Guest guest Posted April 23, 2004 Report Share Posted April 23, 2004 In a message dated 4/22/2004 9:19:03 PM Eastern Standard Time, creativespark@... writes: > Given his metal transport, I know he has metal issues, but I really need to > look at the viral, too. > , I started to address viral issues with olive leaf extract, following Dana's example. But I found that it caused *major yeast, just like Dana did, and since I'm in the middle of chelating I decided dealing with viral was going to have to wait. Nell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2004 Report Share Posted April 23, 2004 theres very little that can be done effectively from a medical point of view for viruses because medications are so half pie and have bad side effects. from posters on this board i would not say micheal goldberg had the right idea at all unless medication and escalating side effects in perpetuity is the right idea. my socratic challenege is that autism is unforgiving of intermediaries and bascially to get results you have to do it yourself. i would not separate viral issues out except that it was indicative of immune malfunction and with a broad based supplement and nutritional approach this can be greatly improved. i am noticing (at last) sunbstanial improvements in viral resistance after about three or four months on plain whey with my other supplementation. immunocal might be useful but i have never tried it. for some reason there seems to be an expectation that medicine can cure the ills of of a nutritionally depleted substrate..........lacking iodine, quality dairy fats, skin vitmain d etc and as the totally pukellimanious ads on show its ok to have a disease and look appropriately thoughtfull because 'medicine in here' and its just a wonderful wotld for sure and don't think of causes.... > Dear Listmates, > > I am posting this to both and . Thanks to a strong, Socratic challenge by A & M listmate Jill, I have been spurred into action to move things forward...I sat down today and listed what questions we still have about my kids. > > The VIRAL aspect of autism is one that I really need to look at next. CAN ANYONE RECOMMEND GROUPS THAT CAN HELP ME WITH THIS???? I know about Goldberg. I think he has the right idea but I don't like the thought of SSRI's. He is also disdainful of metals/vaccine theories. If there was a group that could give me the same kind of insights that this one does re: viral issues, it would really help. > > Pfeiffer has said that viral issues are not their area of expertise and suggested maybe we contact Dr. Gupta. I don't know if he has any openings. > > has a lot of symptoms that tell me something viral is going on in addition to his high copper and disordered metal transport. Unexplained rashes, sores around his mouth, and unexplained fevers...These symptoms have at times been cyclical. > > He was also in a 1996-97 vaccine study for the attenuated polio vaccine. He was in the control group, but he did get his APDT (acellular pertussis/diptheria/tetanus), PRP-T (Omnihib), OPV Polio, and HepB vaccines on the same day. I count that to be 6 at a time. Not once, but THREE different times (11/96, 1/97, 3/97). How could we be so trusting? As I write this I feel like throwing up. I hadn't even realized this until I was reviewing his file to ask about the thimerasol content (some of these vaccines aren't even listed anywhere on vaccine info pages...) > > At age 4, he had no antibodies to rubeola (measles). He has what seem to be high reference ranges to Rubella (2.29). > > Until I realized he got six in one day, I had been focusing on the metals....Given his metal transport, I know he has metal issues, but I really need to look at the viral, too. > > PLEASE HELP!!!!!!!!!!!!!!!!! > > Thank you, > > , mom to and (who was not in a vaccine study but still has metals issues) > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2004 Report Share Posted April 23, 2004 PUKELLIMANIOUS!!!!! I think we might be ready for your whey...Show me the whey... We have been gfcf so long, it makes me nervous. But if he can eat pizza, he can eat whey based on how much it has helped you who has a tasmanian devil... , mom to and Re: Game Plan: Need Viral Links > theres very little that can be done effectively from a medical point > of view for viruses because medications are so half pie and have bad > side effects. > > from posters on this board i would not say micheal goldberg had the > right idea at all unless medication and escalating side effects in > perpetuity is the right idea. > > my socratic challenege is that autism is unforgiving of > intermediaries and bascially to get results you have to do it > yourself. > > i would not separate viral issues out except that it was indicative > of immune malfunction and with a broad based supplement and > nutritional approach this can be greatly improved. > > i am noticing (at last) sunbstanial improvements in viral resistance > after about three or four months on plain whey with my other > supplementation. immunocal might be useful but i have never tried it. > > for some reason there seems to be an expectation that medicine can > cure the ills of of a nutritionally depleted > substrate..........lacking iodine, quality dairy fats, skin vitmain d > etc and as the totally pukellimanious ads on show its ok to > have a disease and look appropriately thoughtfull because 'medicine > in here' and its just a wonderful wotld for sure and don't think of > causes.... > > > > > > Dear Listmates, > > > > I am posting this to both and . > Thanks to a strong, Socratic challenge by A & M listmate Jill, I have > been spurred into action to move things forward...I sat down today > and listed what questions we still have about my kids. > > > > The VIRAL aspect of autism is one that I really need to look at > next. CAN ANYONE RECOMMEND GROUPS THAT CAN HELP ME WITH THIS???? I > know about Goldberg. I think he has the right idea but I > don't like the thought of SSRI's. He is also disdainful of > metals/vaccine theories. If there was a group that could give me > the same kind of insights that this one does re: viral issues, it > would really help. > > > > Pfeiffer has said that viral issues are not their area of expertise > and suggested maybe we contact Dr. Gupta. I don't know if he has any > openings. > > > > has a lot of symptoms that tell me something viral is going > on in addition to his high copper and disordered metal transport. > Unexplained rashes, sores around his mouth, and unexplained > fevers...These symptoms have at times been cyclical. > > > > He was also in a 1996-97 vaccine study for the attenuated polio > vaccine. He was in the control group, but he did get his APDT > (acellular pertussis/diptheria/tetanus), PRP-T (Omnihib), OPV Polio, > and HepB vaccines on the same day. I count that to be 6 at a time. > Not once, but THREE different times (11/96, 1/97, 3/97). How could > we be so trusting? As I write this I feel like throwing up. I > hadn't even realized this until I was reviewing his file to ask about > the thimerasol content (some of these vaccines aren't even listed > anywhere on vaccine info pages...) > > > > At age 4, he had no antibodies to rubeola (measles). He has what > seem to be high reference ranges to Rubella (2.29). > > > > Until I realized he got six in one day, I had been focusing on the > metals....Given his metal transport, I know he has metal issues, but > I really need to look at the viral, too. > > > > PLEASE HELP!!!!!!!!!!!!!!!!! > > > > Thank you, > > > > , mom to and (who was not in a vaccine study but > still has metals issues) > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2004 Report Share Posted April 23, 2004 Been there,done that with the viral stuff. Mike had the fevers, mouth sores, etc etc etc. Ojibwa tea may help both viruses and metal issues. Immunolin from Reality Health research may help the immune system in general. both coconut milk and olive leaf extract have anti-viral properties-may be worth looking into. Reality Health also tests minerals, including lithium and molybdenum, both of which have been implicated in the inability to defend against/detox viruses. Because of what we've been through personslly, cyclical fevers/rashes need to be investigated thoroughly. Testing should be done for antibodies to chlamydddia pneumonia, toxoplasmosis, varicella, herpes, epstein barr, and lyme disease. Chronic infection with any of the above can affect both development and immunity. I don't know if you've gotten into the chronic measles/vitamin A research, but mccandless refers to this in her book Children with Starving Brains, and there is a ton of feedback on her vit. A protocol all over the net in many of the group archives. I hope I've given you a few places to start:) Jean [ ] Game Plan: Need Viral Links > Dear Listmates, > > I am posting this to both and . Thanks to a strong, Socratic challenge by A & M listmate Jill, I have been spurred into action to move things forward...I sat down today and listed what questions we still have about my kids. > > The VIRAL aspect of autism is one that I really need to look at next. CAN ANYONE RECOMMEND GROUPS THAT CAN HELP ME WITH THIS???? I know about Goldberg. I think he has the right idea but I don't like the thought of SSRI's. He is also disdainful of metals/vaccine theories. If there was a group that could give me the same kind of insights that this one does re: viral issues, it would really help. > > Pfeiffer has said that viral issues are not their area of expertise and suggested maybe we contact Dr. Gupta. I don't know if he has any openings. > > has a lot of symptoms that tell me something viral is going on in addition to his high copper and disordered metal transport. Unexplained rashes, sores around his mouth, and unexplained fevers...These symptoms have at times been cyclical. > > He was also in a 1996-97 vaccine study for the attenuated polio vaccine. He was in the control group, but he did get his APDT (acellular pertussis/diptheria/tetanus), PRP-T (Omnihib), OPV Polio, and HepB vaccines on the same day. I count that to be 6 at a time. Not once, but THREE different times (11/96, 1/97, 3/97). How could we be so trusting? As I write this I feel like throwing up. I hadn't even realized this until I was reviewing his file to ask about the thimerasol content (some of these vaccines aren't even listed anywhere on vaccine info pages...) > > At age 4, he had no antibodies to rubeola (measles). He has what seem to be high reference ranges to Rubella (2.29). > > Until I realized he got six in one day, I had been focusing on the metals....Given his metal transport, I know he has metal issues, but I really need to look at the viral, too. > > PLEASE HELP!!!!!!!!!!!!!!!!! > > Thank you, > > , mom to and (who was not in a vaccine study but still has metals issues) > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2004 Report Share Posted April 23, 2004 > I am posting this to both and . > The VIRAL aspect of autism is one that I really need to look at next. CAN ANYONE RECOMMEND GROUPS THAT CAN HELP ME WITH THIS???? There are people who post on both the message boards you indicate above, who have done anti-viral with their kids, using rx medications and/or OTC. I don't know of any groups specific to virus, except those affiliated with Dr. Goldberg. However, these two groups you mention, should be able to give you good info. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2004 Report Share Posted April 23, 2004 Dear Dana, I guess I was hoping to find physicians other than Goldberg...You might remember what a nasty time we had when we tried to treat 's high copper on our own just with zinc(absence seizures, screeching, wetting himself). While those things have resolved, they sobered us and led us to Pfeiffer, which has been wonderful when has done things like put his head through windows... I wish we were more courageous, but ... we're not. In the end, I know we have done all of this too slowly, but...we did and have to live with the consequences. But when I look back and think that we might have done a dangerous chelation schedule or started him on SSRI's with Goldberg because we went into a zone that was uncomfortable but seemed promising at the time, I can't say which is better: cautious or fearless...for us. , mom to and [ ] Re: Game Plan: Need Viral Links > I am posting this to both and . > The VIRAL aspect of autism is one that I really need to look at next. CAN ANYONE RECOMMEND GROUPS THAT CAN HELP ME WITH THIS???? There are people who post on both the message boards you indicate above, who have done anti-viral with their kids, using rx medications and/or OTC. I don't know of any groups specific to virus, except those affiliated with Dr. Goldberg. However, these two groups you mention, should be able to give you good info. Dana ======================================================= Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2004 Report Share Posted April 23, 2004 Dear YOU ARE AMAZING!!!! Thank you so much for the places to start....This should keep me busy for a while : ) I LIKE that. It makes me feel there is still hope... Mike sounds like the most like my son I have heard of...Probably the name : ). Can you tell me more about your journey? I would appreciate it so much. Did doctors help you or did you do it on your own? I haven't been able to find a doctor who is familiar with the viral stuff. The tests you are talking about make complete sense knowing what I do about , but I'm not sure whom to ask? Do you think Gupta would be knowledgeable about this? A virologist? Did you do high vitamin A? What roads did you go down before you found what worked? What worked? Thank you again! Blessings on your day! , mom to and [ ] Game Plan: Need Viral Links > Dear Listmates, > > I am posting this to both and . Thanks to a strong, Socratic challenge by A & M listmate Jill, I have been spurred into action to move things forward...I sat down today and listed what questions we still have about my kids. > > The VIRAL aspect of autism is one that I really need to look at next. CAN ANYONE RECOMMEND GROUPS THAT CAN HELP ME WITH THIS???? I know about Goldberg. I think he has the right idea but I don't like the thought of SSRI's. He is also disdainful of metals/vaccine theories. If there was a group that could give me the same kind of insights that this one does re: viral issues, it would really help. > > Pfeiffer has said that viral issues are not their area of expertise and suggested maybe we contact Dr. Gupta. I don't know if he has any openings. > > has a lot of symptoms that tell me something viral is going on in addition to his high copper and disordered metal transport. Unexplained rashes, sores around his mouth, and unexplained fevers...These symptoms have at times been cyclical. > > He was also in a 1996-97 vaccine study for the attenuated polio vaccine. He was in the control group, but he did get his APDT (acellular pertussis/diptheria/tetanus), PRP-T (Omnihib), OPV Polio, and HepB vaccines on the same day. I count that to be 6 at a time. Not once, but THREE different times (11/96, 1/97, 3/97). How could we be so trusting? As I write this I feel like throwing up. I hadn't even realized this until I was reviewing his file to ask about the thimerasol content (some of these vaccines aren't even listed anywhere on vaccine info pages...) > > At age 4, he had no antibodies to rubeola (measles). He has what seem to be high reference ranges to Rubella (2.29). > > Until I realized he got six in one day, I had been focusing on the metals....Given his metal transport, I know he has metal issues, but I really need to look at the viral, too. > > PLEASE HELP!!!!!!!!!!!!!!!!! > > Thank you, > > , mom to and (who was not in a vaccine study but still has metals issues) > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2004 Report Share Posted April 23, 2004 You may also want to look at reading Children With Starving Brains by Dr. McCandless and her group csb. Virus are discussed and treatments as well. Personally we have done high dose Vitamin A with great results after being in Dr. McCandless rubeola study. In addition we have used monolaurin, OLE, GSE, lysine, as well as some other anti-viral supplements off and on. We did use the tea and still occasionally do, our problem being dosage timing. It is difficult to give away from supps and food. Michele -- In , " Dan and " <creativespark@p...> wrote: > Dear > > YOU ARE AMAZING!!!! Thank you so much for the places to start....This should keep me busy for a while : ) I LIKE that. It makes me feel there is still hope... > > Mike sounds like the most like my son I have heard of...Probably the name : ). Can you tell me more about your journey? I would appreciate it so much. Did doctors help you or did you do it on your own? I haven't been able to find a doctor who is familiar with the viral stuff. The tests you are talking about make complete sense knowing what I do about , but I'm not sure whom to ask? Do you think Gupta would be knowledgeable about this? A virologist? > > Did you do high vitamin A? What roads did you go down before you found what worked? What worked? > > Thank you again! Blessings on your day! > > , mom to and > [ ] Game Plan: Need Viral Links > > > > Dear Listmates, > > > > I am posting this to both and . Thanks to > a strong, Socratic challenge by A & M listmate Jill, I have been spurred into > action to move things forward...I sat down today and listed what questions > we still have about my kids. > > > > The VIRAL aspect of autism is one that I really need to look at next. CAN > ANYONE RECOMMEND GROUPS THAT CAN HELP ME WITH THIS???? I know about > Goldberg. I think he has the right idea but I don't like the thought of > SSRI's. He is also disdainful of metals/vaccine theories. If there was a > group that could give me the same kind of insights that this one does re: > viral issues, it would really help. > > > > Pfeiffer has said that viral issues are not their area of expertise and > suggested maybe we contact Dr. Gupta. I don't know if he has any openings. > > > > has a lot of symptoms that tell me something viral is going on in > addition to his high copper and disordered metal transport. Unexplained > rashes, sores around his mouth, and unexplained fevers...These symptoms have > at times been cyclical. > > > > He was also in a 1996-97 vaccine study for the attenuated polio vaccine. > He was in the control group, but he did get his APDT (acellular > pertussis/diptheria/tetanus), PRP-T (Omnihib), OPV Polio, and HepB vaccines > on the same day. I count that to be 6 at a time. Not once, but THREE > different times (11/96, 1/97, 3/97). How could we be so trusting? As I > write this I feel like throwing up. I hadn't even realized this until I > was reviewing his file to ask about the thimerasol content (some of these > vaccines aren't even listed anywhere on vaccine info pages...) > > > > At age 4, he had no antibodies to rubeola (measles). He has what seem to > be high reference ranges to Rubella (2.29). > > > > Until I realized he got six in one day, I had been focusing on the > metals....Given his metal transport, I know he has metal issues, but I > really need to look at the viral, too. > > > > PLEASE HELP!!!!!!!!!!!!!!!!! > > > > Thank you, > > > > , mom to and (who was not in a vaccine study but still > has metals issues) > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2004 Report Share Posted April 23, 2004 lol sent by accident before it was ready to go Dr. Braught helped me understand the role of cortisol in immunity and healing. He also helped me to understand where the viruses were coming from. I would expect that Dr. Gupta would know about all of the above mentioned. Dr. Mc Candless would probably be wonderful. ike and I have started a web group on From Diagnosis to Recovery, where idscussions like this are welcome. Please join us [ ] Game Plan: Need Viral Links > > > > > > > Dear Listmates, > > > > > > I am posting this to both and . Thanks > to > > a strong, Socratic challenge by A & M listmate Jill, I have been spurred > into > > action to move things forward...I sat down today and listed what > questions > > we still have about my kids. > > > > > > The VIRAL aspect of autism is one that I really need to look at next. > CAN > > ANYONE RECOMMEND GROUPS THAT CAN HELP ME WITH THIS???? I know about > > > Goldberg. I think he has the right idea but I don't like the thought of > > SSRI's. He is also disdainful of metals/vaccine theories. If there > was a > > group that could give me the same kind of insights that this one does > re: > > viral issues, it would really help. > > > > > > Pfeiffer has said that viral issues are not their area of expertise > and > > suggested maybe we contact Dr. Gupta. I don't know if he has any > openings. > > > > > > has a lot of symptoms that tell me something viral is going on > in > > addition to his high copper and disordered metal transport. Unexplained > > rashes, sores around his mouth, and unexplained fevers...These symptoms > have > > at times been cyclical. > > > > > > He was also in a 1996-97 vaccine study for the attenuated polio > vaccine. > > He was in the control group, but he did get his APDT (acellular > > pertussis/diptheria/tetanus), PRP-T (Omnihib), OPV Polio, and HepB > vaccines > > on the same day. I count that to be 6 at a time. Not once, but THREE > > different times (11/96, 1/97, 3/97). How could we be so trusting? As I > > write this I feel like throwing up. I hadn't even realized this until > I > > was reviewing his file to ask about the thimerasol content (some of > these > > vaccines aren't even listed anywhere on vaccine info pages...) > > > > > > At age 4, he had no antibodies to rubeola (measles). He has what seem > to > > be high reference ranges to Rubella (2.29). > > > > > > Until I realized he got six in one day, I had been focusing on the > > metals....Given his metal transport, I know he has metal issues, but I > > really need to look at the viral, too. > > > > > > PLEASE HELP!!!!!!!!!!!!!!!!! > > > > > > Thank you, > > > > > > , mom to and (who was not in a vaccine study but > still > > has metals issues) > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2004 Report Share Posted April 23, 2004 Can you explain the cortisol connection and how you addressed this? Thanks, Michele -- In , " Curtin " <jcurtin@r...> wrote: > lol sent by accident before it was ready to go > Dr. Braught helped me understand the role of cortisol in immunity and > healing. He also helped me to understand where the viruses were coming > from. > I would expect that Dr. Gupta would know about all of the above mentioned. > Dr. Mc Candless would probably be wonderful. > ike and I have started a web group on From Diagnosis to Recovery, > where idscussions like this are welcome. Please join us > [ ] Game Plan: Need Viral Links > > > > > > > > > > Dear Listmates, > > > > > > > > I am posting this to both and . > Thanks > > to > > > a strong, Socratic challenge by A & M listmate Jill, I have been spurred > > into > > > action to move things forward...I sat down today and listed what > > questions > > > we still have about my kids. > > > > > > > > The VIRAL aspect of autism is one that I really need to look at > next. > > CAN > > > ANYONE RECOMMEND GROUPS THAT CAN HELP ME WITH THIS???? I know about > > > > > Goldberg. I think he has the right idea but I don't like the thought > of > > > SSRI's. He is also disdainful of metals/vaccine theories. If there > > was a > > > group that could give me the same kind of insights that this one does > > re: > > > viral issues, it would really help. > > > > > > > > Pfeiffer has said that viral issues are not their area of expertise > > and > > > suggested maybe we contact Dr. Gupta. I don't know if he has any > > openings. > > > > > > > > has a lot of symptoms that tell me something viral is going > on > > in > > > addition to his high copper and disordered metal transport. > Unexplained > > > rashes, sores around his mouth, and unexplained fevers...These > symptoms > > have > > > at times been cyclical. > > > > > > > > He was also in a 1996-97 vaccine study for the attenuated polio > > vaccine. > > > He was in the control group, but he did get his APDT (acellular > > > pertussis/diptheria/tetanus), PRP-T (Omnihib), OPV Polio, and HepB > > vaccines > > > on the same day. I count that to be 6 at a time. Not once, but THREE > > > different times (11/96, 1/97, 3/97). How could we be so trusting? As > I > > > write this I feel like throwing up. I hadn't even realized this > until > > I > > > was reviewing his file to ask about the thimerasol content (some of > > these > > > vaccines aren't even listed anywhere on vaccine info pages...) > > > > > > > > At age 4, he had no antibodies to rubeola (measles). He has what > seem > > to > > > be high reference ranges to Rubella (2.29). > > > > > > > > Until I realized he got six in one day, I had been focusing on the > > > metals....Given his metal transport, I know he has metal issues, but I > > > really need to look at the viral, too. > > > > > > > > PLEASE HELP!!!!!!!!!!!!!!!!! > > > > > > > > Thank you, > > > > > > > > , mom to and (who was not in a vaccine study but > > still > > > has metals issues) > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2004 Report Share Posted April 23, 2004 There is a doctor in Austin, Texas. His name is Kendall . The Phone number is 512-338-9840. They have a website it is www.neca.us. We have gone to see him twice so far and we are starting to see some new things with our son. Let me know if I can answer any questions. Robin Re: [ ] Re: Game Plan: Need Viral Links Dear Dana, I guess I was hoping to find physicians other than Goldberg...You might remember what a nasty time we had when we tried to treat 's high copper on our own just with zinc(absence seizures, screeching, wetting himself). While those things have resolved, they sobered us and led us to Pfeiffer, which has been wonderful when has done things like put his head through windows... I wish we were more courageous, but ... we're not. In the end, I know we have done all of this too slowly, but...we did and have to live with the consequences. But when I look back and think that we might have done a dangerous chelation schedule or started him on SSRI's with Goldberg because we went into a zone that was uncomfortable but seemed promising at the time, I can't say which is better: cautious or fearless...for us. , mom to and [ ] Re: Game Plan: Need Viral Links > I am posting this to both and . > The VIRAL aspect of autism is one that I really need to look at next. CAN ANYONE RECOMMEND GROUPS THAT CAN HELP ME WITH THIS???? There are people who post on both the message boards you indicate above, who have done anti-viral with their kids, using rx medications and/or OTC. I don't know of any groups specific to virus, except those affiliated with Dr. Goldberg. However, these two groups you mention, should be able to give you good info. Dana ======================================================= Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2004 Report Share Posted April 23, 2004 Dear Robin, Thank you so much for your reply! Did Dr. do any testing? What kind of treatment did he recommend? What kind of changes are you seeing? How old is your son? Lots of questions...Thank you for answering! , mom to and [ ] Re: Game Plan: Need Viral Links > I am posting this to both and . > The VIRAL aspect of autism is one that I really need to look at next. CAN ANYONE RECOMMEND GROUPS THAT CAN HELP ME WITH THIS???? There are people who post on both the message boards you indicate above, who have done anti-viral with their kids, using rx medications and/or OTC. I don't know of any groups specific to virus, except those affiliated with Dr. Goldberg. However, these two groups you mention, should be able to give you good info. Dana ======================================================= Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2004 Report Share Posted April 24, 2004 >>You might remember what a nasty time we had when we tried to treat 's high copper on our own just with zinc(absence seizures, screeching, wetting himself). I remember that, yes. > I wish we were more courageous, but ... we're not. In the end, I know we have done all of this too slowly, but...we did and have to live with the consequences. Each of us should do what we believe is right. It is not wrong to be " less courageous " . > But when I look back and think that we might have done a dangerous chelation schedule or started him on SSRI's with Goldberg because we went into a zone that was uncomfortable but seemed promising at the time, I can't say which is better: cautious or fearless...for us. For anti-viral, I have used high dose vitamin A protocol, olive leaf extract, and Lauricidin. I can give you info on those, if you want. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2004 Report Share Posted April 24, 2004 There is a list for people seeing Dr. Kendall in Texas or considering anti-viral treatment. Sorry, I don't recall the name of it but perhaps doing a search on groups of " virus & " may bring it up. You may also want to do a search on " Binstock & HHV6 " since she wrote a paper on how HHV6 seemed to be affecting many spectrum kids. Gaylen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2004 Report Share Posted April 24, 2004 , Dr. did do testing. He tests the ears for certain responses that are like reflexes. He also does tests on more cooperative children that deal with balance and the vestibular function. We have not done those, as is not able to follow directions very well yet. If you call them they will send you a packet explaining what there testing is. The treatment is no now is a homeopathic patch that is growth hormone, thyroid medication and Famvir an antiviral plus lots of EFA's. The treatments vary form person to person depending what is found. We also take Cortisol during stressful times like sickness and when has a lot of seizures. We are seeing some changes that we are quite excited about. is having less seizures (one of our big issues). We have gone from having 2-3 seizures every other day to about 1 seizure once a week. is starting to follow simple directions like come to the table or get the ball etc. His attending has improved. He actually seems to be a part of our world more and more of the time. We have gotten some more eye contact. He has answered a question with a uh-huh. And this week he even began to imitate opening his mouth when we open ours. These may not seem like a lot to some people but for a child who has been nonverbal and totally unresponsive to directions these are major improvements to us. Especially since is 11. Let me know if I can answer any more questions. Robin Re: [ ] Re: Game Plan: Need Viral Links Dear Robin, Thank you so much for your reply! Did Dr. do any testing? What kind of treatment did he recommend? What kind of changes are you seeing? How old is your son? Lots of questions...Thank you for answering! , mom to and [ ] Re: Game Plan: Need Viral Links > I am posting this to both and . > The VIRAL aspect of autism is one that I really need to look at next. CAN ANYONE RECOMMEND GROUPS THAT CAN HELP ME WITH THIS???? There are people who post on both the message boards you indicate above, who have done anti-viral with their kids, using rx medications and/or OTC. I don't know of any groups specific to virus, except those affiliated with Dr. Goldberg. However, these two groups you mention, should be able to give you good info. Dana ======================================================= Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2004 Report Share Posted April 25, 2004 Dear Dana, Thank you. We are starting Ojibwa Tea this week. I am going to break down and buy McCandless' book, I think...I have reserved it at the library but I'm number five on the holds list and it's been months! Sigh. I think we will try to consult with Dr. Gupta, too. I received a very sweet e-mail from the grandson of the man who developed Lauricidin suggesting it might help . I want to try it, but your stories of yeast have me a cautious. Did you do Vitamin A, then OLE, then Lauricidin, or did you do them all together? Thanks! [ ] Re: Game Plan: Need Viral Links >>You might remember what a nasty time we had when we tried to treat 's high copper on our own just with zinc(absence seizures, screeching, wetting himself). I remember that, yes. > I wish we were more courageous, but ... we're not. In the end, I know we have done all of this too slowly, but...we did and have to live with the consequences. Each of us should do what we believe is right. It is not wrong to be " less courageous " . > But when I look back and think that we might have done a dangerous chelation schedule or started him on SSRI's with Goldberg because we went into a zone that was uncomfortable but seemed promising at the time, I can't say which is better: cautious or fearless...for us. For anti-viral, I have used high dose vitamin A protocol, olive leaf extract, and Lauricidin. I can give you info on those, if you want. Dana ======================================================= Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2004 Report Share Posted April 25, 2004 WOW, ROBIN! Those are incredible changes. I am so happy for you. I pray that you have found something that will take far. The seizures are so scary. I have put Dr. 's name on my list of " Anti-Viral Possibilities. " May God continue to bless you and your family. Thank you for your time. , mom to and [ ] Re: Game Plan: Need Viral Links > I am posting this to both and . > The VIRAL aspect of autism is one that I really need to look at next. CAN ANYONE RECOMMEND GROUPS THAT CAN HELP ME WITH THIS???? There are people who post on both the message boards you indicate above, who have done anti-viral with their kids, using rx medications and/or OTC. I don't know of any groups specific to virus, except those affiliated with Dr. Goldberg. However, these two groups you mention, should be able to give you good info. Dana ======================================================= Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2004 Report Share Posted April 25, 2004 Thanks, Gaylen! Another mom mentioned Dr. , too. I will persue it... Thank you! , mom to and Re: [ ] Game Plan: Need Viral Links There is a list for people seeing Dr. Kendall in Texas or considering anti-viral treatment. Sorry, I don't recall the name of it but perhaps doing a search on groups of " virus & " may bring it up. You may also want to do a search on " Binstock & HHV6 " since she wrote a paper on how HHV6 seemed to be affecting many spectrum kids. Gaylen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2004 Report Share Posted April 25, 2004 > I received a very sweet e-mail from the grandson of the man who developed Lauricidin suggesting it might help . I want to try it, but your stories of yeast have me a cautious. Yep, major yeast issues. At first doctors and others told me basically that I was either lying, which they did not believe, or my observations were incorrect, which they thought was more likely. But now that many more parents have reported yeast, some with test results, I think they realize it now. > Did you do Vitamin A, then OLE, then Lauricidin, or did you do them all together? Vitamin A first, then added OLE with the second protocol, then Lauricidin alone, then OLE alone, then both together, now just Lauricidin. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2004 Report Share Posted April 25, 2004 Thanks, Dana. Are you part of Dr. McCandless' e-group? If so, do you find it helpful? Thanks! [ ] Re: Game Plan: Need Viral Links > I received a very sweet e-mail from the grandson of the man who developed Lauricidin suggesting it might help . I want to try it, but your stories of yeast have me a cautious. Yep, major yeast issues. At first doctors and others told me basically that I was either lying, which they did not believe, or my observations were incorrect, which they thought was more likely. But now that many more parents have reported yeast, some with test results, I think they realize it now. > Did you do Vitamin A, then OLE, then Lauricidin, or did you do them all together? Vitamin A first, then added OLE with the second protocol, then Lauricidin alone, then OLE alone, then both together, now just Lauricidin. Dana ======================================================= Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2004 Report Share Posted April 26, 2004 > Thanks, Dana. Are you part of Dr. McCandless' e-group? If so, do you find it helpful? No I am not. I did not purchase her book, and buying and reading her book is a requirement to join. However, an e-friend of mine did send me a copy, but I have not joined her list. I do occasionally send her private email tho, and she has given me good information and has allowed me to post her vitamin A recommendations on my site. Dana Quote Link to comment Share on other sites More sharing options...
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