Re: new to this....

June 30, 2006

(((()))).........hello, and welcome...........OK you don't mention your Free T3 and Free T4 (along with the ranges) here, have you ever had them done? These are more important then the TSH . What was your TSH when your meds were decreased? Mine is 0.05. Yours should have been under 1.00 and nearly zero if you have Hashimoto's Disease. You also may need adrenal support and may do better on Armour then Synthroid.

Here are some great websites, go here and have a read............ Meleese in Oz xxx

http://www.thyrophoenix.com/

www.stopthethyroidmadness.com

http://thyroid.about.com/

-- new to this....

Hello everyone,

My name is and I am 27 years old, live in good Ol Indiana.

My story is a long one, so bare with me.

I was diagnosed hypo when I was 12, yes - 15 years ago.

Taking a small amount of meds, only .05 mg of Snythroid for as long

as I can remember.

I had my son a little over 4 years ago. After I had him, I noticed

that I was off, shaking alot, sweating like it was cool, and just

plain mean. I chalked it up to PPD - which I had due to my son's

birthdefects.

I fianlly got a clue and got my thyroid tested again. I was taking

too much meds, and was dropped to .025 mgs. I thought I was doing

fine after that.

Fast forward to this year, January. My husband and son and I just

moved into a house. We sold our other house For Sale by owner and it

was enough stress for me to want to be committed to a mental ward.

Once we moved, I thought that my mood would improve, but it never

did. I even asked my husband to move out, thinking all of this was

his fault and the fault of his work (he is a cop). That was in Feb.

Then one day my hands went numb and stayed numb. I was highly

concerned, and went to see the doc. He causally mentioned that it

was time for my yearly TSH test. It was a Wednesday. Friday I got a

call that the lab 'must have messed up, because there is no way my

numbers were like that.' So I went back, had another blood draw and

waited.

We went out of town that weekend, for Monday was my son's

appointment at Riley's children Hosp in Indianapolis. Monday, on the

way home, my doc's nurse called and told me 'stop all meds right

now, something is way off. Come back in two weeks for a test.'

Believe it or not I was so relieved.

Two weeks pass, another blood test, and then a referral to an

internal med doc for the same week, he wanted me seen NOW.

Now this is stressful for me, for I am highly concerned. My thoughts

flashed to surgery, treatments, and who knows what else.

I go to the doc, who was shocked to see me, being as young as I was.

I was very upset, emotional, and just plain pissed off that I had to

endure this. My hubby went with me, if anything to hear someone say

that I was just not right, and I really didn't want him to move out!

The doc proceeded to tell me that my numbers were all over the

place. That even if I were 'normal' and were taking the meds I was

taking, I should not be as high as I was.

Ok....now what?

He orders the uptake scan. Which I do and it comes back borderline,

that basically my thyroid is in an aggravated state (much like the

rest of me) and the plan is to wait 4 months and re-do all of this.

I snapped.....what? Wait and be like this for 4 months??? Tell me

you are kidding! He told me that he could not locate my files where

I was orginally diagnosed at age 12, and believes that I have

been 'mis-diagnosed for 15 years' which made me even more mad.

I called and got a blood test taken Tuesday of this week, and I am

currently waiting on a phone call to confirm that I am not crazy

again!

My symptoms look like everyone else I bet.

I can fall asleep, but can't stay asleep. I am constantly hot at

night, but freezing during the day.

I swing from eating everything in site, to literally starving for

days because nothing sounds good.

The constipation is bad - some times going 9 days between movements.

There is a buzz, and I know you all know what I am talking about, a

buzz in my head, just like a fog of mental confusion, that makes it

hard to focus, think or stay motivated.

There is the anxiety attacks that aren't as bad as they were a few

months ago, but I have learned not to fight them....just to let them

happen.

I am always mean, which makes me even more mad. I am not someone who

is normally mean....shoot I let my son play in a bucket of dirt, I

am a pretty free caring soul. But there are days that no one can do

anything right, ever.....those are the really bad days.

The fatigue is bad....where I could stare at a wall all day, knowing

if I close my eyes, I would be asleep in mere moments. But then lie

awake at night watching shadows on the walls.

I am looking for someone to, I don't know, comfort me?? Someone who

knows what I am going through. I am young, and my 20's have been

horrible, praying my 30's are better. I had my gall bladder taken

out at 25 - after 5 months of telling me I had a pulled muscle, the

doc fianlly did a heita scan, confirmed how ill I was, then patted

me on the back for still going to work every day. After surgery I

was in the hospital for weeks from the complications of being so

ill. I just don't want this to turn into the same thing....that is

my greatest fear.

Thanks for listening!

, in Indiana.

July 1, 2006

If you were on 50mcg and your body did not need it , your body would

let you know..15 years mismanaged yes..15 years not hypo being on

Synthroid?? I ma thinking not with out noticing.

What you need to say to the ENDO is antibodies, antibodies and

Antibodies.. it is possible for a person to have Hashimoto's

disease ,Grave's disease and other autoimmune disorders in ones life

time...Your symptoms seem to be bouncing hypo to hyper and back

again.. this means one of two things.. you have both Hashimotos and

Graves and depending on which Antibody is present at a higher rate

depends if you are hypo or hyper..You maybe swinging from

Hashimoto's to Graves..it would explain the mood swings or something

called Grave's rage.. and yes some people even years on Synthroid

switch and become hyper..

The other thing is your antibodies for Hashimotos could be

increasing.. this increase damages the thyroid gland adding extra

hormones into the body causing hpyer symptoms and occasionally hyper

labs..while still hypo..

Labs you need..

TPO..this is an inflammatory marker released by the thyroid during

damage to the thyroid gland.. the cell destruction seen in

Hashimotos causes the TPO number to be high..

TSI.. this is thyroid stimulating hormone.. in Grave's this antibody

is responsible for stimulating the thyroid to produce excessive

hormone regardless of the TSH..

TBII..this is an antibody in Graves disease but it is responsible

for blocking the TSH receptor sites, unlike TPO it does not show

destruction of the thyroid but simply blocks the TSH receptor sites.

TRAB..TSH receptor antibodies..this is a total count of TSI and TBII

but TBII is a newer test and may not be available so with the TRAB

test and TSI test you can calculate the TBII..

It is possible to have all the antibodies and it is common for

someone to have TSI and TBII and have them block each other and

balance each other out and be eurothyroid ..

Considering your changes to thyroid status it is really important to

find out what is going on with your thyroid before they add any meds

back in..you do not want to have Graves and be on thyroid

replacement and you do not want to have a temporary hyper of

Hashimotos and have them give you meds to block your thyroid as in

treatment for Grave's. Right now is the time to find out WHY WHY

WHY? The million dollar question..once that is answered you can get

on the proper treatment path and balance your thyroid act..

Kats3boys

July 1, 2006

You are thinking the same thing I was. I would have signs that I was

being mismanaged. There were signs, but not currently linked until now.

I had nightly panic attacks that were diagnosed as a mitro-valve issue.

I have horrible acne, still do, 18 year of acne does a lot to ones self

esteem.

The doc did tell me that he has seen people swing from hypo to hyper,

although not often, but it does happen.

I did get another blood test this week and go the results yesterday.

3 months ago my TSH looked like this

TSH 17.1 (4-12)

It now looks like this

TSH 12.7 (4-12)

Which does make sense, I am still have symptoms, but not like I was, not

like where it was controlling my life. I can live through lots of it

now....but the headaches are really getting to me.

I have a follow up appt on Aug 4th. He is going to do more blood work

that day again. Then decide to do another uptake or not.

You talk about antibodies. What is Graves and Hashimotos?

I have had so much wrong info in my life. I was 'diagnosed' by my

dentist as having a goiter. My GP looked and agreed. But when I get to

the Internal Med/Endo guy, he disagreed.

It is all so frustrating. I am only 27, ONLY.....and I feel like I am

cheating my family out of some of the best years. I don't want my son to

remember his mommy as some one who was always tired and having

headaches. That is how I remember my mom, whom I don't get along with

now. She was hyper, had her thyroid killed when I was 5. Until then, she

was the meanest person, never nice, or cuddly. We have a horrible

relationship, and I think part of it comes from her 'rejecting' me and

my sister, who also has a horrible relationship with her. My mom would

push us away when we came to get hugs. She blames the thyroid issues. I

can see that now, but there is nothing I can do to go back and change

that, just be aware that I can't do that with my son.

You talk about that Grave's rage....wow, I think I know what you are

talking about. I do snap on the littlest thing, usually it is something

the dog has done, or some silly mistake I have made, and I am foul for a

long time after that.

It got to the point where if I was mad at hubby, he would tell me that

he would come back to it in an hour, and if I was still angry about it,

he would talk to me, but if I wasn't then he would know that it was the

hormones talking. He has been so supportive and I feel like I am

cheating him out of his wife.

July 1, 2006