Guest guest Posted November 10, 2002 Report Share Posted November 10, 2002 Hi Grace, I have a condition, Chiari Malformation, that is thought to be caused by the sutures in the skull closing to early. My mother had a thyroid condition (hypothyroid but possibly undiagnosed hyperthyroid prior to that) and I have Graves. There does seem to be a greater incidence of thyroid problems among those of us who have Chiari than among the general population. Shirley see my cat pictures at http://communities.msn.co.uk/Friendsfamilyandfelines2 > Message: 1 > Date: Sun, 10 Nov 2002 08:00:09 -0000 > > Subject: seeking info on a link between GD and craniostenosis > > Hi, Im the 37yr old mother of 3 children, the eldest of which has a > condition called craniostenosis.. basically the gaps (sutures) in the > skull close before birth or soon after, leading to the skull not > growing at the normal rate or growing out of shape..from what i have > been able to find on the web this is linked to problems with the > thyroid gland and the baby being hyper in utero.. Is this common > knowledge among people with Graves?.. my mother, grandmother and aunt > had Graves (or goiter type thyroid stuff) and im currently undergoing > tests.. i seem to have alot of the symptoms, but then they are so > varied i guess most people without Graves have some too.. Im > wondering why this isnt something we are warned of in pregnancy..im > wondering if i had stated i had Graves would i have been warned > then.. no one even mentioned thyroid after he was diagnosed..if > anyone has a child grandchild etc with a history of cranial sutures > joining prematurely would you please let me know, if its offtopic for > the list im sorry.. and id gladly hear from people off the list if > thats better.. i guess, being honest, im a bit scared..my mum has > always been (an i hope i dont offend anyone saying this) a difficult > personality.. aggressive, rude, refusing medical treatment or signing > herself out of hospital against advise.. i always thought it was just > how she was until i spoke to a friend who knew of the condition and > was told the emotional stuff can be a symptom too.. if ive got it > will i end up that way? or will the meds keep me " sane " .. no one ever > called what Mum has Graves.. but she had the goiter out and has > the " Feldman " eyes so is that enough to " qualify " or could that be > something else as well.. sorry if im rambling but my head is in a > spin.. i had 3 premmies and spent weeks in intensive care.. if it is > something in me that could have been fixed i will be soo angry.. I > really dont think i have it though because im way over weight and > from what ive read and how Mum was the weight just falls off..i > wonder if its possible to just have it when pregnant? cus i wasnt > sick a day but i always lost like 20lbs a pregnancy..thanks for any > advise in advance and hugs to all > Grace > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2002 Report Share Posted November 10, 2002 Im guessing i was hyper before preg too.. had the rashes, bowel probs, anxiety, gall attacks, way high blood pressure even at 18.... they put me on beta blockers.. think i read somewhere that helps with thryoid too? anyway.. all my symptoms seemed to stop while i was preg.. and for a few months after.. can preg hit this into remission or reset the thyroid? and can it trigger it in a child or is it just the results of my hormone stuff that caused it.. im heading for the Drs with him though cus he is more than 10cms above the top percentile in height and growth for a 9yr old.. more than 5ft at 9yrs.. if i project that out to 20 yrs and they say a boy grows to 23.. he would be well over 7ft..got to be something causing that..sigh, wish i could trust the Drs to diagnose it.. Grace Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2002 Report Share Posted November 11, 2002 In a message dated 11/10/2002 4:13:01 PM Eastern Standard Time, graves_support writes: I'm not sure who replied, I think maybe Simon, Thanks for answering my question!, I doubt or I seariosly hope I dont have to radically change my diet,but I do want to get more nutritionaly fit. (If that even makes sense). I am making a consiouse effort to monitor what I eat, and see how I feel. > > US food packaging regulations say if the salt is iodised it must > be listed as such. As Granny (?) has said uniodised is cheaper, > so most processed food has uniodised salt, the problem is other > sources of iodine that aren't as obvious. > > Salt doesn't naturally have high levels of Iodine. > > I think the Iodine problem is fairly individualised, at least > some seem to have much more of a problem with it than others, > although the research is clear that iodine can interfere with > ATD. > > Personally I never noticed a direct relationship with my food, > I've checked my salt is Iodine free (I use lo-salt, the UK > product is not iodized (and substitutes potassium for most of > the sodium!), they do an export version which is iodized for > countries that mandate salt iodization!), and cut down on sea > food. However I'm sure I get FAR MORE iodine than I need from UK > dairy produce and red meat, both of which are rich sources of > Iodine. > I have also cut down on caffein intake. I was drinking a pot of coffee by myself a > day. Now I have only 2 cups a day. I have a dash of raw sugar with it and > skim milk. I have upped my fruits to 3 day at least (from zero) and veggies > to 1 or 2. > My diet changes haven't been as radical as Granny's, but I've > cut right down on caffeine, alcohol, and my partner and I have > both cut down on the foods with too much processed sugar in, and > the empty calorie food (Apologies to Ben and Jerry, but > wholesome as I'm sure their ice-cream is, it is just too > calorific), crisps, snacks, and sweets/deserts. > > In another thread they claimed ATD make you gain weight, but if > you are regulated properly on them they just return you to near > normal. > Before I was put on PTU I was craving sweets so bad it hurt! Now it's gotten much better. I dont go out to eat that often so when I do I never feel guilty about having dessert!. > The problem is the Graves', where you typically have got use > needing to eating loads of food, often have poor absorbtion. > When you start ATD, the desire for food falls slower than the > need, indeed you can often end up craving salt or sugar due to > imbalances, which all conspire to add extra pounds. > > Starvation style diets are counter productive, my partner and I > have both lost around 28lb or so by cutting out the stuff that > we all know isn't nutritious, we still eat plenty of food, and > don't go hungry. In my case most of the weight lost, was weight > put on whilst hypothyroid due to overtreatment with Carbimazole. > This is a lifelong switch to a healthier diet, and it isn't > hard, and when we are out on special occaisons I'll still eat > the desert. > > Luci " If it's wet and not your's,dont touch it! " ICQ #58763141 Quote Link to comment Share on other sites More sharing options...
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