from Donna - Dr. Crazies!

[Guest guest]

, I can understand your point! And, too, I have learned sooooo much from our

group here. I see Neuro Dr every 6 mos., I had called him about something

couple of months ago. I said to him something concerning my PLS - and he asked

what PLS was--duh. I really do like his personality and care for me, but if I

could have reached thru the phone--I would have CHOKED him~~I thought to

myself~~well-----you dumb a@@! That really ticked me! I see him the 25th & I

guess we'll go from there. By the way, I had to " spell " out what the PLS stood

for-------duh.

Take care, Donna - PLS -- Iowa

Re: Re: Doctor visit crazies

That's part of the reason I haven't seen a neuro for maybe 7 or 8

years. I am as comfortable as I believe one can be with such

significant disabilities and just get on with life as best I can

manage. As you said, a visit to a neuro just forces you out of your

comfort zone and to what end? I learn far more about PLS from

PLS-FRIENDS and other sources on the internet than any neuro here has

ever told me. Maybe if I was in the US and had access to one of the

renowned PLS neuros things would be different, but over here the neuros

I did see have only seen one or two cases before.

Why would I bother putting myself through the hassle of seeing a neuro

when people on here can tell me far more collectively about PLS than I

could ever find out seeing a neuro. How many times have we heard

(uninformed?) neuros tell people for example that urinary urgency is not

part of PLS, yet a significant proportion of us here (including myself)

have it. WE know better!! :-)

Maureen wrote:

> HI Di

>

> Yes I always go kinda nuts after seeing the neuro. When you dont see

> them, you accept your illness as part of your life (well I do) and

> then you see the doc and you realise you do have a problem and a big

> one at that...........

--

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,-._|\ Covington

/ Oz \

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