Re: Any Recovered ASD Girls?

July 12, 2004

Years ago, I was in contact with a family of a girl in San , TX, who

seemed to have fully recovered from autism. I say " seemed to " because I

haven't kept in touch with them as she's grown older to see if some other issues

cropped up later as they sometimes do in kids deemed " recovered. " Last time a

friend of mine had visited with them, when the child was age 6, she was totally

indistinguishable. I think the Son-Rise program was the only thing they did

with her, but there may have been some biomedical stuff. This was about six

years ago though -- before much of the biomed stuff became popular.

Also, there was another girl who appeared on a Son-Rise video with my son

several years ago who certainly appeared recovered. I don't know the family so

can only go from what they showed on the video, but the difference between the

beginning with her screaming and head banging to then seeing her in a

classroom, chatting with friends and performing in a show was very dramatic.

Gaylen

July 12, 2004

> Years ago, I was in contact with a family of a girl in San

, TX, who

> seemed to have fully recovered from autism. I say " seemed to "

because I

> haven't kept in touch with them as she's grown older to see if

some other issues

> cropped up later as they sometimes do in kids deemed " recovered. "

Last time a

> friend of mine had visited with them, when the child was age 6,

she was totally

> indistinguishable. I think the Son-Rise program was the only

thing they did

> with her, but there may have been some biomedical stuff. This was

about six

> years ago though -- before much of the biomed stuff became

popular.

>

> Also, there was another girl who appeared on a Son-Rise video with

my son

I would like to know at what point would you concider an autistic

child " RECOVERED " . My son at the age of 6.7 is alot better than when

he was diagnosed at 3 years old. In fact just a few months ago, a

psychologist did a GARS test and it showed that he was barely

autistic. All we have been doing is in home Lovaas therapy and

school full time. I think from seeing my son grow up that with a

little intervention they will slowly grow out of it, if they are

higher functioning autistic. Recovered means they did something to

remove the autism from the child. I would like to know what their

secret is like everybody else here. Lindy

> several years ago who certainly appeared recovered. I don't know

the family so

> can only go from what they showed on the video, but the difference

between the

> beginning with her screaming and head banging to then seeing her

in a

> classroom, chatting with friends and performing in a show was very

dramatic.

> Gaylen

>

July 12, 2004

Lindy,

I am glad for you that your child did so well with only educational

intervention. Each child is different and some seem to outgrow it as

you said, some go worse with the years, some are " recovered " just by

following a gluten and casein free diet...

My son was severely autistic (non verbal, no receptive language,

stimming all day long), severely mercury poisoned per blood test and

hair test. I do not see how educational intervention could have

helped him w/out biomedical interventions. Today, 16 months later,

he is not recovered, I don't know if he will be one day, but he goes

to a regular school, does not need speech or OT anymore and only a

few people could guess he is on the spectrum. I feel chelation did

that " something to remove the autism from the child. "

My secret? I did 50 rounds of chelation per Andy Cutler's protocol on

my very toxic child among tons of other biomedical things. I spend an

average of 3 to 5 hours everyday (I should say everynight!) on the

net researching. It is hard work and nobody has a miracle cure, you

have to find out what might work for your child.

Go to the files section and look for how to do a hair test. That

would give you an idea if your child is toxic and if chelation would

be worth a try.

> I would like to know at what point would you concider an autistic

> child " RECOVERED " . My son at the age of 6.7 is alot better than

when

> he was diagnosed at 3 years old. In fact just a few months ago, a

> psychologist did a GARS test and it showed that he was barely

> autistic. All we have been doing is in home Lovaas therapy and

> school full time. I think from seeing my son grow up that with a

> little intervention they will slowly grow out of it, if they are

> higher functioning autistic. Recovered means they did something to

> remove the autism from the child. I would like to know what their

> secret is like everybody else here. Lindy

July 13, 2004

I have a daughter who is now considered indistinguishable from her

peers. She just finished kindergarten and her math and reading were

measured at the 2nd grade level. She has a best friend and her

classmates all love her. Her teacher said people are drawn to her,

adults and children alike.

We are GFCF and are still doing chelation as we still have some

residual issues such as hand flapping when really excited. But we

have also done ABA/VB for two years. We recently had a discussion on

our ABA chat group about recovery. One mother who has been a member

of our organization for 10 years wrote the following information...

(some material edited to delete names and personal

information)...also this is written from a purely ABA perspective

from someone who knows ABA inside and out..........

This is the deal with recovery. There is not a day when all of the

sudden, your child is recovered. There is likely to be some residual

for a while that fades. Flapping is one of them. It does go away.

flapping sometimes persists after everything else is perfectly

normal. One girl said she just liked to do it, but she eventually

stopped. There is another boy that flapped for a while after

everything else was fine.

There are many recovered kids. I know over 50 personally. From time

to time I see the parents and their kids and all is fine. They have

the normal family worries and usually the kid that recovered from

autism is the one child they are not worried about.

Sometimes families will move after their kid reaches normal

functioning so people can just accept they don't meet criteria

anymore. Then there is that thing that these kids have to live with

of having once been autistic. Many of them become some kind of

poster child and they really don't like that. This is the reason

Maurice changed her name and has shielded her children.

She does not want them to become poster children for recovery being

possible.

Recovery means that they are able to do everything their typical

peers can do and experienced evaluators would not pick them out as

the child that once had autism.

This is what the UCLA (Lovaas) study did. It paired each recovered

child with a typical child. They were sent to evaluators and the

evaluators were not told which one of the kids once had autism. The

children were both evaluated and found to be within normal range.

The public school really doesn't know how to transition... they need

the expertise of a good BA. But if you rush transition and don't do

it right, your kid will not make it or it may take much longer. Many

of the kids that did all right until 3rd grade had their transition

rushed. Then they needed to go back to their ABA program in 3rd

grade.

One girl did not transition to regular education until she was a

senior in high school. She is the exception and not the rule, but

some kids it just takes a long time. About half the kids should be

able to transition to regular education without supports by 1st grade

with good ABA programing. This is what the research indicates.

Sometimes you have to go back and do a tune up from time to time to

work on some social programing or something else that is hanging the

kid up.

You know your kid is recovered when they have friends that they made

on their own and they move from grade to grade like typical kids.

The other thing I have noticed about most recovered kids is that they

don't remember that much about being autistic. It is like they were

unconscious. The have some vague memories, but they were just in

another world.

The same girl from above had no real memories until age 11 when she

started to become aware. She remembers some tantrums but that is

about it. She is now a college student studying special ed.

One boy, now a grown man who recovered at age 6, stated he had no

memories prior to recovery except staring at his cereal bowl.

Parents often sense when they are close. They just know it is

coming, but are usually guarded. Then they realize they are done.

This is what I have heard over and over again.

The other thing is you start to see the quality of life for the

entire family get so much better. Everyone is happier. There is

normalcy in the home.

Those were her comments and we have started writing a " recovery zone "

article in our newsletter. While, most parents these days, do as we

did and use a variety of approaches, making it hard to pinpoint which

one had the greatest affect, I have never seen any studies or heard

many personal reports showing diet alone bringing about recovery, or

chelation alone. But there are many kids documented and studied

where ABA alone brought about their recovery. I would have not done

it any other way, than using all; ABA, chelation, and GFCF, but there

are cases of kids recovered with ABA alone. I do believe we had to

deal with the heavy metal toxicity and a horribly damaged immune

system, and because of that, I believe our ABA was that much more

affective. Plus, I believe it is a gift of knowledge that I will

always have to help with anything that arises throughout my

daughter's life. Errorless teaching I love, positive support I love,

pairing with reinforcements I love. ABA done well, works for anyone,

not just Autistic kids. One parent of a recovered child stated that

she wished she would have done ABA for every one of her kids, typical

included, as the one recovered with ABA is the only child at that

time she did not have concerns about.

I am surprised by the original post that she has found girls more

severely affected than boys. In my personal experiences girls are

usually the most mildly affected. Which always made sense since Boyd

Haley showed that mercury in a testosterone bath increased its cell

killing ability, enhanced it. While, mercury in an estrogen bath,

had its action actually slowed; the estrogen helped protect cells. As

we know every child is different and other factors may come into play

in every circumstance.

July 13, 2004

> I am surprised by the original post that she has found girls more

> severely affected than boys. In my personal experiences girls are

> usually the most mildly affected. Which always made sense since

Boyd

> Haley showed that mercury in a testosterone bath increased its cell

> killing ability, enhanced it. While, mercury in an estrogen bath,

> had its action actually slowed; the estrogen helped protect cells.

As

> we know every child is different and other factors may come into

play

> in every circumstance.

It's my uneducated theory from reading posts and researching all this

that while estrogen can somehow protect cells from mercury or

testosterone increases damage, the girls are more prone to seizures

as they get older due to estrogen and hormonal flucuations. I sort

of remember reading that Amy Holmes also said that for a girl to be

hurt it had to be a tremendously large amount of mercury which may

also explain some of the differences in kids.

Michele

July 13, 2004

> I would like to know at what point would you concider an autistic

> child " RECOVERED " .

Different people have different definitions.

Many people believe " recovered " is basically synonymous with

" indistinguishable " .

My son is " recovered from autism " , meaning he no longer would qualify

for a diagnosis of autism. However, he is not yet age-appropriate,

because the metals and viruses which caused him to be autistic, altho

they are now gone from his body, caused significant injury and he

still is working on catching up to be age-appropriate.

>>I think from seeing my son grow up that with a

> little intervention they will slowly grow out of it, if they are

> higher functioning autistic.

My son was severely low functioning. ABA did basically nothing for

him until I began biomedical interventions. It is very nice that you

had such good results with ABA only.

>> Recovered means they did something to

> remove the autism from the child. I would like to know what their

> secret is like everybody else here.

Metals and viruses, for my son.

Dana

July 13, 2004

My son is now nearly indistinguishable. However, he is not

recovered. I will consider him recovered only when his body works as

God intended it to and he doesn't need a special diet and handfuls of

supplements to help him function. When his gut is recovered to the

point his poops are normal and he absorbs all this foods. When his

allergies diminish, his thyroid is normal, and all the other damage

done to his little body is healed. May never happen, but that's my

recovery goal. Kim

> > I would like to know at what point would you concider an autistic

> > child " RECOVERED " .

>

> Different people have different definitions.

>

> Many people believe " recovered " is basically synonymous with

> " indistinguishable " .

>

> My son is " recovered from autism " , meaning he no longer would

qualify

> for a diagnosis of autism. However, he is not yet age-appropriate,

> because the metals and viruses which caused him to be autistic,

altho

> they are now gone from his body, caused significant injury and he

> still is working on catching up to be age-appropriate.

>

> >>I think from seeing my son grow up that with a

> > little intervention they will slowly grow out of it, if they are

> > higher functioning autistic.

>

> My son was severely low functioning. ABA did basically nothing for

> him until I began biomedical interventions. It is very nice that

you

> had such good results with ABA only.

>

> >> Recovered means they did something to

> > remove the autism from the child. I would like to know what their

> > secret is like everybody else here.

>

> Metals and viruses, for my son.

>

> Dana

July 13, 2004

Hi Lindy,

My son said he felt different and knew he didn't have " it " anymore. He has

had memories of situations that he couldn't explain back when he didn't

talk. He is becoming so aware of all that is going on around him.While on

vacation last week he saw a boy about his age and commented that he thought

the boy had autism by the way he was acting.I also thought that about the

child but didn't say it.He recognized the signs which I think is

incredible.Yesterday he actually corrected my grammar....all I could say was

" wow " . He is also telling me now that the supplements make him feel funny so

I am wondering if he needs the high dose vitamins anymore.I have taken him

off all supps except culterelle and monolaurin for 3 days now. We'll see

what happens as far as any negative behavior or responses. I have thought

that he would have to be on all supps for the rest of his life ,and he may,I

just don't know yet.People who meet him don't sense anything wrong and he

acted more typical on vacation than my 13 yr old niece that was with us.I

think that when I started treating him with lots of natural antivirals

listed on ccid.org that I saw a definite turn around.The last piece of

recent improvement was when we gave folic acid.I have much to do in the next

few weeks and lots of company coming but will try at some point in the near

future to try to write down all I did for my son to recover him.I will

answer any questions asked of me privately in the meantime.

R

July 13, 2004

Hi Donna,

Something popped into my head when I read your post . If estrogen protects

the cells more than testoterone then the assault on girls that have autism

would be more damaging and therefore probably take longer to detox.Also, the

thing that popped into my mind was that I wonder if giving natural supps

that would increase estrogen would help the girls.Maybe you could check out

some sites dealing with menopause or some people on the list here could make

suggestions.This is basically how I have approached my sons

protocol.....thru trial and error.

R

July 14, 2004

Yes, but how wonderful that he fits in!!! I would take that in a heartbeat!

Barb

[ ] Re: Any Recovered ASD Girls?

> My son is now nearly indistinguishable. However, he is not

> recovered. I will consider him recovered only when his body works as

> God intended it to and he doesn't need a special diet and handfuls of

> supplements to help him function. When his gut is recovered to the

> point his poops are normal and he absorbs all this foods. When his

> allergies diminish, his thyroid is normal, and all the other damage

> done to his little body is healed. May never happen, but that's my

> recovery goal. Kim

>

> > > I would like to know at what point would you concider an autistic

> > > child " RECOVERED " .

> >

> > Different people have different definitions.

> >

> > Many people believe " recovered " is basically synonymous with

> > " indistinguishable " .

> >

> > My son is " recovered from autism " , meaning he no longer would

> qualify

> > for a diagnosis of autism. However, he is not yet age-appropriate,

> > because the metals and viruses which caused him to be autistic,

> altho

> > they are now gone from his body, caused significant injury and he

> > still is working on catching up to be age-appropriate.

> >

> > >>I think from seeing my son grow up that with a

> > > little intervention they will slowly grow out of it, if they are

> > > higher functioning autistic.

> >

> > My son was severely low functioning. ABA did basically nothing for

> > him until I began biomedical interventions. It is very nice that

> you

> > had such good results with ABA only.

> >

> > >> Recovered means they did something to

> > > remove the autism from the child. I would like to know what their

> > > secret is like everybody else here.

> >

> > Metals and viruses, for my son.

> >

> > Dana

>

> =======================================================

>

July 14, 2004

,

Interesting. My 18yr old daughter is mostly healed from metals &

virus but there are some issues which I think may be related to

hormonal problems. She is on TD progesterone as estrogen seems to be

more of a problem. Do you know what sups increase or mimic estrogen?

Michele

> Hi Donna,

> Something popped into my head when I read your post . If estrogen

protects

> the cells more than testoterone then the assault on girls that have

autism

> would be more damaging and therefore probably take longer to

detox.Also, the

> thing that popped into my mind was that I wonder if giving natural

supps

> that would increase estrogen would help the girls.Maybe you could

check out

> some sites dealing with menopause or some people on the list here

could make

> suggestions.This is basically how I have approached my sons

> protocol.....thru trial and error.

> R

July 14, 2004

Seeds and soya I think.

Dagmar.

Do you know what sups increase or mimic estrogen?

July 14, 2004

> My son is now nearly indistinguishable. However, he is not

> recovered. I will consider him recovered only when his body works as

> God intended it to and he doesn't need a special diet and handfuls of

> supplements to help him function. When his gut is recovered to the

> point his poops are normal and he absorbs all this foods. When his

> allergies diminish, his thyroid is normal, and all the other damage

> done to his little body is healed. May never happen, but that's my

> recovery goal.

And my son is opposite. He can eat anything he wants. I just did a

supplement change [which I will post about in a site update over the

weekend] which appears to have kicked the virus issue entirely, and

now he appears to need almost no supplements.

His body appears healed, but he is chronologically age 8 but

developmentally age 3. It will probably be a loooooong time before he

is indistinguishable, but at least he has that option now!

Good luck with your child.

Dana

July 14, 2004

Okay, now you've got my attention! My son has motor issues, but more on his

right side than his left, and I think the immune panel showed he had the

HHV6 stuff going on (What is the other name for this?).

We've not dealt with viral stuff at all, so what are people giving for this?

Thanks!

Barb

Re: [ ] Re: Any Recovered ASD Girls?

> In a message dated 7/14/2004 9:09:51 AM Central Standard Time,

> danasview@... writes:

> I just did a supplement change [which I will post about in a site update

over

> the

> weekend] which appears to have kicked the virus issue entirely, and

> now he appears to need almost no supplements.

> Dana,

>

> What supplement is this? And, would you mind sharing what symptoms/tests

> you've seen that makes you feel that he has kicked the virus issue?

>

> Also, did your son have the right sided motor issues many of the kids with

> HHV6 problems had early on? Has he had lingering motor problems from the

virus?

> Gaylen

>

July 14, 2004

Barb,

I think we too have licked the viral stuff. And yes although I

hadn't heard this before when my daughter was a toddler she had a

slight problem with her right side. (Never tested for HHV6) EBV &

Measles seemed to be problems though. Try lauricidin, Olive leaf

extract and GSE. Also maybe vitamin A (we did high dose), colostrum,

and I also threw in Ambrotose AO. I still give lauricidin, OLE,

small dose A and Ambrotose and from everything I can tell it all

worked.

Michele

> Okay, now you've got my attention! My son has motor issues, but

more on his

> right side than his left, and I think the immune panel showed he

had the

> HHV6 stuff going on (What is the other name for this?).

>

> We've not dealt with viral stuff at all, so what are people giving

for this?

>

> Thanks!

> Barb

> Re: [ ] Re: Any Recovered ASD Girls?

>

> > In a message dated 7/14/2004 9:09:51 AM Central Standard Time,

> > danasview@y... writes:

> > I just did a supplement change [which I will post about in a site

update

> over

> > the

> > weekend] which appears to have kicked the virus issue entirely,

and

> > now he appears to need almost no supplements.

> > Dana,

> >

> > What supplement is this? And, would you mind sharing what

symptoms/tests

> > you've seen that makes you feel that he has kicked the virus

issue?

> >

> > Also, did your son have the right sided motor issues many of the

kids with

> > HHV6 problems had early on? Has he had lingering motor problems

from the

> virus?

> > Gaylen

> >

July 14, 2004

In a message dated 7/14/2004 8:47:51 PM Central Standard Time,

jromkema@... writes:

My son has motor issues, but more on his

right side than his left, and I think the immune panel showed he had the

HHV6 stuff going on (What is the other name for this?).

We've not dealt with viral stuff at all, so what are people giving for this?

Roseola is from the HHV6 virus. HHV6 is usually treated with prescription

Valtrex or Famvir. Some use acyclovir but it isn't as strong. There are also

natural antivirals like Lauricidin and oregano oil but many report that they

see more symptom improvement with the rx ones. Lauricidin was very helpful for

my son but the most dramatic improvement was seen with Famvir, and then more

recently Valtrex.

Gaylen

July 14, 2004

My son was not full blown autistic, but was diagnosed as having autistic

symptoms. He had extreme paranoia, (all this started at age 3 1/2, except the

paranoia which started at age 4), inappropriate laughter, word reversal,

echolalia, repetative questioning. He had normal pretend play, played with his

brothers just fine, had normal physical ability, was riding his bicycle without

training wheels before he turned three, yes, three. But he did not develop

these odd behaviors, ie autistic behaviors, until being on antibiotics for 30

days for chronic infections that would not go away. My son is totally normal

now and we have NEVER done anything but biomedical intervention. He has never

had any other type of occupational therapy other than speech which was done from

age 2 1/2 to age 3 for articulation. I know that the supplements, along with

the Valtrex cured my son. I use that word loosely because I know that if I stop

the supplements he will regress. His change when being put on Valtrex was very

extreme. He went from being extremely paranoid to not within two weeks of being

on Valtrex. The other symptoms like the echolalia and repetitive questions

disappeared after about three months of being on the Valtrex. I do not know at

what point we can stop the supplements, so know one really knows these answers.

So in the mean time, we will keep giving them.

Jennfer

Ruston, Louisiana