted June 15, 2005 Terri, that's interesting about the rib fractures. I've actually had an intermittent severe pain in the front ribs, just above the liver. It comes on every few months & takes my breath away, then is just very tender for a few days. But this pain isn't where the alleged fracture is. Huh. Maybe the radiologists don't know how to read the scans! Nah, surely not. There I go, being cynical again. Rose Re: Bone scan> Debbie,> My cervical and thoracic spine MRI's also came back abnormal, but my> neuro ordered a Spinal tap. Don't know if it is relevant.> Amy> Debbie wrote:>> > Hi all.> > Recently my neurologist ordered a couple of MRI's for me. One for> > the cervical spine, the other for the thoracic spine. The one for the> > thoracic spine came back abnormal. Now they want to do a bone scan> > on me. I am kind of nervous. Has anyone had this done? WHat should> > I expect? The neurologist said they are doing it to make sure it> > isn't cancer or more sarcoid in my body. I would appreciate any info> > in this matter. Thanks. Luv, Debbie> >> > __________________________________________________> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2005 Report Share Posted June 15, 2005 Terri, that's interesting about the rib fractures. I've actually had an intermittent severe pain in the front ribs, just above the liver. It comes on every few months & takes my breath away, then is just very tender for a few days. But this pain isn't where the alleged fracture is. Huh. Maybe the radiologists don't know how to read the scans! Nah, surely not. There I go, being cynical again. Rose Re: Bone scan> Debbie,> My cervical and thoracic spine MRI's also came back abnormal, but my> neuro ordered a Spinal tap. Don't know if it is relevant.> Amy> Debbie wrote:>> > Hi all.> > Recently my neurologist ordered a couple of MRI's for me. One for> > the cervical spine, the other for the thoracic spine. The one for the> > thoracic spine came back abnormal. Now they want to do a bone scan> > on me. I am kind of nervous. Has anyone had this done? WHat should> > I expect? The neurologist said they are doing it to make sure it> > isn't cancer or more sarcoid in my body. I would appreciate any info> > in this matter. Thanks. Luv, Debbie> >> > __________________________________________________> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2005 Report Share Posted June 15, 2005 Rose, Who knows if they know what is going on or not. Just remember, they put their pants on just like we do. Rose wrote: Terri, that's interesting about the rib fractures. I've actually had an intermittent severe pain in the front ribs, just above the liver. It comes on every few months & takes my breath away, then is just very tender for a few days. But this pain isn't where the alleged fracture is. Huh. Maybe the radiologists don't know how to read the scans! Nah, surely not. There I go, being cynical again. Rose Re: Bone scan> Debbie,> My cervical and thoracic spine MRI's also came back abnormal, but my> neuro ordered a Spinal tap. Don't know if it is relevant.> Amy> Debbie wrote:>> > Hi all.> > Recently my neurologist ordered a couple of MRI's for me. One for> > the cervical spine, the other for the thoracic spine. The one for the> > thoracic spine came back abnormal. Now they want to do a bone scan> > on me. I am kind of nervous. Has anyone had this done? WHat should> > I expect? The neurologist said they are doing it to make sure it> > isn't cancer or more sarcoid in my body. I would appreciate any info> > in this matter. Thanks. Luv, Debbie> >> > __________________________________________________> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2005 Report Share Posted June 15, 2005 Rose, Who knows if they know what is going on or not. Just remember, they put their pants on just like we do. Rose wrote: Terri, that's interesting about the rib fractures. I've actually had an intermittent severe pain in the front ribs, just above the liver. It comes on every few months & takes my breath away, then is just very tender for a few days. But this pain isn't where the alleged fracture is. Huh. Maybe the radiologists don't know how to read the scans! Nah, surely not. There I go, being cynical again. Rose Re: Bone scan> Debbie,> My cervical and thoracic spine MRI's also came back abnormal, but my> neuro ordered a Spinal tap. Don't know if it is relevant.> Amy> Debbie wrote:>> > Hi all.> > Recently my neurologist ordered a couple of MRI's for me. One for> > the cervical spine, the other for the thoracic spine. The one for the> > thoracic spine came back abnormal. Now they want to do a bone scan> > on me. I am kind of nervous. Has anyone had this done? WHat should> > I expect? The neurologist said they are doing it to make sure it> > isn't cancer or more sarcoid in my body. I would appreciate any info> > in this matter. Thanks. Luv, Debbie> >> > __________________________________________________> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2005 Report Share Posted June 15, 2005 Rose, Who knows if they know what is going on or not. Just remember, they put their pants on just like we do. Rose wrote: Terri, that's interesting about the rib fractures. I've actually had an intermittent severe pain in the front ribs, just above the liver. It comes on every few months & takes my breath away, then is just very tender for a few days. But this pain isn't where the alleged fracture is. Huh. Maybe the radiologists don't know how to read the scans! Nah, surely not. There I go, being cynical again. Rose Re: Bone scan> Debbie,> My cervical and thoracic spine MRI's also came back abnormal, but my> neuro ordered a Spinal tap. Don't know if it is relevant.> Amy> Debbie wrote:>> > Hi all.> > Recently my neurologist ordered a couple of MRI's for me. One for> > the cervical spine, the other for the thoracic spine. The one for the> > thoracic spine came back abnormal. Now they want to do a bone scan> > on me. I am kind of nervous. Has anyone had this done? WHat should> > I expect? The neurologist said they are doing it to make sure it> > isn't cancer or more sarcoid in my body. I would appreciate any info> > in this matter. Thanks. Luv, Debbie> >> > __________________________________________________> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2005 Report Share Posted June 15, 2005 Ta-daa! I've been taking milk thistle for several weeks, Racie Tracie! That's very considerate, reminding us of the gentle hugs. Wouldn't that be something, if we met face to face, for instance, you and I, and I gave you an enthusiastic bear hug, fractured a rib,maybe even your sternum, and punctured a lung. I'll keep that in mind. Thanks. Re: Bone scan that's interesting about the rib fractures. I've actually had an intermittent severe pain in the front ribs, just above the liver. It comes on every few months & takes my breath away, then is just very tender for a few days. But this pain isn't where the alleged fracture is.Rose,My last ct scan showed multiple rib fractures over an extended period of time (like the prednisone years), and once in awhile, my DC will manage to trigger another bout of them. I figure with all the steroids, all the immuno-suppressants, and now with the lungs themselves stiffening, the muscle/ligament band that surrounds my thoracic spine is bound to give-- to usually a good cough. As far as the pain above the liver-- drink more fluids. And know that it's your liver fighting the drugs you're using to poison yourself with-- (MILK THISTLE!!!!) as well as the inflammation from the sarc hitting the liver. Nasty bugger.Hugs, gently to not hurt anyone elses ribs,Tracie ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2005 Report Share Posted June 15, 2005 Ta-daa! I've been taking milk thistle for several weeks, Racie Tracie! That's very considerate, reminding us of the gentle hugs. Wouldn't that be something, if we met face to face, for instance, you and I, and I gave you an enthusiastic bear hug, fractured a rib,maybe even your sternum, and punctured a lung. I'll keep that in mind. Thanks. Re: Bone scan that's interesting about the rib fractures. I've actually had an intermittent severe pain in the front ribs, just above the liver. It comes on every few months & takes my breath away, then is just very tender for a few days. But this pain isn't where the alleged fracture is.Rose,My last ct scan showed multiple rib fractures over an extended period of time (like the prednisone years), and once in awhile, my DC will manage to trigger another bout of them. I figure with all the steroids, all the immuno-suppressants, and now with the lungs themselves stiffening, the muscle/ligament band that surrounds my thoracic spine is bound to give-- to usually a good cough. As far as the pain above the liver-- drink more fluids. And know that it's your liver fighting the drugs you're using to poison yourself with-- (MILK THISTLE!!!!) as well as the inflammation from the sarc hitting the liver. Nasty bugger.Hugs, gently to not hurt anyone elses ribs,Tracie ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
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