Guest guest Posted June 2, 2005 Report Share Posted June 2, 2005 Hi Rita! Thank you, I hope we all can remain stable for a long time. The diet I'm following is a low-sodium, low potassium, low phosphorus. And they keep encouraging me to eat more meat. It still has a lot of variety, despite being able to eat a few favourite things. The surprising thing was that my neph said I did not need a renal multivitamin right now. So I am only taking a calcium carbonate for phosphorus, salmon fish oil pills and iron pills. Sophia > Hi Sophia, > > This is great news! I hope and pray that you will be able to remain stable > for a long time to come! What sort of restricted diet are you following? > Hugs, Rita > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2005 Report Share Posted June 4, 2005 I use this website for conversions Sophia: _http://nephron.com/cgi-bin/SI.cgi_ (http://nephron.com/cgi-bin/SI.cgi) The 350 and 444 are already in SI units. This website can be used to calculate to US terms which is mg/dl for creatinine. In a message dated 6/2/2005 10:17:56 P.M. Pacific Daylight Time, yipee_ladybug@... writes: Hi , How do you calculate to SI units? And the 350, 444, etc. what units are they using? Sophia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2005 Report Share Posted June 4, 2005 I use this website for conversions Sophia: _http://nephron.com/cgi-bin/SI.cgi_ (http://nephron.com/cgi-bin/SI.cgi) The 350 and 444 are already in SI units. This website can be used to calculate to US terms which is mg/dl for creatinine. In a message dated 6/2/2005 10:17:56 P.M. Pacific Daylight Time, yipee_ladybug@... writes: Hi , How do you calculate to SI units? And the 350, 444, etc. what units are they using? Sophia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2005 Report Share Posted June 4, 2005 I use this website for conversions Sophia: _http://nephron.com/cgi-bin/SI.cgi_ (http://nephron.com/cgi-bin/SI.cgi) The 350 and 444 are already in SI units. This website can be used to calculate to US terms which is mg/dl for creatinine. In a message dated 6/2/2005 10:17:56 P.M. Pacific Daylight Time, yipee_ladybug@... writes: Hi , How do you calculate to SI units? And the 350, 444, etc. what units are they using? Sophia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2005 Report Share Posted June 4, 2005 Hi Sophia, I do rejoice with your good news. Hopefully with diet you'll stay stable for another 2 years or more. It would be the best thing if you and can do better than me. Stay healthy, Jing yipee_ladybug wrote: I saw my neph today (I just found out about this appt the night before!?). Anyways, good news! I guess from March to May, there was considerable improvement. I've never seen my neph so happy to see and discuss my condition with me. I went from a creatinine of 444 in March to 350 in May. All other bloodwork is fine (potassium 5.1, phosphorus 1.3, albumin 35). He wants me to stay on this new restricted diet as it seems to be working out so well. Kidney function is still at 13%. His opinion is that since my kidney function improved, a transplant for me is no longer as imminent as he thought. Kris and I can take more time to arrange for the transplant operation, when we are ready. I asked him why kidney function/creatinine could possibly change so much or improve, and he's not sure. He says creatinine may be variable but tends to stay at certain level, so if it changes significantly (esp lower function) then it's a problem. I hope that you get lots of rest and look after yourself. I hope that in time your labs may improve like mine did. Sophia To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ To unsubcribe via email, iga-nephropathy-unsubscribe Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2005 Report Share Posted June 4, 2005 Hi Sophia, I do rejoice with your good news. Hopefully with diet you'll stay stable for another 2 years or more. It would be the best thing if you and can do better than me. Stay healthy, Jing yipee_ladybug wrote: I saw my neph today (I just found out about this appt the night before!?). Anyways, good news! I guess from March to May, there was considerable improvement. I've never seen my neph so happy to see and discuss my condition with me. I went from a creatinine of 444 in March to 350 in May. All other bloodwork is fine (potassium 5.1, phosphorus 1.3, albumin 35). He wants me to stay on this new restricted diet as it seems to be working out so well. Kidney function is still at 13%. His opinion is that since my kidney function improved, a transplant for me is no longer as imminent as he thought. Kris and I can take more time to arrange for the transplant operation, when we are ready. I asked him why kidney function/creatinine could possibly change so much or improve, and he's not sure. He says creatinine may be variable but tends to stay at certain level, so if it changes significantly (esp lower function) then it's a problem. I hope that you get lots of rest and look after yourself. I hope that in time your labs may improve like mine did. Sophia To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ To unsubcribe via email, iga-nephropathy-unsubscribe Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you --------------------------------- Quote Link to comment Share on other sites More sharing options...
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