Guest guest Posted February 7, 2003 Report Share Posted February 7, 2003 Dear Kim, ::Big Sis Hugs:: You can do this!! I'm proud of you and how you have quit smoking! I live in Virginia Beach. Please e-mail me and maybe we can get together when you're down this way? Take good care and God bless you richly! Love, Trace in Va. Beach, VA Dr. Schechner, Va. Beach, VA Open RNY -- 9/5/02 Height -- 5' 9 1/2 " Starting weight -- 351.2 Current weight -- 259 Minus -- 92.2 pounds gone! Gal. 2:20 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2004 Report Share Posted March 17, 2004 -Hi and welcome to our group. Your story sounds like so many of ours...just having symptoms for years and doctors not getting too excited about them. I am 38 years old and live in Massachusetts. I was diagnosed after about 10 years of symptoms. I am now divorced, have no children ( i have had 3 miscarrages ) and lots of docs say that was a warning sign right there. I also have cardiac problems and have an implanted defibrillator. You will gain much insight into this crummy illness here and fortunately, we laugh along the way. So again, welcome to our group and feel free to post about good and bad days! Hugs to you , Pam-- In LUPIES , HrlMich@a... wrote: > Thank you for such a warm family welcome! Excuse my lack of knowledge - I'm > a relative newcomer! I first heard SLE about my health ten weeks ago. I've > been researching on the net every spare moment since. > > I think my worst problem is CNS related - I keep losing my focus, my hearing, > my sense of smell and taste went ages ago. I can't feel temperature. I now > realise what I called my 'Shutdown' are seizures. They happen at anytime. > Doctors don't seem too interested in them at the moment! I'm quite scared > though! Last night my left arm felt as though I had pins and needles all down it. > It had shooting pains and cramp! I'm awaiting seeing specialists! I had a > lot of kidney problems as a child and they are going to test my kidneys soon. > I'm just piling on weight and am not eating too much! > > What effects of lupus are you experiencing? > I believe I've had it for a long time but everry time I've been knocked down > I just get up when I can and carry on. This won't change much, I guess, but I > will be a lot more gentle with myself now! > > Well a little about myself... > I'm 37. i'm in the UK. I have four children and a stepdaughter - Lucan 18, > Loren 8. Carys, 7, Hope 19 months and Beau 7 months. The doctor thinks my late > pregnancies have brought on a bad enough flare to develope face lesions, plus > other symptoms. It wasn't until the face lesions appeared and wouldn't go > away that I went to the doctor. I''d given up on doctors in my early twenties! > (both my last two babies have been born at festivals! - not planned that way > but they decided to come then!) I guess I am a symptomatic hippie! > > I've always had to manage my own health and have developed a lot of > complementary skill! > I have been teaching Reiki for eight years, am an advanced hypnotherapist, > teacher and trainer! Or was - a lot depends on my health. It is amazing how > Lupus connects all your > ill health experience together! Now I've been learning more about it it all > makes sense! > Still if I'm stopped in one way I'll find another! > > I haven't any pets - I'm having problems managing the kids, I wish they could > just jump through a cat flap and toddle off for a couple of hours sometimes! > Love 'em ta bits! > > Kind regards X Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2004 Report Share Posted August 18, 2004 Hi e - Welcome to the group! Bette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2004 Report Share Posted August 18, 2004 Hi e, I recognize you from the penguin list! I am working on getting back on track too. Welcome! hello Hello everyone, I was a member of this group a while back and am now trying to get back on track with Weight Watchers. My short term goal is to be on program everyday for the next 7 weeks. On 2 Oct I have my Army weigh-in and physical fitness test. I am about 16 lbs over the weight the Army wants me to be and would like to be at that weight or below on that day. The Army wants me to weigh 132 lbs--I am 5'2 " and 38 years old. My ultimate goal about 110-115. The Army weight is close to 10% (133.2). Today I weighed myself and was 148. I plan on posting my meals daily. e Quilici Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2004 Report Share Posted October 26, 2004 HELLO AND WELCOME WE ALL WOULD LIKE TO GET TO KNOW YOU. HOPE TO TALK TO YA PAMmizereeh2001 wrote: Hello, I'm new! Not sure what to do! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2005 Report Share Posted November 16, 2005 --- chmorg wrote: <<My daughter Clara also has a severe/profound unilateral loss from birth. She is 3 now. I also have a unilateral loss. >> Just wondering, would you consider a Bi-CROS for your daughter? We only tried one with Emmett once he started wearing an aid on his left ear. His right ear was fitted with the Bi-CROS and he wore the FM boot on his aid. It was absolutely amazing for him. We're sure he has no recollection of hearing in his right ear so he was completely blown away when he could hear us whisper in his right ear. Obviously, he still couldn't localize sound, but he heard the sound on the right side of his head. He turned more quickly when he heard a car, etc. We trialed it for one month and will be getting one! We're also not sure if he'll be eligible for services. He isn't at the moment (he's 4 and isn't eligible now). I'd like to find out about a TOD to help him with preteaching classroom vocabulary, etc. Johanna __________________________________ Yahoo! FareChase: Search multiple travel sites in one click. http://farechase.yahoo.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2005 Report Share Posted November 17, 2005 > > > > > Just wondering, would you consider a Bi-CROS for your > daughter? > We're also not sure if he'll be eligible for services. > He isn't at the moment (he's 4 and isn't eligible > now). I'd like to find out about a TOD to help him > with preteaching classroom vocabulary, etc. > > Johanna > > I haven't considered that. They have had CROS hearing aids for a long time, but they were not recommended for me and I haven't heard good things about them. I just now very briefly researched bi-CROS aids and the site I pulled up said that bi-CROS is used for people with no hearing in one ear and a moderate loss in the other ear. Clara has normal hearing in her right ear and a severe profound loss in her left. According to that site, that means she would use a CROS aid. I'd also be interested in a consultation with a TOD for her. Is Emmett in preschool? How is he doing there? You would think that since I have the same loss I would know just what I should be doing for her, but I'm really not sure at this point. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2005 Report Share Posted November 17, 2005 chmorg wrote: <<You would think that since I have the same loss I would know just what I should be doing for her, but I'm really not sure at this point. >> I didn't realize that the Bi-CROS had limitations. I thought anyone with a severe/profound loss in one ear could use it. It was suggested to us when Emmett still had typical hearing in his left ear and his right was deaf. It would have required a clumsy head thing and we weren't sure it would serve him at all. But then, he started losing hearing in his left ear so now that ear is aided and the setup is less clumsy ... looks like he's wearing two aids. He's older now, as well, and was able to give us tremendous feedback on how much he liked/disliked it. He didn't like walking through automatic doors with it. Apparently, they interfere with the FM and the Bi-CROS made a strange buzzing noise. Emmett is not in preschool. I've kept him home with me. We did the same with our hearing 6-year-old. She started school in Kindergarten. We've decided that if Emmett starts to demonstrate a slide in language/speech we would reconsider our plans to keep him out of preschool. Since he's not delayed, we've went with our original plan for him. If you didn't get services when you were a kid, how would you know what Clara would need in a classroom setting! It is amazing how people minimize the unilateral loss. No one on this list, I should clarify. The unilateral loss is so tough. He misses so much but he's really great about asking us to repeat things and look at his face (he's an ace speech reader). At home, we've worked on self-advocacy and lots of listening games to identify sounds, and to learn how to look for where sound is coming from. It's been a lot of work, but is paying off beautifully. Emmett's very talkative so he enjoys playing the games we make up. I do think kids with unilateral loss need more than just special seating and an FM system. I think a TOD would help with the preteaching. The whole preteaching thing is great, too. I forgot to mention that earlier. If we're going to story school, I'll sometimes ask for the stories ahead of time (even just 30 minutes before the story time starts) and read them to Emmett ahead of time. This way he knows what the librarian is saying even when she forgets to keep looking at him. Well, I've blathered on long enough. I should start thinking about feeding my family! Nice to meet you and to learn about you and Clara, johanna --------------------------------- Yahoo! FareChase - Search multiple travel sites in one click. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2005 Report Share Posted November 17, 2005 Hi there, Sorry it's taken me a while to introduce myself, it's a bit crazy around here. I'm Debbie, mom to two very energetic kids, and . is 6 and has a moderate bi-lateral SNHL and is 3 and hearing although not acting much like it ;o) The one thing that stuck out when I was reading your post was about your hearing consultant. What qualifications does she have to have this position? If she's not been trained as a teacher of the deaf or some other deaf/hoh related field, I hardly think she is qualified to judge if your daughter is in need of services or not. If they stick to the recommendations that this person is making, then I would ask for an independent educational evaluation from an outside party not affiliated with your district. And where did she get the idea that a unilateral hearing loss doesn't qualify her as hearing impared. Is it written somewhere? Is it just her belief? How can she justify this statement? Just because your daughter may not need speech and language services, does not mean that she is the same as other children in her class. She has a hearing loss. That is a disability that can affect her at school. She doesn't hear with both ears and that can make a difference. Does she recieve the services of a hearing itinerent or a teacher of the deaf? I've always believed that all children with hearing loss should recieve these services, even if it's just as a consoltation So they want to discontinue the IEP because she has met her speech goals. It's great that she has met those goals, but meeting those goals does not change the fact that she still has a hearing loss. If she is having diffculty in another subject and needs special accomidations for that, then I think the IEP can include just those. Don't give up. There are many parents who have been through all sorts of things with their kids...so someone probably can help answer your questions or guide you to your next step. All you need to do is ask. Debbie ltramey wrote: The worst person is the " hearing consultant " who in the last IEP declared that Caitlin is not certifiable as hearing impaired, even though she had never met Caitlin nor did she have any information about her academic success or failure. Some men see things as they are and ask why. Others dream things that never were and ask why not. G.B Shaw --------------------------------- Yahoo! FareChase - Search multiple travel sites in one click. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2005 Report Share Posted December 11, 2005 Well gosh Eloy!! Just how much "great sex" are we talkin'???? LOL that's good exercise! We can add that to your exercise total this week.....bet you're really rackin' up the points huh??? Melody Moris, Leader TOPS #Tx1454, Pleasanton http://www.texastops.org email: mmoris@... From: TexasTOPS [mailto:TexasTOPS ] On Behalf Of samjanemackSent: Saturday, December 10, 2005 7:29 PMTo: TexasTOPS Subject: hello Just want to let all know that I been having a great time w/Blanca; lots of rich food and great sex, and today is saturday. who knows maybe I'll get lucky, it snowed here thursday, but I'm ready to go home and take this extra pounds of, I love tops and being a kops, may God bless all of you, Eloy. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2005 Report Share Posted December 11, 2005 Eloy may be like the Energizer bunny while with Blanca !!!!!!!!! LOL !!!!! Couldn't resist !!!!!!! Hugs, Randie RE: hello Well gosh Eloy!! Just how much "great sex" are we talkin'???? LOL that's good exercise! We can add that to your exercise total this week.....bet you're really rackin' up the points huh??? Melody Moris, Leader TOPS #Tx1454, Pleasanton http://www.texastops.org email: mmoris@... From: TexasTOPS [mailto:TexasTOPS ] On Behalf Of samjanemackSent: Saturday, December 10, 2005 7:29 PMTo: TexasTOPS Subject: hello Just want to let all know that I been having a great time w/Blanca; lots of rich food and great sex, and today is saturday. who knows maybe I'll get lucky, it snowed here thursday, but I'm ready to go home and take this extra pounds of, I love tops and being a kops, may God bless all of you, Eloy. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2005 Report Share Posted December 11, 2005 >>>Melody wrote: Well gosh Eloy!! Just how much "great sex" are we talkin'???? LOL that's good exercise! We can add that to your exercise total this week.....bet you're really rackin' up the points huh??? Oh gosh!! Please don't make him give us a report on the length of time spent at it!! :-[ hugs, janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2005 Report Share Posted December 11, 2005 ha! see? yet another excuse for the other 2% when we gain LOL Melody Moris, Leader TOPS #Tx1454, Pleasanton http://www.texastops.org email: mmoris@... From: TexasTOPS [mailto:TexasTOPS ] On Behalf Of kbcct@...Sent: Saturday, December 10, 2005 9:04 PMTo: TexasTOPS Subject: Re: hello Didn't you know that " great Sex" is great exercise? You should be taking off pounds! That's why I can't take off pounds--I've been a widow for almost 6 yrs. Believe me --it makes a difference! hahaha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2005 Report Share Posted December 11, 2005 sooooo Eloy should get LOTS of exercise points this week?? LOL Melody Moris, Leader TOPS #Tx1454, Pleasanton http://www.texastops.org email: mmoris@... From: TexasTOPS [mailto:TexasTOPS ] On Behalf Of Randie Sent: Saturday, December 10, 2005 11:52 PMTo: TexasTOPS Subject: Re: hello Eloy may be like the Energizer bunny while with Blanca !!!!!!!!! LOL !!!!! Couldn't resist !!!!!!! Hugs, Randie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2005 Report Share Posted December 11, 2005 LOL hey whatever works!! Melody Moris, Leader TOPS #Tx1454, Pleasanton http://www.texastops.org email: mmoris@... From: TexasTOPS [mailto:TexasTOPS ] On Behalf Of Hamilton & FeeserSent: Sunday, December 11, 2005 12:21 AMTo: TexasTOPS Subject: Re: hello >>>Melody wrote: ROFL well.....I don't need "particulars" but it IS exercise right??Well, I must confess to checkin' the clock once before and thinkin' "I'm counting this towards my exercise minutes". :-[ hugs,Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2005 Report Share Posted December 11, 2005 Oh my goodness. Extra points for Eloy for sharing too much information again and making me laugh! LOL! hello Just want to let all know that I been having a great time w/Blanca; lots of rich food and great sex, and today is saturday. who knows maybe I'll get lucky, it snowed here thursday, but I'm ready to go home and take this extra pounds of, I love tops and being a kops, may God bless all of you, Eloy. EMAIL SUPPORT TEXAS-STYLE!! THE CRAZIEST BUNCH OF " LOSERS " ON THE 'NET'!! Visit us on the web: http://www.texastops.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2006 Report Share Posted February 28, 2006 Marni, Welcome to the group. As you can see, you've landed in a very supportive place here at Listen-Up. So, feel free to ask any questions that come up .. there is nothing too silly or trivial to talk about. We've all been at the beginning of learning about hearing loss and trying to make decisions for our kids. The doctors, the vocabulary, the worry and the mommy-guilt. It's all a part of the package and you'll find very empathetic people here who are more than willing to help out. We'll explain acronyms (confusing!), tell you how things went for our kids, translate doctor-speak ... whatever we can do to help. Please feel free to ask questions or jump into an on-going discussion. There is no rule about how to join a thread or who is allowed to give opinions. We all join in when we feel we have something to add, or to ask about something we don't understand. There are no stupid questions, so don't be shy. I'm Jill and, as Barbara mentioned, I'm one of the people who lives in NY. My son is now 15 and a sophomore in our local high school. He wears hearing aids in both ears and has a variety of services at school (through BOCES) to support him in the mainstream setting. We didn't find out about Ian's hearing loss until he was 7½. so I have no experience with EI (early intervention) services. But other parents on this list are VERY experienced and can give great advice. If there had been infant screening back when Ian was born, he'd have passed it. Ian's is a deteriorating condition (currently a moderate loss) and if he had any loss back then, it was so minor that no one would have found it. Even though Ian was older, it was still hard for all of us. The emotional roller coaster of anger/frustration/grieving is completely normal, but it was so hard. At first it was overwhelming and now, 8 years later, it's not gone but it's far less intense. Ian is a one-of-a-kind for our family as well as our school district. He is often the only D/HOH (deaf/hard of hearing) child anyone has ever met. Teachers, scout leaders, friends, friends' parents -- almost no one has ever known a D/HOH person (except maybe their grandma who got her hearing aids late in life). But Ian doesn't let his hearing loss get in his way. He goes hiking, biking, rock climbing (with real ropes on real rocks, oy!) white water kayaking .... if it's outdoors, my son loves it. He's an honors student, almost an Eagle Scout. He sings loudly with great exuberance and often completely off-key. He loves Monty Python, the movie " Airplane " and anything by Mel . He has friends over for Play Station game marathons (consuming all the pop tarts and bags of microwave popcorn in the house). He gracefully loses to me at Scrabble every time we play, but does a goofy victory dance when he beats his sister. In short, he's a really normal typical 15-year-old boy. When I'm looking for Ian, people know who he is because I mention " the boy with the blue hearing aids. " Other than that he looks like every other kid his age -- wearing a navy blue hoodie, jeans and sneakers. But when asked about him, what they usually comment on is his wry sense of humor, gentle nature or self-reliance .... not the aids or the hearing loss. So, don't think for a moment that you have to expect a lesser life for your son because of this diagnosis. You don't. He can become whatever he wants. His hearing loss is only one little part of him, not what is going to define his life. Even though at first it feels like the hearing loss is all you are dealing with. It gets easier, becomes part of your everyday life. For now, you do all the same things you did with your daughter. You coo at him, smile and laugh and tickle his toes and every other goofy thing to comes naturally. He may not hear it all, but he'll see it, feel it and he'll know what it all means. My husband would to lift both our kids up to " sit " upside down on the ceiling ... they giggled and loved it until they were too big for him to hoist up there. So, enjoy your boy being a baby -- all the usual firsts .. rolling over, sitting up, figuring out how to go from rocking on hands & knees to crawling across the floor. All that stuff is still coming your way, hearing loss or no, so enjoy it. Get a book or video of baby signs and use them. It can be fun for everyone, including the big sister. It can help her feel involved with everything that's going on now. My sister did with her two (hearing) kids and they were able to sign before they were able to speak. They were less frustrated because they could ask for " milk " or " more " or " apples " when some of those words were far beyond their speaking abilities. When my (hearing) daughter was onstage this past weekend (singing in a concert) at one point she was practically alone on stage, waiting. Suddenly this very outgoing child was scared and trying to find us in the crowd. My husband and I waved with our hands with the " I love you " sign and she found us. She breathed a sigh of relief and lost that deer-in-the-headlights look. Signing can be wonderful, useful in all kinds of settings and not just for our D/HOH son. As for the doctors and hearing aids and all that -- come here and ask loads of questions and you'll get plenty of advice. For instance: How to keep BTE (behind the ear) aids on? Sample answers I've read are: Toupe tape will keep them on his head. Hats from Hannah . Critter clips that clip to the aids and shirt so when he pulls them out you don't actually lose them. There's a ton of advice available here from parents who've been there and done it. So please don't be shy, ask away. Best -- Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2006 Report Share Posted February 28, 2006 Ian sounds like my kinda guy! He'd fit right in at our house... <grin> Barbara JillcWood@... wrote: > He loves Monty Python, the movie " Airplane " and anything by Mel . **************** Barbara Mellert Manager, Social Science Computing Kiewit Computing Services Dartmouth College 13A Silsby Hall, HB 6121 Hanover NH 03755 Telephone: 603/646-2877 URL: http://www.dartmouth.edu/~ssc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2006 Report Share Posted February 28, 2006 Hi Marni, Welcome to the list. My name is Debbie and I have two children. is 6 1/2 and has a moderate sloping to severe SNHL (sensory neural hearing loss) in both ears. She was not diagosed with her loss until she was 2 1/2. Newborn hearing screenings were not taking place at our hospital until 6 months after her birth. She currently attends our local school and is in a regular first grade class with supports. I also have a three year old son who doesn't have a hearing loss, but he is the one that had all of the ear infections and needed tubes. When was first diagnosed I looked all over where I lived for different support groups and such, but found none. I was so glad when I discovered Listen-Up. This is such a supportive group. So ask as many questions as you may need to. Some of the parents here have kids that were diagnosed as infants and others much later. So there is probably someone here who can answer any question you can come up with. Debbie, mom to and Marni Krauthamer wrote: Hi everyone, I am new to this group and new to hearing loss. My son is 10 weeks old and has been classified as moderate/severe hearing loss in both ears. Some men see things as they are and ask why. Others dream things that never were and ask why not. G.B Shaw --------------------------------- Brings words and photos together (easily) with PhotoMail - it's free and works with Yahoo! Mail. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2006 Report Share Posted September 27, 2006 Hello , Yes, it is a waiting game. I had to wait two weeks for the stereotactic biopsy as the van only came to the clinic every two weeks. Then I had to wait another four weeks to get the results. Even when I called the Dr. every day. The stereotactic biopsy is usually for women that have breast implants. It is not scary. They put you on a table with a hole for your breast and raise the table. Sort of like a car jack so they can work underneath. It was bruised alot the breast and took more time to heal then the lumpectomy. Keep us posted, . Sharon C. Los Angeles Ca Ellen wrote: Oh - what a drag that is! Nope, more than a drag, it downright stinks!!!! So sorry that you have to wait another week " HAW " syndrome at its best - huh? I'll keep the prayers coming. Ellen > > I was to have the needle biopsy today when I arrived the Dr came in and > said I was going to have to have the stereotactic biopsy and they > couldn't do it until next Tuesday the Dr that does the stereotactic > biopsy's is on vacation .I couldn't believe it, another week of waiting > Thanks to everyone for your kindness.I pray for each one of you strong > ladies everyday. > SHARON COLEY DIRECTOR OF SALES DOUBLETREE HOTEL 888 MONTEBELLO BLVD. ROSEMEAD, CA 91770 --------------------------------- Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2006 Report Share Posted September 28, 2006 It is true, if a test is ordered " call results, " the radiologist will call the ordering physician with the results as he or she is reading them. I suppose this would not be productive for the radiology facility if everyone's radiology tests were ordered as " call results. " It does take a few hours or a day at least to get the printed report transcribed, and sometimes longer depending on the test and the facility. Pathology, like for biopsy can be 5-7 days in my neck of the woods. Her 2 neu takes 2-3 days longer than ER/PR too. My doctors tease that pathologists go home at 4:30pm, so that's why the work piles up in a " deli-line " (wait your turn in the queue). Rhonda & nne Svihlik wrote: When I was going through tests the Cancer Registrar was the support group leader and told us that MOST of the time the drs can get the results the same day over the phone. Not biopsy results as they take 3 days. I know its a fact because for one of my bone scans the dr called me back within 2 hrs of having it done. Hugs nne Breast Cancer Patients Soul Mates for Life http://www.geocities.com/chucky5741/breastcancerpatients.html BreastCancerStories.com http://www.breastcancerstories.com/content/view/433/161/ Angel Feather Loomer www.angelfeatherloomer.blogspot.com Check out my other ornaments at www.geocities.com/chucky5741/bcornament.html Lots of info and gifts at: www.cancerclub.com RE: Re: Hello Marisa wrote: > > Some cancers > > spread quickly so why > > is our response time so slow in some cases? > > Response time is important. I am thinking we need to > > get more attention > > to this issue. I am open to any ideas to bring it to > > the forefront. > > > > > > AMEN!!== I dont know what the answer is, but I for one > am willing to think about it--with you and the rest of > the women here...I'm tired of marketing > schemes-- " think pink " -- and all the rest...it > distracts us. > > marisa > I do agree about the marketing schemes - people can go about wearing a pink ribbon and not giving BC a second thought. I had a T-shirt printed with the big pink ribbon in the middle, and the words " Breast Cancer - been there, done that ... got the T-shirt! " and it made me feel better. I did donate to one of the cancer patient support charities too 8-) If you want to get one of my T-shirts made, I'll put my design in this group's files. Margery. ============================================ margery@... in North Herts, UK ============================================ ---------------------------------------------------------- No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.1.407 / Virus Database: 268.12.9/458 - Release Date: 9/27/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2006 Report Share Posted October 18, 2006 Welcome to the group. I am glad you pushed for the bilateral mastectomy. I will keep you in my prayers. Hugs nne Breast Cancer Patients Soul Mates for Life http://www.geocities.com/chucky5741/breastcancerpatients.html BreastCancerStories.com http://www.breastcancerstories.com/content/view/433/161/ Angel Feather Loomer www.angelfeatherloomer.blogspot.com Check out my other ornaments at www.geocities.com/chucky5741/bcornament.html Lots of info and gifts at: www.cancerclub.com Hello Hi! I'm new to this group, so I'm not exactly sure what I am supposed to do; but will start by telling my story. I opted to have a bilateral mastectomy in May 2006 because I had abnormal cells in one breast. My choices were to have a lumpectomy and then visit an oncologist and get started on tamoxifen OR to have a bilateral mastectomy. I chose the mastectomy -- only to find the day before the surgery that my insurance carrier denied coverage. That meant that I had to fight to get this approved -- and did win that fight, but the surgery was delayed for one day. I had the bilateral mastectomy, with reconstruction, on Friday. I was discharged from the hospital on Sunday. On Monday, the surgeon called me to say that the pathology department had found cancer in the breast that displayed NO abnormal cells. This find meant I had to go have a lymph node biopsy. Fortunately, this biopsy showed that the cancer had not spread. So.....I feel blessed that something made me choose the mastectomy -- bilateral -- and that I was able to find a way to get the insurance company to cover this surgery. Had I not made that choice, I today would have breast cancer and not know about it. Has anybody else had a problem with an insurance company? I feel it is sort of my mission to help other women in similar circumstances. mslin ------------------------------------------------------------------------------ No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.1.408 / Virus Database: 268.13.4/480 - Release Date: 10/17/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2006 Report Share Posted November 20, 2006 hello everbody, im looking forward to my next chemo(intravenous injection) on Nov. 24 ,friday here in the philippines)...... I dont mean that im in looking forward feeling sick and all stuff.... but continuing my treatment.... and i tried to keep my life as normal as possible ..... thanks a lot God bless lots of hope weng Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2006 Report Share Posted November 21, 2006 Weng, I will keep you in my prayers for your next treatment. Hugs nne Breast Cancer Patients Soul Mates for Life http://www.geocities.com/chucky5741/breastcancerpatients.html BreastCancerStories.com http://www.breastcancerstories.com/content/view/433/161/ Angel Feather Loomer www.angelfeatherloomer.blogspot.com Check out my other ornaments at www.geocities.com/chucky5741/bcornament.html Lots of info and gifts at: www.cancerclub.com hello hello everbody, im looking forward to my next chemo(intravenous injection) on Nov. 24 ,friday here in the philippines)...... I dont mean that im in looking forward feeling sick and all stuff.... but continuing my treatment.... and i tried to keep my life as normal as possible ..... thanks a lot God bless lots of hope weng ------------------------------------------------------------------------------ No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.1.409 / Virus Database: 268.14.10/541 - Release Date: 11/20/2006 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2010 Report Share Posted May 22, 2010 12 weeks from when oyu start T3 onyl is the most common time. You can expect better more normal temps adn possibly feelign a little hyperthyroid if your dose is actually too high whne it can reach the cells fully. -- http://nthadrenalsweb.org/ http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/ http://faqhelp.webs.com/ http://health.groups.yahoo.com/group/RT3_T3/ http://www.thyroid-rt3.com/ http://groups.yahoo.com/group/HypoPets/ http://www.stopthethyroidmadness.com/ Quote Link to comment Share on other sites More sharing options...
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