Guest guest Posted September 21, 2005 Report Share Posted September 21, 2005 Well I'm sitting here with a sick feeling in my gut because I'm anticipating a struggle to get what my son needs. I posted a few weeks about 's loud classroom (heating/AC unit) and I'm still waiting for the remedy. The last update I got from the principal when dropping my son off two weeks ago was that maintenance had looked at the unit and there was nothing they could do. THey need to contact the manufacturer to see if they can put in more bearings to quiet it. I was told that the audiologists were going to " look " at the classroom on 9/13 because they hadn't seen it yet and they're working on getting an assistive listening device. I haven't heard anything back regarding their impressions of the classroom. I already have the sense that I won't be getting any formal acoustic evaluation. When I even mentioned the term " signal to noise ratio " with the HI itinerant she told me, " I don't know what you're talking about and you'll just have to be patient and wait until we all meet (audis) and determine the next step. Ugh. So I'm waiting. Left a message with the audi yesterday considering it's been a week with no word. Now I just want to request an IEP meeting to get everyone in one place so we can determine what's going to be done and get some stuff down in writing. An assistive listening device is listend under supplementary aids and services. The " date initiated " is 9/6/05 (first day of school) Now is that word " date initiated " going to be a point for argument? I read it as to be in place on that date. Can they interpret it as the date the process to determine what ALD is appropriate? I can see them using the excuse that they didn't know what classroom he was going to be assigned until just before school started and then they need to evaluate the room for what is appropriate. Give me a break! The HI teacher actually used this excuse for the reason why nothing had been addressed with the acoustics and to give them time to sort it out considering school just started. We wrote the IEP in May! I believe if they know they have a HI child coming in they place him based on the needed accomodations, not the other way around. You don't place him in the noisiest classroom and then try to fix it. Seems like common sense to me, especially since I was writing letters to try to avoid this misplacement in the first place. This whole process just sickens me. I know doesn't know the difference and as he spends more time in the classroom he actually seems to be proving to the teachers that he can hear what he needs to. Yes, he's a good listener and he's probably good at filling in the blanks and picking up on other cues but that's not acceptable. It's so hard to educate some of these people. All I want to hear from an audi or HI itinerant is some validation that yes indeed the acoustics are not acceptable! Just getting them to admit that is the first step and then they should take swift action to remedy it. Am I expecting to much in terms of urgency? How do you get people to work on a timeline? I feel like making the calls myself to get people out there to service the equipment and make modifications. Now that he's been in class for three weeks I really hate to move him but we certainly will if needed. That really is the easiest solution in my opinion but unfortunately that really disrupts 's routine after getting used to the teacher, classmates, school and getting ready routine. I've been walking that fine line of trying to be cordial and not seem like the pushy mom but lately I feel I'm ready to cross over that line and then there's no turning back. K Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2005 Report Share Posted September 21, 2005 , I feel your gut pain. Been there many times. You just need to stand up for your child. I wanted to say, specifically to your comment " I've been walking that fine line of trying to be cordial and not seem like the pushy mom but lately I feel I'm ready to cross over that line and then there's no turning back. " That it is not necessarily true. My neice has Rhett's syndrome and my db and sil have to fight for everything and it has gone into epic lawyer battles. But now, in their 4th year, the district just gives them what they ask for b/c they don't want battles. Also, I was the pushy mom at first...even made the slp cry (which she should have b/c she didn't do her job!). But now, 2 years later, everything is great. Why? Because a new slp and principal are here and they are FANTASTIC!! So go be a pushy mom....you never know what will happen in the future...except that your child's future will be brighter. Mom to , 6, progressive loss 2.9, right CI in 04, left in 05 , 4, hearing and obeying(insert angels singing hallelujiah) , 10 months, hearing and trying to talk...so cute Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2005 Report Share Posted September 21, 2005 Kearns wrote: <<I know doesn't know the difference and as he spends more time in the classroom he actually seems to be proving to the teachers that he can hear what he needs to. Yes, he's a good listener and he's probably good at filling in the blanks and picking up on other cues but that's not acceptable. ... I've been walking that fine line of trying to be cordial and not seem like the pushy mom but lately I feel I'm ready to cross over that line and then there's no turning back.>> Hi, . I can't help out with any information since we're not there yet. But I just wanted to say that you know your son best. It isn't right that he has to work that hard every day just to hear what's going on in his classroom. That's a lot of work for him, and on top of that he's trying to learn what they're teaching. I've been the pushy mom when it comes to the doctors, and I've been right every time. I know it can be a delicate balance when dealing with the district but I say do what you feel is right. I wish I had more to offer, Johanna K Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2005 Report Share Posted September 21, 2005 , I feel for you. I can't begin to imagine the stress that this situation is causing you. As much as you hate to do it, I believe it's time to start playing hard ball. You have called attention to the problems and no one has acted. The biggest problem that you face, in my opinion, is that this group of people have no real understanding of CI/hearing aid use and how important optimal listening conditions are for his success. Yes, he " can " hear, but the quality of what he is hearing is not optimal. I'm not sure of the legal wording of the IEP, but it seems simple to me that he needed to have that ALD in place before school started. There is no reason for him not to have it by now. They are dragging their feet for whatever reason, but I do not think they are in compliance of his IEP. I would suggest that you write a letter to the principal and the special ed director. Write in the letter what you would like to have happen (meeting, get ALD, fix noise, etc.). If you ask for a meeting, they have a certain time limit in which they must schedule the meeting. With the other items you may want to tell them that they have had resonable time to fix the problems and give them some sort of time frame in which you expect some sort of action. Make sure you make a copy and send these letters registered mail with a return reciept. If that doesn't work, start mailing letters higher up the chain. If you are uncertain and want some reinsurance, you can contact someone at your state board of education. Speak to someone within the communication disorders or special ed area. Another thought...although you can't let them hear what his CI sounds like, can you borrow a loaner aid from your audi for demonstration purposes and let everyone hear, or try to hear with all that noise in the class? Good luck, Debbie, mom to ,6, moderate SNHL and , 3, hearing Some men see things as they are and ask why. Others dream things that never were and ask why not. G.B Shaw --------------------------------- Yahoo! for Good Click here to donate to the Hurricane Katrina relief effort. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2005 Report Share Posted September 21, 2005 , I feel for you. I can't begin to imagine the stress that this situation is causing you. As much as you hate to do it, I believe it's time to start playing hard ball. You have called attention to the problems and no one has acted. The biggest problem that you face, in my opinion, is that this group of people have no real understanding of CI/hearing aid use and how important optimal listening conditions are for his success. Yes, he " can " hear, but the quality of what he is hearing is not optimal. I'm not sure of the legal wording of the IEP, but it seems simple to me that he needed to have that ALD in place before school started. There is no reason for him not to have it by now. They are dragging their feet for whatever reason, but I do not think they are in compliance of his IEP. I would suggest that you write a letter to the principal and the special ed director. Write in the letter what you would like to have happen (meeting, get ALD, fix noise, etc.). If you ask for a meeting, they have a certain time limit in which they must schedule the meeting. With the other items you may want to tell them that they have had resonable time to fix the problems and give them some sort of time frame in which you expect some sort of action. Make sure you make a copy and send these letters registered mail with a return reciept. If that doesn't work, start mailing letters higher up the chain. If you are uncertain and want some reinsurance, you can contact someone at your state board of education. Speak to someone within the communication disorders or special ed area. Another thought...although you can't let them hear what his CI sounds like, can you borrow a loaner aid from your audi for demonstration purposes and let everyone hear, or try to hear with all that noise in the class? Good luck, Debbie, mom to ,6, moderate SNHL and , 3, hearing Some men see things as they are and ask why. Others dream things that never were and ask why not. G.B Shaw --------------------------------- Yahoo! for Good Click here to donate to the Hurricane Katrina relief effort. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2005 Report Share Posted September 21, 2005 , I feel for you. I can't begin to imagine the stress that this situation is causing you. As much as you hate to do it, I believe it's time to start playing hard ball. You have called attention to the problems and no one has acted. The biggest problem that you face, in my opinion, is that this group of people have no real understanding of CI/hearing aid use and how important optimal listening conditions are for his success. Yes, he " can " hear, but the quality of what he is hearing is not optimal. I'm not sure of the legal wording of the IEP, but it seems simple to me that he needed to have that ALD in place before school started. There is no reason for him not to have it by now. They are dragging their feet for whatever reason, but I do not think they are in compliance of his IEP. I would suggest that you write a letter to the principal and the special ed director. Write in the letter what you would like to have happen (meeting, get ALD, fix noise, etc.). If you ask for a meeting, they have a certain time limit in which they must schedule the meeting. With the other items you may want to tell them that they have had resonable time to fix the problems and give them some sort of time frame in which you expect some sort of action. Make sure you make a copy and send these letters registered mail with a return reciept. If that doesn't work, start mailing letters higher up the chain. If you are uncertain and want some reinsurance, you can contact someone at your state board of education. Speak to someone within the communication disorders or special ed area. Another thought...although you can't let them hear what his CI sounds like, can you borrow a loaner aid from your audi for demonstration purposes and let everyone hear, or try to hear with all that noise in the class? Good luck, Debbie, mom to ,6, moderate SNHL and , 3, hearing Some men see things as they are and ask why. Others dream things that never were and ask why not. G.B Shaw --------------------------------- Yahoo! for Good Click here to donate to the Hurricane Katrina relief effort. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2005 Report Share Posted September 22, 2005 We went to " Back to School Night " last night for our daughter in 2nd grade. We knew the HVAC system had some loudness but could not believe how loud! We happened to come in late and had to sit towards the back of the room. The system was so loud my husband and I could barely focus on the teacher giving her welcome speech! We are in the process now of contacting " people " to try to rectify this loudness issue. Will let you know what happens. Joyce mom to CI 2000 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2005 Report Share Posted September 22, 2005 We went to " Back to School Night " last night for our daughter in 2nd grade. We knew the HVAC system had some loudness but could not believe how loud! We happened to come in late and had to sit towards the back of the room. The system was so loud my husband and I could barely focus on the teacher giving her welcome speech! We are in the process now of contacting " people " to try to rectify this loudness issue. Will let you know what happens. Joyce mom to CI 2000 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2005 Report Share Posted September 22, 2005 We went to " Back to School Night " last night for our daughter in 2nd grade. We knew the HVAC system had some loudness but could not believe how loud! We happened to come in late and had to sit towards the back of the room. The system was so loud my husband and I could barely focus on the teacher giving her welcome speech! We are in the process now of contacting " people " to try to rectify this loudness issue. Will let you know what happens. Joyce mom to CI 2000 Quote Link to comment Share on other sites More sharing options...
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