Guest guest Posted March 24, 2004 Report Share Posted March 24, 2004 Dear , My son also had Infantile Spasms. Now I know he wasn't born autistic: he was a little charmer before he got ill. But I also know that he was lead poisoned in infancy: hair analysis at 10 months corrected age showed over 15 pp million lead in his hair (mine was 36, the lab's paediatric reference level was ONE pp million) and his blood lead level was 20mcgd/L : twice the current paediatric reference level. He also had his first mercury-containing vaccination at two weeks corrected age, when he was still jaundiced. His gut flora were probably a mess because he had been put on two antibiotics at birth and the hospital also gave him formula until my milk came in. So he won't have dealt with the mercury. He had a severe local reaction to his first DTP/Hib and a severe general reaction to his second dose. For the third round of vaccines, the pertussis was left out. He had thiomersal-containing DT in one leg and Hib in the other. The Hib may have contributed another 50mcg thiomersal (25mcg mercury). So at five months corrected age (to follow on from his earlier mercury exposure , he had perhaps 50mcg mercury at once. His decline started with occasional projectile vomiting, then inexplicable screaming for an hour at a time. By 7+ months corrected age he was (I think) cortically blind and fitting.No reason was ever found for the spasms. Now the high lead levels in his body show, I think, that we both have a problem with detoxing metals. A little lead and a little mercury together is known to be MUCH more toxic than the same amounts separately. It seems mercury is in the picture, along with pertussis toxins from thew whole cell vaccine, and lead, and the other vaccines (Hib? meningitis C?). Margaret (UK) > I don't recall seeing tremor listed as a symptom of acrodynia, and it > is less common in organic mercury tox as compared to inorganic or > elemental mercury tox. I don't find this terribly inconsistent, > children and adults often show fairly different signs of the same > problem - they are wired rather differently. If you really want > something to delve into, find out if acrodynia victims had tremor at > the time, or whether the grown ups who had acrodynia have it now. > > The cure of so many children on proper chelation is pretty conclusive > proof that they were mercury poisoned so this is more a curiosity than > a decisionmaking issue. > > Andy . . . . . . . . . .. . . . . . . > > > Andy, I see where you will be speaking at the Autism-One conference in > > May. If at all possible I will be attending your presentation. If you > > see me in the back of the audience waving my hand, it will be because > > I have a question that I would like for you to answer. And I would > > like to give you an opportunity to think about your answer before the > > question is asked. > > Those that know me from the internet know that I study from Medline, > > and have done so for over a decade. I entered into a study of autistic > > symptoms just about the day after my son presented with his first > > symptoms, and have relentlessly pursued that study for over 12 years, > > the age of my son with autism. > > About six or seven years ago, I studied mercury, I thought then that > > there might be a possibility that mercury could cause autism. > > However, there was just this one thing in the way. Autism is defined > > solely by a set of symptoms. Infantile spasms has been mentioned > > in approximately 30 or more times in articles about autism. It is > > a symptom that I can well recognize because it was a symptom that > > my child had at an early age. My father has Parkinson's disease, > > so in a clinical sense I know what that symptom looks like. > > What is undeniable is tremor is a prominent feature of mercury > > poisoning, there are over 100 articles that describe tremor in mercury > > poisoning even in infants, but there is no mention of tremor as a > > symptom of autism. There is no mention of infantile spasms in > > mercury poisoning. It is actually the reason that I stopped reviewing > > mercury as a possible contributor to autistic behavior, because quite > > frankly if the symptoms don't match, you have hit a dead end. > > I have read from several autism sites where the symptoms of mercury > > poisoning are listed along with autistic symptoms. It is concerning > > that tremor has been left out. Now a square peg can be driven in a > > round hole, but does it really fit? > > Best, Carlton Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2004 Report Share Posted March 24, 2004 Margaret, I must say that I still have a hard time listening to parents talk about the early symptoms of autism, the memories of my son are still very painful. I want you to look at this abstract, and also notice that this was in the year 1966. Hypsarrhythmia is a condition that causes infantile spasms, and look here what caused it. In more recent literature you rarely find these cases documented, and who could blame them, no one wants to admit this, I suppose it is court costs and their medical peers that doctors just don't want to get involved like this anymore. My heart really breaks for Dr.Wakefield. Best, Carlton Nord Med. 1966 Dec 8;76(49):1433-6. Related Articles, Links [Hypsarrhythmia after triple vaccination] [Article in Danish] Kringelbach J, Senstius J. PMID: 4380915 [PubMed - indexed for MEDLINE] > > I don't recall seeing tremor listed as a symptom of acrodynia, and > it > > is less common in organic mercury tox as compared to inorganic or > > elemental mercury tox. I don't find this terribly inconsistent, > > children and adults often show fairly different signs of the same > > problem - they are wired rather differently. If you really want > > something to delve into, find out if acrodynia victims had tremor > at > > the time, or whether the grown ups who had acrodynia have it now. > > > > The cure of so many children on proper chelation is pretty > conclusive > > proof that they were mercury poisoned so this is more a curiosity > than > > a decisionmaking issue. > > > > Andy . . . . . . . . . .. . . . . . . > > > > > Andy, I see where you will be speaking at the Autism-One > conference in > > > May. If at all possible I will be attending your presentation. > If you > > > see me in the back of the audience waving my hand, it will be > because > > > I have a question that I would like for you to answer. And I > would > > > like to give you an opportunity to think about your answer > before the > > > question is asked. > > > Those that know me from the internet know that I study from > Medline, > > > and have done so for over a decade. I entered into a study of > autistic > > > symptoms just about the day after my son presented with his first > > > symptoms, and have relentlessly pursued that study for over 12 > years, > > > the age of my son with autism. > > > About six or seven years ago, I studied mercury, I thought > then that > > > there might be a possibility that mercury could cause autism. > > > However, there was just this one thing in the way. Autism is > defined > > > solely by a set of symptoms. Infantile spasms has been mentioned > > > in approximately 30 or more times in articles about autism. It is > > > a symptom that I can well recognize because it was a symptom that > > > my child had at an early age. My father has Parkinson's disease, > > > so in a clinical sense I know what that symptom looks like. > > > What is undeniable is tremor is a prominent feature of mercury > > > poisoning, there are over 100 articles that describe tremor in > mercury > > > poisoning even in infants, but there is no mention of tremor as a > > > symptom of autism. There is no mention of infantile spasms in > > > mercury poisoning. It is actually the reason that I stopped > reviewing > > > mercury as a possible contributor to autistic behavior, because > quite > > > frankly if the symptoms don't match, you have hit a dead end. > > > I have read from several autism sites where the symptoms of > mercury > > > poisoning are listed along with autistic symptoms. It is > concerning > > > that tremor has been left out. Now a square peg can be driven in > a > > > round hole, but does it really fit? > > > Best, Carlton Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2004 Report Share Posted March 24, 2004 From the Geiers: Please, find attached to this email a copy of the full text of the Makani et al. article from Genes and Immunology saved as Makani et al. Thimerosal - Biochemical and Molecular Basis for Cell Death1.pdf in Adobe Acrobat Format. This article reflects the observations that have been made clinically, and leads one to directly see why some children go on to develop autism. It has been shown that children with autistic spectrum disorders have low glutathione levels to begin with as a result of their genetic make-up, and one can imagine what happens when thimerosal is added (i.e. the children's already low glutathione levels go to nill, and the oxidative stress of the mercury contained in the thimerosal causes the cells in the children's brains to start dieing). This also explains why adding more and more thimerosal-containing childhood vaccines to the schedule resulted in an autism epidemic, because as more and more mercury was given to children, children with higher and higher glutathione levels were still not able to handle the mercury, and developed neurological disorders. At some level thimerosal, no matter how much glutathione anyone had as a result of their genetic make-up, everyone would have been left with neurological disorders. From Dr. Bradstreet: Consistent with our genomic and cysteine data as well as those of is the following comment from this paper In summary, thimerosal (Hg component) induces apoptosis in human T cells via mitochondrial pathway by inducing oxidative stress and by depletion of GSH. Jeff Bradstreet MD Jo Pike National Autism Association Phone: 877-NAA-AUTISM Email: Jo@... http://nationalautismassociation.org/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2004 Report Share Posted March 25, 2004 Jo, You may have not seen my earlier posts where I said 'I am not about to let the vaccine companies off the hook' where I said 'My son developed the symptoms of autism within 24 hours of a hepatitis B vaccination. What I said was that the symptoms of autism are not the symptoms of mercury poisoning. Why do you think the members of the CDC are laughing at us all? You should read 'Neutron Activation Analysis of Hair Samples for the Identification of Autism' Lin-Wen Hu, A.Bernard, and Jianmei Che where they show that the children with ASD have much lower concentrations of mercury than control children. Why are the parents of autistic children chelating what is not there? And why are the parents of autism told that 'it is there', just trapped somewhere in their little bodies? This is something I am not laughing about. Yes, I can show you several of the mechanisms where thimerosal is harmful, above and beyond depletion of intercellular GSH, so what? It doesn't prove our case. And until we can show them some real evidence, we are simply 'shouting wolf!'. There are a few things that I can only speculate on, one is that my son was predominately infant formula fed, in Australia (2002)infant formulas contained less mercury than breast milk. Now that is not true of the infant formulas in Germany (1990), those were of similar quantities of mercury to that of breast milk. While breastmilk contains the intrinsic factor to utilize methylcobalamin, there is that suspicion that infant formulas only store methylcobalamin. Let's get some real evidence for the CDC, so that they cannot turn their heads. I am not better or smarter than any parent in this group with an autistic child, but I believe that we can get the evidence that we need to prove our case, that vaccines can trigger autistic symptoms. Yet, I am not going to be a fool and say that the symptoms of mercury poisoning are the same as the symptoms of autism. What I want is the parents of autistic children to look at the symptoms of mercury poisoning, and know why the CDC is not taking us seriously. Best, Carlton Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2004 Report Share Posted March 25, 2004 All Don't bother with the CDC/FDA/WHO. It is in their best financial interest to ignore causation data and they historically have (and will continue). I wouldn't try to " turn the heads of CDC " for any reason - we are better served working through the respective State's Attorneys General. BTW - the data in the study below are pertinent to hair analyses only and dovetail well with the results of Holmes and Bradstreet showing that mercury excretion rates in autistic children in general are much lower than in neurotypical children. [ ] Re: Autism One-Andy: Jo, You may have not seen my earlier posts where I said 'I am not about to let the vaccine companies off the hook' where I said 'My son developed the symptoms of autism within 24 hours of a hepatitis B vaccination. What I said was that the symptoms of autism are not the symptoms of mercury poisoning. Why do you think the members of the CDC are laughing at us all? You should read 'Neutron Activation Analysis of Hair Samples for the Identification of Autism' Lin-Wen Hu, A.Bernard, and Jianmei Che where they show that the children with ASD have much lower concentrations of mercury than control children. Why are the parents of autistic children chelating what is not there? And why are the parents of autism told that 'it is there', just trapped somewhere in their little bodies? This is something I am not laughing about. Yes, I can show you several of the mechanisms where thimerosal is harmful, above and beyond depletion of intercellular GSH, so what? It doesn't prove our case. And until we can show them some real evidence, we are simply 'shouting wolf!'. There are a few things that I can only speculate on, one is that my son was predominately infant formula fed, in Australia (2002)infant formulas contained less mercury than breast milk. Now that is not true of the infant formulas in Germany (1990), those were of similar quantities of mercury to that of breast milk. While breastmilk contains the intrinsic factor to utilize methylcobalamin, there is that suspicion that infant formulas only store methylcobalamin. Let's get some real evidence for the CDC, so that they cannot turn their heads. I am not better or smarter than any parent in this group with an autistic child, but I believe that we can get the evidence that we need to prove our case, that vaccines can trigger autistic symptoms. Yet, I am not going to be a fool and say that the symptoms of mercury poisoning are the same as the symptoms of autism. What I want is the parents of autistic children to look at the symptoms of mercury poisoning, and know why the CDC is not taking us seriously. Best, Carlton ======================================================= Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2004 Report Share Posted March 25, 2004 , You are coming across just a wee-wee bit paranoiac. Every Wednesday on the Discovery Health Channel, they have a program called 'Medical Mysteries'. Occasionally there is a show involving the CDC, you get to see these professionals in action. It is amazing how they can go into a community and find the very source of an infectious disease. I was impressed. I would love to have access to the technology (the laboratory equipment) that these people have there. I love forensic science progams too. And I can just imagine what I could with all that technology. I would sample skin, hair, teeth, urine, stool, saliva. you name it, and I would find those things out about my son that I have wondered about for years. Don't burn bridges, it might be the CDC that helps us one day. Best, Carlton Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2004 Report Share Posted March 26, 2004 Why must we prove to the CDC something that is basically common sense? Nameley, that you don't inject the 2nd most toxic substance on the planet directly into a newborn's body before the blood brain barrier has formed just because it is the cheapest preservative on the market. The symptoms of mercury poisoning parallel autistic symptoms. The similiarities far outnumber any differences. > Jo, You may have not seen my earlier posts where I said 'I am not > about to let the vaccine companies off the hook' where I said 'My son > developed the symptoms of autism within 24 hours of a hepatitis B > vaccination. What I said was that the symptoms of autism are not > the symptoms of mercury poisoning. > Why do you think the members of the CDC are laughing at us all? > You should read 'Neutron Activation Analysis of Hair Samples for the > Identification of Autism' Lin-Wen Hu, A.Bernard, and Jianmei Che > where they show that the children with ASD have much lower > concentrations of mercury than control children. Why are the parents > of autistic children chelating what is not there? And why are the > parents of autism told that 'it is there', just trapped somewhere > in their little bodies? This is something I am not laughing about. > Yes, I can show you several of the mechanisms where thimerosal > is harmful, above and beyond depletion of intercellular GSH, so what? > It doesn't prove our case. And until we can show them some real > evidence, we are simply 'shouting wolf!'. > There are a few things that I can only speculate on, one is that my > son was predominately infant formula fed, in Australia (2002)infant > formulas contained less mercury than breast milk. Now that is not true > of the infant formulas in Germany (1990), those were of similar > quantities of mercury to that of breast milk. While breastmilk > contains the intrinsic factor to utilize methylcobalamin, there is > that suspicion that infant formulas only store methylcobalamin. > Let's get some real evidence for the CDC, so that they cannot > turn their heads. I am not better or smarter than any parent in this > group with an autistic child, but I believe that we can get the > evidence that we need to prove our case, that vaccines can trigger > autistic symptoms. > Yet, I am not going to be a fool and say that the symptoms of > mercury poisoning are the same as the symptoms of autism. What > I want is the parents of autistic children to look at the symptoms of > mercury poisoning, and know why the CDC is not taking us seriously. > Best, Carlton Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2004 Report Share Posted March 26, 2004 > Jo, You may have not seen my earlier posts where I said 'I am not > about to let the vaccine companies off the hook' where I said 'My son > developed the symptoms of autism within 24 hours of a hepatitis B > vaccination. I can give you my son's experience, maybe you can find something here to give you some information. My son was autistic from HepB vax at 2 days old. He has a dx of " Kanner's autism " , which is autism from birth, or " genetic " . After much experimentation, I discovered he tolerated basically no foods. HNI enzymes allowed him to eat many, but not all, foods. Chelation with ALA removed ALL his food problems, plus eliminated his tendency toward yeast. I also used several supplements to replenish his body, altho he did not start tolerating supplements until about round 50. He no longer needs most supplements. But even with chelation, certain issues remained. It was frustrating, because an issue would disappear for about a week, then come back again and stick around. It was like, as the metals were leaving, something else was increasing to take their place. The high dose vitamin A protocol helped tremendously. This addresses measles virus. Now my son is on anti-virals [maintenance dose vitamin A, plus olive leaf extract and Lauricidin]. It has been about three months of anti-viral now, and for the past month his issues have not come back, at least so far. My son is making tremendous progress. The only drawback is that viral die off causes major yeast again, which my son had not had for over a year before this time. So for my son, he was apparently high metal AND high virus. Good luck in searching for your child's answers. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2004 Report Share Posted March 26, 2004 Suppose I was describe an animal to you, do you think you could tell what it was? A long-tailed often destructive rodent similar to but larger than a mouse. But I didn't tell you the tail was fuzzy. You would think it was a rat and not a squirrel. You need to look up for yourself what the symptoms of mercury poisoning are, get a video and view those symptoms. Indeed thimerosal is not a safe substance to be giving to babies, I agree. Thimerosal is like a hurricane, the day after a hurricane you can witness the path of destruction, but the wind is gone. Best, Carlton > > Jo, You may have not seen my earlier posts where I said 'I am not > > about to let the vaccine companies off the hook' where I said 'My > son > > developed the symptoms of autism within 24 hours of a hepatitis B > > vaccination. What I said was that the symptoms of autism are not > > the symptoms of mercury poisoning. > > Why do you think the members of the CDC are laughing at us all? > > You should read 'Neutron Activation Analysis of Hair Samples for > the > > Identification of Autism' Lin-Wen Hu, A.Bernard, and Jianmei > Che > > where they show that the children with ASD have much lower > > concentrations of mercury than control children. Why are the > parents > > of autistic children chelating what is not there? And why are the > > parents of autism told that 'it is there', just trapped somewhere > > in their little bodies? This is something I am not laughing about. > > Yes, I can show you several of the mechanisms where thimerosal > > is harmful, above and beyond depletion of intercellular GSH, so > what? > > It doesn't prove our case. And until we can show them some real > > evidence, we are simply 'shouting wolf!'. > > There are a few things that I can only speculate on, one is that > my > > son was predominately infant formula fed, in Australia (2002)infant > > formulas contained less mercury than breast milk. Now that is not > true > > of the infant formulas in Germany (1990), those were of similar > > quantities of mercury to that of breast milk. While breastmilk > > contains the intrinsic factor to utilize methylcobalamin, there is > > that suspicion that infant formulas only store methylcobalamin. > > Let's get some real evidence for the CDC, so that they cannot > > turn their heads. I am not better or smarter than any parent in > this > > group with an autistic child, but I believe that we can get the > > evidence that we need to prove our case, that vaccines can trigger > > autistic symptoms. > > Yet, I am not going to be a fool and say that the symptoms of > > mercury poisoning are the same as the symptoms of autism. What > > I want is the parents of autistic children to look at the symptoms > of > > mercury poisoning, and know why the CDC is not taking us > seriously. > > Best, Carlton Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2004 Report Share Posted March 26, 2004 Dana, Thank you! The first hope we had was with Dr.Lieberman, he had us go gluten and casein free, a number of herbal treatments, antivirals, nystatin, etc.. He was an environmental MD. http://www.coem.com/ He even saw my father with Parkinson's disease, he suspected my father might have heavy metal toxicity... but he never suspected my son did. Dr.Lieberman is THE doctor to go see if you have heavy metal toxicity, he is famous in that area of research. Still nothing seemed to be helping for very long, my son was just on a roller coaster, good days, followed by bad days. I met a doctor on the internet from the Gut-Group, her name was Dr. Kane http://www.bodybio.com , so I went to Dr.Lieberman and he was pleased that this is what we wanted to do with our son, he had been afraid of a lot of things we wanted to try, but this delighted him. Two weeks on her diet and my son was talking for the first time, for six months he continued to improve, and single words turned into sentences. That was the summer I joined this list, and I believed that my son was metal poisoned from what I read, I was excited about all the kids that sounded like they were recovering. I wasn't about to go back to Dr.Lieberman, because I knew what he was going to say, that I was going to get involved in something, and I was going to regret it. So, I traveled up state to see a doctor that had been giving injections for heavy metal toxicity. He gave me DMSA, not time released, but powder DMSA, and we were to send him back a urinary sample. I gave him only 1/4th of what he had recommended, and my son looked like he was going to die. He laid around, his eyes looked like someone had punched him in both eyes, they were so dark.... and that day he stopped talking. That has to be over three years ago, and he still hasn't talked again. I continue with Dr.Kane's diet, it helps, I started something new giving him raw milk, and his body is now strong and he has had catch growth from being on an elimination dairy diet for so long. The SCDiet also seem to help him, but it is too difficult to follow, because my son will not eat, and I give in, because he had been so thin for so many years, that just seeing him eat makes me feel better. I think he is doing well, if he could just talk again. He can communicate with me through writing. I sure don't know how that little bit of DMSA could do so much harm, but it did. Now the enzymes dump ammonia, I don't know how it does it, but it is something that I have noticed everytime we have given him the enzymes, he is better after he eliminates that ammonia in his urine. You cannot miss the smell of ammonia. Best, Carlton Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2004 Report Share Posted March 26, 2004 Unfortunately, I have been threatened by CDC's legal counsel several times concerning the thimerosal and autism issue. Perhaps you should walk a mile in my shoes before you start using terms like paranoid. Hooker, Ph.D., P.E. Autism Healing Network [ ] Re: Autism One-Andy: , You are coming across just a wee-wee bit paranoiac. Every Wednesday on the Discovery Health Channel, they have a program called 'Medical Mysteries'. Occasionally there is a show involving the CDC, you get to see these professionals in action. It is amazing how they can go into a community and find the very source of an infectious disease. I was impressed. I would love to have access to the technology (the laboratory equipment) that these people have there. I love forensic science progams too. And I can just imagine what I could with all that technology. I would sample skin, hair, teeth, urine, stool, saliva. you name it, and I would find those things out about my son that I have wondered about for years. Don't burn bridges, it might be the CDC that helps us one day. Best, Carlton ======================================================= Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2004 Report Share Posted March 26, 2004 , did the animals die because the scientist guys kept filling them with metals? If so, then we don't have an exact parallel because our children presumably are no longer being filled with metals (or not nearly as much). If they kept being filled with metals then maybe they would die, too? Having said that..... Nicky seems perfectly capable of excreting metals in his hair/urine. He was exposed through thimerosal, my own amalgams and the emergency root canal (all amalgam) and some other dental work while I was pregnant (I really wish this all had never happened). So he was definitely exposed to a great deal of metal. However, he had a relatively normal hair test, unprovoked urine showed Hg, 14 rounds of low-dose chelation hasn't hurt or helped much. I'd probably still be doing the ALA but he's been getting all these terrible pains in his legs and so I've quit everything until I sort that out. Maybe he's still able to excrete them but just had such a walloping dose of them that whatever has happened to him is permanent -- I just don't know. His biggest improvements happened between the ages of 3 and 5 and we weren't doing chelation then. However, he still improves a lot every day, but is definitely ASD. I think he's probably one of those who would do well with anti-virals, but I feel our hands are tied until the pain thing resolves, which I am working on (as you know). I find this an interesting discussion, by the way. Thanks. Marti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2004 Report Share Posted March 26, 2004 I wrote the CDC last year about thimerosal....This is my reply. The manufacture of immunobiologics in the United States is regulated by the Food and Drug Administration, not CDC. I can't speak for the packaging of RhoGam 16 years ago, but the current product does not contain a preservative, specifically thimerosal (which contains mercury). Typically, the amount of mercury in a dose of any thimerosal- containing product is very low. Further, there is no evidence that such a small dose is capable of harming a developing fetus. I'm very sorry your child is disabled, but there are many causes of these conditions. The weight of scientific evidence does not support the low dose of mercury in vaccines or other biologic products as a cause of these problems. However, the manufacturers have removed thimerosal from almost all vaccines and other biologic products as a precaution. Atkinson, MD, MPH National Immunization Program Centers for Disease Control and Prevention > Unfortunately, I have been threatened by CDC's legal counsel several > times concerning the thimerosal and autism issue. Perhaps you should > walk a mile in my shoes before you start using terms like paranoid. > > > Hooker, Ph.D., P.E. > Autism Healing Network > > > [ ] Re: Autism One-Andy: > > > , > You are coming across just a wee-wee bit paranoiac. Every Wednesday on > the Discovery Health Channel, they have a program called 'Medical > Mysteries'. Occasionally there is a show involving the CDC, you get to > see these professionals in action. It is amazing how they can go into a > community and find the very source of an infectious disease. I was > impressed. I would love to have access to the technology (the laboratory > equipment) that these people have there. I love forensic science progams > > too. And I can just imagine what I could with all that technology. I > would sample skin, hair, teeth, urine, stool, saliva. you name it, and I > would find those things out about my son that I have wondered about for > years. Don't burn bridges, it might be the CDC that helps us > one day. Best, Carlton > > > > ======================================================= > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2004 Report Share Posted March 26, 2004 > You should read 'Neutron Activation Analysis of Hair Samples for the > Identification of Autism' Lin-Wen Hu, A.Bernard, and Jianmei Che > where they show that the children with ASD have much lower > concentrations of mercury than control children. Why are the parents > of autistic children chelating what is not there? Dear , Aposhian ( a reputed toxocologist) gave a presentation at the IOM on 9th February (available on-line). As far as I recall, he said he has come only recently to the possible mercury-autism connection. He said what made him think there might well be something to it was the replication by MIT (the work you refer to above) of the results of Amy Holmes' analysis of the first baby haircuts of autistic and control children. The point is that if a baby has an impairment or an inability to get rid of heavy metals then they are NOT going to show up in the hair at the levels found in the hair of a baby who can eliminate the metals properly. So it NOT showing up in the hair (which is a normal route of excretion) is evidence of retained toxic material; it doesn't mean it's not there, quite the reverse, in fact. Margaret Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2004 Report Share Posted March 26, 2004 Margaret, Do you know what he is going to find? Because I covered this area of defects in metal transport, mercury transport. Now I didn't do this study to disprove this theory, largely what I had been looking for was the defect in metal transport. That very possibly there was deficiency I was looking for something to correct this situation, because I believed too that it just had to exist. Well what I did find surprised me, animals breed to have this defect accumulated metals until they died. I wasn't satisfied and I looked for over three months for defects in metal transporting systems, and they all said the same thing... the animals died. Now I have these articles if you would like to read them. Best, Carlton > > You should read 'Neutron Activation Analysis of Hair Samples for > the > > Identification of Autism' Lin-Wen Hu, A.Bernard, and Jianmei > Che > > where they show that the children with ASD have much lower > > concentrations of mercury than control children. Why are the > parents > > of autistic children chelating what is not there? > > Dear , > Aposhian ( a reputed toxocologist) gave a presentation at the IOM on > 9th February (available on-line). As far as I recall, he said he has > come only recently to the possible mercury-autism connection. He > said what made him think there might well be something to it was the > replication by MIT (the work you refer to above) of the results of > Amy Holmes' analysis of the first baby haircuts of autistic and > control children. The point is that if a baby has an impairment or > an inability to get rid of heavy metals then they are NOT going to > show up in the hair at the levels found in the hair of a baby who > can eliminate the metals properly. So it NOT showing up in the hair > (which is a normal route of excretion) is evidence of retained toxic > material; it doesn't mean it's not there, quite the reverse, in fact. > Margaret Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2004 Report Share Posted March 26, 2004 Margaret, I like you, I wouldn't try to offend you. I think you are smart and have fine reasoning abilities, however I just think if you could read some additional information on the topic of metal transport, and perhaps early nutrition, that I have found, you might feel differently. Best, Carlton Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2004 Report Share Posted March 26, 2004 Your logic on the issue of metals transport is completely flawed. I'd suggest you hit the journals and look at the issue of hair, skin and nails detox of heavy metals... See Haley, Bradstreet, Holmes, etc. as good starting points. [ ] Re: Autism One-Andy: Margaret, I like you, I wouldn't try to offend you. I think you are smart and have fine reasoning abilities, however I just think if you could read some additional information on the topic of metal transport, and perhaps early nutrition, that I have found, you might feel differently. Best, Carlton ======================================================= Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2004 Report Share Posted March 26, 2004 , I didn't know anything about it to have an opinion, and that is just what I did was read from the journals so that I could learn more about it. So I could see if anything could be done. We did many hair analysises, Dr.Lieberman put my son on Mezotrace a multi-mineral supplement, and we tested his heavy metals, they dropped to way below normal. I stopped the supplement, tested again, and they were back up again. Only, there wasn't noticeable improvement when he had the metals and when he didn't. Logic didn't even enter the picture, these were controlled laboratory experiments. What you might not realize is I want science to find the cause of autism, and I don't care what they find, as long as I know what causes it. I am disappointed when theories turn out to be wrong. Best, Carlton > > Your logic on the issue of metals transport is completely flawed. I'd > suggest you hit the journals and look at the issue of hair, skin and > nails detox of heavy metals... See Haley, Bradstreet, Holmes, etc. as > good starting points. > > > [ ] Re: Autism One-Andy: > > > Margaret, I like you, I wouldn't try to offend you. I think > you are smart and have fine reasoning abilities, however > I just think if you could read some additional information > on the topic of metal transport, and perhaps early > nutrition, that I have found, you might feel differently. > Best, Carlton > > > > > > > ======================================================= > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2004 Report Share Posted March 26, 2004 > Now the enzymes dump ammonia, I don't know how it does > it, but it is something that I have noticed everytime > we have given him the enzymes, he is better after he > eliminates that ammonia in his urine. You cannot miss > the smell of ammonia. I am confused...I thought that having ammonia in the urine was a sign of either 1)a bacterial infection in the bladder or 2)the body was producing excessive ammonia as a result of excessive oxidation and the liver was not turning the ammonia into urea before it was taken to the kidneys. Since having ammonia in the urine is a bad thing, where is the ammonia coming from if 1) there is no bladder infection, and 2)it is being discharged in the urine and one assumes that the liver is doing its job correctly? Wouldn't the enzymes help with the over-oxidation caused from protein digestion or ameliorate bad bacteria affects and thus reduce the amount of ammonia coming out in the urine? I'm dealing with this issue in my daughter currently (high urinary ammonia) and would appreciate enlightenment as to what's going on. I have just started giving her digestive enzymes again, and I'm noticing less ammonia smell in her urine. Is this now a bad sign that she's not eliminating it? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2004 Report Share Posted March 26, 2004 With an " N " of one, there are too many confounding issues here surrounding your son's dx and rx... Metals alone are only part of the picture and excretion there of may or may not be accompanied by cognitive improvement... [ ] Re: Autism One-Andy: > > > Margaret, I like you, I wouldn't try to offend you. I think you are > smart and have fine reasoning abilities, however I just think if you > could read some additional information on the topic of metal > transport, and perhaps early nutrition, that I have found, you might > feel differently. > Best, Carlton > > > > > > > ======================================================= > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2004 Report Share Posted March 26, 2004 , There is one thing that I can say with confidence about excretion, when he unloads urinary ammonia he is much better. When I compared the symptoms of metal toxicity to that of hyperammonemia, now that sounded a lot more like my child. Best, Carlton > > > > Your logic on the issue of metals transport is completely flawed. I'd > > > suggest you hit the journals and look at the issue of hair, skin and > > nails detox of heavy metals... See Haley, Bradstreet, Holmes, etc. as > > > good starting points. > > > > [ ] Re: Autism One-Andy: > > > > > > Margaret, I like you, I wouldn't try to offend you. I think you are > > smart and have fine reasoning abilities, however I just think if you > > could read some additional information on the topic of metal > > transport, and perhaps early nutrition, that I have found, you might > > feel differently. > > Best, Carlton > > > > > > > > > > > > > > ======================================================= > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2004 Report Share Posted March 26, 2004 Pink's disease is only one type of metals toxicity. Also, your son may be suffering from hyperammonemia indeed. One good thing to do is to complete some genetic testing on polymorphisms associated with metals excretion (ApoE4, MTHFR etc.) - if your son's alleles appear to be normal, move on... Not all autism and autism-spectrum disorders are due to metals excretion issues. [ ] Re: Autism One-Andy: > > > > > > Margaret, I like you, I wouldn't try to offend you. I think you are > > smart and have fine reasoning abilities, however I just think if you > > could read some additional information on the topic of metal > > transport, and perhaps early nutrition, that I have found, you might > > feel differently. > > Best, Carlton > > > > > > > > > > > > > > ======================================================= > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2004 Report Share Posted March 26, 2004 Donna, Your observations are very clear, and every word you wrote is correct. It certainly is an unusal condition of hyperammonemia in autistic children, many of the drugs used for this actually can make the children worst. There are many similarites and grave differences in the way children with autism handle ammonia compared with the well known disease of hyperammonemia. From what I read, lipase should increase the ammonia and be harmful to those with a hyperammonemia condition, yet, children with autism can thrive on lipase. I tried lactulose, but as much hope I had in using that product, in the long run I don't think he did all that well. I tried another product called NH4-redox (lactitol)from Emerson's, that did a little better. The best product that I used from Dr.Kane's program was called cal/mag butyrate. The enzymes absolutely. Surprisingly the raw milk has had a better and longer lasting effect, of course the raw milk contains both butyrate and enzymes. How to make it go away completely? .... I am afraid I haven't found the solution yet. Best, Carlton > > Now the enzymes dump ammonia, I don't know how it does > > it, but it is something that I have noticed everytime > > we have given him the enzymes, he is better after he > > eliminates that ammonia in his urine. You cannot miss > > the smell of ammonia. > > I am confused...I thought that having ammonia in the urine was a sign > of either 1)a bacterial infection in the bladder or 2)the body was > producing excessive ammonia as a result of excessive oxidation and > the liver was not turning the ammonia into urea before it was taken > to the kidneys. Since having ammonia in the urine is a bad thing, > where is the ammonia coming from if 1) there is no bladder infection, > and 2)it is being discharged in the urine and one assumes that the > liver is doing its job correctly? Wouldn't the enzymes help with the > over-oxidation caused from protein digestion or ameliorate bad > bacteria affects and thus reduce the amount of ammonia coming out in > the urine? I'm dealing with this issue in my daughter currently > (high urinary ammonia) and would appreciate enlightenment as to > what's going on. I have just started giving her digestive enzymes > again, and I'm noticing less ammonia smell in her urine. Is this now > a bad sign that she's not eliminating it? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2004 Report Share Posted March 26, 2004 , Thank you, The Greenwood Genetic Center ran an incredible amount of testing, they didn't find any thing, but they did a wonderful job of looking at so many things, covering so many very rare conditions. I got amino acid testing, blood work, genetic scans for much more than just fragile X. The only two things that came out of all those tests were an urinary increase in p-bromo-benzoic acid, and they didn't know where that came from, and it is not just any benzoic acid, it is the p-bromo. I never found the source of it either. And he was slightly shy in cystine, but he is not anymore. They even covered the succinic. Best, Carlton > > > > > > Your logic on the issue of metals transport is completely flawed. > > > I'd > > > > > suggest you hit the journals and look at the issue of hair, skin and > > > nails detox of heavy metals... See Haley, Bradstreet, Holmes, etc. > as > > > > > good starting points. > > > > > > [ ] Re: Autism One-Andy: > > > > > > > > > Margaret, I like you, I wouldn't try to offend you. I think you are > > > smart and have fine reasoning abilities, however I just think if you > > > > could read some additional information on the topic of metal > > > transport, and perhaps early nutrition, that I have found, you might > > > > feel differently. > > > Best, Carlton > > > > > > > > > > > > > > > > > > > > > ======================================================= > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2004 Report Share Posted March 26, 2004 Go to: http://factsformedia.com/ and click on the link to Dr. Bradstreet Study 06/03 There was a study done on ASD children with low mercury in hair tests and chelation. There should be more research done in this field because there is a lot of disagreement about chelation. The only one who can back up chelation with science & experience is Andy Cutler. You should read his book. That doesn't mean that other people also have success with other treatments but they are not scientifically proven (not clear why they work or why it worked with this special person) or there might be a high health risk for some people. I tried some Metal-Free with my son (with lots of lab test before & after to do some documentation) and consider myself very lucky (no side effects) after reading Andy's book. I wouldn't do it again. Metal Free just doesn't has the data (number of people) to back it up nor the science how it works. That is why I would like more independent research done including safety studies. Carsten [ ] Re: Autism One-Andy: Margaret, Do you know what he is going to find? Because I covered this area of defects in metal transport, mercury transport. Now I didn't do this study to disprove this theory, largely what I had been looking for was the defect in metal transport. That very possibly there was deficiency I was looking for something to correct this situation, because I believed too that it just had to exist. Well what I did find surprised me, animals breed to have this defect accumulated metals until they died. I wasn't satisfied and I looked for over three months for defects in metal transporting systems, and they all said the same thing... the animals died. Now I have these articles if you would like to read them. Best, Carlton > > You should read 'Neutron Activation Analysis of Hair Samples for > the > > Identification of Autism' Lin-Wen Hu, A.Bernard, and Jianmei > Che > > where they show that the children with ASD have much lower > > concentrations of mercury than control children. Why are the > parents > > of autistic children chelating what is not there? > > Dear , > Aposhian ( a reputed toxocologist) gave a presentation at the IOM on > 9th February (available on-line). As far as I recall, he said he has > come only recently to the possible mercury-autism connection. He > said what made him think there might well be something to it was the > replication by MIT (the work you refer to above) of the results of > Amy Holmes' analysis of the first baby haircuts of autistic and > control children. The point is that if a baby has an impairment or > an inability to get rid of heavy metals then they are NOT going to > show up in the hair at the levels found in the hair of a baby who > can eliminate the metals properly. So it NOT showing up in the hair > (which is a normal route of excretion) is evidence of retained toxic > material; it doesn't mean it's not there, quite the reverse, in fact. > Margaret ======================================================= Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.