Guest guest Posted December 6, 2008 Report Share Posted December 6, 2008 Do you know what, my hair is fabulous dahlink, and my glasses are fab too, but can I get a photo showing them both off to their best advantage We won't be decorating until next weekend at the earliest. Somehow we've got to go and get a real tree between now and then. We're out tomorrow, and Rob is at work for the rest of the week, and he's fab at getting the real trees, always manages to get a really nice shape. So unless I go out and get someone else to stick it in the car for me and then leave it in the car until Rob gets home, I'm not really sure what we're going to do. I have the bonus of having all the decorations from the house to put up in our much smaller flat and have every intention of decking the flat out like a grotto! Subtle and classy isn't in this year. I ought to start buying some pressies soon! I hope you manage to get some travel plans sorted Love Ze xx>> Happy Anniversary to our Warrior. I cant believe it has been a year already. I look forward to meeting everyone someday.I haven't been to England or Scotland or Australia but they are on my bucket list.I really wanted to go to Peru with my sister this march but the Doctor said no. I guess not being able to breath at the Grand Canyon in Sept made me realize he was right but I got other travel ideas.Take it easy getting your new home in order . I got to get busy decorating for Christmas.I have been a big slug and in a funk but I think I am over it. I cant wait to see your new hair color and glasses . Give Lili a big hug.> IPF 2/07 IL> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2008 Report Share Posted December 6, 2008 ZZZ, You can always post several photos.. we don't mind.. lol I know a change of hair color does wonders for a tired soul. I just may go cherry red myself. I am thinking really hard about getting mine cut really short today..Just thinking right now and that can be dangerous, Love & Prayers, PeggyFlorida, IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly." Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2009 Report Share Posted February 13, 2009 mary-beth i'm just in the processing of reading digests and have stopped what i'm doing to text zena to pass you on your wishes. we texted today. i've absorbed my meeting now and getting back my equilibrium - just need to stop the chocolate now. hahaha. may uip 0606 49 glasgow, scotland > > May, > I'm glad that your laptop is sorted out and has brought you back to us. We missed you! I'm sorry that things are progressing, this is such a hateful disease but I'm hopeful that things will go well for you on the transplant road and you'll be around to dance at your grandbaby's wedding! > Hope nna is doing well, I think of her often. I know Z is still having computer problems, if you talk to her tell her we miss her and to come home to us quickly! > Love and hugs, > > Beth in North Carolina > Moderator > Fibrotic NSIP 06/06 Dermatomyositis 11/08 > > " May you never take one single breath for granted " > > > > > ________________________________ > From: may > To: Breathe-Support > Sent: Thursday, February 12, 2009 8:35:07 AM > Subject: update from may > > > hi all > i seem to have turned into a lurker recently > but because i was reading everything (albeit > late) i didnt feel cut off from you all until > my laptop got ill. it was comotose for several > days and thats when panic started to set in. > > luckily its well again but it was a real blast > from the past feeling isolated and cut off from > people who understand 'pf'. > > i had my first visit with the transplant team on > friday and that was a bringing back down to earth > meeting. somehow i had convinced myself that i > wasn't going to progress. for the first time in > 2.5yrs ive been told that the uip is progressing. > he said that all my exercise, losing weight etc > may have offset this but he expects me to deteriorate > faster now. > > i half expected to be told to go away that i was too > healthy and a fraud in coming to see them but he said > i was coming at the right time (although i am still too > well for tx). professor corrus and his co-ordinator > were very reassuring and lovely. he was in the states > at some point in his career and mentioned dr raghu who > he'd met/knew. i had mentioned the foundation and how > we all chat. he suggested i wore my o2 at rest now, > asked me to continue to get to 25bmi but said he wouldn't > shut the door on me if i got to 27. i have to keep the > next appointment in 3months if i have some obvious > deterioration but if not to call them and cancel it. > they come up from newcastle for this glasgow clinic. > > so it was a good meeting but just brought me back down > to earth and over the weekend i realise the little signs > that i had been ignoring. i have actually been wearing > my o2 a lot more in the house and out and also at rest. > i have also reached the point that i dont care anymore > about people looking at me with the o2. > > welcome to all the new people ive not spoken to yet. > > bethany > i am so so sorry you have to deal with this so > young. i dont know if you are aware that one of our girls > kerry had a double transplant in december. she is in > her thirties. this will happen for you, i'm sure. > > you said goodbye in your last msg - i hope you are going to > keep looking in on us although, yes - live your life to the > full. > > i can't remember who has dr raghu, but you can tell him > that i have professor corrus as my transplant guy. > > linda > i loved your photos and it was really interesting to see the > glasses in action. > > bruce > i think you have made a wise decision and the bonus is you > will have the cats also. > > mary-lou > i love you this day > > peggy > am i right in thinking you are keeping better or are you > just not talking about things > > mary-beth > you do such a good job and we are soooo demanding. > > jack > my daughter works as a stage manager at the citizens theatre > in glasgow although she is having a baby in may so may not be > going back for a while. one of my favourite plays ive seen > since she started on this route is 'drawer boy'. are you > familiar with it. tomorrow i am going to 'oran-mor' to see > a lunchtime play from a new writer. this venue has very > sucessfully put on a series called 'a play, a pie and a pint'. > a girl i worked with years ago is the author of tomorrows. > she was a press oficer then story liner in soaps before doing > this her first play. would the citizens theatre have put > on any of yours > > may uip 06.06 > 49, glasgow > Quote Link to comment Share on other sites More sharing options...
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