Guest guest Posted October 10, 2006 Report Share Posted October 10, 2006 > Doctors are very annoying about log term side > effects of the drugs they give us. They simply do > not acknowledge that those symptoms can be result of > chemo. I have joint pains until today and my doctor > says it has nothing to do with chemo. But there is > hope... fwiw, clinical trials for cehmo drugs look at nsurvival outcomes - but even after they've been approved; and especially since so many cancers are like chronic diseases, studies/tracking of adverse events need to be on-going, to see what long term side effects are. marisa __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2006 Report Share Posted October 10, 2006 > Doctors are very annoying about log term side > effects of the drugs they give us. They simply do > not acknowledge that those symptoms can be result of > chemo. I have joint pains until today and my doctor > says it has nothing to do with chemo. But there is > hope... fwiw, clinical trials for cehmo drugs look at nsurvival outcomes - but even after they've been approved; and especially since so many cancers are like chronic diseases, studies/tracking of adverse events need to be on-going, to see what long term side effects are. marisa __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2006 Report Share Posted October 10, 2006 > Doctors are very annoying about log term side > effects of the drugs they give us. They simply do > not acknowledge that those symptoms can be result of > chemo. I have joint pains until today and my doctor > says it has nothing to do with chemo. But there is > hope... fwiw, clinical trials for cehmo drugs look at nsurvival outcomes - but even after they've been approved; and especially since so many cancers are like chronic diseases, studies/tracking of adverse events need to be on-going, to see what long term side effects are. marisa __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2006 Report Share Posted October 10, 2006 Hi Suzanne, I've been on Arimidex for about a year and yes, I have had all the symptoms you describe. And yes, they are side effects of the Arimidex. you can Google Arimidex, go to one of the pages that tells you the side effects of the med, print it out and take it to your Onc. If he gives you any static, find a new Onc! My Onc is the best. He is truly compassionate and supportive. He's tried me on Femara and Aromisin to see if we could reduce the side effects. They didn't work on me. Today I start taking a once a month shot (sorry, don't know what the name is yet). When I tried to tell my Onc that I thought all the pain was just a function of me getting old (68) and arthritic, he was most emphatic that is was the medication, not my imagination or old age! You need someone like that to work WITH you, not on you, to give you the best quality and quantity of life. Maya > > I've basically been lurking since joining, because of hand pain that > limits my typing. Since I am estrogen-receptor positive, my onc has me > on Arimidex, which I've been using for appx. 9 months now. I am having > a lot of bone pain, especially in both my hands, along with swelling > (can't wear rings, can't even bear a watch on my wrist). I also have > pain across the back of my shoulders, and on some days pain in my feet. > I would like to know if anyone else is suffering from hand pain the way > I am. I was told by an internist, that she had a patient with the same > side effects, and the pain and swelling went away when her patient > stopped using the Arimidex. I will be seeing my onc tomorrow, but I can > almost guarantee he will say this has nothing to do with using the > Arimidex, and is not a side effect of having had chemo. I feel my > quality of life is being seriously effected by the bone pain, but I am > nervous about stopping the Arimidex...it makes me feel " protected. " > I've read some posts and it seems that some women have stopped taking > this medicine due to the side effects, etc., etc. I have some other > issues, but will address them at another time. Thanks in advance for > feedback! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2006 Report Share Posted October 10, 2006 Hi Suzanne, I've been on Arimidex for about a year and yes, I have had all the symptoms you describe. And yes, they are side effects of the Arimidex. you can Google Arimidex, go to one of the pages that tells you the side effects of the med, print it out and take it to your Onc. If he gives you any static, find a new Onc! My Onc is the best. He is truly compassionate and supportive. He's tried me on Femara and Aromisin to see if we could reduce the side effects. They didn't work on me. Today I start taking a once a month shot (sorry, don't know what the name is yet). When I tried to tell my Onc that I thought all the pain was just a function of me getting old (68) and arthritic, he was most emphatic that is was the medication, not my imagination or old age! You need someone like that to work WITH you, not on you, to give you the best quality and quantity of life. Maya > > I've basically been lurking since joining, because of hand pain that > limits my typing. Since I am estrogen-receptor positive, my onc has me > on Arimidex, which I've been using for appx. 9 months now. I am having > a lot of bone pain, especially in both my hands, along with swelling > (can't wear rings, can't even bear a watch on my wrist). I also have > pain across the back of my shoulders, and on some days pain in my feet. > I would like to know if anyone else is suffering from hand pain the way > I am. I was told by an internist, that she had a patient with the same > side effects, and the pain and swelling went away when her patient > stopped using the Arimidex. I will be seeing my onc tomorrow, but I can > almost guarantee he will say this has nothing to do with using the > Arimidex, and is not a side effect of having had chemo. I feel my > quality of life is being seriously effected by the bone pain, but I am > nervous about stopping the Arimidex...it makes me feel " protected. " > I've read some posts and it seems that some women have stopped taking > this medicine due to the side effects, etc., etc. I have some other > issues, but will address them at another time. Thanks in advance for > feedback! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2006 Report Share Posted October 10, 2006 Hi Suzanne, I've been on Arimidex for about a year and yes, I have had all the symptoms you describe. And yes, they are side effects of the Arimidex. you can Google Arimidex, go to one of the pages that tells you the side effects of the med, print it out and take it to your Onc. If he gives you any static, find a new Onc! My Onc is the best. He is truly compassionate and supportive. He's tried me on Femara and Aromisin to see if we could reduce the side effects. They didn't work on me. Today I start taking a once a month shot (sorry, don't know what the name is yet). When I tried to tell my Onc that I thought all the pain was just a function of me getting old (68) and arthritic, he was most emphatic that is was the medication, not my imagination or old age! You need someone like that to work WITH you, not on you, to give you the best quality and quantity of life. Maya > > I've basically been lurking since joining, because of hand pain that > limits my typing. Since I am estrogen-receptor positive, my onc has me > on Arimidex, which I've been using for appx. 9 months now. I am having > a lot of bone pain, especially in both my hands, along with swelling > (can't wear rings, can't even bear a watch on my wrist). I also have > pain across the back of my shoulders, and on some days pain in my feet. > I would like to know if anyone else is suffering from hand pain the way > I am. I was told by an internist, that she had a patient with the same > side effects, and the pain and swelling went away when her patient > stopped using the Arimidex. I will be seeing my onc tomorrow, but I can > almost guarantee he will say this has nothing to do with using the > Arimidex, and is not a side effect of having had chemo. I feel my > quality of life is being seriously effected by the bone pain, but I am > nervous about stopping the Arimidex...it makes me feel " protected. " > I've read some posts and it seems that some women have stopped taking > this medicine due to the side effects, etc., etc. I have some other > issues, but will address them at another time. Thanks in advance for > feedback! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2006 Report Share Posted October 10, 2006 Hi Suzanne, I'm also on Arimidex (for only 2 months so far) and have the same side effects. My onc. has said that I should try to see if my body will adapt to the effects (some do) or, in the alternative, I could opt to try another inhibitor. At this point, I'm going to give this at least 6-9 months and then see how I feel. Believe me, I don't want to have this pain for the next 5 years, but it is " real " and I think if my oncologist would not validate that for me, I'd consider switching oncologists. The hand pain for me is the worst because I am an avid knitter and find I can't do that as much as I'd like. Also, being 48 and feeling 98 isn't much fun!! Goos luck with your oncologist appointment. Like someone else suggested, just bring along the side effect list with you when you go and highlight all the ones you are having. Best wishes and continued strength. Ellen > > I've basically been lurking since joining, because of hand pain that > limits my typing. Since I am estrogen-receptor positive, my onc has me > on Arimidex, which I've been using for appx. 9 months now. I am having > a lot of bone pain, especially in both my hands, along with swelling > (can't wear rings, can't even bear a watch on my wrist). I also have > pain across the back of my shoulders, and on some days pain in my feet. > I would like to know if anyone else is suffering from hand pain the way > I am. I was told by an internist, that she had a patient with the same > side effects, and the pain and swelling went away when her patient > stopped using the Arimidex. I will be seeing my onc tomorrow, but I can > almost guarantee he will say this has nothing to do with using the > Arimidex, and is not a side effect of having had chemo. I feel my > quality of life is being seriously effected by the bone pain, but I am > nervous about stopping the Arimidex...it makes me feel " protected. " > I've read some posts and it seems that some women have stopped taking > this medicine due to the side effects, etc., etc. I have some other > issues, but will address them at another time. Thanks in advance for > feedback! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2006 Report Share Posted October 10, 2006 I’m on Arimidex and have bone pain also. It’s worst in my back and then my wrists, elbows, knees and ankles. When I talked to my doctor about it, it pulled up the side effects for this medication and showed me that 10% of the people who took this medication suffered from the same side effect. If your doctor tells you it’s not related, I would tell him to read the literature that comes with the medication. Personally, I can take Aleve and it controls the pain pretty well. But, if you can’t tolerate it, there are several other options. Bone Pain Effecting Quality of Life... I've basically been lurking since joining, because of hand pain that limits my typing. Since I am estrogen-receptor positive, my onc has me on Arimidex, which I've been using for appx. 9 months now. I am having a lot of bone pain, especially in both my hands, along with swelling (can't wear rings, can't even bear a watch on my wrist). I also have pain across the back of my shoulders, and on some days pain in my feet. I would like to know if anyone else is suffering from hand pain the way I am. I was told by an internist, that she had a patient with the same side effects, and the pain and swelling went away when her patient stopped using the Arimidex. I will be seeing my onc tomorrow, but I can almost guarantee he will say this has nothing to do with using the Arimidex, and is not a side effect of having had chemo. I feel my quality of life is being seriously effected by the bone pain, but I am nervous about stopping the Arimidex...it makes me feel " protected. " I've read some posts and it seems that some women have stopped taking this medicine due to the side effects, etc., etc. I have some other issues, but will address them at another time. Thanks in advance for feedback! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2006 Report Share Posted October 10, 2006 > I've basically been lurking since joining, because of hand pain that > limits my typing. Since I am estrogen-receptor positive, my onc has me > on Arimidex, which I've been using for appx. 9 months now. I am having > a lot of bone pain, especially in both my hands, along with swelling > (can't wear rings, can't even bear a watch on my wrist). I also have > pain across the back of my shoulders, and on some days pain in my feet. > I would like to know if anyone else is suffering from hand pain the way > I am. I was told by an internist, that she had a patient with the same > side effects, and the pain and swelling went away when her patient > stopped using the Arimidex. I will be seeing my onc tomorrow, but I can > almost guarantee he will say this has nothing to do with using the > Arimidex, and is not a side effect of having had chemo. I feel my > quality of life is being seriously effected by the bone pain, but I am > nervous about stopping the Arimidex...it makes me feel " protected. " > I've read some posts and it seems that some women have stopped taking > this medicine due to the side effects, etc., etc. I have some other > issues, but will address them at another time. Thanks in advance for > feedback! > > > > > > > --------------------------------- > Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2006 Report Share Posted October 10, 2006 > Hi Suzanne. I agree with all the others who have commented about the Arimidex, or other aromatase inhibitors. These are new drugs!! The drug companies came out with them and are making zillions of dollars by promoting them to be used instead of tamoxifen, which is generic and very cheap!!! These new drugs work by preventing the production of even the very small amount of estrogen that comes from the adrenal gland or fatty tissue. Nobody knows the long-term effect of causing absolute removal of all estrogen from our bodies!!!! Tamoxifen blocks the effects of estrogen on the breast tissue by binding to the receptors on the cells. So if you are menopausal you still have the benefit of the tiny amount of estrogen that all menopausal women normally have; this may have important benefits in our brains and bones and other significant places. I think we all need to be somewhat skeptical when new treatments become the flavor of the day, and the companies that make them refuse to acknowledge the severity and amount of side effects. As you can see from these letters, bone pain associated with aromatase inhibiors is not only 10% of the time; I rarely hear of a woman on them that doesn't have significant pain and other side effects. Yet, the pharmaceutical companies downplay the effects of these drugs in all their literature, and many oncology specialists believe the literature instead of their patients. Cancer patients are afraid and can be easily coerced into taking medications with the hope that they will keep them alive. We also need to be carefull to weigh all the evidence that medications will be a proven benefit, and not a significant risk. > I've basically been lurking since joining, because of hand pain that > limits my typing. Since I am estrogen-receptor positive, my onc has me > on Arimidex, which I've been using for appx. 9 months now. I am having > a lot of bone pain, especially in both my hands, along with swelling > (can't wear rings, can't even bear a watch on my wrist). I also have > pain across the back of my shoulders, and on some days pain in my feet. > I would like to know if anyone else is suffering from hand pain the way > I am. I was told by an internist, that she had a patient with the same > side effects, and the pain and swelling went away when her patient > stopped using the Arimidex. I will be seeing my onc tomorrow, but I can > almost guarantee he will say this has nothing to do with using the > Arimidex, and is not a side effect of having had chemo. I feel my > quality of life is being seriously effected by the bone pain, but I am > nervous about stopping the Arimidex...it makes me feel " protected. " > I've read some posts and it seems that some women have stopped taking > this medicine due to the side effects, etc., etc. I have some other > issues, but will address them at another time. Thanks in advance for > feedback! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2006 Report Share Posted October 10, 2006 Well said, Anne! I have the same concerns and am one who stopped taking the aromatase inhibitors, because of the reasons you expressed. Ruth > > Hi Suzanne. I agree with all the others who have commented about the Arimidex, or > other aromatase inhibitors. These are new drugs!! The drug companies came out with > them and are making zillions of dollars by promoting them to be used instead of > tamoxifen, which is generic and very cheap!!! These new drugs work by preventing the > production of even the very small amount of estrogen that comes from the adrenal gland > or fatty tissue. Nobody knows the long-term effect of causing absolute removal of all > estrogen from our bodies!!!! Tamoxifen blocks the effects of estrogen on the breast tissue > by binding to the receptors on the cells. So if you are menopausal you still have the benefit > of the tiny amount of estrogen that all menopausal women normally have; this may have > important benefits in our brains and bones and other significant places. I think we all need > to be somewhat skeptical when new treatments become the flavor of the day, and the > companies that make them refuse to acknowledge the severity and amount of side effects. > As you can see from these letters, bone pain associated with aromatase inhibiors is not > only 10% of the time; I rarely hear of a woman on them that doesn't have significant pain > and other side effects. Yet, the pharmaceutical companies downplay the effects of these > drugs in all their literature, and many oncology specialists believe the literature instead of > their patients. > > Cancer patients are afraid and can be easily coerced into taking medications with the hope > that they will keep them alive. We also need to be carefull to weigh all the evidence that > medications will be a proven benefit, and not a significant risk. > > > > > > > I've basically been lurking since joining, because of hand pain that > > limits my typing. Since I am estrogen-receptor positive, my onc has me > > on Arimidex, which I've been using for appx. 9 months now. I am having > > a lot of bone pain, especially in both my hands, along with swelling > > (can't wear rings, can't even bear a watch on my wrist). I also have > > pain across the back of my shoulders, and on some days pain in my feet. > > I would like to know if anyone else is suffering from hand pain the way > > I am. I was told by an internist, that she had a patient with the same > > side effects, and the pain and swelling went away when her patient > > stopped using the Arimidex. I will be seeing my onc tomorrow, but I can > > almost guarantee he will say this has nothing to do with using the > > Arimidex, and is not a side effect of having had chemo. I feel my > > quality of life is being seriously effected by the bone pain, but I am > > nervous about stopping the Arimidex...it makes me feel " protected. " > > I've read some posts and it seems that some women have stopped taking > > this medicine due to the side effects, etc., etc. I have some other > > issues, but will address them at another time. Thanks in advance for > > feedback! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2006 Report Share Posted October 10, 2006 Well said, Anne! I have the same concerns and am one who stopped taking the aromatase inhibitors, because of the reasons you expressed. Ruth > > Hi Suzanne. I agree with all the others who have commented about the Arimidex, or > other aromatase inhibitors. These are new drugs!! The drug companies came out with > them and are making zillions of dollars by promoting them to be used instead of > tamoxifen, which is generic and very cheap!!! These new drugs work by preventing the > production of even the very small amount of estrogen that comes from the adrenal gland > or fatty tissue. Nobody knows the long-term effect of causing absolute removal of all > estrogen from our bodies!!!! Tamoxifen blocks the effects of estrogen on the breast tissue > by binding to the receptors on the cells. So if you are menopausal you still have the benefit > of the tiny amount of estrogen that all menopausal women normally have; this may have > important benefits in our brains and bones and other significant places. I think we all need > to be somewhat skeptical when new treatments become the flavor of the day, and the > companies that make them refuse to acknowledge the severity and amount of side effects. > As you can see from these letters, bone pain associated with aromatase inhibiors is not > only 10% of the time; I rarely hear of a woman on them that doesn't have significant pain > and other side effects. Yet, the pharmaceutical companies downplay the effects of these > drugs in all their literature, and many oncology specialists believe the literature instead of > their patients. > > Cancer patients are afraid and can be easily coerced into taking medications with the hope > that they will keep them alive. We also need to be carefull to weigh all the evidence that > medications will be a proven benefit, and not a significant risk. > > > > > > > I've basically been lurking since joining, because of hand pain that > > limits my typing. Since I am estrogen-receptor positive, my onc has me > > on Arimidex, which I've been using for appx. 9 months now. I am having > > a lot of bone pain, especially in both my hands, along with swelling > > (can't wear rings, can't even bear a watch on my wrist). I also have > > pain across the back of my shoulders, and on some days pain in my feet. > > I would like to know if anyone else is suffering from hand pain the way > > I am. I was told by an internist, that she had a patient with the same > > side effects, and the pain and swelling went away when her patient > > stopped using the Arimidex. I will be seeing my onc tomorrow, but I can > > almost guarantee he will say this has nothing to do with using the > > Arimidex, and is not a side effect of having had chemo. I feel my > > quality of life is being seriously effected by the bone pain, but I am > > nervous about stopping the Arimidex...it makes me feel " protected. " > > I've read some posts and it seems that some women have stopped taking > > this medicine due to the side effects, etc., etc. I have some other > > issues, but will address them at another time. Thanks in advance for > > feedback! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2006 Report Share Posted October 10, 2006 Well said, Anne! I have the same concerns and am one who stopped taking the aromatase inhibitors, because of the reasons you expressed. Ruth > > Hi Suzanne. I agree with all the others who have commented about the Arimidex, or > other aromatase inhibitors. These are new drugs!! The drug companies came out with > them and are making zillions of dollars by promoting them to be used instead of > tamoxifen, which is generic and very cheap!!! These new drugs work by preventing the > production of even the very small amount of estrogen that comes from the adrenal gland > or fatty tissue. Nobody knows the long-term effect of causing absolute removal of all > estrogen from our bodies!!!! Tamoxifen blocks the effects of estrogen on the breast tissue > by binding to the receptors on the cells. So if you are menopausal you still have the benefit > of the tiny amount of estrogen that all menopausal women normally have; this may have > important benefits in our brains and bones and other significant places. I think we all need > to be somewhat skeptical when new treatments become the flavor of the day, and the > companies that make them refuse to acknowledge the severity and amount of side effects. > As you can see from these letters, bone pain associated with aromatase inhibiors is not > only 10% of the time; I rarely hear of a woman on them that doesn't have significant pain > and other side effects. Yet, the pharmaceutical companies downplay the effects of these > drugs in all their literature, and many oncology specialists believe the literature instead of > their patients. > > Cancer patients are afraid and can be easily coerced into taking medications with the hope > that they will keep them alive. We also need to be carefull to weigh all the evidence that > medications will be a proven benefit, and not a significant risk. > > > > > > > I've basically been lurking since joining, because of hand pain that > > limits my typing. Since I am estrogen-receptor positive, my onc has me > > on Arimidex, which I've been using for appx. 9 months now. I am having > > a lot of bone pain, especially in both my hands, along with swelling > > (can't wear rings, can't even bear a watch on my wrist). I also have > > pain across the back of my shoulders, and on some days pain in my feet. > > I would like to know if anyone else is suffering from hand pain the way > > I am. I was told by an internist, that she had a patient with the same > > side effects, and the pain and swelling went away when her patient > > stopped using the Arimidex. I will be seeing my onc tomorrow, but I can > > almost guarantee he will say this has nothing to do with using the > > Arimidex, and is not a side effect of having had chemo. I feel my > > quality of life is being seriously effected by the bone pain, but I am > > nervous about stopping the Arimidex...it makes me feel " protected. " > > I've read some posts and it seems that some women have stopped taking > > this medicine due to the side effects, etc., etc. I have some other > > issues, but will address them at another time. Thanks in advance for > > feedback! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2006 Report Share Posted October 10, 2006 > > I've basically been lurking since joining, because of hand pain that > limits my typing. Since I am estrogen-receptor positive, my onc has me > on Arimidex, I haven been on arimidex now - 2 1/2 years- My wrists have been weak wih the tendons easily pulled- almost debilitating pain at times- I wake up with " CONCRETE FEET " as I like to call it... I just had orthodics made for my shoes as my ankles were turning over (Pronating) from weak ankles. All my symptoms have been lessened by a break from work or not walking so many miles a day for my exercise- My wrists have healed and my feet are better- still on the arimidex... I want to think that the side effects are better than alternatives should the cancer return. Long term effects? Too soon to know yet. Andree www.essentialsoapsinc.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2006 Report Share Posted October 10, 2006 > > I've basically been lurking since joining, because of hand pain that > limits my typing. Since I am estrogen-receptor positive, my onc has me > on Arimidex, I haven been on arimidex now - 2 1/2 years- My wrists have been weak wih the tendons easily pulled- almost debilitating pain at times- I wake up with " CONCRETE FEET " as I like to call it... I just had orthodics made for my shoes as my ankles were turning over (Pronating) from weak ankles. All my symptoms have been lessened by a break from work or not walking so many miles a day for my exercise- My wrists have healed and my feet are better- still on the arimidex... I want to think that the side effects are better than alternatives should the cancer return. Long term effects? Too soon to know yet. Andree www.essentialsoapsinc.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2006 Report Share Posted October 10, 2006 > > I've basically been lurking since joining, because of hand pain that > limits my typing. Since I am estrogen-receptor positive, my onc has me > on Arimidex, I haven been on arimidex now - 2 1/2 years- My wrists have been weak wih the tendons easily pulled- almost debilitating pain at times- I wake up with " CONCRETE FEET " as I like to call it... I just had orthodics made for my shoes as my ankles were turning over (Pronating) from weak ankles. All my symptoms have been lessened by a break from work or not walking so many miles a day for my exercise- My wrists have healed and my feet are better- still on the arimidex... I want to think that the side effects are better than alternatives should the cancer return. Long term effects? Too soon to know yet. Andree www.essentialsoapsinc.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2006 Report Share Posted October 10, 2006 As it was explained to me, I had an option to take Tamoxifin but because the newer drug (Arimidex) was less likely to cause the side effect of blood clots,stroke, etc. my onc. suggested the Arimidex. I guess we all just have to weigh the " quality of life " issues with the " doing everything you can to limit a recurrance " and make our own judgments as to what is best for us as individuals. I, too, am afraid of the long term side effects of this drug but I'm more afraid that I will get a recurrance if I don't take it. Just my opinion and I certainly respect others who may differ in their beliefs. Hugs to all, Ellen > > > > I've basically been lurking since joining, because of hand pain that > > limits my typing. Since I am estrogen-receptor positive, my onc has > me > > on Arimidex, > > I haven been on arimidex now - 2 1/2 years- My wrists have been weak > wih the tendons easily pulled- almost debilitating pain at times- > I wake up with " CONCRETE FEET " as I like to call it... > I just had orthodics made for my shoes as my ankles were turning over > (Pronating) from weak ankles. All my symptoms have been lessened by a > break from work or not walking so many miles a day for my exercise- > My wrists have healed and my feet are better- > still on the arimidex... > I want to think that the side effects are better than alternatives > should the cancer return. Long term effects? Too soon to know yet. > Andree > www.essentialsoapsinc.com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2006 Report Share Posted October 10, 2006 As it was explained to me, I had an option to take Tamoxifin but because the newer drug (Arimidex) was less likely to cause the side effect of blood clots,stroke, etc. my onc. suggested the Arimidex. I guess we all just have to weigh the " quality of life " issues with the " doing everything you can to limit a recurrance " and make our own judgments as to what is best for us as individuals. I, too, am afraid of the long term side effects of this drug but I'm more afraid that I will get a recurrance if I don't take it. Just my opinion and I certainly respect others who may differ in their beliefs. Hugs to all, Ellen > > > > I've basically been lurking since joining, because of hand pain that > > limits my typing. Since I am estrogen-receptor positive, my onc has > me > > on Arimidex, > > I haven been on arimidex now - 2 1/2 years- My wrists have been weak > wih the tendons easily pulled- almost debilitating pain at times- > I wake up with " CONCRETE FEET " as I like to call it... > I just had orthodics made for my shoes as my ankles were turning over > (Pronating) from weak ankles. All my symptoms have been lessened by a > break from work or not walking so many miles a day for my exercise- > My wrists have healed and my feet are better- > still on the arimidex... > I want to think that the side effects are better than alternatives > should the cancer return. Long term effects? Too soon to know yet. > Andree > www.essentialsoapsinc.com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2006 Report Share Posted October 10, 2006 > > As it was explained to me, I had an option to take Tamoxifin but > because the newer drug (Arimidex) was less likely to cause the side > effect of blood clots,stroke, etc. my onc. suggested the Arimidex. Strokes are in all my family history so that is one reason I am on the arimidex. That and my age- 53 years young today. My son drove 75 miles to cook my dinner for my birthday. I am a blessed MOM for sure, Andree www.essentialsoapsinc.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2006 Report Share Posted October 10, 2006 Happy Birthday, dear Andree and many, MANY more! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2006 Report Share Posted October 10, 2006 Happy Birthday, dear Andree and many, MANY more! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2006 Report Share Posted October 10, 2006 Happy Birthday, dear Andree and many, MANY more! Quote Link to comment Share on other sites More sharing options...
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